How family caregivers of persons with advanced cancer assist with upstream healthcare decision-making: A qualitative study

Dionne-Odom, J. Nicholas, Ejem, Deborah, Wells, Rachel, Barnato, Amber E., Taylor, Richard A., Rocque, Gabrielle B., Turkman, Yasemin E., Kenny, Matthew, Ivankova, Nataliya V., Bakitas, Marie A., Martin, Michelle Y.·2019·PLOS ONE
DOI 10.1371/journal.pone.0212967

Cited by (111)

Items 101–111 of 111

  1. Additional file 1 of The Project ENABLE Cornerstone randomized controlled trial: study protocol for a lay navigator-led, early palliative care coaching intervention for African American and rural-dwelling advanced cancer family caregivers
    Avery C. Bechthold, Andrés Azuero, Pisu, Maria, Jennifer Young Pierce, Williams, Grant R., Taylor, Richard A., Wells, Rachel, Kayleigh Curry, Rhiannon Deierhoi Reed, Erin R. Harrell et al. · 2022 · Figshare
  2. Additional file 2 of Experiences of bereaved family caregivers with shared decision making in palliative cancer treatment: a qualitative interview study
    Sanne P. C. van Oosterhout, Daisy J. M. Ermers, Ploos van Amstel, Floor K., van Herpen, Carla M. L., Schoon, Yvonne, Perry, Marieke, Maartje J. van Geel, Evelien J. M. Kuip, Yvonne Engels · 2021 · Figshare
  3. Discordance in decision-making between patients with advanced cancer and caregivers from the perspective of healthcare professionals in specialist palliative care: A focus group study
    Joshua Hernon, John Lombard, Suzanne Guerin, Hannah Joan Featherstone, Norma O’Leary, Geraldine Foley · 2025 · Palliative & Supportive Care
  4. Critical Decisions, Interpersonal Communication, and Context: Insights Into Doctors’ Decision-Making Process in Cancer Care at a Government Hospital in India
    Nishtha Jain, Purnima Singh · 2026 · Journal of Cognitive Engineering and Decision Making
  5. Roles undertaken by family caregivers to help individuals with cancer manage symptoms: a qualitative study of caregivers, patients, and oncology clinicians
    James Nicholas Dionne-Odom, Nicole L. Henderson, Tanvi V. Padalkar, Reed W. Bratches, Macy Stockdill, Etzael Ortiz Olguin, Gabrielle Betty Rocque · 2026 · Supportive Care in Cancer
  6. Palliative Care in Neuro-oncology: A Narrative Review of Principles and Practices
    Ruchi Pathak, Kirandeep Kaur, Manbir Kaur, Swati Chhabra · 2026 · Journal of onco-anaesthesiology and perioperative medicine.
  7. A descriptive study of cancer care experiences and burden of rural South Dakotans
    Sarah Mollman, Teddi Dowling, Patricia Woolridge, Jamie Hillmer, James Nicholas Dionne-Odom, Marie Anne Bakitas, Hossein Moradi Rekabdarkolaee, Brandon M. Varilek · 2026 · Palliative Care and Social Practice
  8. Fighting alone: Caregiving burden and coping strategies among the Chinese only-child “sandwich generation” facing parental cancer
    Sheng Bao, Yubing Chen, Shenghui Cheng · 2026 · European Journal of Oncology Nursing
  9. The experience of family caregivers along the palliative care pathway: a qualitative case study
    Marzia Cettina Severino, Sabina De Rosis · 2026 · Qualitative Research in Organizations and Management An International Journal
  10. Case Study: Factors Causing the High Referral Ratio of BPJS Outpatients at the Mataram Police Primary Clinic in 2025
    Ida Ayu Swathi Antari, Sastrawan Sastrawan, Lalu Abdul Khalik · 2026 · Jurnal Penelitian Pendidikan IPA
  11. Living With Loss: The Caregiver Journey and Unmet Needs Across the Cervical Cancer Care Continuum in India
    Ishu Kataria, Sharon Jose, Paul Jebaraj, Rakesh Kumar, Ruby Ramamoorthy, Sangeetha Rathnam K., Laura C. Nyblade, Biswajit Paul · 2026 · JCO Global Oncology