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Prioritizing Women's Health in Germline Editing Research

·2019·AMA Journal of Ethics

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Research works printed but not linked: 21

  1. Wang H, Li J, Gao C, Wei W. CRISPR twins: a condemnation from Chinese academic societies. Nature. 2019;564(7736):345.
  2. Cyranoski D. The CRISPR-baby scandal: what's next for human gene-editing. Nature. 2019;566(7745):440-442.
  3. Nicol D, Eckstein L, Morrison M, et al. Key challenges in bringing CRISPR- mediated somatic cell therapy into the clinic. Genome Med. 2017;9(1):85.
  4. Allyse M, Bombard Y, Isasi R, et al. What do we do now? Responding to claims of germline gene editing in humans. Genet Med. 2019;21(10):2181-2183.
  5. National Academies of Sciences, Engineering, and Medicine. Human Genome Editing: Science, Ethics, and Governance. Washington, DC: National Academies Press; 2017.
  6. Nuffield Council on Bioethics. Genome Editing: An Ethical Review. London, UK: Nuffield Council on Bioethics; September 30, 2016. http://nuffieldbioethics.org/wp-content/uploads/Genome-editing-an-ethical- review.pdf. Accessed March 15, 2019.
  7. Scott CT, Selin C. What to expect when expecting CRISPR baby number four. Am J Bioeth. 2019;19(3):7-9.
  8. Allyse M, Michie M, Mozersky J, Rapp R. Cherchez la femme: reproductive CRISPR and women's choices. Am J Bioeth. 2015;15(12):47-49.
  9. American College of Obstetricians and Gynecologists' Committee on Obstetric Practice, Committee on Genetics; US Food and Drug Administration. Committee opinion no. 671: perinatal risks associated with assisted reproductive technology. Obstet Gynecol. 2016;128(3):e61-e68.
  10. Kuivasaari-Pirinen P, Raatikainen K, Hippeläinen M, Heinonen S. Adverse outcomes of IVF/ICSI pregnancies vary depending on aetiology of infertility. ISRN Obstet Gynecol. 2012;2012:451915.
  11. Simonstein F. Gene editing, enhancing and women's role. Sci Eng Ethics. 2019;25(4):1007-1016.
  12. De Wert G, Heindryckx B, Pennings G, et al; European Society of Human Genetics; European Society of Human Reproduction and Embryology. Responsible innovation in human germline gene editing: background document to the recommendations of ESHG and ESHRE. Eur J Hum Genet. 2018;26(4):450-470.
  13. De Wert G, Pennings G, Clarke A, Eichenlaub-Ritter U, et al; European Society of Human Genetics; European Society of Human Reproduction and Embryology. Human germline gene editing: recommendations of ESHG and ESHRE. Eur J Hum Genet. 2018;26(4):445-449.
  14. Emanuel EJ, Wendler D, Grady C. What makes clinical research ethical? JAMA. 2000;283(20):2701-2711.
  15. von Versen-Höynck F, Schaub AM, Chi YY, et al. Increased preeclampsia risk and reduced aortic compliance with in vitro fertilization cycles in the absence of a corpus luteum. Hypertension. 2019;73(3):640-649.
  16. Norton ME, Brar H, Weiss J, et al. Non-Invasive Chromosomal Evaluation (NICE) study: results of a multicenter prospective cohort study for detection of fetal trisomy 21 and trisomy 18. Am J Obstet Gynecol. 2012;207(2):137.e1-8.
  17. Invernizzi P, Biondi ML, Battezzati PM, et al. Presence of fetal DNA in maternal plasma decades after pregnancy. Hum Genet. 2002;110(6):587-591.
  18. Lyerly A, Little MO, Faden R. The second wave: toward responsible inclusion of pregnant women in research. Int J Fem Approaches Bioeth. 2008;1(2):5-22.
  19. Lyerly AD, Little MO, Faden RR. Reframing the framework: toward fair inclusion of pregnant women as participants in research. Am J Bioeth. 2011;11(5):50-52.
  20. Thompson C. CRISPR: move beyond differences. Nature. 2015;522(7557):415.
  21. Suter SM. The end of sex and the future of human reproduction. J Law Biosci. 2016;3(2):436-444.

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Metadata

Venue
AMA Journal of Ethics
Published
2019-12-01
Volume
21
Issue
12
Pages
E1071-1078
ISSN
2376-6980
Cited by
6
References
4
Language
en

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Prioritizing Women's Health in Germline Editing Research. (2019). AMA Journal of Ethics. https://doi.org/10.1001/amajethics.2019.1071