Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review

Green, J, Hewison, J, Bekker, H, Bryant, L, Cuckle, H·2004·Health Technology Assessment
DOI 10.3310/hta8330

Cited by (368)

Items 101–200 of 368

  1. False Positive Newborn Screening Results Are Not Always Benign
    Daniel R. Morrison, Ellen Wright Clayton · 2010 · Public Health Genomics
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    Stuart Gordon Nicholls, Kevin W Southern · 2013 · PLoS ONE
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    Robert Alan Williams, Sandi Dheensa, Alison Metcalfe · 2011 · Midwifery
  4. The role of attitudes towards the targets of behaviour in predicting and informing prenatal testing choices
    Louise D. Bryant, Josephine M. Green, Jenny Hewison · 2009 · Psychology and Health
  5. Informing Parents About Expanded Newborn Screening: Influences on Provider Involvement
    Robin Z. Hayeems, Fiona Alice Miller, Julian Little, June C. Carroll, Judith E Allanson, Pranesh K. Chakraborty, Brenda J. Wilson, Jessica Bytautas, Robert J. Christensen · 2009 · PEDIATRICS
  6. Maternal Psychological Reaction to Newborn Genetic Screening for Type 1 Diabetes
    Nicola Kerruish, Priscilla Campbell‐Stokes, Andrew Robert Gray, Tony Raymond Merriman, Stephen P. Robertson, Barry J. Taylor · 2007 · PEDIATRICS
  7. Is advice incompatible with autonomous informed choice? Women’s perceptions of advice in the context of antenatal screening: a qualitative study
    Shenaz Ahmed, Louise D. Bryant, Zahra Tizro, Darren Shickle · 2012 · Health Expectations
  8. A qualitative investigation of the decision‐making process of couples considering prenatal screening for Down syndrome
    Fran E. Carroll, Amanda Owen‐Smith, Alison R. G. Shaw, Alan A. Montgomery · 2012 · Prenatal Diagnosis
  9. Offering antenatal sickle cell and thalassaemia screening to pregnant women in primary care: a qualitative study of women’s experiences and expectations of participation
    Vicki Tsianakas, Karl Michael Atkin, Michael Calnan, Elizabeth Dormandy, Theresa M. Marteau · 2011 · Health Expectations
  10. Antenatal thalassaemia carrier testing: women's perceptions of 'information' and 'consent'
    Shenaz Ahmed, Josephine Green, Jenny Hewison · 2005 · Journal of Medical Screening
  11. Prenatal Testing for Down Syndrome: Comparison of Screening Practices in the UK and USA
    Dagmar Tapon · 2009 · Journal of Genetic Counseling
  12. Women's opinions on the offer and use of nuchal translucency screening for Down syndrome
    M. A. Müller, Otto P. Bleker, Gouke J. Bonsel, Caterina Maddalena Bilardo · 2006 · Prenatal Diagnosis
  13. Ethical, Legal, and Social Issues in Health Technology Assessment for Prenatal/Preconceptional and Newborn Screening: A Workshop Report
    Beth K. Potter, Denise M. Avard, Vikki Ann Entwistle, Christine A. Kennedy, Pranesh K. Chakraborty, M McGuire, Brenda J. Wilson · 2008 · Public Health Genomics
  14. Interventions to enhance informed choices among invitees of screening programmes—a systematic review
    Heleen M.E. van Agt, Ida J. Korfage, Marie‐Louise Essink‐Bot · 2014 · European Journal of Public Health
  15. Informing Children of Their Newborn Screening Carrier Result for Sickle Cell or Cystic Fibrosis: Qualitative Study of Parents’ Intentions, Views and Support Needs
    Fiona Ulph, Tim Cullinan, Nadeem Qureshi, Joe Kai · 2013 · Journal of Genetic Counseling
  16. A randomised trial of two methods of issuing prenatal test results: the ARIA (Amniocentesis Results: Investigation of Anxiety) trial
    Jenny Hewison, Jane Nixon, J Fountain, Kim Hawkins, C R. Jones, Gerald Mason, Stephen Morley, Jim Thornton · 2007 · BJOG An International Journal of Obstetrics & Gynaecology
  17. Should Parental Refusals of Newborn Screening Be Respected?
    Ainsley Janelle Newson · 2006 · Cambridge Quarterly of Healthcare Ethics
  18. Perspectives, preferences and needs regarding early prediction of preeclampsia in Dutch pregnant women: a qualitative study
    Neeltje M. T. H. Crombag, Marije Lamain-de Ruiter, Anneke Kwee, Peter C. J. I. Schielen, Jozien M. Bensing, Gerard H.A. Visser, Arie Franx, Maria P. H. Koster · 2017 · BMC Pregnancy and Childbirth
  19. Women who are well informed about prenatal genetic screening delay emotional attachment to their fetus
    Heather J. Rowe, Jane Fisher, Julie Anne Quinlivan · 2009 · Journal of Psychosomatic Obstetrics & Gynecology
  20. Effects of knowledge, education, and experience on acceptance of first trimester screening for chromosomal anomalies
    Vigdís Stefánsdóttir, Heather Skirton, Kristján Jónasson, Hildur Harðardóttir, Jón J. Jónsson · 2010 · Acta Obstetricia Et Gynecologica Scandinavica
  21. Engagement: an indicator of difference in the perceptions of antenatal care for pregnant women from diverse socioeconomic backgrounds
    Angie Docherty, Carol Bugge, Andrew E. Watterson · 2011 · Health Expectations
  22. Information and consent for newborn screening: practices and attitudes of service providers
    Nicola Kerruish, DIANNE R. WEBSTER, N Dickson · 2008 · Journal of Medical Ethics
  23. Patient decision‐making and the role of the prenatal genetic counselor: An exploratory study
    Diane Salema, Anne F. Townsend, Jehannine Austin · 2018 · Journal of Genetic Counseling
  24. Facts first, then reaction—Expectant fathers' experiences of an ultrasound screening identifying soft markers
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  25. Improving Decision Making about Genetic Testing in the Clinic: An Overview of Effective Knowledge Translation Interventions
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  26. Genetics, Health Care and Public Policy
    Alison Stewart, Philippa Brice, Hilary Burton, Paul D.P. Pharoah, Simon Sanderson, Ron L. Zimmern · 2001 · Cambridge University Press eBooks
  27. Are adverse effects incorporated in economic models? An initial review of current practice
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  28. Healthcare professionals’ and parents’ experiences of the confirmatory testing period: a qualitative study of the UK expanded newborn screening pilot
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  29. Informed decision‐making about the fetal anomaly scan: what knowledge is relevant?
    H. M. H. J. D. Schoonen, Marie‐Louise Essink‐Bot, H. M. E. Van AGT, Hajo I. J. Wildschut, Eric A.P. Steegers, Harry J. de Koning · 2010 · Ultrasound in Obstetrics and Gynecology
  30. Primary prevention of Down's syndrome
    Howard Cuckle · 2005 · International Journal of Medical Sciences
  31. Design and usability of heuristic‐based deliberation tools for women facing amniocentesis
    Marie‐Anne Durand, Odette Wegwarth, Jacky Boivin, Glyn Jones Elwyn · 2011 · Health Expectations
  32. Results of Newborn Screening for Hearing Loss
    Betty R. Vohr, Julie Jodoin-Krauzyk, Richard J. Tucker, Mary Jane Johnson, Deborah Topol, Marianne Ahlgren · 2008 · Archives of Pediatrics and Adolescent Medicine
  33. Informed decision making on PSA testing for the detection of prostate cancer: An evaluation of a leaflet with risk indicator
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  34. Parents' experiences of newborn screening for genetic susceptibility to type 1 diabetes
    Nikki J Kerruish · 2011 · Journal of Medical Ethics
  35. It's complicated – Factors predicting decisional conflict in prenatal diagnostic testing
    Cécile Muller, Linda D. Cameron · 2015 · Health Expectations
  36. Antenatal testing and the subsequent birth of a child with Down syndrome: a phenomenological study of parents’ experiences
    Roja D. Sooben · 2010 · Journal of Intellectual Disabilities
  37. De l'innovation biomédicale à la pratique de masse : le dépistage prénatal de la trisomie 21 en Angleterre et en France
    Carine Vassy · 2011 · Sciences sociales et santé
  38. Australian public perspectives on genomic newborn screening: which conditions should be included?
    Fiona Lynch, Stephanie Best, Clara Gaff, Lilian Downie, Alison Dalton Archibald, Christopher Gyngell, Ilias Goranitis, Riccarda Peters, Julian Savulescu, Sebastian Lunke et al. · 2024 · Human Genomics
  39. The effects on maternal anxiety of two‐dimensional versus two‐ plus three‐/four‐dimensional ultrasound in pregnancies at risk of fetal abnormalities: a randomized study
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  40. Information about prenatal screening for Down syndrome
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    Shenaz Ahmed, Mushtaq Ahmed, Saghira Malik Sharif, E. Sheridan, Graham R. Taylor · 2012 · Prenatal Diagnosis
  42. Does informed decision making influence psychological outcomes after receiving a positive screening outcome?
    Johanna H. Kleinveld, Leo P. ten Kate, Matthijs van den Berg, John M. G. van Vugt, Daniëlle R. M. Timmermans · 2009 · Prenatal Diagnosis
  43. CT scan screening is associated with increased distress among subjects of the APExS
    Christophe Paris, Marion Maurel, Amandine Luc, Audrey Stoufflet, J.‐C. Pairon, Marc Letourneux · 2010 · BMC Public Health
  44. Moving Towards Routine Non-Invasive Prenatal Testing (NIPT): Challenges Related to Women’s Autonomy
    Stanislav Birko, Marie–Ève Lemoine, Minh Thu Nguyen, Vardit Ravitsky · 2018 · OBM Genetics
  45. Improving knowledge about prenatal screening options: can group education make a difference?
    Dana M. Knutzen, Katie A. Stoll, Michael W. McClellan, Shad H. Deering, Lisa M. Foglia · 2013 · The Journal of Maternal-Fetal & Neonatal Medicine
  46. Women’s Attitudes Regarding Prenatal Testing for a Range of Congenital Disorders of Varying Severity
    Mary E. Norton, Sanae Nakagawa, Miriam Kuppermann · 2014 · Journal of Clinical Medicine
  47. Assessing the psychological effects of prenatal screening tests for maternal and foetal conditions: a systematic review
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  48. When fetal hydronephrosis is suspected antenatally—a qualitative study
    Marie Gunnel Oscarsson, Tomas Gottvall, Katarina Swahnberg · 2015 · BMC Pregnancy and Childbirth
  49. Anxiety, depression, and attachment before and after the first-trimester screening for Down syndrome: comparing couples who undergo ART with those who conceive spontaneously
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  50. Maternal anxiety and ultrasound markers for aneuploidy in a multiethnic population
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  51. Informed decision making does not affect health-related quality of life in lung cancer screening (NELSON trial)
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  52. The Psychological Well‐being of Pregnant Women Undergoing Prenatal Testing and Screening: A Narrative Literature Review
    Barbara Bowles Biesecker · 2019 · The Hastings Center Report
  53. Informed choice on Pap smear still limited by lack of knowledge on the meaning of false-positive or false-negative test results
    Ida J. Korfage, Marjolein van Ballegooijen, Brendy Wauben-Spaetgens, J. Dik F. Habbema, Marie‐Louise Essink‐Bot · 2011 · Patient Education and Counseling
  54. Making men matter: exploring gender roles in prenatal blood screening
    Kate Reed · 2011 · Journal of Gender Studies
  55. Are midwifery clients in Ontario making informed choices about prenatal screening?
    Vanessa L Dixon, Nadya Burton · 2014 · Women and Birth
  56. ‘It made you think twice’ – an interview study of women’s perception of a web-based decision aid concerning screening and diagnostic testing for fetal anomalies
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  57. Psychosocial Impact of False-Positive Newborn Screening Results: A Scoping Review
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  58. Women's attitudes to the successive decisions possibly involved in prenatal screening for Down syndrome: how consistent with their actual decisions?
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  60. Informing on prenatal screening for Down syndrome prior to conception. An empirical and ethical perspective
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  61. Ethnic differences in considerations whether or not to participate in prenatal screening for Down syndrome
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  62. Polymorphisms in the glucocerebrosidase gene and pseudogene urge caution in clinical analysis of Gaucher disease allele c.1448T>C (L444P)
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  63. Informing policy for the Australian context – Costs, outcomes and cost savings of prenatal carrier screening for cystic fibrosis
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  66. A review of decision support technologies for amniocentesis
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  67. Quality performance of newborn screening systems: Strategies for improvement
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  68. Improving access to genetic testing for adults with intellectual disability: A literature review and lessons from a quality improvement project in East London
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  71. Do contemporary social and health discourses arouse peripartum anxiety? A qualitative investigation of women's accounts
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