Enhancing the Validity of a Quality of Life Measure for Autistic People
Open accessAbstract
Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure-WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people.
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In autistic individuals, the WHOQoL-BREF has good psychometric properties.
“In autistic individuals, the WHOQoL-BREF has good psychometric properties (McConachie et al., 2018).”
From Feasibility, Acceptability and Preliminary Efficacy of Dialectical Behavior Therapy for Autistic Adults without Intellectual Disability: A Mixed Methods Study (2022) · cites this paper as McConachie et al., 2018
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References 62 · Cited by 245
Research works printed but not linked: 1
- Constantino, J. N., & Gruber, C. P. (2012). Social responsiveness scale (2nd ed.) (SRS-2) [Manual] (Vol. Pearson). Torrance, CA: Western Psychological Services.
- Authors
- McConachie, H., Mason, D., Parr, J. R., Garland, D., Wilson, C., & Rodgers, J.
- Affiliations
- Royal Victoria Infirmary (GB)
- Newcastle University (GB)
- The National Autistic Society (GB)
- Corresponding author
- McConachie, Helen
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2017-11-29
- Volume
- 48
- Issue
- 5
- Pages
- 1596-1611
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- PMC
- PMC5889785
- OpenAlex
- W2768942203
- Cited by
- 245
- References
- 62
- Citations by year
- 2026: 25 · 2025: 27 · 2024: 42 · 2023: 30 · 2022: 27 · 2021: 43 · 2020: 19 · 2019: 26 · 2018: 6
- FWCI
- 8.00
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, other-oa)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Newcastle University ePrints (Newcastle Univesity) (cc-by)
- Funders
- Research Autism
- Autistica
- The Shirley Foundation
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Keywords
- quality of life, autism spectrum disorder, WHOQOL-BREF, psychometric validation, construct validity, ASQoL
- MeSH terms
- Autism Spectrum Disorder, Adult, Female, Persons with Disabilities, Disabled Persons, Humans, Male, Middle Aged, Psychiatric Status Rating Scales, Psychometrics, Quality of Life, Surveys and Questionnaires, World Health Organization, Reproducibility of Results
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