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Cited by 4Family Support in IllnessNursing care and researchFamily and Disability Support Research

Tailored Psychoeducational Home Interventions for Children with a Chronic Illness: Families’ Experiences

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Capurso, Michele, Catalano, Gaetano, Calvaruso, Anna, Monticelli, Annalinda, Taormina, Calogero, Battiato, Samanta, Guadagna, Francesca Paola, Piccione, Tania +4 more·2024·Continuity in Education
DOI 10.5334/cie.100PMC PMC11104378
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Abstract

The quality of life for a child with a chronic illness depends on various factors, including the illness’s severity, medical treatments, psychosocial and educational support, resource availability, and community involvement. These biopsychosocial factors become significant when the child receives care at home. This article presents and evaluates a highly personalized support project offered to 40 Sicilian families, consisting of educational, social, and psychological services delivered at the families homes and in their communities. Guided by the Psychosocial Assessment Tool (PAT) and the Functional Psychology framework, the project employed a family-focused approach to healthcare and was based on a continuous dialogue between all stakeholders. The project was evaluated through a qualitative interview with eight families in the Palermo area, which was analyzed using consensual qualitative research. Results revealed families’ appreciation of the project and the importance of a professional who listened to their needs, provided a connection with the medical team, and tailored activities inside and outside the home. The ability of professionals to listen and adapt activities to different contexts and needs was crucial for the project’s success. We conclude that creating tailored family-level interventions with an educator acting as a liaison with the medical team is a widely acceptable strategy that should be further developed and investigated.

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  • Close dyadic teacher-student bonds fostered resilience in medicalized environments.

    “In line with attachment‐oriented perspectives, these bonds fostered resilience in medicalized environments [62, 63].”

    From Sense of School Belonging and School Reintegration for Students Hospitalized With Chronic or Complex Medical Diseases: Insights From a Grounded Theory Study (2026) · cites this paper as [62]

    Results (Domain I) describes a child’s close relationship with home-care professionals, and the Conclusion says psychoeducational services can promote resilience at home. The paper does not establish that dyadic teacher–student bonds fostered resilience in medicalized environments; its focus is on children and families receiving home-based interventions. (LLM, conf=0.85)

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Cited by

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Authors
Capurso, M., Catalano, G., Calvaruso, A., Monticelli, A., Taormina, C., Battiato, S., Guadagna, F. P., Piccione, T., D’Angelo, P., Russo, D., Trizzino, A., & Raspa, V.
Affiliations
University of Perugia (IT)
Corresponding author
Capurso, Michele
ORCID
Venue
Continuity in Education
Publisher
Ubiquity Press, Ltd.
Published
2024-01-05
Volume
5
Issue
1
Pages
1-21
ISSN
2631-9179 (ISSN-L)
DOI
10.5334/cie.100
PMC
PMC11104378
OpenAlex
W4390615035
Cited by
4
References
3
Citations by year
2026: 1 · 2025: 3
FWCI
2.87
Type
journal article
Language
en
Open access
Licence
Locations
  • Continuity in Education (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
  • Greater South Information System
Topics
  • Social Sciences › Sociology and Political Science › Family Support in Illness
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords
children with chronic illness, family-focused care, family experiences, Psychosocial Assessment Tool, home-based intervention, quality of life, biopsychosocial factors, Sicily

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