The DOI matches its Crossref record; 4 of the 4 references it cites were found in a registry or an index.
Advance Directives as Acts of Communication: A Randomized Controlled Trial
Abstract
BACKGROUND: Instructional advance directives are widely advocated as a means of preserving patient self-determination at the end of life based on the assumption that they improve surrogates' understanding of patients' life-sustaining treatment wishes. However, no research has examined whether instructional directives are effective in improving the accuracy of surrogate decisions. PARTICIPANTS AND METHODS: A total of 401 outpatients aged 65 years or older and their self-designated surrogate decision makers (62% spouses, 29% children) were randomized to 1 of 5 experimental conditions. In the control condition, surrogates predicted patients' preferences for 4 life-sustaining medical treatments in 9 illness scenarios without the benefit of a patient-completed advance directive. Accuracy in this condition was compared with that in 4 intervention conditions in which surrogates made predictions after reviewing either a scenario-based or a value-based directive completed by the patient and either discussing or not discussing the contents of the directive with the patient. Perceived benefits of advance directive completion were also measured. RESULTS: None of the interventions produced significant improvements in the accuracy of surrogate substituted judgment in any illness scenario or for any medical treatment. Discussion interventions improved perceived surrogate understanding and comfort for patient-surrogate pairs in which the patient had not completed an advance directive prior to study participation. CONCLUSIONS: Our results challenge current policy and law advocating instructional advance directives as a means of honoring specific patient wishes at the end of life. Future research should explore other methods of improving surrogate decision making and consider the value of other outcomes in evaluating the effectiveness of advance care planning.
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Cites
Screening for Depression in Well Older Adults: Evaluation of a Short Form of the CES-D
Andresen, E. M., Malmgren, J. A., Carter, W. B., & Patrick, D. L. (1994) · American Journal of Preventive Medicine · doi:10.1016/s0749-3797(18)30622-6 · Cited by 5,403
“Clinical versus Actuarial Judgment.”
Dawes, R. M., Faust, D., & Meehl, P. E. (1989) · Science · doi:10.1126/science.2648573 · Cited by 2,298
Quality End-of-Life Care: Patients' Perspectives
Singer, P. A., Martin, D. K., & Kelner, M. (1999) · JAMA · doi:10.1001/jama.281.2.163 · Cited by 1,287 · cited 1×
“At the same time, however, patients and families facing real decisions about end-of-life treatment often seem less concerned with the ability to predict specific treatment decisions than they are with gaining a general sense of control over the dying process and reducing the level of burden on surrogate decision maker…”
ResultEthnicity and Attitudes Toward Patient Autonomy
Blackhall, L. J. (1995) · JAMA: The Journal of the American Medical Association · doi:10.1001/jama.1995.03530100060035 · Cited by 1,011
Cited by
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Houben, C. H. M., Spruit, M. A., Groenen, M. T. J., Wouters, E. F. M., & Janssen, D. J. A. (2014) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2014.01.008 · Cited by 765
Weathers, E., O’Caoimh, R., Cornally, N., Fitzgerald, C., Kearns, T., Coffey, A., Daly, E., O’Sullivan, R., McGlade, C., & Molloy, D. W. (2016) · Maturitas · doi:10.1016/j.maturitas.2016.06.016 · Cited by 212
Engelberg, R., Downey, L., & Curtis, J. R. (2006) · Journal of Palliative Medicine · doi:10.1089/jpm.2006.9.1086 · Cited by 195
Advance care planning in dementia: recommendations for healthcare professionals
Harrison Dening, K., Sampson, E. L., & De Vries, K. (2019) · Palliative Care: Research and Treatment · doi:10.1177/1178224219826579 · Cited by 114
Dionne-Odom, J. N., Ejem, D., Wells, R., Barnato, A. E., Taylor, R. A., Rocque, G. B., Turkman, Y. E., Kenny, M., Ivankova, N. V., Bakitas, M. A., et al. (2019) · PLOS ONE · doi:10.1371/journal.pone.0212967 · Cited by 111
Oczkowski, S. J., Chung, H.-O., Hanvey, L., Mbuagbaw, L., & You, J. J. (2016) · PLOS ONE · doi:10.1371/journal.pone.0150671 · Cited by 99
Family decision‐making in advanced dementia: narrative and ethics
Elliott, B. A., Gessert, C. E., & Peden‐McAlpine, C. (2009) · Scandinavian Journal of Caring Sciences · doi:10.1111/j.1471-6712.2008.00613.x · Cited by 96
A systematic review of effectiveness of decision aids to assist older patients at the end of life
Cardona-Morrell, M., Benfatti-Olivato, G., Jansen, J., Turner, R. M., Fajardo-Pulido, D., & Hillman, K. (2017) · Patient Education and Counseling · doi:10.1016/j.pec.2016.10.007 · Cited by 78
Xie, B., Tao, C., Li, J., Hilsabeck, R. C., & Aguirre, A. (2020) · JMIR Medical Informatics · doi:10.2196/18189 · Cited by 80
Sulmasy, D. P., Hughes, M. T., Yenokyan, G., Kub, J., Terry, P. B., Astrow, A. B., Johnson, J. A., Ho, G., & Nolan, M. T. (2017) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2017.07.004 · Cited by 37
Do-Not-Resuscitate Orders in the Last Days of Life
Bailey, F. A., Allen, R. S., Williams, B. R., Goode, P. S., Granstaff, S., Redden, D. T., & Burgio, K. L. (2012) · Journal of Palliative Medicine · doi:10.1089/jpm.2011.0321 · Cited by 37
Surrogate Decision Making: Do We Have to Trade Off Accuracy and Procedural Satisfaction?
Frey, R., Hertwig, R., & Herzog, S. M. (2014) · Medical Decision Making · doi:10.1177/0272989x12471729 · Cited by 24
Metadata
- Authors
- Ditto, P. H., Danks, J. H., Smucker, W. D., Bookwala, J., Coppola, K. M., Dresser, R., Fagerlin, A., Gready, R. M., Houts, R. M., Lockhart, L. K., & Zyzanski, S.
- Venue
- Archives of Internal Medicine
- Publisher
- American Medical Association (AMA)
- Published
- 2001-02-12
- Volume
- 161
- Issue
- 3
- Pages
- 421
- ISSN
- 0003-9926 (ISSN-L)
- OpenAlex
- W2149470559
- Cited by
- 407
- References
- 4
- FWCI
- 18.82
- Type
- journal article
- Language
- en
- Open access
- closed
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