Advance care planning in dementia: recommendations for healthcare professionals
Open accessAbstract
The process of advance care planning in dementia is far from straightforward; as dementia progresses, the ability to consider future thoughts and actions becomes compromised, thus affecting decision-making abilities. Family carers find themselves increasingly in a position where they need to inform, or directly make, decisions on behalf of the person with dementia. This article discusses the context and importance of a palliative care approach and recommends rationales and strategies for healthcare professionals to support families affected by dementia to better plan for their future care.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Our findings are consistent with these studies that individuals with mild dementia can effectively articulate their values.
“Our findings are consistent with these studies that individuals with mild dementia can effectively articulate their values [19, 38].”
From Acceptability of the voice your values, an advance care planning intervention in persons living with mild dementia using videoconferencing technology (2022) · cites this paper as [38]
It is recommended to commence ACP early in the dementia trajectory before the loss of decision-making capacity.
“In terms of timing, it is recommended to commence ACP early in the dementia trajectory before the loss of decision-making capacity [38].”
From Acceptability of the voice your values, an advance care planning intervention in persons living with mild dementia using videoconferencing technology (2022) · cites this paper as [38]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
1 retracted
Advance care planning for end-of-life care
Houttekier, D., Cohen, J., Cools, F., & Deliëns, L. (2012) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd009618 · Cited by 66 · see citing works
RetractedSPIKES—A Six-Step Protocol for Delivering Bad News: Application to the Patient with Cancer
Baile, W. F., Buckman, R. A., Lenzi, R., Glober, G. A., Beale, E. A., & Kudelka, A. P. (2000) · The Oncologist · doi:10.1634/theoncologist.5-4-302 · Cited by 3,077 · see citing works
Detering, K. M., Hancock, A. D., Reade, M. C., & Silvester, W. (2010) · BMJ · doi:10.1136/bmj.c1345 · Cited by 2,332 · see citing works
van der Steen, J. T., Radbruch, L., Hertogh, C. M., de Boer, M. E., Hughes, J. C., Larkin, P., Francke, A. L., Jünger, S., Gove, D., Firth, P., et al. (2014) · Palliative Medicine · doi:10.1177/0269216313493685 · Cited by 997 · see citing works
The Accuracy of Surrogate Decision Makers
Shalowitz, D. I., Garrett-Mayer, E. S., & Wendler, D. S. (2006) · Archives of Internal Medicine · doi:10.1001/archinte.166.5.493 · Cited by 981 · see citing works
(2016) · London School of Economics and Political Science Research Online (London School of Economics and Political Science) · Cited by 874 · see citing works
Etkind, S. N., Bone, A. E., Gomes, B., Lovell, N., Evans, C., Higginson, I. J., & Murtagh, F. E. (2017) · BMC Medicine · doi:10.1186/s12916-017-0860-2 · Cited by 808 · see citing works
Systematic Review: The Effect on Surrogates of Making Treatment Decisions for Others
Wendler, D., & Rid, A. (2011) · Annals of Internal Medicine · doi:10.7326/0003-4819-154-5-201103010-00008 · Cited by 691 · see citing works
Advance Directives as Acts of Communication
Ditto, P. H., Danks, J. H., Smucker, W. D., Bookwala, J., Coppola, K. M., Dresser, R. S., Fagerlin, A., Gready, R. M., Houts, R., Lockhart, L. K., et al. (2001) · Archives of Internal Medicine · doi:10.1001/archinte.161.3.421 · Cited by 406 · see citing works
Reconceptualizing Advance Care Planning From the Patient's Perspective
SINGER, P. A., Martin, D. K., Lavery, J. V., Thiel, E. C., Kelner, M. J., & Mendelssohn, D. C. (1998) · Archives of Internal Medicine · doi:10.1001/archinte.158.8.879 · Cited by 311 · see citing works
The Evolution of Health Care Advance Planning Law and Policy
Sabatino, C. P. (2010) · Milbank Quarterly · doi:10.1111/j.1468-0009.2010.00596.x · Cited by 264 · see citing works
Shared decision-making in dementia: a review of patient and family carer involvement
Miller, L. M., Whitlatch, C. J., & Lyons, K. S. (2016) · Dementia · doi:10.1177/1471301214555542 · Cited by 261 · see citing works
Advance care planning in dementia: recommendations for healthcare professionals.
Piers, R., Albers, G., Gilissen, J., De Lepeleire, J., Steyaert, J., Van Mechelen, W., Steeman, E., Dillen, L., Vanden Berghe, P., & Van den Block, L. (2018) · BMC Palliative Care · doi:10.1186/s12904-018-0332-2 · Cited by 254 · see citing works
Livingston, G., Leavey, G., Manela, M., Livingston, D., Rait, G., Sampson, E., Bavishi, S., Shahriyarmolki, K., & Cooper, C. (2010) · BMJ · doi:10.1136/bmj.c4184 · Cited by 239 · see citing works
Self-citationVig, E. K., Starks, H. E., Taylor, J. S., Hopley, E. K., & Fryer-Edwards, K. A. (2007) · Journal of General Internal Medicine · doi:10.1007/s11606-007-0252-y · Cited by 236 · see citing works
The Effect of Discussions About Advance Directives on Patients' Satisfaction with Primary Care
Tierney, W. M., Dexter, P. R., Gramelspacher, G. P., Perkins, A. J., Zhou, X., & Wolinsky, F. D. (2001) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2001.00215.x · Cited by 236 · see citing works
Rosenfeld, K. E., Wenger, N. S., & Kagawa‐Singer, M. (2000) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2000.06289.x · Cited by 235 · see citing works
Dening, K. H., Jones, L., & Sampson, E. L. (2013) · Palliative Medicine · doi:10.1177/0269216312464094 · Cited by 216 · see citing works
Self-citationAdvance care planning and hospital in the nursing home
Caplan, G. A., Meller, A. E., Squires, B., Chan, S., & Willett, W. (2006) · Age and Ageing · doi:10.1093/ageing/afl063 · Cited by 209 · see citing works
Brazil, K., Carter, G., Cardwell, C., Clarke, M., Hudson, P., Froggatt, K., McLaughlin, D., Passmore, P., & Kernohan, W. G. (2018) · Palliative Medicine · doi:10.1177/0269216317722413 · Cited by 164 · see citing works
Dementia before Death in Ageing Societies— The Promise of Prevention and the Reality
Brayne, C., Gao, L., Dewey, M. E., & Matthews, F. E. (2006) · PLoS Medicine · doi:10.1371/journal.pmed.0030397 · Cited by 158 · see citing works
Daly, R. L., Bunn, F., & Goodman, C. M. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-018977 · Cited by 141 · see citing works
Lord, K., Livingston, G., & Cooper, C. (2015) · International Psychogeriatrics · doi:10.1017/s1041610215000411 · Cited by 141 · see citing works
End-of-life decision making in dementia
Caron, C. D., Griffith, J., & Arcand, M. (2005) · Dementia · doi:10.1177/1471301205049193 · Cited by 138 · see citing works
Samsi, K., & Manthorpe, J. (2013) · International Psychogeriatrics · doi:10.1017/s1041610213000306 · Cited by 137 · see citing works
Dening, K. H., King, M., Jones, L., Vickerstaff, V., & Sampson, E. L. (2016) · PLoS ONE · doi:10.1371/journal.pone.0159056 · Cited by 131 · see citing works
Self-citationWhat do Canadians think of advanced care planning? Findings from an online opinion poll
Teixeira, A., Hanvey, L., Tayler, C., Barwich, D., Baxter, S., & Heyland, D. K. (2013) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2013-000473 · Cited by 115 · see citing works
Excellence in Dementia Care: Research into Practice
Adams, T. (2009) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2009.00898_8.x · Cited by 112 · see citing works
Dening, K. H., King, M., Jones, L., Vickerstaff, V., & Sampson, E. L. (2016) · PLoS ONE · doi:10.1371/journal.pone.0161142 · Cited by 95 · see citing works
Self-citationAdvance Care Planning in End of Life Care
(2018) · Oxford University Press eBooks · doi:10.1093/oso/9780198802136.001.0001 · Cited by 79 · see citing works
Family Perceptions of Prognosis, Silence, and the “Suddenness” of Death
Russ, A. J., & Kaufman, S. R. (2005) · Culture Medicine and Psychiatry · doi:10.1007/s11013-005-4625-6 · Cited by 65 · see citing works
Advance care planning in care homes for older people: an English perspective
Froggatt, K. A., Vaughan, S., Bernard, C., & Wild, D. (2009) · Palliative Medicine · doi:10.1177/0269216309103802 · Cited by 65 · see citing works
The challenges of shared decision making in dementia care networks
de Ven, L. G.-V., Smits, C. H. M., Span, M., Jukema, J., Coppoolse, K., de Lange, J., Eefsting, J. A., Vernooij-Dassen, M. J. F. J., Moniz-Cook, E. D., & Jeon, Y.-H. (2016) · International Psychogeriatrics · doi:10.1017/s1041610216001381 · Cited by 65 · see citing works
Family Discord and Proxy Decision Makers' End-of-Life Treatment Decisions
Winter, L., & Parks, S. M. (2008) · Journal of Palliative Medicine · doi:10.1089/jpm.2008.0039 · Cited by 60 · see citing works
Petriwskyj, A. M., Gibson, A. F., Parker, D., Banks, S., Andrews, S., & Robinson, A. J. (2014) · International Journal of Evidence-Based Healthcare · doi:10.1097/xeb.0000000000000002 · Cited by 52 · see citing works
Griffiths, J., Wilson, C., Ewing, G., Connolly, M., & Grande, G. (2015) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2015.02.005 · Cited by 49 · see citing works
MacNeil Vroomen, J., Bosmans, J. E., Eekhout, I., Joling, K. J., van Mierlo, L. D., Meiland, F. J. M., van Hout, H. P. J., & de Rooij, S. E. (2016) · PLOS ONE · doi:10.1371/journal.pone.0160908 · Cited by 48 · see citing works
Fetherstonhaugh, D., McAuliffe, L. P., Shanley, C., Bauer, M., & Beattie, E. (2017) · Dementia · doi:10.1177/1471301217721862 · Cited by 46 · see citing works
Healthcare decision-making: past present and future, in light of a diagnosis of dementia
Dening, K. H., King, M., Jones, L., & Sampson, E. L. (2017) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2017.23.1.4 · Cited by 42 · see citing works
Self-citationSpan, M., Smits, C. H. M., Jukema, J., de Ven, L. G.-V., Janssen, R., Vernooij-Dassen, M. J. F. J., Eefsting, J. A., & Hettinga, M. (2015) · Frontiers in Aging Neuroscience · doi:10.3389/fnagi.2015.00128 · Cited by 41 · see citing works
Nursing Home Social Worker Skills and End-of-Life Planning
Lacey, D. (2005) · Social Work in Health Care · doi:10.1300/j010v40n04_02 · Cited by 35 · see citing works
Admiral Nursing: case management for families affected by dementia
Dening, K. H., Aldridge, Z., Pepper, A., & Hodgkison, C. (2017) · Nursing Standard · doi:10.7748/ns.2017.e10600 · Cited by 35 · see citing works
The Preferred Place of Care document: aam opportunity for communication
Pemberton, C., Storey, L., & Howard, A. (2003) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2003.9.10.19789 · Cited by 31 · see citing works
Advance care planning: Whose agenda is it anyway?
Russell, S. (2014) · Palliative Medicine · doi:10.1177/0269216314543426 · Cited by 28 · see citing works
Developing a care pathway for advance decisions and powers of attorney: qualitative study
Bisson, J. I., Hampton, V., Rosser, A., & Holm, S. (2008) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.107.048900 · Cited by 24 · see citing works
Fratiglioni, L., & Qiu, C. (2013) · Oxford University Press eBooks · doi:10.1093/med/9780199644957.003.0031 · Cited by 24 · see citing works
Prospective Identification of Patients at Risk for Unwarranted Variation in Treatment
Kelley, A. S., Bollens‐Lund, E., Covinsky, K. E., Skinner, J., & Morrison, R. S. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2017.0063 · Cited by 21 · see citing works
Advance care planning for people with dementia: Ordinary everyday conversations
de Vries, K., & Drury-Ruddlesden, J. (2018) · Dementia · doi:10.1177/1471301218764169 · Cited by 21 · see citing works
A training needs analysis of admiral nurses to facilitate advance care planning in dementia
Dening, K. H., Scates, C., McGill, G., & de Vries, K. (2019) · Palliative Care Research and Treatment · doi:10.1177/1178224219850183 · Cited by 20 · see citing works
Health-Related Decision-Making by Older Adults and Their Families
Popejoy, L. (2005) · Journal of Gerontological Nursing · doi:10.3928/0098-9134-20050901-05 · Cited by 16 · see citing works
In whose best interests? A case study of a family affected by dementia
Webb, R., & Dening, K. H. (2016) · British Journal of Community Nursing · doi:10.12968/bjcn.2016.21.6.300 · Cited by 9 · see citing works
(2017) · Journal of Pain and Symptom Management · doi:10.1016/s0885-3924(17)30190-2 · Cited by 2 · see citing works
Letizia, M., & Jennrich, J. (1996) · AJN American Journal of Nursing · doi:10.1097/00000446-199612000-00040 · Cited by 1 · see citing works
Flagged first, then by citations
Research works printed but not linked: 6
- [10]Radbruch L Payne S and Board of Directors of the EAPC. White paper on standards and norms for hospice and palliative care in Europe, part 1: recommendations from the European Association for Palliative Care. Eur J Palliat Care 2009; 16: 278– 289.
- [12]National Institute for Health Care Excellence (NICE). Dementia: assessment, management and support for people living with dementia and their carers (NICE guideline [NG97]), https://www.nice.org.uk/guidance/ng97 (2018, accessed 3 January 2019). 30011160
- [14]Sudore RL Lum HD You JJ et al Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel. J Pain Symptom Manage 2017; 53: 821– 832 e1. PMC5728651 28062339
- [16]Berrio M Levesque ME. Advance directives: most patients don’t have one, do yours. Am J Nurs 1996; 96: 24–28; quiz 29. 8712236
- [17]Harrison Dening K Advance care planning and people with dementia. In: Thomas K Lobo B Detering K (eds) Advance care planning in end of life care. 2nd ed. Oxford: Oxford University Press, 2018: 181– 194.
- [59]Reilly S Miranda-Castillo C Malouf R et al Case management approaches to home support for people with dementia. Cochrane Database Syst Rev 2015; 1: CD008345. 25560977 PMC6823260
Cited by
Sorted by citations
Wendrich-van Dael, A., Bunn, F., Lynch, J., Pivodic, L., Van den Block, L., & Goodman, C. (2020) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2020.103576 · Cited by 192 · see citing works
Palliative Care in Advanced Dementia
Eisenmann, Y., Golla, H., Schmidt, H., Voltz, R., & Perrar, K. M. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.00699 · Cited by 146 · see citing works
Advance Care Planning in Serious Illness: A Narrative Review
Rosa, W. E., Izumi, S., Sullivan, D. R., Lakin, J. R., Rosenberg, A. R., Creutzfeldt, C. J., Lafond, D., Tjia, J., Cotter, V. T., Wallace, C. L., et al. (2022) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2022.08.012 · Cited by 129 · see citing works
Barrado‐Martín, Y., Hatter, L., Moore, K. J., Sampson, E. L., Rait, G., Manthorpe, J., Smith, C. H., Nair, P., & Davies, N. (2020) · Journal of Advanced Nursing · doi:10.1111/jan.14654 · Cited by 46 · see citing works
Self-citationShafir, A., Ritchie, C. S., Garrett, S. B., Bernstein Sideman, A., Naasan, G., Merrilees, J., Widera, E., Flint, L., & Harrison, K. L. (2022) · Journal of Alzheimer’s Disease · doi:10.3233/jad-215203 · Cited by 45 · see citing works
Goossens, B., Sevenants, A., Declercq, A., & Audenhove, C. V. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.11.024 · Cited by 44 · see citing works
Goossens, B., Sevenants, A., Declercq, A., & Audenhove, C. V. (2020) · BMC Geriatrics · doi:10.1186/s12877-020-01797-0 · Cited by 41 · see citing works
Exploring stakeholder roles in medication management for people living with dementia
Cross, A. J., Etherton-Beer, C. D., Clifford, R. M., Potter, K., & Page, A. T. (2021) · Research in Social and Administrative Pharmacy · doi:10.1016/j.sapharm.2020.06.006 · Cited by 31 · see citing works
Ali, N. B., Anthony, P. V., Lim, W. S., Chong, M. S., Poon, E. W. H., Drury, V., & Chan, M. Y. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18137150 · Cited by 31 · see citing works
Bolt, S., van der Steen, J. T., Khemai, C., Schols, J. M. G. A., Zwakhalen, S. M. G., & Meijers, J. M. M. (2021) · Journal of Clinical Nursing · doi:10.1111/jocn.15644 · Cited by 30 · see citing works
O’Connor, N., Fox, S., Kernohan, G. W., Drennan, J., Guérin, S., Murphy, A., & Timmons, S. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-00922-7 · Cited by 30 · see citing works
Nakanishi, M., Pereira, S. M., den Block, L. V., Parker, D., Dening, K. H., Giulio, P. D., der Schmitten, J. I., Larkin, P. J., Mimica, N., Sudore, R. L., et al. (2024) · The Lancet Healthy Longevity · doi:10.1016/s2666-7568(24)00043-6 · Cited by 29 · see citing works
Cross-cultural conceptualization of a good end of life with dementia: a qualitative study
Nishimura, M., Dening, K. H., Sampson, E. L., Vidal, E. I. D. O., Abreu, W., Kaasalainen, S., Eisenmann, Y., Dempsey, L., Moore, K. J., Davies, N., et al. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-00982-9 · Cited by 28 · see citing works
Self-citationUS clinicians' perspectives on advance care planning for persons with dementia: A qualitative study
Tjia, J., D’Arcangelo, N., Carlston, D., Bronzi, O., GAZARIAN, P. K., Reich, A. J., Porteny, T., Gonzales, K. M., Perez, S. M., Weissman, J. S., et al. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18197 · Cited by 25 · see citing works
Gotanda, H., Walling, A. M., Reuben, D. B., Lauzon, M., & Tsugawa, Y. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17680 · Cited by 24 · see citing works
Characteristics of Advance Care Planning Interventions Across Dementia Stages: A Systematic Review
Kim, H., Cho, J., Park, W. S., & Kim, S. S. (2021) · Journal of Nursing Scholarship · doi:10.1111/jnu.12624 · Cited by 23 · see citing works
Advancing Nutrition and Dietetics Practice: Dealing With Ethical Issues of Nutrition and Hydration
Schwartz, D. B., Posthauer, M. E., & Maillet, J. O. (2020) · Journal of the Academy of Nutrition and Dietetics · doi:10.1016/j.jand.2020.07.028 · Cited by 20 · see citing works
Jensen, I., Lescher, E., Stiel, S., Wegner, F., Höglinger, G. U., & Klietz, M. (2021) · Brain Sciences · doi:10.3390/brainsci11111470 · Cited by 19 · see citing works
Primary Palliative Care in Dementia
Weisbrod, N. (2022) · Neurotherapeutics · doi:10.1007/s13311-021-01171-x · Cited by 19 · see citing works
A training needs analysis of admiral nurses to facilitate advance care planning in dementia
Dening, K. H., Scates, C., McGill, G., & de Vries, K. (2019) · Palliative Care Research and Treatment · doi:10.1177/1178224219850183 · Cited by 20 · see citing works
Vellani, S., Puts, M., Iaboni, A., & McGilton, K. S. (2022) · PLoS ONE · doi:10.1371/journal.pone.0266826 · Cited by 18 · see citing works
Goals of Care Conversations and Subsequent Advance Care Planning Outcomes for People with Dementia
Ma, H., Kiekhofer, R. E., Hooper, S., Dulaney, S., Possin, K. L., & Chiong, W. (2021) · Journal of Alzheimer s Disease · doi:10.3233/jad-210720 · Cited by 18 · see citing works
McKenna, M. C., Tahedl, M., Lope, J., Chipika, R. H., Shing, S. L. H., Doherty, M. A., Hengeveld, J. C., Vajda, A., McLaughlin, R. L., Hardiman, O. M., et al. (2021) · Brain Imaging and Behavior · doi:10.1007/s11682-021-00523-7 · Cited by 18 · see citing works
Dekker, N. L., & Bolt, S. (2022) · Dementia · doi:10.1177/14713012211066370 · Cited by 16 · see citing works
Bryant, J., Sellars, M., Sinclair, C., Detering, K. M., Buck, K., Waller, A. E., White, B. P., & Nolte, L. (2021) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2020-002767 · Cited by 15 · see citing works
Supportive care decision-making processes of persons with dementia and their caregivers
Taylor, J. O., Child, C. E., Sharma, R. K., Asirot, M. G., Miller, L. M., & Turner, A. M. (2023) · Dementia · doi:10.1177/14713012231193139 · Cited by 12 · see citing works
Phenwan, T., Sixsmith, J., McSwiggan, L. C., & Buchanan, D. (2025) · BMC Palliative Care · doi:10.1186/s12904-024-01632-y · Cited by 12 · see citing works
Mikaelsson, Å., Eriksson, L. E., Stenfors, T., & Goliath, I. (2025) · BMC Geriatrics · doi:10.1186/s12877-025-05916-7 · Cited by 13 · see citing works
Gotanda, H., Nuckols, T. K., Lauzon, M., & Tsugawa, Y. (2022) · Journal of General Internal Medicine · doi:10.1007/s11606-021-07330-2 · Cited by 12 · see citing works
Feasibility and acceptability of a web-based advance care plan for dementia
Behrens, L. L., Morgan, B. E., Summerhayes, E., Talwar, S., Burshnic, V., Ersek, M. T., & Hodgson, N. A. (2022) · Geriatric Nursing · doi:10.1016/j.gerinurse.2022.02.022 · Cited by 12 · see citing works
Dupont, C., Smets, T., Monnet, F., Pivodic, L., Vleminck, A. D., Audenhove, C. V., & den Block, L. V. (2023) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-023-02359-1 · Cited by 11 · see citing works
Accessing community dementia care services in Ireland: Emotional barriers for caregivers
Ryan, L. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13342 · Cited by 10 · see citing works
Tetrault, A., Nyback, M.-H., Fagerström, L., & Vaartio‐Rajalin, H. (2023) · BMC Geriatrics · doi:10.1186/s12877-023-04033-7 · Cited by 10 · see citing works
Haapasalmi, S., Piili, R. P., Metsänoja, R., Kellokumpu-Lehtinen, P.-L. I., & Lehto, J. T. (2021) · BMC Palliative Care · doi:10.1186/s12904-021-00811-5 · Cited by 10 · see citing works
Nakanishi, M., Nakashima, T., Miyamoto, Y., Yamasaki, S., & Nishida, A. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-01008-0 · Cited by 10 · see citing works
Baxter, K., Gridley, K., & Birks, Y. F. (2023) · Ageing and Society · doi:10.1017/s0144686x23000594 · Cited by 8 · see citing works
Mukhopadhyay, S., & Banerjee, D. (2021) · Asian Journal of Psychiatry · doi:10.1016/j.ajp.2021.102802 · Cited by 8 · see citing works
Enteral tube feeding in people with advanced dementia
Stall, N. M., Quinn, K. L., van der Steen, J. T., Trimble, J., Clarfield, A. M., & Mitchell, S. L. (2025) · BMJ · doi:10.1136/bmj-2023-075326 · Cited by 10 · see citing works
Bronner, K., Bodner, L., Jox, R. J., Marckmann, G., Diehl‐Schmid, J., & Hamann, J. (2020) · Der Nervenarzt · doi:10.1007/s00115-020-00911-2 · Cited by 7 · see citing works
Bavelaar, L., Visser, M., Schlicksupp, P., Tilburgs, B., van der Maaden, T., Achterberg, W. P., & van der Steen, J. T. (2022) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2022.06.024 · Cited by 7 · see citing works
Challenges of Agitation in Dementia: A Plea for Early Discussion
Richler, L. G., Shimizu, M., Huang, H. Y., & Kester, R. (2023) · Harvard Review of Psychiatry · doi:10.1097/hrp.0000000000000352 · Cited by 7 · see citing works
The fundamentals of a dedicated palliative approach to care for people with dementia
Bolt, S. (2021) · doi:10.26481/dis.20210922sb · Cited by 7 · see citing works
Pessoa, A., Almeida, P., Marinho, R. C., Duque, S., do Amaral, T. F., Pinho, J., Santos, M., Freire, E., Mendes, L., Santos, L. D. C., et al. (2021) · Medicina Interna · doi:10.24950/guidelines/consensus/1/2020 · Cited by 6 · see citing works
Hoffman, B. L., Sidani, J. E., Wang, Y., Chang, J., & Burke, J. G. (2022) · Journal of Health Communication · doi:10.1080/10810730.2022.2111620 · Cited by 6 · see citing works
Bryant, J., Mansfield, E. L., Cameron, E. C., & Sanson‐Fisher, R. (2023) · PLoS ONE · doi:10.1371/journal.pone.0286261 · Cited by 6 · see citing works
Jones, L., Rhyner, F., Voumard, R. R., Aguilar, F. F., Truchard, E. R., & Jox, R. J. (2023) · Gerontology · doi:10.1159/000535455 · Cited by 5 · see citing works
Forbat, L., Macgregor, A., Spilsbury, K., McCormack, B. G., Rutherford, A., Hanratty, B., Hockley, J., Davison, L., Ogden, M., Soulsby, I., et al. (2024) · Health and Social Care Delivery Research · doi:10.3310/krwq5829 · Cited by 5 · see citing works
Riedel, A., Lehmeyer, S., Linde, A.-C., & Treff, N. (2022) · Springer Reference Pflege, Therapie, Gesundheit · doi:10.1007/978-3-662-58680-8_85 · Cited by 4 · see citing works
Comorbid Dementia and Cancer Therapy Decision-Making: A Scoping Review
Halpin, S. N., Alain, G., Seaman, A. T., Stevens, E., Zhao, H., Fowler, M. E., Zhang, Q., Cadet, T. J., Ye, M., & Krok‐Schoen, J. L. (2024) · Journal of Applied Gerontology · doi:10.1177/07334648241233375 · Cited by 4 · see citing works
Kim, H., Cho, J., Park, J., & Kim, S. S. (2025) · Journal of Advanced Nursing · doi:10.1111/jan.70136 · Cited by 4 · see citing works
Nakanishi, M., Nakashima, T., Miyamoto, Y., Sakai, M., Yoshii, H., Yamasaki, S., & Nishida, A. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.915387 · Cited by 4 · see citing works
Roach, A., Rogers, A., Mitchell, S., McCarthy, E. P., & Lopez, R. P. (2023) · Journal of Hospice and Palliative Nursing · doi:10.1097/njh.0000000000000957 · Cited by 2 · see citing works
Im, J., Kross, E. K., Engelberg, R. A., Dotolo, D. G., Ungar, A., Nielsen, E. L., Torrence, J., & Abedini, N. C. (2024) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18965 · Cited by 4 · see citing works
Problems With Advance Care Planning Processes and Practices in Nursing Homes
Choi, N., Garland, A., Ramsey, C. D., Steer, J., Keller, H., Heckman, G. A., Vucea, V., Bains, I., Kroetsch, B., Quail, P. B., et al. (2020) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2020.07.010 · Cited by 4 · see citing works
Matthys, A., Cash, B., & Moorhead, B. (2025) · Ageing and Society · doi:10.1017/s0144686x25100330 · Cited by 3 · see citing works
Anantapong, K., Wongpakaran, N., Setthawatcharawanich, S., Aphisitphinyo, S., Sirimaharaj, N., Rattanabannakit, C., Paholpak, P., Jiraphan, A., Wiwattanaworaset, P., Aunjitsakul, W., et al. (2025) · Frontiers in Medicine · doi:10.3389/fmed.2025.1710146 · Cited by 3 · see citing works
Sussman, T., & Tétrault, B. (2022) · Frontiers in Dementia · doi:10.3389/frdem.2022.1043661 · Cited by 3 · see citing works
Knowledge Structure and Evolution of Elderly Care Services: A Visualized Analysis
Wei, Y. (2023) · Social Security and Administration Management · doi:10.23977/socsam.2023.040306 · Cited by 3 · see citing works
Dixon, J., Damant, J., Stubbs, E., Hicks, B., Gridley, K., King, D., Miles, E., Banerjee, S., & DETERMIND team (2025) · BMC Palliative Care · doi:10.1186/s12904-025-01782-7 · Cited by 3 · see citing works
Chan, F.-Y., Lam, K., Lai, D., Tong, C., Lum, C., & Woo, J. (2025) · Health Science Reports · doi:10.1002/hsr2.70983 · Cited by 3 · see citing works
Specialist Palliative Care and Dementia: Staff Challenges and Learning Needs
Currie, S., Curtin, C., & Timmons, S. (2023) · Journal of Palliative Care · doi:10.1177/08258597231180966 · Cited by 3 · see citing works
Lau, J., Cations, M., O’Malley, M., Stamou, V., Oyebode, J. R., Parkes, J. H., Carter, J., & Loi, S. M. (2024) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.70028 · Cited by 3 · see citing works
Lin, H., Lu, Y., Yeh, C., Wang, J., & Yang, Y. (2025) · Geriatrics · doi:10.3390/geriatrics10010019 · Cited by 3 · see citing works
Hormazábal‐Salgado, R., Osman, A. D., Troncoso, M. P., Whitehead, D., & Hills, D. (2023) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2023.2229041 · Cited by 2 · see citing works
Factors influencing dementia patients' participation in advance care planning: A meta-analysis
Zhai, S., Lu, Y., Liu, Q., Dai, C., & Chen, C. (2024) · Geriatric Nursing · doi:10.1016/j.gerinurse.2024.10.014 · Cited by 2 · see citing works
Shapkin, K., MacKinnon, K., Sangster‐Gormley, E., Newton, L. J., & Holroyd-Leduc, J. M. (2022) · JBI Evidence Synthesis · doi:10.11124/jbies-21-00356 · Cited by 2 · see citing works
Advance Care Planning in the Geriatrics Clinic
Ben-Moshe, S., & Curseen, K. A. (2023) · Clinics in Geriatric Medicine · doi:10.1016/j.cger.2023.05.003 · Cited by 2 · see citing works
Lopez, R. P., Wei, A., Locke, J., & Plys, E. (2023) · Journal of Gerontological Nursing · doi:10.3928/00989134-20231010-04 · Cited by 2 · see citing works
Shawaqfeh, B., Hughes, C. M., McGuinness, B., & Barry, H. E. (2024) · Health Expectations · doi:10.1111/hex.13972 · Cited by 2 · see citing works
Advance planning of decisions in mental health: bioethical analysis
Pozón, S. R., del Olmo, B. R., Bernal, C. S., & Maestre, B. R. (2024) · Revista Bioética · doi:10.1590/1983-803420243697en · Cited by 2 · see citing works
Phenwan, T., Sixsmith, J., McSwiggan, L. C., & Buchanan, D. (2025) · Social Sciences & Humanities Open · doi:10.1016/j.ssaho.2025.101302 · Cited by 2 · see citing works
Chao, H., Chen, Y.-L., Lin, H., Wang, J., & Yang, Y. (2025) · Applied Nursing Research · doi:10.1016/j.apnr.2025.151924 · Cited by 2 · see citing works
Dementia palliative care in the acute psychiatric hospital: A feasibility study
Gentry, M. T., Clark, M. M., Ryan, S., Rummans, T. A., & Lapid, M. I. (2020) · Perspectives In Psychiatric Care · doi:10.1111/ppc.12473 · Cited by 3 · see citing works
Beattie, J. M., Higginson, I. J., McDonagh, T. A., & Gao, W. (2022) · BMC Medicine · doi:10.1186/s12916-021-02210-2 · Cited by 2 · see citing works
Waller, A. E., Bryant, J., Bowman, A., White, B. P., Willmott, L., Pickles, R., Hullick, C., Price, E., Knight, A., Ryall, M., et al. (2022) · BMC Medical Ethics · doi:10.1186/s12910-022-00811-x · Cited by 2 · see citing works
Reynolds, A., Amano, T., Scher, C. J., & Jia, Y. (2024) · Journal of Applied Gerontology · doi:10.1177/07334648241282778 · Cited by 1 · see citing works
Planificación de decisiones anticipadas en salud mental: análisis bioético
Pozón, S. R., del Olmo, B. R., Bernal, C. S., & Maestre, B. R. (2024) · Revista Bioética · doi:10.1590/1983-803420243697es · Cited by 1 · see citing works
How to Implement Advance Care Planning for People With Dementia: A Scoping Review
Li, W., Wu, Y., Song, D., Zhi, S., Gao, S., Fang, S., Zhong, Q., Li, J., Li, M., & Sun, J. (2025) · Journal of Advanced Nursing · doi:10.1111/jan.70083 · Cited by 1 · see citing works
Sawyer, J. M., & HIGGS, P. F. D. (2025) · Palliative Care and Social Practice · doi:10.1177/26323524251347653 · Cited by 1 · see citing works
Lee, K., Cassidy, J., Mitchell, J., & Shin, H. (2023) · International Journal of Social Work · doi:10.5296/ijsw.v10i1.20780 · Cited by 1 · see citing works
Planejamento antecipado de decisões em saúde mental: análise bioética
Pozón, S. R., del Olmo, B. R., Bernal, C. S., & Maestre, B. R. (2024) · Revista Bioética · doi:10.1590/1983-803420243697pt · Cited by 1 · see citing works
Neuropalliative Care in Dementia
Weisbrod, N. (2025) · CONTINUUM Lifelong Learning in Neurology · doi:10.1212/cont.0000000000001639 · Cited by 1 · see citing works
Admiral Nurse Case Management within Enhanced Health in Care Homes
Aldridge, Z., & Dening, K. H. (2021) · OBM Geriatrics · doi:10.21926/obm.geriatr.2102167 · Cited by 1 · see citing works
End-of-Life Care in Patients with Advanced Dementia
Gijsberts, M.-J. H. E., & Achterberg, W. P. (2021) · Springer eBooks · doi:10.1007/978-3-030-77904-7_17 · Cited by 1 · see citing works
del Río, A. Á., & Marván, M. L. (2021) · Gaceta Médica de México · doi:10.24875/gmm.20000848 · Cited by 1 · see citing works
Management of Dementia Symptoms in Healthcare
Christogianni, A. (2022) · Advances in healthcare information systems and administration book series · doi:10.4018/978-1-6684-6044-3.ch015 · Cited by 1 · see citing works
Mani, T. Y. A. A., Sallam, A. M., Aldosary, R., Alghamdi, J. A., Ghulam, B. M. I., & Shamah, W. F. (2022) · Archives of Pharmacy Practice · doi:10.51847/2gfzkuzb1m · Cited by 2 · see citing works
Conversations and Communication
Russell, S. (2024) · doi:10.1002/9781119784395.ch7 · Cited by 1 · see citing works
Early Bird Caregiver Education
Lopez, M., Trees, T. S., & Albee, B. (2020) · doi:10.33015/dominican.edu/2021.ot.02
Planowanie opieki z wyprzedzeniem a zaburzenia otępienne
Zurzycka, P. Z., Puto, G., & Repka, I. B. (2021) · Pielęgniarstwo Polskie · doi:10.20883/pielpol.2021.4
Beattie, J. M., Higginson, I. J., McDonagh, T. A., & Gao, W. (2021) · Research Square · doi:10.21203/rs.3.rs-636124/v1
Pessoa, A., Almeida, P., Marinho, R. C., Duque, S., do Amaral, T. F., Pinho, J., Santos, M., Parentérica, 2. P. D. N. E. E., Freire, E., Mendes, L., et al. (2020) · Medicina Interna · doi:10.24950/rspmi/guedelines/consensus/1/2020
Riedel, A., Lehmeyer, S., Linde, A.-C., & Treff, N. (2022) · Springer Reference Pflege, Therapie, Gesundheit · doi:10.1007/978-3-662-58685-3_85-3
Evaluation and Management of Dementia
Chan, C. K., & Lyketsos, C. G. (2022) · Cambridge University Press eBooks · doi:10.1017/9781108942751.011
Λυγνός, Δ., & Ρεθυμιωτάκη, Ε. (2023) · Bioethica · doi:10.12681/bioeth.34071
(2023) · Iryo To Shakai · doi:10.4091/iken.33-97
Majd, S., Bizjak-Mikic, M., & Waters, D. (2023) · International Journal of Research Publication and Reviews · doi:10.55248/gengpi.4.623.46724
Khemai, C. (2023) · doi:10.26481/dis.20231115ck
Consequences of Population Aging for Public Health in Different Areas of Life
(2024) · Frontiers research topics · doi:10.3389/978-2-8325-4547-8
- Authors
- Harrison Dening, K., Sampson, E. L., & De Vries, K.
- Affiliations
- Research & Publications, Dementia UK, London, UK; School of Nursing and Midwifery, De Montfort University, Leicester, UK
- University College London (GB)
- School of Nursing and Midwifery, De Montfort University, Leicester, UK
- ORCID
- Sampson, Elizabeth L
- Venue
- Palliative Care: Research and Treatment
- Publisher
- SAGE Publications
- Published
- 2019-01
- Volume
- 12
- Pages
- 1178224219826579-1178224219826579
- ISSN
- 1178-2242 (ISSN-L)
- PMC
- PMC6393818
- OpenAlex
- W2916588075
- Cited by
- 114
- References
- 54
- Citations by year
- 2026: 3 · 2025: 18 · 2024: 22 · 2023: 19 · 2022: 22 · 2021: 17 · 2020: 11 · 2019: 2
- FWCI
- 2.12
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- Palliative Care Research and Treatment (publishedVersion, cc-by-nc)
- Europe PMC (PubMed Central) (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- UCL Discovery (University College London) (submittedVersion)
- Funders
- Marie Curie (MCCC-FCO-11-U)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Keywords
- advance care planning, dementia, palliative care, family caregivers, decision-making capacity, health worker support, end-of-life care, care planning
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
