Cited by 13Indigenous Health, Education, and RightsCommunity Health and DevelopmentQualitative Research Methods and Ethics

Negotiation, Reciprocity, and Reality: The Experience of Collaboration in a Community-Based Primary Health Care (CBPHC) Program of Research with Eight Manitoba First Nations

Open access
Phillips-Beck, Wanda, Kyoon-Achan, Grace, Lavoie, Josée G., Krueger, Nicholas, Kinew, Kathi Avery, Sinclair, Stephanie, Ibrahim, Naser, Katz, Alan·2019·International Indigenous Policy Journal

Abstract

This article shares experiences and lessons learned through a collaboration between the University of Manitoba, the First Nation Health and Social Secretariat of Manitoba (FNHSSM), and eight First Nation communities in Manitoba. We employed a participatory approach from planning the research project, to data collection, and to the analysis, interpretation, and implementation of results. We learned that successful collaborations require: a) investing time and resources into developing respectful research relationships; b) strong leadership and governance; c) clearly defined roles and responsibilities; d) meaningful participation of First Nations; e) multiple opportunities for community engagement; and f) commitment to multiple, ongoing, and consistent forms of communication. All factors are integral to creating and maintaining the integrity of the research collaboration.

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  • This approach supported shared governance, decolonizing practices, and the integration of Indigenous and Western perspectives, ensuring ethical research aligned with principles of Indigenous ownership, control, access, and possession (OCAP).

    “This approach supported shared governance, decolonizing practices, and the integration of Indigenous and Western perspectives, ensuring ethical research aligned with principles of Indigenous ownership, control, access, and possession (OCAP) (First Nations Information Governance Centre, 2024; Phillips-Beck et al., 2019).”

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Research works printed but not linked: 20

  1. Abbott, P., Dave, D., Gordon, E., & Reath, J. (2014). What do GPs need to work more effectively with Aboriginal patients? Views of Aboriginal cultural mentors and health workers. Australian Family Physician, 43(1), 58-63.
  2. Baydala, L., Saylor, K., & Ruttan, L. (2013). Meeting standards for community-engaged Aboriginal health research. Paediatrics & Child Health, 18(1), 8-9.
  3. Baydala, L. T., Worrell, S., Fletcher, F., Letendre, S., Letendre, L., & Ruttan, L. (2013). "Making a place of respect": Lessons learned in carrying out consent protocol with First Nations Elders. Progress in Community Health Partnerships, 7(2), 135-143. doi: https://doi.org/10.1353/cpr.2013.0015 · DOI
  4. Boffa, J., King, M., McMullin, K., & Long, R. (2011). A process for the inclusion of Aboriginal people in health research: Lessons from the Determinants of TB Transmission Project. Social Science & Medicine, 72(5), 733-738. doi: https://doi.org/10.1016/j.socscimed.2010.10.033 · DOI
  5. Brunger, F., & Wall, D. (2016). "What do they really mean by partnerships?" Questioning the unquestionable good in ethics guidelines promoting community engagement in Indigenous health research. Qualitative Health Research, 26(13), 1862-1877. doi: https://doi.org/10.1177/1049732316649158 · DOI
  6. Campbell, T. D. (2014). A clash of paradigms? Western and Indigenous views on health research involving Aboriginal Peoples. Nurse Researcher, 21(6), 39-43. doi: https://doi.org/10.7748/nr.21.6.39.e1253 Christopher, S., Watts, V., McCormick, A. K., & Young, S. (2008). Building and maintaining trust in a community-based participatory research partnership. American Journal of Public Health, 98(8), 1398-1406. doi: https://doi.org/10.2105/ajph.2007.125757 · DOI
  7. Denzin, N. K., Lincoln, Y. S., & Smith, L. T. (2008). Handbook of critical and Indigenous methodologies. Los Angeles: SAGE.
  8. Esler, D. M. (2008). Participatory action research in Indigenous health. Australian Family Physician, 37(6), 457-459.
  9. Gokiert, R. J., Willows, N. D., Georgis, R., & Stringer, H. (2017). Wâhkôhtowin: The governance of good community-academic research relationships to improve the health and well-being of The International Indigenous Policy Journal, Vol. 10, Iss. 4 DOI: https://10.18584/iipj.2019.10.4.8334 children in Alexander First Nation. The International Indigenous Policy Journal, 8(2). doi: https://doi.org/10.18584/iipj.2017.8.2.8 · DOI
  10. Isaak, C. A., Campeau, M., Katz, L. Y., Enns, M. W., Elias, B., & Sareen, J. (2010). Community-based suicide prevention research in remote on-reserve First Nations communities. International Journal of Mental Health and Addiction, 8(2), 258-270. doi: https://doi.org/10.1007/s11469- 009-9250-0 · DOI
  11. Kovach, M. (2009). Indigenous methodologies, characteristics, conversations and contexts. Toronto, ON: University of Toronto Press.
  12. Kyoon-Achan, G., Philips-Beck, W., Lavoie, J., Eni, R., Sinclair, S., Avey Kinew, K., . . . Katz, A. (2018). Looking back, moving forward: A culture-based framework to promote mental wellbeing in Manitoba First Nations communities. International Journal of Culture and Mental Health, 18(3), 1-14. doi: https://doi.org/10.1080/17542863.2018.1556714 · DOI
  13. Lavoie, J. G., Forget, E. L., Prakash, T., Dahl, M., Martens, P., & O'Neil, J. D. (2010). Have investments in on-reserve health services and initiatives promoting community control improved First Nations' health in Manitoba? Social Science & Medicine, 71(4), 717-724. doi: https://doi.org/10.1016/j.socscimed.2010.04.037 · DOI · Paper page
  14. Moodie, S. (2010). Power, rights, respect and data ownership in academic research with Indigenous Peoples. Environmental Research, 110(8), 818-820. doi: https://doi.org/10.1016/ j.envres.2010.08.005 Natural Sciences and Engineering Research Council of Canada (NSERC), Canadian Institutes of Health Research (CIHR), & Social Sciences and Humanities Research Council of Canada (SSHRC). (2014). TCPS: Ethical conduct for research involving humans. Retrieved from http://www.pre.ethics.gc.ca/pdf/eng/tcps2-2014/tcps_2_final_web.pdf · DOI
  15. Panagiotopoulos, C., Rozmus, J., Gagnon, R. E., & Macnab, A. J. (2007). Diabetes screening of children in a remote First Nations community on the West Coast of Canada: Challenges and solutions. Rural Remote Health, 7(3), 771.
  16. Pyett, P., Waples-Crowe, P., & van der Sterren, A. (2009). Engaging with Aboriginal communities in an urban context: Some practical suggestions for public health researchers. Australian and New Zealand Journal of Public Health, 33(1), 51-54. doi: https://doi.org/10.1111/j.1753- 6405.2009.00338.x · DOI
  17. Rowley, K. G., Daniel, M., Skinner, K., Skinner, M., White, G. A., & O'Dea, K. (2000). Effectiveness of a community-directed 'healthy lifestyle' program in a remote Australian Aboriginal community. Australian and New Zealand Journal of Public Health, 24(2), 136-144.
  18. Schnarch, B., First Nations Centre, & National Aboriginal Health Organization. (2004). Ownership, control, access, and possession (OCAP) or self-determination applied to research: A critical analysis of contemporary First Nations research and some options for First Nations communities. Journal of Aboriginal Health, 1(1), 80-95.
  19. Smith, L. T. (1999). Decolonizing methodologies: Research and Indigenous Peoples. New York, NY: Zed Books & University of Otago Press.
  20. Sorensen, R., Fowler, C., Nash, C., & Bacon, W. (2010). Addressing the gap in Indigenous health: Government intervention or community governance? A qualitative review. Health Sociology Review, 19(1), 20-33. doi: https://doi.org/10.5172/hesr.2010.19.1.020 · DOI

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Authors
Phillips-Beck, W., Kyoon-Achan, G., Lavoie, J. G., Krueger, N., Kinew, K. A., Sinclair, S., Ibrahim, N., & Katz, A.
Affiliations
  • First Nations Health and Social Secretariat of Manitoba (CA)
  • University of Manitoba (CA)
Venue
International Indigenous Policy Journal
Published
2019-11-01
Volume
10
Issue
4
ISSN
1916-5781 (ISSN-L)
OpenAlex
W2985442210
Cited by
13
References
1
Citations by year
2024: 3 · 2023: 1 · 2022: 1 · 2021: 6 · 2020: 2
FWCI
2.20
Type
journal article
Language
en
Open access
Locations
  • International Indigenous Policy Journal (publishedVersion, cc-by-nc-nd)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
Topics
  • Social Sciences › Health › Indigenous Health, Education, and Rights
  • Health Sciences › Health Professions › General Health Professions › Community Health and Development
  • Social Sciences › Sociology and Political Science › Qualitative Research Methods and Ethics
Keywords
community-based primary care, First Nations, participatory research, research collaboration, reciprocity, negotiation, research relationships, community participation, research governance, leadership

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