Parents' views on preparation to care for extremely premature infants at home
Open accessAbstract
AIM: To gain insight into the post-discharge experiences of parents in relation to the adequacy of preparation for caring for extremely premature infants at home. METHOD: A narrative approach was drawn on to facilitate data collection, through face-to-face semi-structured interviews with 14 parents of extremely premature infants. FINDINGS: Constant comparative analysis was used to allow the emergence of five key research themes - emotional and mental health of parents, uncertain outcomes, ongoing health needs of the baby, educational needs of health professionals, and parental support and preparation for transition home. CONCLUSION: Parental experience of being discharged home with a premature baby can be emotionally challenging and necessitates a range of support mechanisms to help them to cope with this period of transition. Health professionals can direct parents to appropriate counselling services, resources and peer support groups. Tailored education is needed for community-based health professionals, such as health visitors, to equip them to support parents practically and emotionally during the transition home and beyond. In addition, health professionals can learn much from parents about what is needed to support them.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Parents' concerns about ongoing health problems included oesophageal reflux and chronic lung disease.
“Parents' concerns about ongoing health problems were reported to include oesophageal reflux and chronic lung disease (Petty et al., 2018).”
From The transition home of extremely premature babies: An integrative review (2021) · cites this paper as Petty et al., 2018
Families do not always feel adequately prepared to take their baby home.
“However, there is evidence that families do not always feel adequately prepared to take their baby home (Boykova, 2016;Petty et al, 2018).”
From The transition home of extremely premature babies: An integrative review (2021) · cites this paper as Petty et al, 2018
These feelings were replaced with feelings of not coping, guilt, failure and hypervigilance.
“This was replaced with feelings of not coping, guilt, failure and hypervigilance (Fowler et al., 2018;Petty et al., 2018).”
From The transition home of extremely premature babies: An integrative review (2021) · cites this paper as Petty et al., 2018
Mothers are likely to feel that they have missed out on the normal expectations of motherhood as being joyful.
“Mothers are likely to feel that they have missed out on the normal expectations of motherhood as being joyful.”
From The transition home of extremely premature babies: An integrative review (2021) · cites this paper as Petty et al., 2018
A knowledge deficit in community nurses and other health professions can cause parents to lose confidence once in the community.
“Once in the community a knowledge deficit in community nurses and other health professions can cause the parents to lose confidence (Fowler et al., 2018;Petty et al., 2018).”
From The transition home of extremely premature babies: An integrative review (2021) · cites this paper as Petty et al., 2018
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
The citation lists haven’t been fetched yet
References 27 · Cited by 37
Research works printed but not linked: 5
- Glaser B (1992) Emergence Vs Forcing: Basics of Grounded Theory Analysis. Sociology Press, Mill Valley CA.
- Offredy M, Vickers P (2010) Developing a Healthcare Research Proposal. An Interactive Student Guide. Wiley-Blackwell, Chichester.
- Squire C, Davis M, Esin C et al (2014) What Is Narrative Research? Bloomsbury, London.
- Strauss A (1987) Qualitative Analysis for Social Scientists. Cambridge University Press, New York NY.
- Strauss A, Corbin J (1998) Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Second edition. Sage, Newbury Park CA.
- Authors
- Petty, J., Whiting, L., Green, J., & Fowler, C.
- Affiliations
- University of Hertfordshire (GB)
- University of Technology Sydney (AU)
- Venue
- Nursing Children and Young People
- Publisher
- RCN Publishing Ltd.
- Published
- 2018-07-11
- Volume
- 30
- Issue
- 4
- Pages
- 22-27
- ISSN
- 0962-9513 (ISSN-L)
- 2046-2336
- 2046-2344
- OpenAlex
- W2840230635
- Cited by
- 37
- References
- 27
- Citations by year
- 2026: 2 · 2025: 2 · 2024: 6 · 2023: 6 · 2022: 4 · 2021: 8 · 2020: 5 · 2019: 4
- FWCI
- 4.72
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Nursing Children and Young People (publishedVersion)
- PubMed (publishedVersion)
- University of Hertfordshire Research Archive (University of Hertfordshire) (submittedVersion)
- University of Hertfordshire Research Archive (University of Hertfordshire) (submittedVersion, cc-by-nc)
- Funders
- University of Hertfordshire
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Neonatal Respiratory Health Research
- Keywords
- extremely preterm infants, parental preparation, home care, transition to home, parental experiences, post-discharge, parental mental health, parental support, peer support groups, health professions education, health visitors, community-based care
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
