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In the Closet with Illness: Epilepsy, Stigma Potential and Information Control
Abstract
In this paper we extend and modity the metaphor of being in or out of the closet to analyze how people manage information to control the stigma potential of epilepsy. Based on 80 depth interviews, our analysis offers an “insider's” perception of stigma. We demonstrate how concealment strategies can be learned from coaches, that strategies for concealment vary, and that rather than simply indicating a situation one is in or out of, the closet of epilepsy has a revolving door. We also find, paradoxically, that both “instrumental telling” and concealing can be means to the same ends. We conclude by discussing how being in the closet with illness doubly isolates individuals from one another.
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Citations
Cites
The Discovery of Grounded Theory: Strategies for Qualitative Research
Glaser, B. G., & Strauss, A. L. (2017) · Aldine (Routledge reprint) · doi:10.4324/9780203793206 · Cited by 25,789
Cited by
A Modified Labeling Theory Approach to Mental Disorders: An Empirical Assessment
Link, B. G., Cullen, F. T., Struening, E., Shrout, P. E., & Dohrenwend, B. P. (1989) · American Sociological Review · doi:10.2307/2095613 · Cited by 1,935
Loss of self: a fundamental form of suffering in the chronically ill
Charmaz, K. (1983) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep10491512 · Cited by 1,794
Out of Sight But Not Out of Mind: Managing Invisible Social Identities in the Workplace
Clair, J. A., Beatty, J. E., & Maclean, T. L. (2005) · Academy of Management Review · doi:10.5465/amr.2005.15281431 · Cited by 866
The meaning of medications: Another look at compliance
Conrad, P. (1985) · Social Science & Medicine · doi:10.1016/0277-9536(85)90308-9 · Cited by 818
Self-citationRagins, B. R. (2008) · Academy of Management Review · doi:10.5465/amr.2008.27752724 · Cited by 666
Metadata
- Authors
- Schneider, J. W., & Conrad, P.
- Venue
- Social Problems
- Publisher
- Oxford University Press (OUP)
- Published
- 1980-10
- Volume
- 28
- Issue
- 1
- Pages
- 32-44
- ISSN
- 0037-7791 (ISSN-L)
- 1533-8533
- OpenAlex
- W2011512829
- Cited by
- 283
- References
- 1
- FWCI
- 2.11
- Type
- journal article
- Language
- en
- Open access
- closed
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- Schneider, J. W., & Conrad, P. (1980). In the Closet with Illness: Epilepsy, Stigma Potential and Information Control. Social Problems. https://doi.org/10.1525/sp.1980.28.1.03a00030
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
