The DOI matches its Crossref record; 3 of the 3 references it cites were found in a registry or an index.
Psychological impact on parents of children with congenital adrenal hyperplasia: a study from Sri Lanka
Abstract
INTRODUCTION: Congenital adrenal hyperplasia (CAH) is a group of autosomal recessively inherited disorders with significant morbidity. The long-term implications result in immense psychological stress to the parents. This study assessing the psychological impact on the parents is a first in Sri Lanka and one of the few worldwide. OBJECTIVE: Document the presence of depressive symptoms in parents of children with CAH. DESIGN: Study participants were 37 parents of children diagnosed with CAH who were attending an endocrinology clinic of the largest children's hospital in Sri Lanka. Centre for Epidemiological Studies-Depression scale (CES-D), a psychometrically sound scale for assessing depressive symptomatology, was used. RESULTS: The study classified 59% of the parents as being affected, and the psychological impact on them did not reduce with time. CONCLUSION: Parents of children with CAH demonstrated symptoms of depression that did not abate with the passage of time.
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“Needed medications may be available only on the black market (137,556,733).”
From Congenital Adrenal Hyperplasia—Current Insights in Pathophysiology, Diagnostics, and Management (2022) · cites this paper as [556]
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“Moreover, many developing countries also face poverty and insufficient basic medical knowledge (556,733).”
From Congenital Adrenal Hyperplasia—Current Insights in Pathophysiology, Diagnostics, and Management (2022) · cites this paper as [556]
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“Myths and misconceptions about ambiguous genitalia in certain communities may lead to discrimination against patients and families (556,560).”
From Congenital Adrenal Hyperplasia—Current Insights in Pathophysiology, Diagnostics, and Management (2022) · cites this paper as [556]
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Metadata
- Authors
- de Silva, K. S. H., de Zoysa, P., Dilanka, W. M. S., & Dissanayake, B. S.
- Affiliations
- University of Colombo (LK)
- Corresponding author
- de Zoysa, Piyanjali
- ORCID
- de Zoysa, Piyanjali
- Venue
- Journal of Pediatric Endocrinology and Metabolism
- Publisher
- Walter de Gruyter GmbH
- Published
- 2014-01-01
- Volume
- 27
- Issue
- 5-6
- Pages
- 475-8
- ISSN
- 0334-018X (ISSN-L)
- 2191-0251
- OpenAlex
- W2080087292
- Cited by
- 22
- References
- 3
- Citations by year
- 2025: 3 · 2024: 3 · 2023: 4 · 2022: 1 · 2021: 2 · 2020: 2 · 2019: 2 · 2018: 2 · 2017: 1 · 2016: 1 · 2015: 1
- FWCI
- 0.41
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Endocrinology and Metabolism (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Sexual Differentiation and Disorders
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Adrenal Hormones and Disorders
- Keywords
- congenital adrenal hyperplasia, parental depression, depressive symptoms, psychological impact of chronic illness, parents of children with chronic illness, Sri Lanka
- MeSH terms
- Adrenal Hyperplasia, Congenital, Adult, Child, Child, Preschool, Depression, Family, Fathers, Female, Humans, Infant, Infant, Newborn, Male, Mothers, Parents, Surveys and Questionnaires, Sri Lanka, Prevalence
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