Participatory Design, User Involvement and Health IT Evaluation
Open accessAbstract
End user involvement and input into the design and evaluation of information systems has been recognized as being a critical success factor in the adoption of information systems. Nowhere is this need more critical than in the design of health information systems. Consistent with evidence from the general software engineering literature, the degree of user input into design of complex systems has been identified as one of the most important factors in the success or failure of complex information systems. The participatory approach goes beyond user-centered design and co-operative design approaches to include end users as more active participants in design ideas and decision making. Proponents of participatory approaches argue for greater end user participation in both design and evaluative processes. Evidence regarding the effectiveness of increased user involvement in design is explored in this contribution in the context of health IT. The contribution will discuss several approaches to including users in design and evaluation. Challenges in IT evaluation during participatory design will be described and explored along with several case studies.
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The platform was developed using user-centered and participatory design approaches with multiple rounds of iterative user feedback.
“It was developed following a survey conducted with parents and youth (ages 16–17 years) to gain insight into their perspectives on digital trust [31] and to apply user-centered and participatory design approaches during the platform’s development, incorporating multiple rounds of iterative user feedback [32–34].”
From Caregiver experiences of an integrative patient-centered digital health application for pediatric type 1 diabetes care: Findings from a pilot clinical trial (2025) · cites this paper as [34]
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Cited by 166
- Authors
- Andre, K., & Christian, N.
- Venue
- Studies in Health Technology and Informatics
- Publisher
- IOS Press
- Published
- 2016
- Volume
- 222
- Pages
- 139-51
- ISSN
- 0926-9630 (ISSN-L)
- OpenAlex
- W2401682204
- Cited by
- 166
- References
- 0
- Citations by year
- 2026: 7 · 2025: 11 · 2024: 24 · 2023: 16 · 2022: 18 · 2021: 22 · 2020: 19 · 2019: 24 · 2018: 13 · 2017: 11 · 2016: 1
- FWCI
- 36.21
- Type
- book chapter
- Language
- en
- Open access
- green
- vbn.aau.dk
- Licence
- cc-by-nc
- Locations
- Studies in health technology and informatics (publishedVersion)
- PubMed (publishedVersion)
- VBN Forskningsportal (Aalborg Universitet) (publishedVersion, cc-by-nc)
- PubMed
- Topics
- Physical Sciences › Computer Science › Human-Computer Interaction › Usability and User Interface Design
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Social Sciences › Sociology and Political Science › Information Systems Theories and Implementation
- Keywords
- participatory design, user participation, health information systems, end-user involvement, user-centered design, information systems adoption
- MeSH terms
- Evaluation Studies as Topic, Humans, Software Design, User-Computer Interface, Electronic Health Records, Health Information Systems
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