The DOI matches its Crossref record; 66 of the 66 references it cites were found in a registry or an index.
Improving the Quality of End-of-Life Care in the Pediatric Intensive Care Unit: Parents' Priorities and Recommendations
Abstract
OBJECTIVE. Despite recognition that dying children and their families have unique palliative care needs, there has been little empirical inquiry of parent perspectives to improve the quality of end-of-life care and communication. The purpose of this study was to identify and describe the priorities and recommendations for end-of-life care and communication from the parents' perspective. METHODS. This was a qualitative study based on parental responses to open-ended questions on anonymous, self-administered questionnaires, conducted at 3 pediatric ICUs in Boston, Massachusetts. Fifty-six parents whose children had died in PICUs after withdrawal of life support participated in this study. We measured parent-identified priorities for end-of-life care and communication. RESULTS. Parents identified 6 priorities for pediatric end-of-life care including honest and complete information, ready access to staff, communication and care coordination, emotional expression and support by staff, preservation of the integrity of the parent-child relationship, and faith. CONCLUSIONS. Parental priorities and recommendations offer simple yet compelling guidance to improve pediatric end-of-life clinical practice and research.
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Cited by
Levetown, M., & and the Committee on Bioethics (2008) · Pediatrics · doi:10.1542/peds.2008-0565 · Cited by 496
Feudtner, C. (2007) · Pediatric Clinics of North America · doi:10.1016/j.pcl.2007.07.008 · Cited by 288
Hinds, P. S., Oakes, L. L., Hicks, J., Powell, B., Srivastava, D. K., Spunt, S. L., Harper, J., Baker, J. N., West, N. K., & Furman, W. L. (2009) · Journal of Clinical Oncology · doi:10.1200/jco.2008.20.0204 · Cited by 286
Parents' Experiences of Pediatric Palliative Care and the Impact on Long-Term Parental Grief
van der Geest, I. M. M., Darlington, A.-S. E., Streng, I. C., Michiels, E. M. C., Pieters, R., & van den Heuvel-Eibrink, M. M. (2014) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2013.07.007 · Cited by 148
Jones, B. L., Contro, N., & Koch, K. D. (2014) · Pediatrics · doi:10.1542/peds.2013-3608c · Cited by 119
Metadata
- Authors
- Meyer, E. C., Ritholz, M. D., Burns, J. P., & Truog, R. D.
- Venue
- Pediatrics
- Publisher
- American Academy of Pediatrics (AAP)
- Published
- 2006-03-01
- Volume
- 117
- Issue
- 3
- Pages
- 649-657
- ISSN
- 0031-4005 (ISSN-L)
- 1098-4275
- OpenAlex
- W1966168551
- Cited by
- 450
- References
- 66
- FWCI
- 24.55
- Type
- journal article
- Language
- en
- Open access
- closed
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- Meyer, E. C., Ritholz, M. D., Burns, J. P., & Truog, R. D. (2006). Improving the Quality of End-of-Life Care in the Pediatric Intensive Care Unit: Parents' Priorities and Recommendations. Pediatrics. https://doi.org/10.1542/peds.2005-0144
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
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