Cited by 155Family and Disability Support ResearchCerebral Palsy and Movement DisordersNursing care and research

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Impact of Caring for a Child with Cerebral Palsy on the Quality of Life of Parents: A Systematic Review of the Literature

Pousada, Modesta, Guillamón, Noemí, Hernández-Encuentra, Eulàlia, Muñoz, Elena, Redolar, Diego, Boixadós, Mercè, Gómez-Zúñiga, Beni·2013·Journal of Developmental and Physical Disabilities

DOI 10.1007/s10882-013-9332-6

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Development and reliability of a system to classify gross motor function in children with cerebral palsy
Palisano, R. J., Rosenbaum, P., Walter, S. D., Russell, D., Wood, E. P., & Galuppi, B. E. (1997) · Developmental Medicine & Child Neurology · doi:10.1111/j.1469-8749.1997.tb07414.x · Cited by 6,728
A report: the definition and classification of cerebral palsy April 2006
Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., BAX, M. C. O., Damiano, D. L., Dan, B., & Jacobsson, B. (2007) · Developmental Medicine & Child Neurology · doi:10.1111/j.1469-8749.2007.tb12610.x · Cited by 5,028
Handbook of Early Childhood Intervention
Zigler, E. (2000) · Cambridge University Press eBooks · doi:10.1017/cbo9780511529320 · Cited by 1,397
The Health and Well-Being of Caregivers of Children With Cerebral Palsy
Raina, P. S., O’Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D. J., Swinton, M. E., Zhu, B., & Wood, E. P. (2005) · PEDIATRICS · doi:10.1542/peds.2004-1689 · Cited by 1,238
The epidemiology of cerebral palsy: Incidence, impairments and risk factors
Odding, E., Roebroeck, M. E., & Stam, H. J. (2006) · Disability and Rehabilitation · doi:10.1080/09638280500158422 · Cited by 1,084
Enabling and empowering families: Principles and guidelines for practice
Dunst, C. J., Trivette, C. M., & Deal, A. G. (1988) · Cited by 825
Interactive Health Communication Applications for people with chronic disease
Murray, E., Burns, J., See Tai, S., Lai, R., & Nazareth, I. (2005) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd004274.pub4 · Cited by 722
Meta‐analysis of family‐centered helpgiving practices research
Dunst, C. J., Trivette, C. M., & Hamby, D. W. (2007) · Mental Retardation and Developmental Disabilities Research Reviews · doi:10.1002/mrdd.20176 · Cited by 691
Journal of Clinical Nursing
Mcelroy, A., & Ba, E. (2010) · Journal of Clinical Nursing · doi:10.1111/(issn)1365-2702 · Cited by 640
Preschool children with intellectual disability: syndrome specificity, behaviour problems, and maternal well‐being
Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005) · Journal of Intellectual Disability Research · doi:10.1111/j.1365-2788.2005.00699.x · Cited by 620

Show all 84 references

Research works printed but not linked: 4

Allen, R., & Petr, C. G. (1996). Toward developing standards and measurements for family-centered practice in family support programs. In G. H. S. Singer, L. E. Powers, & A. L. Olson (Eds.), Redefinning family support: innovations in public-private partnerships (pp. 57–86). Baltimore: Brookes.
Cunningham, C. C. (2000). Familias con niños con Síndrome de Down. In M. A. Verdugo (Ed.), Familias y Discapacidad intelectual (pp. 41–71). Madrid: Feaps.
Guillamón, N., Armayones, M., Hernández, E., & Gómez-Zúñiga, B. (2010). The role of patient organizations in participatory medicine: can virtual health communities help participatory medicine accomplish its objectives? Journal of Participatory Medicine, 2, e21.
Turnbull, A., Brown, I., & Turnbull, R. (Eds.). (2004). Families and people with mental retardation and quality of life. International perspectives. Washington: AAMR.

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Authors: Pousada, M., Guillamón, N., Hernández-Encuentra, E., Muñoz, E., Redolar, D., Boixadós, M., & Gómez-Zúñiga, B.
Affiliations: Universitat Oberta de Catalunya (ES)
Corresponding author: Pousada, Modesta
ORCID: Pousada, Modesta
Guillamón, Noemí
Boixadós, Mercè
Venue: Journal of Developmental and Physical Disabilities
Publisher: Springer Science and Business Media LLC
Published: 2013-01-20
Volume: 25
Issue: 5
Pages: 545-577
ISSN: 1056-263X (ISSN-L)
1573-3580
DOI: 10.1007/s10882-013-9332-6
OpenAlex: W1973528163
Cited by: 155
References: 84
Citations by year: 2026: 5 · 2025: 19 · 2024: 16 · 2023: 15 · 2022: 24 · 2021: 20 · 2020: 15 · 2019: 10 · 2018: 7 · 2017: 7 · 2016: 6 · 2015: 3 · 2014: 7 · 2013: 1
FWCI: 0.84
Type: journal article
Language: en
Open access: closed
Licence: www.springer.com/tdm (tdm)
Locations: Journal of Developmental and Physical Disabilities (publishedVersion)
Topics: Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Rehabilitation › Cerebral Palsy and Movement Disorders
Health Sciences › Nursing › Research and Theory › Nursing care and research
Keywords: cerebral palsy, parental care, parents of children with disabilities, quality of life, caregiver stress, depression, caregiver self-efficacy, social support, child behavior problems, family intervention, coping

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