The DOI matches its Crossref record; 5 of the 5 references it cites were found in a registry or an index.
Conclusion
Abstract
This concluding chapter summarizes and contextualizes the stories of events told by leaders of the autistic community and neurodiversity movement. The manifestos, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, book, and advisory roles narrated by contributors have had significantly positive impacts on the autism landscape. Yet the contributors told their stories through words, similarly to that much neurodiversity activism takes place through language. Therefore the editor examines the most persistent critiques of the neurodiversity movement, about its representation of people with “severe” autism directly or on their behalf. The analysis mostly disputes these arguments, but finds room for improvement. The chapter ends with consideration of remaining challenges for the movement and future directions for books and scholarship on it.
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“This change to a neurodiversity perspective has been driven by autistic voices; for a full history of autistic self-advocacy and the neurodiversity movement, the reader is referred to the edited volume by Kapp (2019).”
From Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research (2020) · cites this paper as Kapp (2019)
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Citations
Cites
What should autism research focus upon? Community views and priorities from the United Kingdom
Pellicano, E., Dinsmore, A., & Charman, T. (2014) · Autism · doi:10.1177/1362361314529627 · Cited by 800
Nicolaidis, C., Raymaker, D., Kapp, S. K., Baggs, A., Ashkenazy, E., McDonald, K., Weiner, M., Maslak, J., Hunter, M., & Joyce, A. (2019) · Autism · doi:10.1177/1362361319830523 · Cited by 547
Self-citationExperiences of autism acceptance and mental health in autistic adults
Cage, E., Di Monaco, J., & Newell, V. (2018) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3342-7 · Cited by 538
Intra-individual variability in ADHD, autism spectrum disorders and Tourette's syndrome
Geurts, H. M., Grasman, R. P. P. P., Verté, S., Oosterlaan, J., Roeyers, H., van Kammen, S. M., & Sergeant, J. A. (2008) · Neuropsychologia · doi:10.1016/j.neuropsychologia.2008.06.013 · Cited by 192
Courchesne, V., Meilleur, A.-A. S., Poulin-Lord, M.-P., Dawson, M., & Soulières, I. (2015) · Molecular Autism · doi:10.1186/s13229-015-0006-3 · Cited by 160
Research works printed but not linked: 29
- den Houting, J. (2019). Neurodiversity: An insider’s perspective. Autism, 23(2), 271–273. · DOI · Paper page
- Pellicano, E., & Stears, M. (2011). Bridging autism, science and society: Moving toward an ethically informed approach to autism research. Autism Research, 4(4), 271–282. · DOI · Paper page
- Pellicano, L., Mandy, W., Bölte, S., Stahmer, A., Lounds Taylor, J., & Mandell, D. S. (2018). A new era for autism research, and for our journal. Autism, 22, 82–83. · DOI
- Gillespie-Lynch, K., Kapp, S. K., Brooks, P. J., Pickens, J., & Schwartzman, B. (2017). Whose expertise is it? Evidence for autistic adults as critical autism experts. Frontiers in Psychology, 8, 438. · DOI
- Silberman, S. (2017). Beyond “Deficit-Based” thinking in autism research. Comment on “Implications of the idea of neurodiversity for understanding the origins of developmental disorders” by Nobuo Masataka. Physics of Life Reviews, 20, 119–121. · DOI
- Rosenblatt, A. (2018). Autism, advocacy organizations, and past injustice. Disability Studies Quarterly, 38(4). Retrieved from http://dsq-sds.org/article/view/6222/5137. · DOI
- Grondhuis, S. N., & Mulick, J. A. (2013). Comparison of the Leiter International Performance Scale-Revised and the Stanford-Binet Intelligence Scales, in children with autism spectrum disorders. American Journal on Intellectual and Developmental Disabilities, 118(1), 44–54. · DOI
- Krueger, K. K. (2013). Minimally verbal school-aged children with autism: Communication, academic engagement and classroom quality (Doctoral dissertation). Retrieved from the eScholarship UCLA Electronic Theses and Dissertations database (UMI No. 11894).
- Shah, A., & Holmes, N. (1985). Brief report: The use of the Leiter International Performance Scale with autistic children. Journal of Autism and Developmental Disorders, 15(2), 195–203. · DOI
- Tsatsanis, K. D., Dartnall, N., Cicchetti, D., Sparrow, S. S., Klin, A., & Volkmar, F. R. (2003). Concurrent validity and classification accuracy of the Leiter and Leiter-R in low-functioning children with autism. Journal of Autism and Developmental Disorders, 33(1), 23–30. · DOI
- McGonigle-Chalmers, M., & McSweeney, M. (2013). The role of timing in testing nonverbal IQ in children with ASD. Journal of Autism and Developmental Disorders, 43(1), 80–90. · DOI
- McGonigle-Chalmers, M., Alderson-Day, B., Fleming, J., & Monsen, K. (2013). Profound expressive language impairment in low functioning children with autism: An investigation of syntactic awareness using a computerised learning task. Journal of Autism and Developmental Disorders, 43(9), 2062–2081. · DOI
- Mucchetti, C. A. (2013). Adapted shared reading at school for minimally verbal students with autism. Autism, 17(3), 358–372. · DOI
- Kapp, S. K. (2018). Social support, well-being, and quality of life among individuals on the autism spectrum. Pediatrics, 141(Suppl. 4), S362–S368. · DOI · Paper page
- American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders (DSM-5®). Washington, DC: Author. · DOI · Paper page
- Jones, C. R., Happé, F., Golden, H., Marsden, A. J., Tregay, J., Simonoff, E., et al. (2009). Reading and arithmetic in adolescents with autism spectrum disorders: Peaks and dips in attainment. Neuropsychology, 23(6), 718. · DOI
- Haigh, S. M. (2018). Variable sensory perception in autism. European Journal of Neuroscience, 47(6), 602–609. · DOI
- Happé, F. (2018). Why are savant skills and special talents associated with autism? World Psychiatry, 17(3), 280–281. · DOI
- Russell, G., Kapp, S. K., Elliott, D., Elphick, C., Gwernan-Jones, R., & Owens, C. (2019). Mapping the autistic advantage from the experience of adults diagnosed with autism: A qualitative study. Autism in Adulthood, 1, 124–133 (Advance online publication). · DOI · Paper page
- Sinclair, J. (2012). Autism Network International: The development of a community and its culture. In J. Bascom (Ed.), Loud hands: Autistic people, speaking (pp. 17–48). Washington, DC: The Autistic Press. Retrieved from http://www.autreat.com/History_of_ANI.html.
- Silberman, S. (2015). NeuroTribes: The legacy of autism and the future of neurodiversity. New York: Avery.
- Baggs, A. M. (2012). The meaning of self advocacy. In J. Bascom (Ed.), Loud hands: Autistic people, speaking (pp. 315–319). Washington, DC: The Autistic Press.
- Russell, G., Mandy, W., Elliott, D., White, R., Pittwood, T., & Ford, T. (2019). Selection bias on intellectual ability in autism research: A cross-sectional review and meta-analysis. Molecular Autism, 10(1), 9. · DOI · Paper page
- Stedman, A., Taylor, B., Erard, M., Peura, C., & Siegel, M. (2018). Are children severely affected by autism spectrum disorder underrepresented in treatment studies? An analysis of the literature. Journal of Autism and Developmental Disorders (Advance online publication). https://doi.org/10.1007/s10803%96018%2D3844%2Dy. · DOI
- Ne’eman, A. (2010). The future (and the past) of autism advocacy, or why the ASA’s magazine, The Advocate, wouldn’t publish this piece. Disability Studies Quarterly, 30(1). Retrieved from http://dsq-sds.org/article/view/1059/1244. · DOI
- Botha, M., & Frost, D. M. (2018). Extending the minority stress model to understand mental health problems experienced by the autistic population. Society and Mental Health (Advance online publication). https://doi.org/10.1177/2156869318804297. · DOI · Paper page
- d’Arc, B. F., Dawson, M., Soulières, I., & Mottron, L. (2012). Self-injury in autism is largely unexplained: Now what? Journal of Autism and Developmental Disorders, 42(11), 2513–2514. · DOI
- Dempsey, J., Dempsey, A. G., Guffey, D., Minard, C. G., & Goin-Kochel, R. P. (2016). Brief report: Further examination of self-injurious behaviors in children and adolescents with autism spectrum disorders. Journal of Autism and Developmental Disorders, 46(5), 1872–1879. · DOI
- White, S. W., Lerner, M. D., McLeod, B. D., Wood, J. J., Ginsburg, G. S., Kerns, C., et al. (2015). Anxiety in youth with and without autism spectrum disorder: Examination of factorial equivalence. Behavior Therapy, 46(1), 40–53. · DOI
Cited by
Sorted by citations
Happé, F., & Frith, U. (2020) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.13176 · Cited by 438
Schuck, R. K., Tagavi, D. M., Baiden, K. M. P., Dwyer, P., Williams, Z. J., Osuna, A., Ferguson, E. F., Jimenez Muñoz, M., Poyser, S. K., Johnson, J. F., et al. (2022) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05316-x · Cited by 208
Metadata
- Authors
- Kapp, S. K.
- Venue
- Autistic Community and the Neurodiversity Movement
- Publisher
- Springer Singapore
- Published
- 2019-11-08
- Pages
- 305-318
- Cited by
- 3
- References
- 5
- Language
- en
- Funders
- University of Exeter
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