Youth engagement in HIV prevention intervention research in sub‐Saharan Africa: a scoping review
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Introduction: Youth engagement in HIV research is generally recognized as essential, but often neglected or minimally implemented in practice. Engagement is a process of working collaboratively with diverse groups of people to address common issues. We conducted a scoping review of youth HIV prevention interventions in sub‐Saharan Africa to identify and categorize forms and levels of youth engagement across the lifespan of intervention research. Methods: We followed Arksey and O'Malley's framework for organizing a scoping review. We searched seven databases for related articles on identified intervention studies through May 28 th 2020. Included studies focused on youth (10 to 24 years old) HIV prevention interventions in sub‐Saharan Africa. Two reviewers independently examined citations and full manuscripts for inclusion. Data were extracted on study characteristics, location, description of youth engagement and extent of engagement. Youth engagement approaches were categorized based on Hart’s ladder as substantial engagement (strong youth decision‐making power), moderate engagement (shared decision making with adults), minimal engagement (no youth decision‐making power) or no engagement. Results: We identified 3149 citations and included 112 studies reporting on 74 unique HIV interventions. Twenty‐two interventions were in low‐income countries, 49 in middle‐income countries, and three were in both. Overall, only nine interventions (12%) had substantial or moderate youth engagement, two‐thirds (48, 65%) had minimal youth engagement and 17 interventions (23%) had no youth engagement. We also identified specific engagement strategies (e.g. youth‐led research, crowdsourcing) that were feasible in multiple settings and resulted in substantial engagement. Conclusions: We found limited youth engagement in youth HIV prevention intervention studies in sub‐Saharan Africa. However, several activities resulted in substantial youth engagement and could be relevant in many low‐and‐middle‐income‐country (LMIC) settings.
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Instrumental implicit theories are characterized by a strong interest in seeing research findings applied and used in tangible ways, for example in behaviour change interventions and health promotion programmes targeted towards young people.
“Instrumental: These motivations were the most directly related to applied health services research and can be characterized by a strong interest in seeing research findings applied and used in tangible ways—for example, in behaviour change interventions 27 , 37 and health promotion programmes targeted towards young people.”
From A systematic review of theories, models and frameworks used for youth engagement in health research (2024) · cites this paper as [37]
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Flagged first, then by citations
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Cited by
Sorted by citations
A systematic review of theories, models and frameworks used for youth engagement in health research
Sanchez, S., Thorburn, R., Rea, M., Kaufman, P., Schwartz, R., Selby, P., & Chaiton, M. (2024) · Health Expectations · doi:10.1111/hex.13975 · Cited by 35 · see citing works
“We identified five applications of models and frameworks used for youth engagement in health research: (1) empirical testing by the groups that developed them, 37,46,49,50,83 85 (”
BackgroundMethodInfluential
- Authors
- Asuquo, S. E., Tahlil, K. M., Muessig, K. E., Conserve, D. F., Igbokwe, M. A., Chima, K. P., Nwanunu, E. C., Elijah, L. P., Day, S., Rosenberg, N. E., Ong, J. J., Nkengasong, S., Tang, W., Obiezu‐Umeh, C., Nwaozuru, U., Merino, Y., Gbaja‐Biamila, T., Oladele, D., Iwelunmor, J., Ezechi, O., & Tucker, J. D.
- Affiliations
- University of North Carolina at Chapel Hill (US)
- University of South Carolina (US)
- University of Nigeria (NG)
- Nigerian Institute of Medical Research (NG)
- Lagos State University (NG)
- London School of Hygiene & Tropical Medicine (GB)
- Southern Medical University (CN)
- Saint Louis University (US)
- Clinical Sciences Department Nigerian Institute of Medical Research Lagos Nigeria
- Corresponding author
- Tucker, Joseph D
- ORCID
- Venue
- Journal of the International AIDS Society
- Publisher
- Wiley
- Published
- 2021-02
- Volume
- 24
- Issue
- 2
- Pages
- e25666-e25666
- ISSN
- 1758-2652 (ISSN-L)
- PMC
- PMC7876473
- OpenAlex
- W3126998122
- Cited by
- 54
- References
- 137
- Citations by year
- 2026: 13 · 2025: 10 · 2024: 9 · 2023: 6 · 2022: 10 · 2021: 6
- FWCI
- 1.60
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Journal of the International AIDS Society (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- LSHTM Research Online (London School of Hygiene and Tropical Medicine) (acceptedVersion)
- Minerva Access (University of Melbourne) (submittedVersion, cc-by)
- Greater South Information System
- Funders
- National Institute of Child Health and Human Development (NICHD UG3HD096929)
- Topics
- Health Sciences › Health Professions › General Health Professions › Adolescent Sexual and Reproductive Health
- Social Sciences › Sociology and Political Science › Children's Rights and Participation
- Social Sciences › Sociology and Political Science › Participatory Visual Research Methods
- Keywords
- youth participation, HIV prevention interventions, youth participation in research, sub-Saharan Africa, youth-led research, crowdsourcing, research co-design, low- and middle-income countries
- MeSH terms
- Adolescent, Adult, Decision Making, Female, Humans, Male, Poverty, Power, Psychological, HIV Infections, Africa South of the Sahara
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
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