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Cited by 2Nursing care and researchFamily Caregiving in Mental IllnessFamily Support in Illness

La experiencia de los cuidadores familiares de personas con cáncer. Estudio fenomenológico

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Duque-Ortiz, Camilo, Giraldo-Toro, Yenny Andrea·2021·Revista Ciencia y Cuidado
DOI 10.22463/17949831.2912
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Abstract

Objetivo: Comprender la experiencia vivida de los cuidadores familiares de personas que padecen enfermedades oncológicas. Materiales y métodos: Estudio de enfoque cualitativo, basado en la fenomenología interpretativa. Se desarrolló en Medellín, Colombia entre julio de 2018 y junio de 2019. La recolección de información se realizó a través de entrevistas semiestructuradas a diez cuidadores familiares de personas con enfermedades oncológicas. El total de los participantes estuvo determinado por la saturación teórica de los temas emergentes. Resultados: La experiencia que vive el cuidador familiar de una persona que padece cáncer, se representa a través de tres temas emergentes: enfrentarse a un nuevo camino, en el que hay situaciones derivadas de la enfermedad que imponen unas cargas y demandan un sobre-esfuerzo al cuidador. Organizarse para cuidar, el cual se refiere a la manera como se organizan a través del establecimiento de roles, rutinas y redes de apoyo, para hacer frente al cuidado del ser querido. Transformaciones para la vida, que se refiera a la manera como la vida cambia a partir de la experiencia de cuidado. Conclusiones: La experiencia que viven los cuidadores familiares de personas con cáncer se representa como una vida de entrega hacía su pariente enfermo, en la que el nuevo camino al que se enfrentan, la organización de su vida para cuidar y las transformaciones que experimentan se dan en torno a la enfermedad y al cuidado que demanda la persona con cáncer Palabras clave: Cuidadores, emociones, adaptación psicológica, costo de enfermedad.

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Cited by

Sorted by citations

Authors
Duque-Ortiz, C., & Giraldo-Toro, Y. A.
Affiliations
  • Universidad Pontificia Bolivariana (CO)
  • Municipality of Medellín (CO)
Corresponding author
  • Duque-Ortiz, Camilo
  • Giraldo-Toro, Yenny Andrea
ORCID
Venue
Revista Ciencia y Cuidado
Publisher
Universidad Francisco de Paula Santander
Published
2021-09-01
Volume
18
Issue
3
Pages
43-53
ISSN
  • 1794-9831 (ISSN-L)
  • 2322-7028
DOI
10.22463/17949831.2912
OpenAlex
W3197021225
Cited by
2
References
1
Citations by year
2026: 1 · 2022: 1
FWCI
0.39
Type
journal article
Language
es
Open access
Licence
Locations
  • Revista Ciencia y Cuidado (publishedVersion, cc-by-nc-nd)
  • Dialnet (Universidad de la Rioja) (submittedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Topics
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
  • Social Sciences › Sociology and Political Science › Family Support in Illness
Keywords
family caregivers, cancer, caregiver experiences, caregiver burden, social support networks, life transformation, psychological adjustment, economic burden

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