Mindfulness as a Protective Factor for the Burden of Caregivers of Amyotrophic Lateral Sclerosis Patients
Abstract
Objectives: Caregivers of people with severe chronic conditions, such as amyotrophic lateral sclerosis (ALS), are at risk of developing depression and anxiety and reduced quality of life. Few studies have explored protective factors in this population and none investigated the role of mindfulness. The study aimed to examine the relationship between mindfulness and health‐related outcomes in a population of ALS caregivers. Methods: We conducted an online survey with ALS caregivers, and again at 4‐month follow‐up, to assess mindfulness, burden, quality of life, anxiety, and depression. The associations between mindfulness and the other outcomes were evaluated both cross‐sectionally and longitudinally. Results: Mindfulness correlated negatively with burden, depression, and anxiety and positively with quality of life, maintaining stability through time. Conclusion: Our results showed that mindfulness is positively related to quality of life and negatively related to level of burden. We suggest that this construct can represent a preventative factor toward the negative effects of caregiving.
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Psychological distress and feelings of burden of ALS caregivers are associated with disease characteristics of the patient and with characteristics of the caregivers themselves.
“Previous research has shown that psychological distress and feelings of burden of ALS caregivers are associated with disease characteristics of the patient (i.e. physical and behavioral problems) but also with characteristics of the caregivers themselves, such as their coping style or whether they find positive meaning in caregiving [7, 9, 11–15].”
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- Authors
- Pagnini, F., Phillips, D., Bosma, C. M., Reece, A., & Langer, E.
- Affiliations
- Università Cattolica del Sacro Cuore (IT)
- Harvard University (US)
- Corresponding author
- Pagnini, Francesco
- Venue
- Journal of Clinical Psychology
- Publisher
- Wiley
- Published
- 2015-10-20
- Volume
- 72
- Issue
- 1
- Pages
- 101-111
- ISSN
- 0021-9762 (ISSN-L)
- 1097-4679
- OpenAlex
- W1750846427
- Cited by
- 54
- References
- 31
- Citations by year
- 2026: 1 · 2025: 5 · 2024: 2 · 2023: 3 · 2022: 3 · 2021: 5 · 2020: 2 · 2019: 9 · 2018: 9 · 2017: 10 · 2016: 4 · 2015: 1
- FWCI
- 9.93
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Clinical Psychology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Mindfulness and Compassion Interventions
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- mindfulness, caregiver burden, amyotrophic lateral sclerosis, family caregivers, depression, anxiety, quality of life, protective factors, caregiver mental health
- MeSH terms
- Aged, Amyotrophic Lateral Sclerosis, Anxiety, Depression, Female, Follow-Up Studies, Humans, Male, Middle Aged, Caregivers, Cost of Illness, Mindfulness, Protective Factors
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