The DOI matches its Crossref record; 23 of the 23 references it cites were found in a registry or an index.
Availability and Use of Palliative Care and End-of-Life Services for Pediatric Oncology Patients
Open accessAbstract
Purpose: Palliative care prevents or relieves the symptoms caused by life-threatening medical conditions. Previous surveys have shown both underuse and lack of availability of these services for children with cancer throughout North America. We sought to investigate the current practices and resources surrounding palliative and end-of-life care among participating institutions of the Children's Oncology Group (COG). Methods: A survey regarding practices and resources was developed by the COG palliative care subcommittee and was sent to all 232 institutions to complete for the calendar year 2005. Results: The survey was completed by 81% of the institutions. Per institution, there were a mean of 64.6 newly diagnosed patients and 17.7 patients experiencing relapse. A palliative care team was available in 58% of institutions, a pain service in 90%, a hospice in 60%, a psychosocial support team in 80%, and a bereavement program in 59%. Complementary and alternative medicine was available in 39% of institutions and in 95% of the COG institution's community. Most services, even when available, were not well used by patients. Conclusion: Despite the well-established benefit of pediatric palliative care, it is only offered in 58% of COG institutions caring for children with cancer. In an era where the benefit of palliative care has been clearly established, this number should approach 100%. Efforts should be directed toward understanding barriers to provision of such services, so that they are available and well used at all childhood cancer centers.
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“Yet bereavement programs seem to be underused.9”
From Mental health services for parents who lost a child to cancer: if we build them, Will they come? (2015) · cites this paper as [9]
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Landis, S., Murray, T., Bolden, S., & Wingo, P. A. (1999) · CA A Cancer Journal for Clinicians · doi:10.3322/canjclin.49.1.8 · Cited by 3,068
Symptoms and Suffering at the End of Life in Children with Cancer
Wolfe, J., Grier, H. E., Klar, N. S., Levin, S. B., Ellenbogen, J. M., Salem-Schatz, S. R., Emanuel, E. J., & Weeks, J. C. (2000) · New England Journal of Medicine · doi:10.1056/nejm200002033420506 · Cited by 1,188
Committee on Bioethics and Committee on Hospital Care (2000) · Pediatrics · doi:10.1542/peds.106.2.351 · Cited by 659
Himelstein, B. P., Hilden, J. M., Boldt, A. M., & Weissman, D. E. (2004) · New England Journal of Medicine · doi:10.1056/nejmra030334 · Cited by 570
(2006) · Springer eBooks · doi:10.1007/978-3-540-29805-2_3165 · Cited by 534
Understanding of Prognosis Among Parents of Children Who Died of Cancer
Wolfe, J., Klar, N. S., Grier, H. E., Duncan, J., Salem-Schatz, S. R., Emanuel, E. J., & Weeks, J. C. (2000) · JAMA · doi:10.1001/jama.284.19.2469 · Cited by 470
When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families
Children, E.-O.-L. C. F., Families, T., Field, M. J., & Behrman, R. E. (2003) · Cited by 416
Parent and Physician Perspectives on Quality of Care at the End of Life in Children With Cancer
Mack, J. W., Hilden, J. M., Watterson, J., Moore, C., Turner, B., Grier, H. E., Weeks, J. C., & Wolfe, J. (2005) · Journal of Clinical Oncology · doi:10.1200/jco.2005.04.010 · Cited by 346
Hilden, J. M., Emanuel, E. J., Fairclough, D. L., Link, M. P., Foley, K. M., Clarridge, B. C., Schnipper, L. E., & Mayer, R. J. (2001) · Journal of Clinical Oncology · doi:10.1200/jco.2001.19.1.205 · Cited by 324
Bluebond‐Langner, M., Belasco, J. B., Goldman, A., & Belasco, C. (2007) · Journal of Clinical Oncology · doi:10.1200/jco.2006.08.7759 · Cited by 211
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Pediatric Palliative Care Programs in Children’s Hospitals: A Cross-Sectional National Survey
Feudtner, C., Womer, J. W., Augustin, R., Remke, S. S., Wolfe, J., Friebert, S. E., & Weissman, D. E. (2013) · PEDIATRICS · doi:10.1542/peds.2013-1286 · Cited by 270
Self-citationThe Growth of Palliative Care in the United States
Hughes, M. T., & Smith, T. J. (2014) · Annual Review of Public Health · doi:10.1146/annurev-publhealth-032013-182406 · Cited by 257
Levine, D. R., Mandrell, B. N., Sykes, A. D., Pritchard, M., Gibson, D. V., Symons, H. J., Wendler, D. S., & Baker, J. N. (2017) · JAMA Oncology · doi:10.1001/jamaoncol.2017.0368 · Cited by 211
Weaver, M. S., Heinze, K. E., Bell, C. J., Wiener, L., Garee, A. M., Kelly, K. P., Casey, R. L., Watson, A., & Hinds, P. S. (2016) · Palliative Medicine · doi:10.1177/0269216315583446 · Cited by 184
Bereavement Follow‐Up After the Death of a Child as a Standard of Care in Pediatric Oncology
Lichtenthal, W. G., Sweeney, C. R., Roberts, K. E., Corner, G. W., Donovan, L. A., Prigerson, H. G., & Wiener, L. (2015) · Pediatric Blood & Cancer · doi:10.1002/pbc.25700 · Cited by 143
Metadata
- Authors
- Johnston, D. L., Nagel, K., Friedman, D. L., Meza, J. L., Hurwitz, C. A., & Friebert, S.
- Affiliations
- Seattle Children's Hospital (US)
- Venue
- Journal of Clinical Oncology
- Published
- 2008-10-01
- Volume
- 26
- Issue
- 28
- Pages
- 4646-4650
- ISSN
- 0732-183X (ISSN-L)
- 1527-7755
- OpenAlex
- W2095988745
- Cited by
- 150
- References
- 22
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 2 · 2023: 5 · 2022: 5 · 2021: 10 · 2020: 10 · 2019: 7 · 2018: 11 · 2017: 11 · 2016: 8 · 2015: 13 · 2014: 6 · 2013: 13 · 2012: 11
- FWCI
- 10.55
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Clinical Oncology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Keywords
- pediatric palliative care, end-of-life care, childhood cancer, Children's Oncology Group, hospice care, pain management, psychosocial support, complementary and alternative medicine, barriers to palliative care
- MeSH terms
- Child, Female, Humans, Male, Neoplasms, North America, Palliative Care, Pediatrics, Surveys and Questionnaires, Terminal Care
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