Predictors of health-related quality of life in adult ambulatory independence neuromuscular disease patients
Open accessAbstract
OBJECTIVE: To evaluate the health related quality of life (HRQoL) of totally independent ambulatory neuromuscular disease (NMD) patients in comparison with age matched healthy control subjects, and to assess associations between socio demographic variables and HRQoL in totally independent NMD patients. METHODS: Ninety-nine adult patients with a diagnosis of NMD referred to the Physical Therapy Department of the Health Sciences Faculty of Hacettepe University, Ankara, Turkey between 2007 and 2009 were included in the study. The Functional Independence Measurement and the Nottingham Health Profile (NHP) were the main outcomes to assess independence level in activities of daily living and quality of life. RESULTS: The HRQoL score as measured by NHP was high (worse) in patients than healthy controls, and the difference between the 2 groups was significant for energy, physical mobility, and total score. Employed NMD patients scored significantly lower (better) than those unemployed in the majority of NHP domains. The genders and duration of illness displayed no significant difference in all dimension scores. CONCLUSION: All NMD patients had a poorer HRQoL than with healthy subjects with respect to energy, physical mobility dimensions, and total score. Furthermore, occupation was found to be a main factor that affects HRQoL in adult ambulatory NMD patients.
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In any given case, QoL in FSHD may result from a complex interaction of biological factors, levels of pain and fatigue, social factors, and psychological factors.
“In any given case, QoL may result from a complex interaction of biological factors (e.g., disease severity 9,11 ), levels of pain and fatigue, 12 social factors (e.g., employment status 13,14 ), and psychological factors (e.g., perceptions, 9 coping mechanisms, 15 values, 16 and mood 17,18 ).”
From The lived experience of facioscapulohumeral muscular dystrophy: A systematic review and synthesis of the qualitative literature (2024) · cites this paper as [14]
Sleep and employment status influence quality of life in muscle diseases.
“For example, mood is a consistent predictor of QoL (Graham et al., 2011), as is sleep (Kalkman, Schillings, Zwarts, van Engelen, & Bleijenberg, 2007) and employment status (Minis et al., 2010; Oksuz, Kilinc, & Yildirim, 2009).”
From A randomised controlled trial of acceptance and commitment therapy for improving quality of life in people with muscle diseases. (2023) · cites this paper as Oksuz, Kilinc, & Yildirim, 2009
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References 19 · Cited by 7
Research works printed but not linked: 11
- Barr AE, Diamond BE, Wade CK, Harashima T, Pecorella WA, Potts CC. Reliability of testing measures in Duchenne or Becker muscular dystrophy. Arch Phys Med Rehabil 1991; 72: 315-319.
- Carter G. Rehabilitation management in neuromuscular disease. J Neurol Rehabil 1997; 11: 69-80.
- Nätterlund B, Ahlström G. Activities of daily living and quality of life in persons with muscular dystrophy. J Rehab Med 2001; 33: 206-211.
- Abresch RT, Seyden NK, Wineinger MA. Quality of life. Issues for persons with neuromuscular diseases. Phys Med Rehabil Clin N Am 1998; 9: 233-248.
- Boström K, Ahlström G. Quality of life in patients with muscular dystrophy and their next of kin. Int J Rehabil Res 2005; 28: 103-109.
- Uchikawa K, Liu M, Hanayama K, Tsuji T, Fujiwara T, Chino N. Functional status and muscle strength in people with Duchenne muscular dystrophy living in the community. J Rehabil Med 2004; 36: 124-129.
- Küçükdeveci AA, Yavuzer G, Elhan AH, Sonel B, Tennant A. Adaptation of the Functional Independence Measure for use in Turkey. Clin Rehabil 2001; 15: 311-319.
- Kücükdeveci AA, McKenna SP, Kutlay S, Gürsel Y, Whalley D, Arasil T. The development and psychometric assessment of the Turkish version of the Nottingham Health Profile. Int J Rehabil Res 2000; 23: 31-38.
- Fowler WM Jr, Abresch RT, Koch TR, Brewer ML, Bowden RK, Wanlass RL. Employment profiles in neuromuscular diseases. Am J Phys Med Rehabil 1997; 76: 26-37.
- Antonini G, Soscia F, Giubilei F, De Carolis A, Gragnani F, Morino S, et al. Health-related quality of life in myotonic dystrophy type 1 and its relationship with cognitive and emotional functioning. J Rehabil Med 2006; 38: 181-185.
- Thorén-Jönsson AL, Grimby G. Ability and perceived difficulty in daily activities in people with poliomyelitis sequelae. J Rehab Med 2001; 33: 4-11.
- Authors
- Oksuz, C., Kilinc, M., & Yildirim, S. A.
- Venue
- Neurosciences
- Publisher
- Armed Forces Medical Services
- Published
- 2009-01-01
- Volume
- 14
- Issue
- 4
- Pages
- 355-359
- ISSN
- 1319-6138 (ISSN-L)
- 1658-3183
- OpenAlex
- W2189156336
- Cited by
- 7
- References
- 19
- Citations by year
- 2023: 2 · 2022: 1 · 2014: 1
- FWCI
- 0.47
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Neurosciences (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Genetics › Neurogenetic and Muscular Disorders Research
- Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Aging, Health, and Disability
- Keywords
- neuromuscular disorders, health-related quality of life, activities of daily living, Nottingham Health Profile, Functional Independence Measure, employment status, physical mobility, energy, sociodemographic predictors
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