The DOI matches its Crossref record; 36 of the 37 references it cites were found in a registry or an index.
Impact of early onset dementia on caregivers: a review
Abstract
Objective: When it comes to dementia, caregiving can have adverse effects on the psychological and physical health of the informal caregiver. As yet, little is known about the impact of caring for a young dementia patient. This review provides an overview of the literature concerning the impact of early onset dementia (EOD) on informal caregivers and on children of EOD patients. The available literature comparing the impact on EOD and late onset dementia (LOD) caregivers will also be provided. Methods: PubMed, Psychinfo, and Cinahl were searched for articles that considered the psychological or psychosocial impact of EOD on informal caregivers and children. The methodological quality of the studies was assessed in order to make better judgments about the value of each article. Results: Seventeen articles were included, of which the overall methodological quality was limited. The results showed that EOD caregivers experienced high levels of burden, stress, and depression. When compared with LOD caregivers, results were inconclusive. Furthermore, the caregivers of EOD patients experienced a variety of psychosocial problems, including relational problems, family conflict, problems with employment, financial difficulties, and problems concerning diagnosis. Conclusions: Whether there is a difference in impact between EOD and LOD on caregivers is still unclear. The studies conducted are methodologically too limited to answer this question. Nevertheless, it is clear that EOD caregivers do seem to experience high levels of psychological suffering and specific problems related to their phase in life. Copyright © 2010 John Wiley & Sons, Ltd.
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“In particular, the gradual loss of autonomy and the inability to accomplish conjugal and family daily tasks of the life partners of spouse caregivers has numerous repercussions on the socioprofessional, financial, and psychological dimensions of family life.15”
From The Unique Experience of Spouses in Early-Onset Dementia (2013) · cites this paper as [15]
In the citing paper
“However, some particularities color the discourse of the former group and, as mentioned in the review by van Vliet and colleagues, 15 unique characteristics emerge from their experiences.”
From The Unique Experience of Spouses in Early-Onset Dementia (2013) · cites this paper as [15]
Citations
Cites
Pinquart, M., & Sörensen, S. (2003) · Psychology and Aging · doi:10.1037/0882-7974.18.2.250 · Cited by 2,857
Schulz, R., O'Brien, A. T., Bookwala, J., & Fleissner, K. (1995) · The Gerontologist · doi:10.1093/geront/35.6.771 · Cited by 1,765
Is caregiving hazardous to one’s physical health? A meta-analysis
Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003) · Psychological Bulletin · doi:10.1037/0033-2909.129.6.946 · Cited by 1,734
Spousal caregivers of dementia victims: longitudinal changes in immunity and health.
Kiecolt-Glaser, J. K., Dura, J. R., Speicher, C. E., Trask, O. J., & Glaser, R. (1991) · Psychosomatic Medicine · doi:10.1097/00006842-199107000-00001 · Cited by 994
Greene, J. G., SMITH, R., GARDINER, M., & Timbury, G. C. (1982) · Age and Ageing · doi:10.1093/ageing/11.2.121 · Cited by 585
Appraising the quality of qualitative research
Walsh, D., & Downe, S. (2006) · Midwifery · doi:10.1016/j.midw.2005.05.004 · Cited by 523
Depressive disorders in caregivers of dementia patients: A systematic review
Cuijpers, P. (2005) · Aging & Mental Health · doi:10.1080/13607860500090078 · Cited by 414
The psychological and physical health of family members caring for an elderly person with dementia
Baumgarten, M., Battista, R. N., Infante‐Rivard, C., Hanley, J. A., Becker, R., & Gauthier, S. G. (1992) · Journal of Clinical Epidemiology · doi:10.1016/0895-4356(92)90189-t · Cited by 408
Black, W., & Almeida, O. P. (2004) · International Psychogeriatrics · doi:10.1017/s1041610204000468 · Cited by 307
de Vugt, M. E., Riedijk, S. R., Aalten, P., Tibben, A., Swieten, J. C. V., & Verhey, F. R. J. (2006) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000093102 · Cited by 242
Self-citation
Research works printed but not linked: 4
- Diehl J, 2004, Frontotemporal dementia: specific problems for caregivers, Z Gerontol Geriatr, 37, 301
- Harris PB, 2004, Living with early onset dementia: exploring the experience and developing evidence‐based guidelines for practice, Alzheim Care Q, 5, 111
- Keady J, 1997, Raising the profile of younger people with dementia, Ment Health Nurs, 17, 7
- 10.1002/(SICI)1099-1166(199908)14:8<651::AID-GPS992>3.0.CO;2-B · DOI · Paper page
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Appelhof, B., Bakker, C., den IJssel, J. C. L. V. D., Zwijsen, S. A., Smalbrugge, M., Verhey, F. R. J., de Vugt, M. E., Zuidema, S. U., & Koopmans, R. T. C. M. (2017) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000477087 · Cited by 2,774
Self-citationGlobal Prevalence of Young-Onset Dementia: A Systematic Review and Meta-analysis
Hendriks, S., Peetoom, K., Bakker, C., van der Flier, W. M., Papma, J. M., Koopmans, R., Verhey, F. R. J., de Vugt, M., Köhler, S., Young-Onset Dementia Epidemiology Study Group, et al. (2021) · JAMA Neurology · doi:10.1001/jamaneurol.2021.2161 · Cited by 409
Self-citationSensitive Interviewing in Qualitative Research
Dempsey, L., Dowling, M., Larkin, P. J., & Murphy, K. (2016) · Research in Nursing & Health · doi:10.1002/nur.21743 · Cited by 272
Bridges, J. F. P. (2003) · PubMed · Cited by 194
Millenaar, J., Bakker, C., Koopmans, R. T. C. M., Verhey, F. R. J., Kurz, A., & de Vugt, M. E. (2016) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.4502 · Cited by 178
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Metadata
- Authors
- van Vliet, D., de Vugt, M. E., Bakker, C., Koopmans, R. T. C. M., & Verhey, F. R. J.
- Affiliations
- Radboud University Medical Center (NL)
- Maastricht University Medical Centre (NL)
- Venue
- International Journal of Geriatric Psychiatry
- Publisher
- Wiley
- Published
- 2010-04-20
- Volume
- 25
- Issue
- 11
- Pages
- 1091-1100
- ISSN
- 0885-6230 (ISSN-L)
- 1099-1166
- OpenAlex
- W2008498400
- Cited by
- 252
- References
- 37
- Citations by year
- 2026: 7 · 2025: 13 · 2024: 16 · 2023: 19 · 2022: 15 · 2021: 21 · 2020: 15 · 2019: 20 · 2018: 17 · 2017: 20 · 2016: 21 · 2015: 12 · 2014: 20 · 2013: 24 · 2012: 6
- FWCI
- 1.58
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Geriatric Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- Research Publications (Maastricht University) (submittedVersion)
- Radboud Repository (Radboud University) (submittedVersion)
- Funders
- Alzheimer Nederland
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- early-onset dementia, late-onset dementia, informal caregivers, caregiver burden, caregiver stress, caregiver depression, family conflict, employment problems, financial hardship, psychosocial impact
- MeSH terms
- Adult, Aged, Child, Child, Preschool, Cross-Sectional Studies, Dementia, Family, Female, Humans, Long-Term Care, Male, Middle Aged, Stress, Psychological, Caregivers, Cost of Illness, Age of Onset, Qualitative Research
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