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Cited by 39Nursing care and researchIntergenerational Family Dynamics and CaregivingAging, Elder Care, and Social Issues

Burden, satisfaction caregiving, and family relations in informal caregivers of older adults

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Marinho, Jéssica da Silva, Batista, Ilaise Brilhante, Nobre, Rute Alessandra da Silva, Guimarães, Maria Sortênia Alves, Santos-Orlandi, Ariene Angelini dos, Brito, Tábatta Renata Pereira, Pagotto, Valéria, Saidel, Maria Giovana Borges +4 more·2022·Frontiers in Medicine
DOI 10.3389/fmed.2022.1059467PMC PMC9813492
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Abstract

Introduction: Family caregivers of older persons devote much of their time and energy to caring for another person. This exposure may burden caregivers and compromise their health and quality of life. Objective: To investigate the relationship between burden, sociodemographic, caregiving, and health characteristics of informal caregivers of dependent older adults. Methods: Cross-sectional and analytical study carried out in Palmas, Tocantins, Brazil, with 52 informal caregivers of older persons who need full-time help for basic living activities. Caregivers' burden was assessed by Zarit Burden Interview (ZBI). Data were analyzed using a T -test, Pearson's correlation, and Multiple Linear Regression. Results: The ZBI mean score of caregivers was 26.3 points (SD = 14.6; min = 0; max = 68). Burden scores were higher among caregivers who did not receive help from other people in care ( p = 0.016), reported family dysfunction ( p = 0.001), and had depression symptoms ( p = 0.007). A correlation was found between the scores of burdens and satisfaction with care ( r = 0.76; p < 0.001) and perceived material support ( r = −0.30; p = 0.40). Satisfaction with care (β: 0.61; p < 0.001) and family dysfunction (β: 8.07; p = 0.033) were significantly associated with the burden score. Conclusion: Caregivers with dysfunctional families and satisfaction with the care presented the highest-burden scores. The findings reveal the need for strategies to facilitate mediation and reduce caregiver burden by strengthening the family network support or providing professional assistance.

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  • Informal caregivers encounter a significant burden while providing care to older adults with chronic illnesses or dependence.

    “According to research, informal caregivers encounter a significant burden while providing care to older adults with chronic illnesses or dependence12.”

    From Examining burden among caregivers of community-dwelling older adults in Lebanon (2025) · cites this paper as [12]

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Authors
Marinho, J. D. S., Batista, I. B., Nobre, R. A. D. S., Guimarães, M. S. A., Santos-Orlandi, A. A. D., Brito, T. R. P., Pagotto, V., Saidel, M. G. B., Fusco, S. D. F. B., Maia, F. D. O. M., Corona, L. P., & Nunes, D. P.
Affiliations
  • Universidade Federal do Tocantins (BR)
  • Universidade Estadual de Campinas (UNICAMP) (BR)
  • Universidade Federal de Alfenas (BR)
  • Universidade Federal de Goiás (BR)
Corresponding author
Nunes, Daniella Pires
ORCID
Venue
Frontiers in Medicine
Publisher
Frontiers Media SA
Published
2022-12-22
Volume
9
Pages
1059467-1059467
ISSN
2296-858X (ISSN-L)
DOI
10.3389/fmed.2022.1059467
PMC
PMC9813492
OpenAlex
W4312186898
Cited by
39
References
3
Citations by year
2026: 16 · 2025: 11 · 2024: 10 · 2023: 2
FWCI
8.60
Type
journal article
Language
en
Open access
Licence
Locations
  • Frontiers in Medicine (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Topics
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
  • Health Sciences › Health Professions › General Health Professions › Aging, Elder Care, and Social Issues
Keywords
caregiver burden, informal caregivers, older adults, family caregiving, family dysfunction, caregiver satisfaction, material support, depression, Zarit Burden Interview, dependent elderly

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