Long-Term Psychological Impact of Carrying a BRCA1/2 Mutation and Prophylactic Surgery: A 5-Year Follow-Up Study
van Oostrom, Iris, Meijers-Heijboer, Hanne, Lodder, Litanja N., Duivenvoorden, Hugo J., van Gool, Arthur R., Seynaeve, Caroline, van der Meer, Conny A., Klijn, Jan G.M., van Geel, Bert N., Burger, Curt W., Wladimiroff, Juriy W., Tibben, Aad·2003·Journal of Clinical Oncology
Cited by (281)
Items 101–200 of 281
- Unmet support needs and distress among women with a BRCA1/2 mutationAshley Farrelly, VICTORIA M. WHITE, Bettina Meiser, Michael Jefford, Mary‐Anne Young, Sandra Ieropoli, Ingrid Winship, Jessica Duffy · 2012 · Familial Cancer
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- Unraveling the Next ChapterEllen T. Matloff, Rachel E. Barnett, Sharon L. Bober · 2009 · The Cancer Journal
- Standard psychological consultations and follow up for women at increased risk of hereditary breast cancer considering prophylactic mastectomyTan, Murly BM, Bleiker, Eveline MA, Menke-Pluymers, Marian BE, Van Gool, Arthur R, van Dooren, Silvia, Van Geel, Bert N, Tilanus-Linthorst, Madeleine MA, Bartels, Karina CM, Klijn, Jan GM, Brekelmans, Cecile TM et al. · 2009 · Hereditary Cancer in Clinical Practice
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- Review ArticlePaige E. Tucker, Paul Andrew Cohen · 2017 · International Journal of Gynecological Cancer
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- Psychological distress in newly diagnosed colorectal cancer patients following microsatellite instability testing for Lynch syndrome on the pathologist’s initiativeKarin M. Landsbergen, Judith B. Prins, Han G. Brunner, Peter van Duijvendijk, Fokko M. Nagengast, J. Han van Krieken, Marjolijn J. L. Ligtenberg, Nicoline Hoogerbrugge · 2012 · Familial Cancer
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- Emotional and sexual concerns in women undergoing pelvic surgery and associated treatment for gynecologic cancer.Cara Stabile, Abigail Gunn, Yukio Sonoda, Jeanne Carter · 2015 · PubMed Central
- Uptake of prenatal diagnostic testing for retinoblastoma compared to other hereditary cancer syndromes in the NetherlandsCharlotte J. Dommering, Lidewij Henneman, Annemarie H. van der Hout, Marianne A. Jonker, Carli M.J. Tops, Ans M.W. van den Ouweland, Rob B. van der Luijt, Arjen R. Mensenkamp, Frans B.L. Hogervorst, Egbert J. W. Redeker et al. · 2016 · Familial Cancer
- Contralateral Prophylactic Mastectomy: Caveat EmptorAbram Recht · 2009 · Journal of Clinical Oncology
- Interventions to improve psychosocial well-being in female BRCA-mutation carriers following risk-reducing surgeryLisa Jeffers, Joanne Reid, Donna Fitzsimons, Patrick J. Morrison, Martin Dempster · 2019 · Cochrane Database of Systematic Reviews
- A Systematic Review on Cost-effectiveness Studies Evaluating Ovarian Cancer Early Detection and Prevention StrategiesGaby Sroczynski, Artemisa Gogollari, Felicitas Kuehne, Lára R. Hallsson, Martin Widschwendter, Nora Pashayan, Uwe Siebert · 2020 · Cancer Prevention Research
- Predictors of decision making in families at risk for inherited breast/ovarian cancer.Suzanne Mellon, James J. Janisse, Robin B. Gold, Michelle Cichon, Lisa Berry‐Bobovski, Michael A. Tainsky, Michael Steven Simon · 2009 · Health Psychology
- Female BRCA mutation carriers with a preference for prophylactic mastectomy are more likely to participate an educational-support group and to proceed with the preferred intervention within 2 yearsKarin M. Landsbergen, Judith B. Prins, Yvonne J. L. Kamm, Han G. Brunner, Nicoline Hoogerbrugge · 2009 · Familial Cancer
- Time to decide about risk-reducing mastectomy: A case series of BRCA1/2 gene mutation carriersMary McCullum, Joan L. Bottorff, Mary T. Kelly, Stephanie A. Kieffer, Lynda G. Balneaves · 2007 · BMC Women s Health
- Challenges in managing genetic cancer risk: a long-term qualitative study of unaffected women carrying BRCA1/BRCA2 mutationsMaria Caiata Zufferey, Olivia Pagani, Viviane Cina, Véronique Membrez, Monica Taborelli, Sheila Unger, Anne E. Murphy, Christian Monnerat, Pierre Olivier Chappuis · 2014 · Genetics in Medicine
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- Long‐term cohort study of women at intermediate risk of familial breast cancer: experiences of living at riskPaul D. Bennett, Evelyn P. Parsons, Kate E. Brain, Kerenza Hood, on behalf of the reTrace Study Team · 2009 · Psycho-Oncology
- Distress, anxiety, and depression in persons with hereditary cancer syndromes: Results from a nationwide cross‐sectional study in GermanyAnna Maria Kastner, Josefine Fischer‐Jacobs, Jan Brederecke, Andrea Hahne, Tanja Zimmermann · 2023 · Cancer Medicine
- A Multi‐Case Report of the Pathways To and Through Genetic Testing and Cancer Risk Management forBRCAMutation‐Positive Women Aged 18–25Lindsey M. Hoskins, Allison Werner‐Lin · 2012 · Journal of Genetic Counseling
- A Counselling Model for BRCA1/2 Genetic Susceptibility TestingIris van Oostrom, Aad Tibben · 2004 · Hereditary Cancer in Clinical Practice
- Anxiety and depression symptoms among women attending group-based patient education courses for hereditary breast and ovarian cancerWenche Listøl, Hildegunn Høberg‐Vetti, Geir Egil Eide, Cathrine Bjorvatn · 2017 · Hereditary Cancer in Clinical Practice
- Inherited Medullary Thyroid Cancer and the Duty to Warn: Revisiting Pate v. Threlkel in Light of HIPAAM. Sara Rosenthal, Heather Pierce · 2005 · Thyroid
- Psychosocial outcomes and counselee satisfaction following genetic counseling for hereditary breast and ovarian cancer: A patient-reported outcome studyAnne Oberguggenberger, Monika Judith Sztankay, Raphael J. Morscher, Barbara Sperner‐Unterweger, Ingrid B. Weber, Michael Hubalek, Georg Kemmler, Johannes Zschocke, Caroline Lopes Martini, Daniel Egle et al. · 2016 · Journal of Psychosomatic Research
- Living With Genetic Vulnerability: a Life Course PerspectiveRebekah Hamilton, Nancy A. Innella, Dawn T. Bounds · 2015 · Journal of Genetic Counseling
- Experiences of Genetic Counseling forBRCA1/2Among Recently Diagnosed Breast Cancer Patients: A Qualitative InquirySusan Thomas Vadaparampil, Gwendolyn P. Quinn, Jennifer Brzosowicz, Cheryl A. Miree · 2008 · Journal of Psychosocial Oncology
- Relationship satisfaction predicts sexual activity following risk-reducing salpingo-oophorectomyTierney K. Lorenz, Bonnie McGregor, Elizabeth M. Swisher · 2014 · Journal of Psychosomatic Obstetrics & Gynecology
- Cost-Effectiveness of Early Detection and Prevention Strategies for Endometrial Cancer—A Systematic ReviewGaby Sroczynski, Artemisa Gogollari, Annette Conrads‐Frank, Lára R. Hallsson, Nora Pashayan, Martin Widschwendter, Uwe Siebert · 2020 · Cancers
- Patient reported outcomes after risk-reducing surgery in patients at increased risk of ovarian cancerLauren Philp, Stephanie Alimena, Winslow Ferris, A. Saini, Amy J. Bregar, M.G. del Carmen, Eric Lawernce Eisenhauer, Whitfield B. Growdon, Annekathryn Goodman, K.M. Dorney et al. · 2021 · Gynecologic Oncology
- Am I My Genes? Perceived Genetic Etiology, Intrapersonal Processes, and HealthBenjamin Y. Cheung, Ilan Dar‐Nimrod, Karen Gonsalkorale · 2014 · Social and Personality Psychology Compass
- Identifying Needs: a Qualitative Study of women's Experiences Regarding Rapid Genetic Testing for Hereditary Breast and Ovarian Cancer in the DNA BONus StudyMirjam Tonheim Augestad, Hildegunn Høberg‐Vetti, Cathrine Bjorvatn, Ragnhild Johanne Tveit Sekse · 2016 · Journal of Genetic Counseling
- The Cancer Worry Scale Revised for Breast Cancer Genetic CounselingAnita Caruso, Cristina Vigna, Paola Gremigni · 2017 · Cancer Nursing
- Who is prone to high levels of distress after prophylactic mastectomy and/or salpingo-ovariectomy?Bresser, P.J.C., Van Gool, A.R., Seynaeve, C., Duivenvoorden, H.J., Niermeijer, M.F., van Geel, A.N., Menke, M., Klijn, J.G.M., Tibben, A. · 2007 · Annals of Oncology
- Building the Cancer Family: Family Planning in the Context of Inherited Breast and Ovarian Cancer RiskA. Werner-Lin · 2010 · Journal of the Society for Social Work and Research
- Living with the BRCA1 and BRCA2 genetic mutation: Learning how to adapt to a virtual chronic illnessAndré Samson, Julia DiMillo, Anne Thériault, S. Lowry, Linda Corsini, S. Verma, Eva M. Tomiak · 2013 · Psychology Health & Medicine
- Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndromeM. J. Esplen, Noreen Stuckless, Steve Gallinger, Melyssa D. Aronson, Heidi Rothenmund, Kara Semotiuk, Jacqueline Stokes, Christine Y. Way, Julie B. Green, Kate Butler et al. · 2011 · Clinical Genetics
- Study on the psychosocial aspects of risk-reducing salpingo-oophorectomy (RRSO) in BRCA1/2 mutation carriers in Japan: a preliminary reportMika Shigehiro, Mizuho Kita, Sayoko Takeuchi, Yuumi Ashihara, Masami Arai, Hitoshi Okamura · 2015 · Japanese Journal of Clinical Oncology
- Genotype Phenotype Correlation in Li-Fraumeni Syndrome Kindreds and its Implications for ManagementRussell N. Moule, Sameer G. Jhavar, Rosalind A. Eeles · 2006 · Familial Cancer
- Prophylactic mastectomy: the Rotterdam experienceAlbertus N. van Geel · 2003 · The Breast
- BRCA genetic testing of individuals from families with low prevalence of cancer: experiences of carriers and implications for population screeningS. Shkedi-Rafid, E. Gabai-Kapara, J. Grinshpun‐Cohen, E. Levy-Lahad · 2012 · Genetics in Medicine
- Group medical visits in the follow-up of women with a BRCA mutation: design of a randomized controlled trialAnnemiek Visser, Judith B. Prins, Nicoline Hoogerbrugge, Hanneke W.M. van Laarhoven · 2011 · BMC Women s Health
- Genetics: Breast Cancer as an ExemplarRebekah Hamilton · 2009 · Nursing Clinics of North America
- Opinions of women with high inherited breast cancer risk about prophylactic mastectomy: an initial evaluation from a screening trial including magnetic resonance imaging and ductal lavageAllison W. Kurian, Anne‐Renee Hartman, Meredith A. Mills, James M. Ford, Bruce Lewis Daniel, Sylvia K. Plevritis · 2005 · Health Expectations
- The research landscape of the quality of life or psychological impact on gynecological cancer patients: A bibliometric analysisJiayuan Zhao, Yujia Kong, Yang Xiang, Junjun Yang · 2023 · Frontiers in Oncology
- Decision Making and Distress Among Individuals Diagnosed with Follicular LymphomaJennifer L. Kilkus, John W. Hayslip, Jamie L. Studts · 2012 · Journal of Psychosocial Oncology
- Patient-Reported Outcome Measures may optimize shared decision-making for cancer risk management in BRCA mutation carriersLaurentine S. E. van Egdom, M. A. de Kock, Inge Apon, Marc A.M. Mureau, Cornelis Kees Verhoef, Jan Antonius Hazelzet, Linetta B. Koppert · 2019 · Breast Cancer
- Which factors predict proposal and uptake of psychological counselling after BRCA1/2 test result disclosure?Christine Maheu, Anne‐Déborah Bouhnik, Catherine Noguès, Emmanuelle Mouret‐Fourme, Dominique Stoppa‐Lyonnet, Christine Lasset, Pascaline Berthet, Jean‐Pierre Fricker, Olivier Caron, E. Luporsi et al. · 2013 · Psycho-Oncology
- Genetic testing: When prediction generates stigmatizationJulia DiMillo, André Samson, Anne Thériault, S. Lowry, Linda Corsini, Shailendra Verma, Eva M. Tomiak · 2013 · Journal of Health Psychology
- Coping Mechanisms, Psychological Distress, and Quality of Life Prior to Cancer Genetic CounselingValentina Elisabetta Di Mattei, Letizia Carnelli, Martina Bernardi, Rebecca Bienati, Chiara Brombin, Federica Cugnata, Emanuela Rabaiotti, Milvia Zambetti, Laura Sarno, Massimo Candiani et al. · 2018 · Frontiers in Psychology
- The withdrawal from oncogenetic counselling and testing for hereditary and familial breast and ovarian cancer. A descriptive study of an Italian sampleAnita Caruso, Cristina Vigna, Gabriella Maggi, Fabio Massimo Sega, Francesco Cognetti, Antonella Savarese · 2008 · Journal of Experimental & Clinical Cancer Research
- Cancer risk comparative perception and overscreening behaviours of non-carriers from BRCA1/2 familiesIsabelle Milhabet, Christelle Duprez, Aurélie Krzeminski, Véronique Christophe · 2013 · European Journal of Cancer Care
- Challenges and Opportunities for Cancer Predisposition Cascade Screening for Hereditary Breast and Ovarian Cancer and Lynch Syndrome in Switzerland: Findings from an International WorkshopChristos Nikolaidis, Chang Ming, Carla Pedrazzani, Tina van der Horst, Andrea Patricia Kaiser-Grolimund, Zanfina Ademi, Rosmarie Bührer-Landolt, Nicole Bürki, Maria Caiata Zufferey, Victoria Lee Champion et al. · 2018 · Public Health Genomics
- Is the psychological impact of genetic testing moderated by support and sharing of test results to family and friends?GENEPSO Cohort, Julie Lapointe, Michel Dorval, Catherine Noguès, Roxane Fabre, Claire Julian‐Reynier · 2013 · Familial Cancer
- Making the Decision to Participate in Predictive Genetic Testing for Arrhythmogenic Right Ventricular CardiomyopathyApril D. Pike, Fern Brunger · 2014 · Journal of Genetic Counseling
- Decisions and outcomes of genetic testing for inherited breast cancer riskChanita Hughes Halbert · 2004 · Annals of Oncology
- Changes in Specialists’ Perspectives on Cancer Genetic Testing, Prophylactic Surgery and Insurance Discrimination: Then and NowEllen T. Matloff, Danielle C. Bonadies, Anne E. Moyer, Karina L. Brierley · 2013 · Journal of Genetic Counseling
- Concerns and Expectations of Risk-Reducing Surgery in Women with Hereditary Breast and Ovarian Cancer SyndromePaola Modaffari, Riccardo Ponzone, Alberta Ferrari, Isabella Cipullo, Viola Liberale, Marta D’Alonzo, Furio Maggiorotto, Nicoletta Biglia · 2019 · Journal of Clinical Medicine
- The evolution of worry after breast cancer risk assessment: 6‐year follow‐up of the TRACE study cohortKate E. Brain, Evelyn P. Parsons, Paul D. Bennett, Rebecca L. Cannings-John, Kerenza Hood · 2010 · Psycho-Oncology
- Psychological Aspects of Hereditary Cancer Risk Counseling and Genetic TestingLisa G. Aspinwall, Jennifer M. Taber, Wendy K. Kohlmann, Sancy Ann Leachman · 2012 · Springer eBooks
- Methodology in longitudinal studies on psychological effects of predictive DNA testing: a reviewReinier Timman, T Stijnen, Aad Tibben · 2004 · Journal of Medical Genetics
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