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National and State Estimates of Adults with Autism Spectrum Disorder

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Dietz, Patricia M., Rose, Charles E., McArthur, Dedria, Maenner, Matthew·2020·Journal of Autism and Developmental Disorders

DOI 10.1007/s10803-020-04494-4PMC PMC9128411

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Abstract

U.S. national and state population-based estimates of adults living with autism spectrum disorder (ASD) are nonexistent due to the lack of existing surveillance systems funded to address this need. Therefore, we estimated national and state prevalence of adults 18-84 years living with ASD using simulation in conjunction with Bayesian hierarchal models. In 2017, we estimated that approximately 2.21% (95% simulation interval (SI) 1.95%, 2.45%) or 5,437,988 U.S. adults aged 18 and older have ASD, with state prevalence ranging from 1.97% (95% SI 1.55%, 2.45%) in Louisiana to 2.42% (95% SI 1.93%, 2.99%) in Massachusetts. Prevalence and case estimates of adults living with ASD (diagnosed and undiagnosed) can help states estimate the need for diagnosing and providing services to those unidentified.

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Authors: Dietz, P. M., Rose, C. E., McArthur, D., & Maenner, M.
Affiliations: Centers for Disease Control and Prevention (US)
Corresponding author: Dietz, Patricia M.
ORCID: Dietz, Patricia M.
Rose, Charles E.
McArthur, Dedria
Maenner, Matthew
Venue: Journal of Autism and Developmental Disorders
Publisher: Springer Science and Business Media LLC
Published: 2020-05-10
Volume: 50
Issue: 12
Pages: 4258-4266
ISSN: 0162-3257 (ISSN-L)
1573-3432
DOI: 10.1007/s10803-020-04494-4
PMC: PMC9128411
OpenAlex: W3021253625
Cited by: 351
References: 22
Citations by year: 2026: 71 · 2025: 71 · 2024: 60 · 2023: 49 · 2022: 50 · 2021: 45 · 2020: 5
FWCI: 20.00
Type: journal article
Language: en
Open access: green
www.ncbi.nlm.nih.gov
Licence: www.springer.com/tdm (tdm)
www.springer.com/tdm (vor)
Locations: Journal of Autism and Developmental Disorders (publishedVersion)
PubMed (publishedVersion)
PubMed Central (acceptedVersion)
Funders: National Institutes of Health (CC999999)
Topics: Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Health and Medical Studies
Keywords: autism spectrum disorder, autistic adults, prevalence estimation, state-level prevalence, undiagnosed autism, Bayesian hierarchical model, simulation
MeSH terms: Autism Spectrum Disorder, Adolescent, Adult, Bayes Theorem, Child, Computer Simulation, Female, Humans, Male, Massachusetts, Population Surveillance, Prevalence

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