The psychological processes of adaptation and hope in patients with multiple sclerosis: a thematic synthesis
Open accessAbstract
Purpose: The purpose of the current research was to review the lived experiences of patients with multiple sclerosis (MS) in order to extrapolate the psychological process of adaptation. Methods: A thematic synthesis was undertaken within 3 phases: systematic search for literature, critical appraisal of included studies and synthesis of research. Results: A total of 47 studies were included in this review, this included 1146 (812 females, 265 males, and 69 unknown) unique patients with MS (aggregated mean age: 49.3 years [30/47 studies], aggregated time with illness: 12.3 years [28/47 studies]). The critical appraisal of research illustrated that the design of the studies and the reference to reflexivity in studies were not well considered. The synthesis was able to identify a primary response of psychological adaptation as well as distinct coping strategies. A model of emotion, hope, and adjustment was identified. Conclusion: Simple processes of adaptation for people with MS can be considered by clinicians and utilised to promote mental well-being in patients. Clinicians and researchers also need to be aware of the important psychological needs of patients during interactions. Discussion and clinical implications are provided.
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Theoretical models of adjustment in MS were based on research mainly including people with relapsing-remitting MS or mixed samples, so the relevance of all predicting factors to people with progressive MS is not clear.
“These models were based on research that mainly included people with relapsing-remitting MS or mixed samples of the MS population, so the relevance of all the predicting factors to people with progressive MS who may face different challenges and symptoms is not clear.”
From Key demographics and psychological skills associated with adjustment to progressive Multiple Sclerosis early in the diagnosis (2022) · cites this paper as [9]
The Limitations section (4.6; page unavailable) says the synthesis could not analyze differences among forms of MS, supporting uncertainty about its applicability to progressive MS. But the paper does not establish that adjustment models were based mainly on relapsing-remitting or mixed samples, or assess whether all their predicting factors apply to progressive MS. Its Demographics section (3.1; page unavailable) reports MS type as unknown for most participants. (LLM, conf=0.83)
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References 111 · Cited by 48
Research works printed but not linked: 4
- Leventhal, H., Meyer, D. and Nerenz, D. (1980) The Common Sense Representation of Illness Danger. In: Rachman, S., Ed., Medical Psychology, Volume 2, Pergamon Press, New York, 7-30.
- Livneh, H. (1986) A Unified Approach to Existing Models of Adaptation to Disability: Part 1: A Model of Adaptation. Journal of Applied Rehabilitation Counseling, 17, 5-16.
- Becker, E. (1973) The Denial of Death. Free Press, New York.
- Barnard, D. (1995) Chronic Illness and the Dynamics of Hoping. In: Toombs, S.K., Barnard, D. and Carson, R.A., Eds., Chronic Illness from Experience to Policy, Indiana University Press, Indiana.
- Authors
- Soundy, A., Roskell, C., Elder, T., Collett, J., & Dawes, H.
- Affiliations
- University of Birmingham (GB)
- Oxford Brookes University (GB)
- Venue
- Open Journal of Therapy and Rehabilitation
- Publisher
- Scientific Research Publishing, Inc.
- Published
- 2016
- Volume
- 04
- Issue
- 01
- Pages
- 22-47
- ISSN
- 2332-1822 (ISSN-L)
- 2332-1830
- OpenAlex
- W2275962097
- Cited by
- 48
- References
- 111
- Citations by year
- 2026: 2 · 2025: 2 · 2024: 3 · 2023: 6 · 2022: 4 · 2021: 6 · 2020: 7 · 2019: 6 · 2018: 4 · 2017: 3 · 2016: 5
- FWCI
- 5.45
- Type
- journal article
- Language
- en
- Open access
- diamond
- doi.org
- Locations
- Open Journal of Therapy and Rehabilitation (publishedVersion, cc-by)
- Radar (Oxford Brookes University) (submittedVersion, cc-by)
- Topics
- Health Sciences › Medicine › Pathology and Forensic Medicine › Multiple Sclerosis Research Studies
- Social Sciences › Psychology › Applied Psychology › Optimism, Hope, and Well-being
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- multiple sclerosis, psychological adjustment, hope, coping strategies, lived experience, emotions, psychological well-being, psychological needs, chronic disease
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