Status quo of advanced cancer patients participating in shared decision-making in China: a mixed study
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Abstract
Abstract Purpose Patients with advanced cancer are usually willing to participate in shared decision-making (SDM), but in clinical practice, the participation of patients is easily ignored due to many factors. This study aimed to analyze the current status of SDM among patients with advanced cancer in China and the related factors affecting patient participation. Methods A cross-sectional survey was conducted on 513 advanced cancer patients in 16 tertiary hospitals of China. The general situation questionnaire, the Control Preference Scale (CPS) and Perceived-involvement in Care Scale (PICS) were used to analyze the current status of SDM and influencing factors. Based on the Ottawa Decision Support Framework (ODSF), 17 advanced cancer patients were interviewed to explore the perceptions of advanced cancer patients on SDM. Results There is a difference between actual situation and expectation of patients' participation in decision-making tendency, and the statistically significant influencing factors were age, payment, and whether worried about the therapeutic effect. We also found the dynamic change of decision-making mode, the acquisition of disease information, the obstacles of decision-making participation and the role of family members would effect the type of patients' SDM. Conclusion The SDM status of advanced cancer patients in China is dominated by sharing, and in a continuous dynamic change. Influenced by Chinese traditional culture, family members play an important role in shared decision-making.
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In the Chinese sociocultural context, family caregivers' emotional burden may be further intensified by expectations that place family members at the centre of medical decision-making.
“In the Chinese sociocultural context, this emotional burden may be further intensified by expectations that place family members at the centre of medical decision-making.”
From The burdens, coping strategies, and unmet needs of family caregivers of Chinese patients with lymphoma receiving commercial CAR-T-cell therapy: A qualitative study (2026) · cites this paper as [49]
The ‘Role of family members’ theme and Discussion say Chinese traditional culture shapes families’ important role in treatment decisions, including instances of decision-making control. The paper does not examine family caregivers’ emotional burden or say that decision-making expectations intensify it; the Discussion explicitly says the study did not focus on family members. (LLM, conf=0.86)
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- Authors
- Huang, S., Wang, H., Xu, X., Bu, X., Xia, Y., & Liu, X.
- Affiliations
- Central South University (CN)
- Corresponding author
- Liu, Xiangyu
- Venue
- Supportive Care in Cancer
- Published
- 2023-06-06
- Volume
- 31
- Issue
- 7
- Pages
- 380-380
- ISSN
- 0941-4355 (ISSN-L)
- 1433-7339
- OpenAlex
- W4379509224
- Cited by
- 14
- References
- 28
- Citations by year
- 2026: 2 · 2025: 6 · 2024: 5 · 2023: 1
- FWCI
- 4.23
- Type
- journal article
- Language
- en
- Open access
- green
- doi.org
- Licence
- Locations
- Supportive Care in Cancer (publishedVersion)
- Research Square (acceptedVersion, cc-by)
- PubMed (publishedVersion)
- Funders
- Hunan Provincial Natural Science Foundation (2021JJ40327)
- Hunan Provincial Science and Technology Innovation Plan (2020SK51105)
- High-level Talent Promotion Programme of Hunan Provincial Health and Health Commission (20230222-1001)
- Topics
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Keywords
- shared decision-making, advanced cancer, patient involvement in treatment decisions, family involvement in care, Ottawa Decision Support Framework, Control Preferences Scale, barriers to shared decision-making, Chinese traditional culture, health insurance
- MeSH terms
- Decision Making, Shared, Cross-Sectional Studies, Decision Making, Humans, Neoplasms, Patient Participation
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