Sharing Health Data for Better Outcomes on PatientsLikeMe

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Items 101–200 of 598

1. COST-EFFECTIVENESS OF TELEHEALTH INTERVENTIONS FOR CHRONIC HEART FAILURE PATIENTS: A LITERATURE REVIEW
   Andrija S. Grustam, Johan Louis Severens, Jan van Nijnatten, Ron Koymans, Hubertus JM Vrijhoef · 2014 · International Journal of Technology Assessment in Health Care
2. How are they different? A quantitative domain comparison of information visualization and data visualization (2000–2014)
   Meen Chul Kim, Yongjun Zhu, Chaomei Chen · 2016 · Scientometrics
3. The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review
   Mies C. H. J. van Eenbergen, Lonneke Veronique van de Poll-Franse, Peter Heine, Floortje Mols · 2017 · JMIR Cancer
4. Peer Coaching Through mHealth Targeting Physical Activity in People With Parkinson Disease: Feasibility Study
   Cristina Colón-Semenza, Nancy K. Latham, Lisa M. Quintiliani, Terry D. Ellis · 2018 · JMIR mhealth and uhealth
5. askMUSIC: Leveraging a Clinical Registry to Develop a New Machine Learning Model to Inform Patients of Prostate Cancer Treatments Chosen by Similar Men
   Gregory B. Auffenberg, Khurshid Ridwan Ghani, Shreyas Ramani, Etiowo Usoro, Brian T. Denton, CRAIG G. ROGERS, Benjamin R. Stockton, David Christopher Miller, Karandeep Singh · 2018 · European Urology
6. Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community
   Emil J. Chiauzzi, Paul J Wicks · 2019 · Journal of Medical Internet Research
7. Development of a Smartphone App for a Genetics Website: The Amyotrophic Lateral Sclerosis Online Genetics Database (ALSoD)
   Olubunmi Abel, Aleksey Shatunov, Ashley R Jones, Peter Munch Andersen, John F. Powell, Ammar Al‐Chalabi · 2013 · JMIR mhealth and uhealth
8. Turning to Peers: Integrating Understanding of the Self, the Condition, and Others’ Experiences in Making Sense of Complex Chronic Conditions
   Aisling Ann O’Kane, Sun Young Park, Helena M. Mentis, ANN E. BLANDFORD, Yunan Chen · 2016 · Computer Supported Cooperative Work (CSCW)
9. Anytime, anywhere access to secure, privacy-aware healthcare services: Issues, approaches and challenges
   Mohd M. Anwar, James B D Joshi, Joseph Tan · 2015 · Health Policy and Technology
10. Feasibility and Preliminary Effects of a Virtual Environment for Adults With Type 2 Diabetes: Pilot Study
    Constance Johnson, Mark N. Feinglos, Katherine C. Pereira, Nancy Hassell, Jim Blascovich, Janet Nicollerat, Henry F. Beresford, Janet Levy, Allison Amend Vorderstrasse · 2014 · JMIR Research Protocols
11. A Survey of Mobile Phone Sensing, Self-Reporting, and Social Sharing for Pervasive Healthcare
    Andreas K. Triantafyllidis, Carmelo Velardo, Dario Salvi, Syed Ahmar Shah, Vassilis G. Koutkias, Lionel Tarassenko · 2015 · IEEE Journal of Biomedical and Health Informatics
12. Patient perspectives on neuromyelitis optica spectrum disorders: Data from the PatientsLikeMe online community
    Stephanie Eaneff, Victor C. Wang, Morgan Hanger, Michael Levy, Maureen A. Mealy, Alexander Ulrich Brandt, Daniel Eek, John N. Ratchford, Fredrik Nyberg, Jonathan Goodall et al. · 2017 · Multiple Sclerosis and Related Disorders
13. College students' uses and perceptions of social networking sites for health and wellness information
    Yan Zhang · 2012 · Information Research
14. Value of Developing Plain Language Summaries of Scientific and Clinical Articles: A Survey of Patients and Physicians
    Pushparajah, Daphnee S., Manning, Elizabeth, Michels, Erik, Arnaudeau-Bégard, Catherine · 2018 · Therapeutic Innovation & Regulatory Science
15. Can Online Consumers Contribute to Drug Knowledge? A Mixed-Methods Comparison of Consumer-Generated and Professionally Controlled Psychotropic Medication Information on the Internet
    Hughes, Shannon, Cohen, David · 2011 · Journal of Medical Internet Research
16. Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review
    Emma L. Simpson, Richard D. Brown, Elizabeth Sillence, Lynne Coventry, Karen C Lloyd, Jo Gibbs, Shema Tariq, Abigail C. Durrant · 2021 · Frontiers in Public Health
17. Distributed knowledge in an online patient support community: Authority and discovery
    Michelle M. Kazmer, Mia Liza A. Lustria, Juliann Cortese, Gary Burnett, Ji‐Hyun Kim, Jinxuan Ma, Jeana H. Frost · 2014 · Journal of the Association for Information Science and Technology
18. "I was really, really nervous posting it": Communicating about Invisible Chronic Illnesses across Social Media Platforms
    Sannon, Shruti, Murnane, Elizabeth L., Bazarova, Natalya N., Gay, Geri · 2019 · Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems
19. Social Media Adoption by Health Professionals: A TAM-Based Study
    Md Irfanuzzaman Khan, Abu Saleh, Ali M. Quazi · 2021 · Informatics
20. The Role of Social Media for Patients and Consumer Health
    Katie A. Siek, Luis Fernández-Luque, Huibert Johannes Tange, Prajesh N Chhanabhai, Simon Y. W. Li, Peter L. Elkin, A. Arjabi, Les T. Walczowski, Chee Siang Ang, Günther Eysenbach et al. · 2011 · Yearbook of Medical Informatics
21. Health-Related Internet Use in Older Primary Care Patients
    Rebecca M. Crabb, Samantha Rafie, Kenneth R. Weingardt · 2011 · Gerontology
22. Privacy policies for health social networking sites: Table 1
    Jingquan Li · 2013 · Journal of the American Medical Informatics Association
23. Interaction Patterns of Nurturant Support Exchanged in Online Health Social Networking
    Katherine Y. Chuang, Christopher C. Yang · 2012 · Journal of Medical Internet Research
24. Few shot learning for phenotype-driven diagnosis of patients with rare genetic diseases
    Alsentzer, Emily, Li, Michelle M., Kobren, Shilpa N., Noori, Ayush, Undiagnosed Diseases Network, Kohane, Isaac S., Zitnik, Marinka · 2025 · npj Digital Medicine
25. Power to the People : Participant Ownership of Clinical Trial Data
    Sharon F. Terry, Patrick F. Terry · 2011 · Science Translational Medicine
26. Social support and responsiveness in online patient communities: impact on service quality perceptions
    Priya Nambisan, David H. Gustafson, Robert P. Hawkins, Suzanne Pingree · 2015 · Health Expectations
27. Peer-Generated Health Information: The Role of Online Communities in Patient and Caregiver Health Decisions
    Douglas J. Rupert, Jennifer C. Gard, Jacqueline B. Amoozegar, Rebecca Moultrie, Olivia M. Taylor, Amie C. O’Donoghue, Helen W. Sullivan · 2016 · Journal of Health Communication
28. Sharing health information across online platforms: A systematic review
    Long Hoang Le, Ai-Phuong Hoang, Hiep Pham · 2022 · Health Communication
29. Till data do us part: Understanding data-based value creation in data-intensive infrastructures
    Niccolò Tempini · 2017 · Information and Organization
30. Sorting Through the Safety Data Haystack: Using Machine Learning to Identify Individual Case Safety Reports in Social-Digital Media
    Shaun Comfort, Sujan Perera, Zoe Hudson, Darren Dorrell, Shawman Meireis, Meenakshi Nagarajan, Cartic Ramakrishnan, Jennifer Fine · 2018 · Drug Safety
31. Hitting a moving target: digital transformation and welfare technology in Swedish municipal eldercare
    Susanne Frennert · 2019 · Disability and Rehabilitation Assistive Technology
32. Connected Health User Willingness to Share Personal Health Data: Questionnaire Study
    Maria Karampela, Sofía Ouhbi, Minna Isomursu · 2019 · Journal of Medical Internet Research
33. Why don't we trust health websites that help us help each other?
    Elizabeth Sillence, Claire Hardy, Pam Briggs · 2013 · ACM Web Science Conference (WebSci)
34. Using smartphone technology to reduce health impacts from atmospheric environmental hazards
    Fay Helena Johnston, Amanda Jane Wheeler, Grant James Williamson, Sharon L. Campbell, Penelope Jones, Iain S. Koolhof, Christopher J. Lucani, Nick Cooling, David M. J. S. Bowman · 2018 · Environmental Research Letters
35. Community pharmacists, Internet and social media: An empirical investigation
    Natalia Shcherbakova, Marv D. Shepherd · 2013 · Research in Social and Administrative Pharmacy
36. Potential for Electronic Health Records and Online Social Networking to Redefine Medical Research
    John Pearson, Catherine A. Brownstein, John S. Brownstein · 2010 · Clinical Chemistry
37. Towards the Use of Big Data in Healthcare: A Literature Review
    Grazia Dıcuonzo, Graziana Galeone, Matilda Shini, Antonella Massari · 2022 · Healthcare
38. Effectiveness of web-based social sensing in health information dissemination—A review
    Pallavi Sharma, Pankaj Deep Kaur · 2016 · Telematics and Informatics
39. Narrative review of citizen science in environmental epidemiology: Setting the stage for co-created research projects in environmental epidemiology
    Frederique Froeling, Florence Gignac, Gerard Hoek, Roel C.H. Vermeulen, Mark J Nieuwenhuijsen, Antonella Ficorilli, Bruna De Marchi, Annibale Biggeri, David Kocman, Johanna Amalia Robinson et al. · 2021 · Environment International
40. Automatically Detecting Failures in Natural Language Processing Tools for Online Community Text
    Albert Park, Andrea L. Hartzler, Jina Huh, David W. McDonald, Wanda Pratt · 2015 · Journal of Medical Internet Research
41. Self-Tracking, Social Media and Personal Health Records for Patient Empowered Self-Care. Contribution of the IMIA Social Media Working Group.
    Chris Paton, Margaret Mary Hansen, Luis Fernández-Luque, Annie Y S Lau · 2012 · PubMed
42. Sharing experiences and social support requests in an Internet forum for patients with systemic lupus erythematosus
    Davide Mazzoni, Elvira Cicognani · 2013 · Journal of Health Psychology
43. Co-care: Producing better health outcome through interactions between patients, care providers and information and communication technology
    Ulrica von Thiele Schwarz · 2016 · Health Services Management Research
44. Toward Assessing and Recommending Combinations of Behaviors for Improving Health and Well-Being
    Ehimwenma Nosakhare, Rosalind W. Picard · 2020 · ACM Transactions on Computing for Healthcare
45. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review
    Emily G. Miller, Amanda L. Woodward, Grace Flinchum, Jennifer L. Young, Holly K. Tabor, Meghan C. Halley · 2021 · Genetics in Medicine
46. The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community
    Paul J Wicks, Timothy E. Vaughan, Michael P. Massagli · 2012 · Health and Quality of Life Outcomes
47. Effects of eHealth Literacy on General Practitioner Consultations: A Mediation Analysis
    Peter Johannes Schulz, Mary Anne Fitzpatrick, Alexandra Claudia Hess, Lynn Sudbury‐Riley, Uwe Hartung · 2017 · Journal of Medical Internet Research
48. Trust, Identity, Privacy, and Security Considerations for Designing a Peer Data Sharing Platform Between People Living With HIV
    Adrian Bussone, Bakita Kasadha, Simone Stumpf, Abigail C. Durrant, Shema Tariq, Jo Gibbs, Karen C Lloyd, Jon Bird · 2020 · Proceedings of the ACM on Human-Computer Interaction
49. Broadcast Yourself: An Exploratory Study of Sharing Physical Activity on Social Networking Sites
    Jeroen Stragier, Tom Evens, Peter Mechant · 2015 · Media International Australia
50. Designing an Electronic Patient Management System for Multiple Sclerosis: Building a Next Generation Multiple Sclerosis Documentation System
    Raimar Kern, Rocco Haase, Judith Eisele, Katja Thomas, Tjalf Ziemssen · 2016 · Interactive Journal of Medical Research
51. Framework for efficient utilisation of social media in Pakistan's healthcare sector
    Sobia Nisar, Muhammad Shafiq · 2018 · Technology in Society
52. Internet portal use in an academic multiple sclerosis center
    Allen Scott Nielsen, John David Halamka, R. Philip Kinkel · 2011 · Journal of the American Medical Informatics Association
53. The Benefits of Online Health Communities
    Lauren B. Solberg · 2014 · The AMA Journal of Ethic
54. Patients optimizing epilepsy management via an online community
    John Hixson, Deborah E. Barnes, Karen Parko, Tracy L. Durgin, Stephanie L. Van Bebber, A Colditz Graham, Paul J Wicks · 2015 · Neurology
55. Scaling PatientsLikeMe via a “Generalized Platform” for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising
    Paul J Wicks, Eileen Mack Thorley, Kristina F Simacek, Christopher J. Curran, Cathy Emmas · 2018 · Journal of Medical Internet Research
56. Predicting users' continued engagement in online health communities from the quantity and quality of received support
    Xiangyu Wang, Andrew C. High, Xi Wang, Kang Zhao · 2020 · Journal of the Association for Information Science and Technology
57. Technology use and its association with health and depressive symptoms in older cancer survivors
    Hee Yun Lee, Jeehoon Kim, Monica Sharratt · 2017 · Quality of Life Research
58. Relationship Between Internet Use and Change in Health Status: Panel Study of Young Adults
    Amanda Hunsaker, Eszter Hargittai, Marina Micheli · 2020 · Journal of Medical Internet Research
59. Going Beyond Hooked Participants: The Nibble-and-Drop Framework for Classifying Citizen Science Participation
    Heather A. Fischer, Holly Cho, Martin Storksdieck · 2021 · Citizen Science Theory and Practice
60. Infodemiology and Infoveillance of Multiple Sclerosis in Italy
    Nicola Luigi Bragazzi · 2013 · Multiple Sclerosis International
61. The Role of Big Data in the Management of Sleep-Disordered Breathing
    Rohit Budhiraja, ROBERT JOSEPH THOMAS, Matthew J. Kim, Susan S Redline · 2016 · Sleep Medicine Clinics
62. Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson’s disease in Sweden
    Sara S. Riggare, Pär J. Höglund, Helena Hvitfeldt Forsberg, Elena Eftimovska, Per Svenningsson, Maria Hägglund · 2017 · Health Informatics Journal
63. You Never Call, You Never Write: Why Return of ‘omic‘ Results to Research Participants is Both a Good Idea and a Moral Imperative
    Misha H. Angrist · 2011 · Personalized Medicine
64. Patient-reported outcomes in major depressive disorder with suicidal ideation: a real-world data analysis using PatientsLikeMe platform
    Stephane Borentain, Abigail I. Nash, Rachna Dayal, Allitia DiBernardo · 2020 · BMC Psychiatry
65. Uncovering patterns of technology use in consumer health informatics
    Man Hung, Jillian Conrad, Shirley D. Hon, Christine M. Cheng, Jeremy D. Franklin, Philip Tang · 2013 · Wiley Interdisciplinary Reviews Computational Statistics
66. Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health
    Sue Ziébland, john a. powell, Pam Briggs, Crispin Jenkinson, Sally Wyke, Elizabeth Sillence, Peter Richard Harris, Rafael Perera, Fadhila Mazanderani, Angela Martin et al. · 2016 · Programme Grants for Applied Research
67. From multisource data to clinical decision aids in radiation oncology: The need for a clinical data science community
    Joanna Kaźmierska, Andrew J. Hope, Emiliano Spezi, Sam A. Beddar, William Henry Nailon, Biche Osong, Anshu Ankolekar, Ananya Choudhury, Andre L.A.J. Dekker, Kathrine Røe Redalen et al. · 2020 · Radiotherapy and Oncology
68. Monetisation of digital health data through a GDPR-compliant and blockchain enabled digital health data marketplace: A proposal to enhance patient's engagement with health data repositories
    Mohamed A. Maher, Imtiaz Khan, Verma Prikshat · 2023 · International Journal of Information Management Data Insights
69. Participant-centric initiatives: Tools to facilitate engagement in research
    Nicholas Anderson, Caleb Bragg, Andrea L. Hartzler, Kelly Edwards · 2012 · Applied & Translational Genomics
70. Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech?
    Danielle Chauncey Lavallee, Paul J Wicks, Rafael Alfonso Cristancho, C. Daniel Mullins · 2014 · Expert Review of Pharmacoeconomics & Outcomes Research
71. Preparing medical students for the e-patient
    Ken Masters · 2017 · Medical Teacher
72. Exchanging Social Support Online: A Longitudinal Social Network Analysis of Irritable Bowel Syndrome Patients’ Interactions on a Health Forum
    Fan Yang, Bu Zhong, Akhil Kumar, Sy‐Miin Chow, Ann Ouyang · 2017 · Journalism & Mass Communication Quarterly
73. Opportunities to expand access to mental health services: A case for the role of online peer support communities
    Rutvij Merchant, Aleah Goldin, Deepa Manjanatha, Claire Harter, Judy Chandler, Amanda Lipp, Theresa Nguyen, John A. Naslund · 2022 · Psychiatric Quarterly
74. Evaluating patient experience in online health communities
    Priya Nambisan · 2011 · Health Care Management Review
75. Developing a Shared Patient-Centered, Web-Based Medication Platform for Type 2 Diabetes Patients and Their Health Care Providers: Qualitative Study on User Requirements
    Gerda Bernhard, Cornelia Mahler, Hanna Marita Seidling, Marion Stützle, Dominik J. Ose, Ines Baudendistel, Michel Wensing, Joachim Szécsényi · 2018 · Journal of Medical Internet Research
76. "I think we know more than our doctors"
    Maia L. Jacobs, Galina Gheihman, Krzysztof Z. Gajos, Anoopum S. Gupta · 2019 · Proceedings of the ACM on Human-Computer Interaction
77. Emerging health data platforms: From individual control to collective data governance
    Timothy Charles Kariotis, Mad Price Ball, Bastian Greshake Tzovaras, Simon John Dennis, Tony R. Sahama, Carolyn Johnston, Helen Mary Almond, Ann Borda · 2020 · Data & Policy
78. PatientsLikeMe® Online Epilepsy Community: Patient characteristics and predictors of poor health-related quality of life
    Christine de la Loge, Svetlana Dimova, Knut Mueller, George Phillips, Tracy L. Durgin, Paul J Wicks, Simon Borghs · 2016 · Epilepsy & Behavior
79. Self-Tracking, Social Media and Personal Health Records for Patient Empowered Self-Care
    M. Hansen, Luis Fernández-Luque, A. Y. S. Lau, Chris Paton · 2012 · Yearbook of Medical Informatics
80. Sharing and helping: predictors of adolescents’ willingness to share diabetes personal health information with peers
    Sarah E. Vaala, Joyce M. Lee, Korey K. Hood, Shelagh A. Mulvaney · 2017 · Journal of the American Medical Informatics Association
81. The use or generation of biomedical data and existing medicines to discover and establish new treatments for patients with rare diseases – recommendations of the IRDiRC Data Mining and Repurposing Task Force
    on behalf of the IRDiRC Data Mining and Repurposing Task Force, Noel T Southall, Madhusudan Natarajan, Lilian Pek Lian Lau, Anneliene Hechtelt Jonker, Benoit P. Deprez, Tim Guilliams, Lawrence Hunter, Carin M. A. Rademaker, Virginie Hivert et al. · 2019 · Orphanet Journal of Rare Diseases
82. Non-static nature of patient consent: shifting privacy perspectives in health information sharing
    O'Kane, Aisling A., Mentis, Helena M., Thereska, Eno · 2013 · Proceedings of the 2013 conference on Computer supported cooperative work
83. Ethics: Dynamic consent in the digital age of biology: online initiatives and regulatory considerations
    Richman Wee, Mark Henaghan, Ingrid Winship · 2013 · Journal of Primary Health Care
84. ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective
    Beni Gómez‐Zúñiga, Luis Fernández-Luque, Modesta Pousada, Eulàlia Hernández Encuentra, Manuel Armayones · 2012 · Medicine 2 0
85. Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States
    Thorley, Eileen Mack, Iyer, Ravi G., Wicks, Paul, Curran, Chris, Gandhi, Sanjay K., Abler, Victor, Anderson, Karen E., Carlozzi, Noelle E. · 2018 · The Patient - Patient-Centered Outcomes Research
86. The real-world patient experience of fingolimod and dimethyl fumarate for multiple sclerosis
    Paul J Wicks, Lawrence Rasouliyan, Bo Katic, Beenish Nafees, Emuella M. Flood, Rahul Sasané · 2016 · BMC Research Notes
87. Identifying Rare Diseases from Behavioural Data: A Machine Learning Approach
    Haley MacLeod, Shuo Yang, Kim Oakes, Kay Connelly, Sriraam Natarajan · 2016 · IEEE/ACM Conference on Connected Health: Applications, Systems and Engineering Technologies
88. A Precision Medicine Tool for Patients With Multiple Sclerosis (the Open MS BioScreen): Human-Centered Design and Development
    Erica Schleimer, Jennifer R. Pearce, Andrew Barnecut, William M. Rowles, Antoine Lizée, Arno Klein, Valerie J. Block, Adam Santaniello, Adam Renschen, Refujia Gomez et al. · 2020 · Journal of Medical Internet Research
89. People Recommendation on Social Media
    Ido Guy · 2018 · Lecture notes in computer science
90. Personalized medicine in women's obesity prevention and treatment: implications for research, policy and practice
    N. Yang, Geoffrey S. Ginsburg, Leigh Ann Simmons · 2012 · Obesity Reviews
91. Factors Influencing People’s Personal Information Disclosure Behaviors in Online Health Communities: A Pilot Study
    Junjie Zhou · 2018 · Asia Pacific Journal of Public Health
92. Dual effects of social support seeking in patient-centric online healthcare communities: A longitudinal study
    Na Liu, Yu Tong, Hock Chuan Chan · 2020 · Information & Management
93. Health Information on the Internet
    Nadine Rozenkranz, Andreas Eckhardt, Mirko Kühne, Christoph Rosenkranz · 2013 · Business & Information Systems Engineering
94. Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians’ and Patients’ Perceptions About Amyotrophic Lateral Sclerosis Treatments
    Carlos Nakamura, Mark B. Bromberg, Shivani Bhargava, Paul J Wicks, Qing Zeng‐Treitler · 2012 · Journal of Medical Internet Research
95. Mental health professional perspectives on health data sharing: Mixed methods study
    Adela Grando, Julia Ivanova, Megan Hiestand, Hiral Soni, Anita C. Murcko, Michael J. Saks, David R. Kaufman, Mary Jo Whitfield, Christy Dye, Darwyn Chern et al. · 2020 · Health Informatics Journal
96. Which Bundles of Features in a Web-Based Personally Controlled Health Management System Are Associated With Consumer Help-Seeking Behaviors for Physical and Emotional Well-Being?
    Lau, Annie YS, Proudfoot, Judith, Andrews, Annie, Liaw, Siaw-Teng, Crimmins, Jacinta, Arguel, Amaël, Coiera, Enrico · 2013 · Journal of Medical Internet Research
97. Undesirable Effects Related to Oral Antineoplastic Drugs: Comparison Between Patients’ Internet Narratives and a National Pharmacovigilance Database
    Arnaud Pagès, Emmanuelle Bondon‐Guitton, Jean Louis Montastruc, Haleh Bagheri · 2014 · Drug Safety
98. Psychosocial needs of adolescents and young adults with eczema: A secondary analysis of qualitative data to inform a behaviour change intervention
    Daniela Ghio, Kate Greenwell, Ingrid Müller, Amanda Roberts, Abigail McNiven, Miriam Santer · 2020 · British Journal of Health Psychology
99. Collective empowerment of an online patient community: conceptualizing process dynamics using a multi-method qualitative approach
    Marie-Georges Fayn, Véronique Des Garets, Arnaud Rivière · 2021 · BMC Health Services Research
100. What Online User Innovation Communities Can Teach Us about Capturing the Experiences of Patients Living with Chronic Health Conditions. A Scoping Review
     Julia Amann, Claudia Zanini, Sara Rubinelli · 2016 · PLoS ONE