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Experiencing Chronic Illness
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Out of Sight But Not Out of Mind: Managing Invisible Social Identities in the Workplace
Clair, J. A., Beatty, J. E., & Maclean, T. L. (2005) · Academy of Management Review · doi:10.5465/amr.2005.15281431 · Cited by 866
“They must either explain these differences or bear the negative reactions from others who think they are strange or simply lazy (e.g., Charmaz, 2000).”
Epilepsy and social identity: the stigma of a chronic neurological disorder
Jacoby, A., Snape, D., & Baker, G. A. (2005) · The Lancet Neurology · doi:10.1016/s1474-4422(05)01014-8 · Cited by 518
Scambler, G. (2004) · Social Theory & Health · doi:10.1057/palgrave.sth.8700012 · Cited by 315
The illness experience: state of knowledge and perspectives for research
Pierret, J. (2003) · Sociology of Health & Illness · doi:10.1111/1467-9566.t01-1-00337 · Cited by 285
Biddle, L., Donovan, J., Sharp, D., & Gunnell, D. (2007) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2007.01030.x · Cited by 261
“These data overlap with the sociological literature addressing experiences of chronic illness (Charmaz 2000) – in particular Bury’s (1982) notion of biographical disruption.”
ResultQuality of Life of Cancer Patients Treated with Chemotherapy
Lewandowska, A., Rudzki, G., Lewandowski, T., Próchnicki, M., Rudzki, S., Laskowska, B. J., & Brudniak, J. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17196938 · Cited by 281
Sandelowski, M., Lambe, C. E., & Barroso, J. V. (2004) · Journal of Nursing Scholarship · doi:10.1111/j.1547-5069.2004.04024.x · Cited by 256
Back pain and the resolution of diagnostic uncertainty in illness narratives
Lillrank, A. (2003) · Social Science & Medicine · doi:10.1016/s0277-9536(02)00479-3 · Cited by 216
Chronic illness, expert patients and care transition
Taylor, D. G., & Bury, M. R. (2007) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2007.00516.x · Cited by 203
An Ethnographic Study of Stigma and Ageism in Residential Care or Assisted Living
Dobbs, D., Eckert, J. K., Rubinstein, B., Keimig, L., Clark, L., Frankowski, A. C., & Zimmerman, S. (2008) · The Gerontologist · doi:10.1093/geront/48.4.517 · Cited by 204
“The state of being stigmatized contributes to a spoiled identity in which a person is seen to have a failing, shortcoming, or handicap (Charmaz, 2000; Goffman, 1963; Jones et al., 1984).”
BackgroundThe Work of Professional Football
Roderick, M. (2006) · Routledge eBooks · doi:10.4324/9780203014950 · Cited by 203
“For players with long-term injuries, the social conditions in which they exist contribute to their suffering a loss of self (Charmaz 2003).”
BackgroundThe stigmatisation of people with chronic back pain
Holloway, I., Sofaer-Bennett, B., & Walker, J. (2007) · Disability and Rehabilitation · doi:10.1080/09638280601107260 · Cited by 214
“Her experience was similar to one recorded by Charmaz in 1983 [36], suggesting that little had changed since then.”
BackgroundResultIllness representations and lived experience in early-stage dementia
Harman, G., & Clare, L. (2006) · Qualitative Health Research · doi:10.1177/1049732306286851 · Cited by 196
“The vulnerability of self in this context is also derived from potential devaluation by society, the “moral cast” of continuing illness (Charmaz, 2000).”
BackgroundTownsend, A. F., Wyke, S., & Hunt, K. (2006) · Chronic Illness · doi:10.1177/17423953060020031301 · Cited by 194
Bramley, N., & Eatough, V. (2005) · Psychology and Health · doi:10.1080/08870440412331296053 · Cited by 183
“individual’s experience of chronic illness (Charmaz, 2000).”
BackgroundEnacting appreciations: beyond the patient perspective
Pols, J. (2005) · Health Care Analysis · doi:10.1007/s10728-005-6448-6 · Cited by 179
“They try to manage their different social and medical worlds by collecting stories from different (medical) practices (Charmaz, 2000).”
BackgroundBond, J., Dickinson, H. O., Matthews, F. E., Jagger, C., Brayne, C., & CFAS, M. (2006) · European Journal of Ageing · doi:10.1007/s10433-006-0039-8 · Cited by 155
“The third explanation is more likely since it is consistent with different meanings of health captured in sociological and psychological research and the increasing understanding of the ‘disability paradox’ (Albrecht and Devlieger 1999) which highlights the apparent discrepancy between reports of personal well being a…”
BackgroundWhelan, E. (2007) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2007.01024.x · Cited by 133
“As with many chronic illnesses (Barker 2005, Charmaz 2000, Garro 1994, Grace 1995, May, Doyle and Chew-Graham 1999, Rhodes McPhillips-Tangum, Markham and Klenk 1999, Ware 1992, Werner and Malterud 2003), the suffering caused by endometriosis is invisible and subject to social discreditation.”
BackgroundLay-led self-management in chronic illness: a review of the evidence
Newbould, J., Taylor, D. G., & Bury, M. R. (2006) · Chronic Illness · doi:10.1177/17423953060020040401 · Cited by 134
Roderick, M. (2006) · Work Employment and Society · doi:10.1177/0950017006064113 · Cited by 131
“Because a footballer’s sense of self is invested in their physical body, a bad injury is a disruption of the self that is the equivalent to the trauma of a chronic illness (Charmaz, 2003).”
BackgroundL'expertise profane dans les associations de patients, un outil de démocratie sanitaire
Akrich, M., & Rabeharisoa, V. (2012) · Santé Publique · doi:10.3917/spub.121.0069 · Cited by 130
“Au-delà, de nombreux travaux sur les malades chroniques [2] ont accrédité l’idée que les patients, confrontés quotidiennement à leur pathologie et aux problèmes qu’elle engendre, finissent par en devenir de véritables experts.”
BackgroundTalcott Parsons, the Sick Role and Chronic Illness
Varul, M. Z. (2010) · Body & Society · doi:10.1177/1357034x10364766 · Cited by 148
“Regaining the desired status as ‘valid adult’ (Charmaz, 2000: 282) requires, in capitalist societies, the acquisition of esteem through direct or indirect participation in the generalized reciprocity of economic exchange.”
BackgroundThe Problems and Needs of Patients Diagnosed with Cancer and Their Caregivers
Lewandowska, A., Rudzki, G., Lewandowski, T., & Rudzki, S. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18010087 · Cited by 118
Hudak, P. L., Clark, J., HAWKER, G. A., Coyte, P. C., Mahomed, N. N., Kreder, H. J., & Wright, J. G. (2002) · Medical Decision Making · doi:10.1177/0272989x0202200315 · Cited by 121
How to build an “active” patient? The work of AIDS associations in France
Barbot, J. (2005) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.06.025 · Cited by 113
Waiting for a Liver Transplant
Brown, J. R., Sorrell, J. H., McClaren, J., & Creswell, J. W. (2005) · Qualitative Health Research · doi:10.1177/1049732305284011 · Cited by 113
The best experts: The narratives of those who have a genetic condition
Petersen, A. R. (2006) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.11.068 · Cited by 114
Hancock, J., Liu, S. X., Luo, M., & Mieczkowski, H. (2022) · SSRN Electronic Journal · doi:10.2139/ssrn.4053961 · Cited by 101
O’Brien, R., Hart, G. J., & Hunt, K. (2007) · International Journal of Men s Health · doi:10.3149/jmh.0603.178 · Cited by 103
Cerebral implants and Parkinson's disease: A unique form of biographical disruption?
Gisquet, E. (2008) · Social Science & Medicine · doi:10.1016/j.socscimed.2008.09.026 · Cited by 103
“Consequently, chronic illness forces an individual to reflect on the meaning of physical and social existence, and thus causes new facets of his identity to emerge (Charmaz, 1983, 2000).”
BackgroundWatkins-Hayes, C., Pittman-Gay, L., & Beaman, J. (2012) · Social Science & Medicine · doi:10.1016/j.socscimed.2012.02.001 · Cited by 99
“Unlike acute illnesses, chronic illnesses exhibit an “unfolding” or “emergent” quality in which sufferers must continuously negotiate how they understand their conditions and reconcile these beliefs with their health management behaviors (Bury, 1982, 1991; Charmaz, 2000).”
BackgroundInfluentialAdding insult to injury: workplace injury in English professional football
Roderick, M. (2006) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2006.00483.x · Cited by 97
The Routledge Handbook of Disability Activism
Berghs, M. J., Chataika, T., El-Lahib, Y., & Dube, K. (2019) · Routledge eBooks · doi:10.4324/9781351165082 · Cited by 94
"I'm just providing for my family": A qualitative study of stay-at-home fathers.
Rochlen, A. B., Suizzo, M., McKelley, R. A., & Scaringi, V. (2008) · Psychology of Men & Masculinity · doi:10.1037/a0012510 · Cited by 96
Armstrong, N., Koteyko, N., & Powell, J. (2011) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/1363459311425514 · Cited by 89
“Blood glucose levels featured prominently as an indicator of control in many of the messages posted as participants reported unexpectedly high or low levels and described (sometimes at length) their attempts to understand the symptoms they were experiencing and regain some feeling of control (Charmaz, 2000).”
BackgroundDeveloping a Personal and Social Identity With Type 1 Diabetes During Adolescence
COMMISSARIAT, P. V., Kenowitz, J., Ilkowitz, J. T., Heptulla, R. A., & Gonzalez, J. S. (2016) · Qualitative Health Research · doi:10.1177/1049732316628835 · Cited by 86
“Themes related to the extent to which the adolescent integrated T1DM into their identities were consistent with the frameworks of identity by Christiansen (1999) and identity development with a chronic illness (Charmaz, 1995, 2000).”
BackgroundMethodThe Nature of Communication Work During Cancer: Advancing the Theory of Illness Trajectories
Donovan-Kicken, E., Tollison, A. C., & Goins, E. S. (2011) · Health Communication · doi:10.1080/10410236.2011.629405 · Cited by 80
Nicholls, S. (2009) · Journal of Health Psychology · doi:10.1177/1359105308100201 · Cited by 78
Boswell, G., Kahana, E. F., & Dilworth‐Anderson, P. (2006) · Journal of Religion and Health · doi:10.1007/s10943-006-9060-7 · Cited by 81
“This issue associated with self-image could compound the stress of having a chronic illness (Charmaz, 2000).”
Resko, S. M., Ellis, J. D., Early, T. J., et al. (2019) · Substance Use & Misuse · doi:10.1080/10826084.2018.1543327 · Cited by 68
“This approach allowed our literature review to serve as a departure point from which to study the data (Charmaz, 2000).”
BackgroundThe Internet and the Experience of Illness
Conrad, P., & Stults, C. D. (2010) · Vanderbilt University Press eBooks · doi:10.2307/j.ctv16h2n9s.14 · Cited by 68
Dunne, E. A., & Quayle, E. (2001) · Journal of Health Psychology · doi:10.1177/135910530100600606 · Cited by 64
“In common with other people who become chronically ill, the women were required to re-frame their sense of personal identity (Charmaz, 2000).”
Background“We're Going to be Survivors”: Couples' Identity Challenges During and After Cancer Treatment
Miller, L. E., & Caughlin, J. P. (2012) · Communication Monographs · doi:10.1080/03637751.2012.739703 · Cited by 64
“As Charmaz (2000) noted, ‘‘People with chronic illnesses must repeatedly rethink how they live and who they are becoming’’ (p. 286).”
BackgroundBad Girls and Fallen Women: Chronic STD Diagnoses as Gateways to Tribal Stigma
Nack, A. (2002) · Symbolic Interaction · doi:10.1525/si.2002.25.4.463 · Cited by 65
Nothing and Everything: Fibromyalgia as a Diagnosis of Exclusion and Inclusion
Boulton, T. (2018) · Qualitative Health Research · doi:10.1177/1049732318804509 · Cited by 63
Nowakowski, A. C. H. (2014) · Health and Quality of Life Outcomes · doi:10.1186/s12955-014-0141-0 · Cited by 62
“Conversely, people in strained relationships may find that their partners become distant and unsupportive as their health declines [54,83].”
BackgroundRoutines in medication management: the perspective of people with chronic conditions
Haslbeck, J. W., & Schaeffer, D. (2009) · Chronic Illness · doi:10.1177/1742395309339873 · Cited by 62
‘Doctors Just Say “Rest and Take Ibuprofen”’
Pike, E. C. J. (2005) · International Review for the Sociology of Sport · doi:10.1177/1012690205057199 · Cited by 58
“Similarly, interactionist approaches have been used to examine experiences of health care (Charmaz, 2000; Curry, 1993; Goffman, 1961, 1963).”
BackgroundMethodFinlay, L., & Molano-Fisher, P. (2007) · Medicine Health Care and Philosophy · doi:10.1007/s11019-007-9116-9 · Cited by 57
Studying the Experience of Chronic Illness through Grounded Theory
Charmaz, K. C. (2010) · Palgrave Macmillan UK eBooks · doi:10.1057/9780230297432_2 · Cited by 57
Self-citationMS and me: exploring the impact of multiple sclerosis on perceptions of self
Mozo-Dutton, L., Simpson, J., & Boot, J. S. (2011) · Disability and Rehabilitation · doi:10.3109/09638288.2011.638032 · Cited by 55
“Many spoke of their frustration and anger at ‘not being able to do things’ and in accordance with existing research, threats to a person’s independence were particularly difficult to manage [53].”
BackgroundInfluentialGilbert, L., & Walker, L. (2009) · Health & Place · doi:10.1016/j.healthplace.2009.06.006 · Cited by 55
“Gilbert and Walker (2002) demonstrate that HIV/AIDS in South Africa reflects both historical and ongoing social inequalities of race, class, gender and place—this is confirmed by more recent studies.”
BackgroundRebman, A. W., Aucott, J. N., Weinstein, E. R., et al. (2015) · Qualitative Health Research · doi:10.1177/1049732315619380 · Cited by 53
“In this framework, chronic illness can be a significant event—a specific type of biographical disruption (Bury, 1982) that “challenges prior meanings, ways of living that have been taken for granted, and ways of knowing self” (Charmaz, 2000, p. 277).”
BackgroundMethodGood care : enacting a complex ideal in long-term psychiatry
Pols, J. J. (2004) · University of Twente Research Information · Cited by 52
Biographical work and returning to employment following a spinal cord injury
Ville, I. (2005) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2005.00445.x · Cited by 51
“…manage illness and stigma in everyday life, try to regain continuity in their disrupted lives and sometimes become innovators by building new meanings and values (among others: Strauss and Glaser 1975, Bury 1982, William 1984, Charmaz and Paterniti, 1999, Charmaz, 2000, Pierret 2003).”
BackgroundLiving with unexplained chest pain
Jerlock, M., Gaston‐Johansson, F., & Danielson, E. (2005) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2005.01195.x · Cited by 51
Multiplicity in Scientific Medicine: The Experience of HIV-Positive Patients
Barbot, J., & Dodier, N. (2002) · Science Technology & Human Values · doi:10.1177/016224390202700304 · Cited by 50
“…the end of the 1960s onward, a number of studies of chronic illness opened up a new approach to the experience of health care, placing the emphasis on the full range of social worlds that, in the patient’s existence, interfere with the worlds of medicine (Baszanger 1986; Conrad 1987; Charmaz 1999).”
BackgroundMeaning and coherence of self and health: An approach based on narratives of life events
Ville, I., & Khlat, M. (2006) · Social Science & Medicine · doi:10.1016/j.socscimed.2006.10.014 · Cited by 49
“…give meaning and coherence to their life history, sometimes innovating by adopting new representations and new values (among others: Bury, 1982; Charmaz, 1983, 1991, 2000; Corbin & Strauss, 1988; Lawton, 2003; Pierret, 2003; Strauss & Glaser, 1975; Ville, 2005; Ville & Paicheler, 2000;…”
BackgroundJones, M., & Pietilä, I. (2020) · Sociology of Health & Illness · doi:10.1111/1467-9566.13064 · Cited by 48
Beyond Models: Understanding the Complexity of Disabled People’s Lives
Shakespeare, T., & Watson, N. (2010) · Palgrave Macmillan UK eBooks · doi:10.1057/9780230297432_4 · Cited by 49
An analysis over time (1990–2000) of the experiences of living with HIV
Pierret, J. (2007) · Social Science & Medicine · doi:10.1016/j.socscimed.2007.06.017 · Cited by 47
On parallel tracks: newly home from hospital—people with stroke describe their expectations
Wottrich, A. W., Åström, K., & Löfgren, M. (2011) · Disability and Rehabilitation · doi:10.3109/09638288.2011.640381 · Cited by 47
“A chronic illness can create a “disruption of the lifeline” [30], the person in the present is separated from his or her history, and his or her conceived self-image for the future is smashed.”
BackgroundBreast Cancer: Exploring the Facts and Holistic Needs during and beyond Treatment
Ng, Z., Ong, M. X., Jegadeesan, T., Deng, S., & Yap, C. T. (2017) · Healthcare · doi:10.3390/healthcare5020026 · Cited by 46
Illness intrusion and psychological adjustment to rheumatic diseases: A social identity framework
Abraído‐Lanza, A. F., & Revenson, T. A. (2006) · Arthritis Care & Research · doi:10.1002/art.21849 · Cited by 45
“Because of these illness-related stressors, chronic diseases such as rheumatic disorders present a number of threats to the self concept, which can adversely affect psychological well-being (3).”
BackgroundContaining acute childhood illness within family life: a substantive grounded theory
Neill, S. (2010) · Journal of Child Health Care · doi:10.1177/1367493510380078 · Cited by 44
“…illness management as ‘back stage’ work in Goffman’s (1959) dramaturgical analysis terms, keeping it concealed within family life, echoing the private nature of suffering identified in research around chronic illness (Charles and Harris, 2007; Charmaz, 1983, 2000, 2002; Williams 1993, 2000).”
BackgroundTo work or not to work? The occupational trajectories of wheelchair users
Ville, I., & Winance, M. (2006) · Disability and Rehabilitation · doi:10.1080/09638280500192561 · Cited by 45
Cox, C. L., Zhu, L., Ojha, R. P., Li, C., Srivastava, D. K., Riley, B., Hudson, M. M., & Robison, L. L. (2016) · Journal of Cancer Survivorship · doi:10.1007/s11764-016-0520-0 · Cited by 42
“Chronic illness post-cancer in adults can cause feelings of loss of control, anger, sadness, guilt, and confusion [46, 47].”
Only when I Cough? Adults’ Disclosure of Cystic Fibrosis
Lowton, K. (2004) · Qualitative Health Research · doi:10.1177/1049732303260675 · Cited by 42
“The impact of felt (perceived) or enacted (experienced) stigma in chronic illness has also received much attention (see, for example, Charmaz, 2000; Jacoby, 1994; Scambler & Hopkins, 1986, 1988).”
BackgroundLong‐term ill‐health, poverty and ethnicity
Harriss, K., & Salway, S. (2009) · Ethnicity and Inequalities in Health and Social Care · doi:10.1108/17570980200900022 · Cited by 41
“These findings are consistent with Charmaz’s (2000) assertion that people need to learn what a health condition means in order to adapt to it.”
BackgroundResultInfluentialPerceived Stigma Among People With Chronic Health Conditions
Brown, R. L. (2014) · Research on Aging · doi:10.1177/0164027514533133 · Cited by 39
“…can supplant the negative effects of even severe functional restraints (Cahill & Eggleston, 1995; Joachim & Acorn, 2000; Lock & Scheper-Hughes, 1996) and help to counteract discriminatory experiences among people with chronic health conditions (Charmaz, 2000; Joachim & Acorn, 2000).”
BackgroundMethodInfluentialScheinfeld, E. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18137179 · Cited by 38
“Charmaz elaborates on these ideas of shame and stigma since illness makes people vulnerable to negative social identifications, but also their own selfdefinitions [37].”
BackgroundMiller, L. E. (2015) · Southern Communication Journal · doi:10.1080/1041794x.2014.936971 · Cited by 37
How do You Feel Doctor? An Analysis of Emotional Aspects of Routine Professional Medical Work
Nettleton, S., Burrows, R., & Watt, I. S. (2008) · Social Theory & Health · doi:10.1057/palgrave.sth.8700112 · Cited by 37
Neill, S., Cowley, S. A., & Williams, C. (2011) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2011.11.007 · Cited by 36
Lai, J., Garcia, S. F., Salsman, J. M., Rosenbloom, S. K., & Cella, D. F. (2011) · Quality of Life Research · doi:10.1007/s11136-011-9935-2 · Cited by 35
Perceptions of cause and control in people with Parkinson's disease
Eccles, F. J. R., Murray, C. D., & Simpson, J. (2010) · Disability and Rehabilitation · doi:10.3109/09638288.2010.533241 · Cited by 34
“For instance, PD could be ‘at the back of your mind’ (Frances) without necessarily dwelling on it and certain illness related tasks, such as taking medication or avoiding certain foods became normalised [11].”
BackgroundChecton, M. G., Magsamen‐Conrad, K., Venetis, M. K., & Greene, K. L. (2014) · Health Education & Behavior · doi:10.1177/1090198114557121 · Cited by 35
“There are likely differences in how various cultural groups appraise chronic illness and its management (Charmaz, 2000).”
BackgroundNowakowski, A. C. H., & Sumerau, J. E. (2019) · Sociology of Health & Illness · doi:10.1111/1467-9566.12849 · Cited by 36
Maley, M., Warren, B. S., & Devine, C. M. (2013) · Journal of Nutrition Education and Behavior · doi:10.1016/j.jneb.2012.10.009 · Cited by 33
Handbook of Medical Sociology, Sixth Edition
Conrad, P., Bird, C., Fremont, A., & Timmermans, S. (2010) · Vanderbilt University Press eBooks · doi:10.2307/j.ctv16h2n9s · Cited by 37
Wouters, E. (2012) · Social Theory & Health · doi:10.1057/sth.2012.12 · Cited by 31
Resilience in low-income African American women living and aging with HIV
Subramaniam, S., Camacho, L. M., Carolan, M., & López‐Zerón, G. (2016) · Journal of Women & Aging · doi:10.1080/08952841.2016.1256735 · Cited by 35
“In essence, they were able to make the transformation from being a “sick” person to incorporating the illness status into their identity (Charmaz, 2000).”
BackgroundControlling DeathCompromising Life: Chronic Disease, Prognostication, and the New Biotechnologies
Maynard, R. J. (2006) · Medical Anthropology Quarterly · doi:10.1525/maq.2006.20.2.212 · Cited by 32
Viswanathan, H. N., & Lambert, B. L. (2005) · Research in Social and Administrative Pharmacy · doi:10.1016/j.sapharm.2004.12.007 · Cited by 32
Nilsson, C., Bartfai, A., & Löfgren, M. (2010) · Disability and Rehabilitation · doi:10.3109/09638288.2010.528141 · Cited by 31
“Research has shown how a crisis of a sudden illness throws people out of their ordinary life: the controllable becomes uncontrollable [27].”
BackgroundResultInfluentialFranklin, M., Lewis, S. C., Willis, K. F., Rogers, A. E., Venville, A., & Smith, L. D. (2019) · Social Science & Medicine · doi:10.1016/j.socscimed.2019.05.031 · Cited by 30
Self, agency and the surgical collective: detachment
Moreira, T. (2004) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2004.00377.x · Cited by 31
Coming Back Normal: The Process of Self-Recovery in Those With Schizophrenia
Shea, J. M. (2010) · Journal of the American Psychiatric Nurses Association · doi:10.1177/1078390309359197 · Cited by 33
“Being labeled with a stigmatizing illness can have devastating consequences for the individual’s self-identity, which in turn may also affect the course of illness (Charmaz, 2000; Grytten & Maseide, 2006; Lee, Kochman, & Sikkema, 2002).”
BackgroundHealth Information on the Internet
Rozenkranz, N., Eckhardt, A., Kühne, M., & Rosenkranz, C. (2013) · Business & Information Systems Engineering · doi:10.1007/s12599-013-0274-4 · Cited by 29
“This is also highlighted by studies which identify a connection between the management of chronic illnesses and a heightened need for information of those affected (Allen et al. 2004; Charmaz 2000; Coulter and Fitzpatrick 2000).”
BackgroundAtkin, K. M., Stapley, S., & Easton, A. (2010) · Social Science & Medicine · doi:10.1016/j.socscimed.2010.04.011 · Cited by 28
“This process, however, is not simply a reflection of individual agency; beliefs about illness are constructed in relation to broader social, cultural andmoral values (Charmaz, 2000).”
BackgroundBewältigung chronischer Krankheit
Schaeffer, D., & Haslbeck, J. W. (2016) · Springer eBooks · doi:10.1007/978-3-658-11010-9_16 · Cited by 30
Jefferson, L., Atkin, K. M., Sheridan, R., Oliver, S. E., Macleod, U., Hall, G. D., Forbes, S., Green, T., Allgar, V. L., & Knapp, P. (2019) · British Journal of General Practice · doi:10.3399/bjgp19x706625 · Cited by 28
“33 Individual agency is realised socially 34 and experience is defined and realised through social negotiation, which includes social and economic barriers.”
Sociological theory and chronic illness: Current perspectives and debates
Bury, M. R. (2002) · Österreichische Zeitschrift für Soziologie · doi:10.1007/s11614-002-0017-0 · Cited by 27
Fostering Recovery from Life-transforming Mental Health Disorders: A Synthesis and Model
Green, C. A. (2004) · Social Theory & Health · doi:10.1057/palgrave.sth.8700036 · Cited by 28
“Common responses to initial illness symptoms, to receiving diagnoses, and to functional limitations and impairments include complicated processes of denial, acceptance, and adaptation, although not necessarily in that order (Charmaz, 1991; 1995; 2000).”
BackgroundThe Structure of Lay Consultation Networks:
Stoller, E. P., & Wisniewski, A. A. (2003) · Journal of Aging and Health · doi:10.1177/0898264303253504 · Cited by 28
Swell Foundations: Fundamental Social Causes and Chronic Inflammation
Nowakowski, A. C. H., & Sumerau, J. E. (2015) · Sociological Spectrum · doi:10.1080/02732173.2014.1000554 · Cited by 27
“Likewise, people who have lived with specific health conditions for long periods of time may gain valuable understanding of how to manage their diseases (Bury 1991; Charmaz 2000).”
BackgroundSensemaking through the storm: How postpartum depression shapes personal work–family narratives.
Gabriel, A. S., Ladge, J. J., Little, L. M., MacGowan, R. L., & Stillwell, E. E. (2023) · Journal of Applied Psychology · doi:10.1037/apl0001125 · Cited by 29
Löfvenmark, I., Norrbrink, C., Nilsson-Wikmar, L. B., et al. (2015) · Disability and Rehabilitation · doi:10.3109/09638288.2015.1106596 · Cited by 26
“However, some people tend to demonstrate more resistance and can develop positive self-identities and beneficial coping strategies [33] despite or even because of their injuries.”
BackgroundPsychosocial experiences and needs of women diagnosed with cervical cancer in Ethiopia
Kebede, W., & Kebede, K. (2016) · International Social Work · doi:10.1177/0020872815617993 · Cited by 26
“Chronic illness can bring feelings of guilt, loss of control, anger, sadness, confusion, and fear (Charmaz, 2000; Stanton et al., 2001).”
BackgroundPols, J. J. (2012) · Cited by 24
Metadata
- Authors
- Charmaz, K.
- Corresponding author
- Charmaz, Kathy
- ORCID
- Charmaz, Kathy
- Venue
- Handbook of Social Studies in Health and Medicine
- Publisher
- SAGE Publications Ltd
- Published
- 2000
- Pages
- 277-292
- OpenAlex
- W2487022057
- Cited by
- 352
- References
- 0
- Citations by year
- 2026: 8 · 2025: 7 · 2024: 9 · 2023: 17 · 2022: 14 · 2021: 7 · 2020: 62 · 2019: 19 · 2018: 10 · 2017: 9 · 2016: 20 · 2015: 11 · 2014: 15 · 2013: 13 · 2012: 14
- FWCI
- 26.85
- Type
- book chapter
- Language
- en
- Open access
- closed
- Locations
- SAGE Publications Ltd eBooks (publishedVersion)
- Topics
- Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
- Social Sciences › Arts and Humanities › History and Philosophy of Science › Medicine, History, and Philosophy
- Social Sciences › Education › Qualitative research in health
- Keywords
- chronic disease, lived experience, patient experience
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