A comparison of the eating disorder service experiences of autistic and non-autistic women in the UK
Open accessAbstract
OBJECTIVE: Qualitative studies report that autistic women have poor experiences when being treated for an eating disorder (ED) and express that ED services are not appropriately tailored to meet their needs. It is unclear whether their experience differs to other women accessing ED services. The aim of the current study was to compare autistic and non-autistic women's ED illness history and experiences in ED services. METHOD: An online survey about ED illness history and their experience with ED treatment was completed by 46 autistic women with a restrictive ED and 110 non-autistic women with a restrictive ED. RESULTS: Despite some similarities, there were three key differences in the experiences reported by autistic and non-autistic women. First, autistic women reported a longer duration of ED and being diagnosed with an ED at a younger age than non-autistic women. Second, autistic women reported accessing a broader range of healthcare settings and ED treatments than non-autistic women when being treated for an ED. Finally, autistic women rated their experiences of inpatient care, dietetic input, and cognitive behavioural therapy (CBT) as significantly less beneficial than non-autistic women when being treated for an ED. CONCLUSION: These findings increase understanding of autistic women's ED experience and can help to shape ED services and treatments to better accommodate the needs of their autistic clients.
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Impediments to delivering appropriate support include lack of staff training and knowledge on how services could be adapted.
“Impediments to delivering appropriate support include lack of staff training and knowledge on how services could be adapted”
From Approaches to improving mental healthcare for autistic people: Systematic review (2024) · cites this paper as [17]
Impediments to delivering appropriate support include lack of evidence on best approaches.
“and lack of evidence on best approaches.11,17–20”
From Approaches to improving mental healthcare for autistic people: Systematic review (2024) · cites this paper as [17]
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- Authors
- Babb, C., Brede, J., Jones, C. R. G., Serpell, L., Mandy, W., & Fox, J.
- Affiliations
- Cardiff University (GB)
- University College London (GB)
- Corresponding author
- Mandy, William
- Venue
- European Eating Disorders Review
- Publisher
- Wiley
- Published
- 2022-07
- Volume
- 30
- Issue
- 5
- Pages
- 616-627
- ISSN
- 1072-4133 (ISSN-L)
- 1099-0968
- PMC
- PMC9544670
- OpenAlex
- W4283747798
- Cited by
- 54
- References
- 45
- Citations by year
- 2026: 8 · 2025: 15 · 2024: 20 · 2023: 11
- FWCI
- 10.52
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- European Eating Disorders Review (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (submittedVersion)
- ORCA Online Research @Cardiff (Cardiff University) (submittedVersion, other-oa)
- UCL Discovery (University College London) (submittedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Eating Disorders and Behaviors
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Health Sciences › Nursing › Nutrition and Dietetics › Nutrition, Health and Food Behavior
- Keywords
- autistic women, eating disorders, restrictive eating disorders, eating disorder treatment, patient experience, inpatient care, dietetics, cognitive behavioral therapy, health care access
- MeSH terms
- Feeding and Eating Disorders, Autistic Disorder, Female, United Kingdom, Humans, Surveys and Questionnaires, Qualitative Research
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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