Cited by 283Adolescent and Pediatric HealthcareAutism Spectrum Disorder ResearchFamily and Disability Support Research

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Unmet Need and Problems Accessing Core Health Care Services for Children with Autism Spectrum Disorder

Chiri, Giuseppina, Warfield, Marji Erickson·2012·Maternal and Child Health Journal

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Abstract

To investigate the health care experiences of children with autism spectrum disorder, whether they have unmet needs, and if so, what types, and problems they encounter accessing needed care. We address these issues by identifying four core health care services and access problems related to provider and system characteristics. Using data from the 2005-2006 National Survey of Children with Special Health Care Needs (NS-CSHCN) we compared children with autism spectrum disorder with children with special health care needs with other emotional, developmental or behavioral problems (excluding autism spectrum disorder) and with other children with special health care needs. We used weighted logistic regression to examine differences in parent reports of unmet needs for the three different health condition groups. Overall unmet need for each service type among CSHCN ranged from 2.5% for routine preventive care to 15% for mental health services. After controlling for predisposing, enabling and need factors, some differences across health condition groups remained. Families of children with autism spectrum disorder were in fact significantly more at risk for having unmet specialty and therapy care needs. Additionally, families of children with autism spectrum disorder were more likely to report provider lack of skills to treat the child as a barrier in obtaining therapy and mental health services. Disparities in unmet needs for children with autism suggest that organizational features…

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Revisiting the Behavioral Model and Access to Medical Care: Does it Matter?
Andersen, R. M. (1995) · Journal of Health and Social Behavior · doi:10.2307/2137284 · Cited by 9,831
Morbidity and mortality weekly report
Gay, N., Gay, N., & Day, A. (1997) · The American Journal of Medicine · doi:10.1016/s0002-9343(97)89440-5 · Cited by 4,684
Morbidity and Mortality Weekly Report
(2010) · Wilderness and Environmental Medicine · doi:10.1016/j.wem.2010.09.015 · Cited by 2,976
Health Care Financing Review
(1980) · Health Care Management Review · doi:10.1097/00004010-198005030-00017 · Cited by 2,529
Prevalence of autism spectrum disorders--autism and developmental disabilities monitoring network, 14 sites, United States, 2002.
(2007) · PubMed · Cited by 2,018
Prevention and control of influenza with vaccines: recommendations of the Advisory Committee on Immunization Practices (ACIP), 2010.
Fiore, A. E., Uyeki, T. M., Broder, K. R., Finelli, L., Euler, G. L., Singleton, J. A., Iskander, J. K., Wortley, P. M., Shay, D. K., Bresee, J., et al. (2009) · PubMed · Cited by 1,964
The Epidemiology of Autism Spectrum Disorders
Newschaffer, C. J., Croen, L. A., Daniels, J., Giarelli, E., Grether, J. K., Levy, S. E., Mandell, D. S., Miller, L. A., Pinto-Martin, J., Reaven, J., et al. (2007) · Annual Review of Public Health · doi:10.1146/annurev.publhealth.28.021406.144007 · Cited by 1,228
Vital Health Statistics
Sudha, R. (2017) · Jaypee Brothers Medical Publishers (P) Ltd. eBooks · doi:10.5005/jp/books/13016_29 · Cited by 936
Prevalence of Autism Spectrum Disorders --- Autism and Developmental Disabilities Monitoring Network, United States, 2006
Rice, C. E. (2009) · PsycEXTRA Dataset · doi:10.1037/e562722010-001 · Cited by 762
Advancing Health Disparities Research Within the Health Care System: A Conceptual Framework
Kilbourne, A. M., Switzer, G., Hyman, K., Crowley-Matoka, M., & Fine, M. J. (2006) · American Journal of Public Health · doi:10.2105/ajph.2005.077628 · Cited by 761 · cited 1×
“Understanding the nature and extent of health disparities is the first step toward the creation of policies aimed at narrowing those disparities [ 25 ].”
Background
A National Profile of the Health Care Experiences and Family Impact of Autism Spectrum Disorder Among Children in the United States, 2005–2006
Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008) · PEDIATRICS · doi:10.1542/peds.2008-1057 · Cited by 662
Research methods in psychology
(2001) · PsycEXTRA Dataset · doi:10.1037/e518432004-001 · Cited by 652
Data and Statistics
Freund, R. J., Wilson, W. J., & Mohr, D. L. (2010) · Elsevier eBooks · doi:10.1016/b978-0-12-374970-3.00001-9 · Cited by 580
Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, United States, 2006
Mack, A. H. (2011) · Yearbook of Psychiatry and Applied Mental Health · doi:10.1016/j.ypsy.2010.11.009 · Cited by 500
Research Methods in Psychology
(1994) · Journal of Environmental Psychology · doi:10.1016/s0272-4944(05)80228-2 · Cited by 484
The Unmet Health Needs of America's Children
Newacheck, P. W., Hughes, D., Hung, Y., Wong, S. T., & Stoddard, J. J. (2000) · PEDIATRICS · doi:10.1542/peds.105.s3.989 · Cited by 457
Parental Report of Health Conditions and Health Care Use Among Children With and Without Autism: National Survey of Children's Health
Gurney, J. G., McPheeters, M. L., & Davis, M. M. (2006) · Archives of Pediatrics & Adolescent Medicine · doi:10.1001/archpedi.160.8.825 · Cited by 411
Prevalence of autism spectrum disorders - Autism and Developmental Disabilities Monitoring Network, United States, 2006.
(2009) · PubMed · Cited by 409
Access to Health Care for Children With Special Health Care Needs
Newacheck, P. W., McManus, M. A., Fox, H. B., Hung, Y., & Halfon, N. (2000) · PEDIATRICS · doi:10.1542/peds.105.4.760 · Cited by 406
A Comparison of Health Care Utilization and Costs of Children With and Without Autism Spectrum Disorders in a Large Group-Model Health Plan
Croen, L., Najjar, D. V., Ray, G. T., Lotspeich, L. J., & Bernal, P. (2006) · PEDIATRICS · doi:10.1542/peds.2006-0127 · Cited by 379
Prevalence and Characteristics of Children With Special Health Care Needs
van Dyck, P. C., Kogan, M. D., McPherson, M. G., Weissman, G., & Newacheck, P. W. (2004) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.158.9.884 · Cited by 359
Health Care Utilization and Expenditures for Children with Autism: Data from U.S. National Samples
Liptak, G. S., Stuart, T., & Auinger, P. (2006) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0119-9 · Cited by 309
Design and operation of the National Survey of Children with Special Health Care Needs, 2001.
Bramlett, M. D., Blumberg, S. J., Ormson, A. E., George, J. M., Williams, K. L., Frasier, A. M., Skalland, B. J., Santos, K. B., Vsetecka, D. M., Morrison, H. M., et al. (2003) · PubMed · Cited by 305
Access to the Medical Home: Results of the National Survey of Children With Special Health Care Needs
Strickland, B. B., McPherson, M. G., Weissman, G., van Dyck, P., Huang, Z. J., & Newacheck, P. W. (2004) · PEDIATRICS · doi:10.1542/peds.113.s4.1485 · Cited by 293
Unmet Need for Routine and Specialty Care: Data From the National Survey of Children With Special Health Care Needs
Mayer, M. L., Skinner, A. C., & Slifkin, R. T. (2004) · PEDIATRICS · doi:10.1542/peds.113.2.e109 · Cited by 256
The Medical Home: Health Care Access and Impact for Children and Youth in the United States
Strickland, B. B., Jones, J. R., Ghandour, R. M., Kogan, M. D., & Newacheck, P. W. (2011) · PEDIATRICS · doi:10.1542/peds.2009-3555 · Cited by 198
More Training Needed in Chronic Care: A Survey of U.S. Physicians
Darer, J. D., Hwang, W., Pham, H. H., Bass, E. B., & Anderson, G. F. (2004) · Academic Medicine · doi:10.1097/00001888-200406000-00009 · Cited by 148
Research methods in psychology, 3rd ed.
Breakwell, G. M., Hammond, S., Fife‐Schaw, C., & Smith, J. A. (2006) · Cited by 148
The Medical Home: Health Care Access and Impact for Children and Youth in the United States
(2011) · PEDIATRICS · doi:10.1542/peds.2009-3555d · Cited by 148
Serving the needs of immigrant families of children with autism
Welterlin, A., & LaRue, R. H. (2007) · Disability & Society · doi:10.1080/09687590701659600 · Cited by 133
Mental health in the United States: parental report of diagnosed autism in children aged 4-17 years--United States, 2003-2004.
(2006) · PubMed · Cited by 108
Household Language Use and Health Care Access, Unmet Need, and Family Impact Among CSHCN
Yu, S. M., & Singh, G. K. (2009) · PEDIATRICS · doi:10.1542/peds.2009-1255m · Cited by 100
Parental English Proficiency and Children’s Health Services Access
Yu, S. M., Huang, Z. J., Schwalberg, R. H., & Nyman, R. M. (2006) · American Journal of Public Health · doi:10.2105/ajph.2005.069500 · Cited by 99
Aiming Higher: Results from a State Scorecard on Health System Performance, 2014
McCarthy, D., Schoen, C., Radley, D. C. R., Lippa, J., & Hayes, S. L. H. (2014) · doi:10.15868/socialsector.25073 · Cited by 95
Insurance for Children With Special Health Care Needs: Patterns of Coverage and Burden on Families to Provide Adequate Insurance
Davidoff, A. J. (2004) · PEDIATRICS · doi:10.1542/peds.114.2.394 · Cited by 94
Correlates of Use of Specialty Care
Kuhlthau, K. A., Nyman, R. M., Ferris, T. G. G., Beal, A. C., & Perrin, J. M. (2004) · PEDIATRICS · doi:10.1542/peds.113.3.e249 · Cited by 93
Unmet Need and Problems Accessing Specialty Medical and Related Services Among Children with Special Health Care Needs
Warfield, M. E., & Gulley, S. P. (2005) · Maternal and Child Health Journal · doi:10.1007/s10995-005-0041-3 · Cited by 88
Self-citation
Nonfinancial Barriers to Care for Children and Youth
Halfon, N., Inkelas, M., & Wood, D. M. (1995) · Annual Review of Public Health · doi:10.1146/annurev.pu.16.050195.002311 · Cited by 84
Exclusions and Limitations in Children's Behavioral Health Care Coverage
Peele, P. B., Lave, J. R., & Kelleher, K. J. (2002) · Psychiatric Services · doi:10.1176/appi.ps.53.5.591 · Cited by 59
Promoting Social Communication: Children With Developmental Disabilities From Birth to Adolescence
Chadsey, J. G. (2003) · Mental Retardation · doi:10.1352/0047-6765(2003)41 · Cited by 55
Delayed or Forgone Care Among Children With Special Health Care Needs: An Analysis of the 2001 National Survey of Children With Special Health Care Needs
Huang, Z. J., Kogan, M. D., Yu, S. M., & Strickland, B. B. (2005) · Ambulatory Pediatrics · doi:10.1367/a04-073r.1 · Cited by 54
Disparities in Use of and Unmet Need for Therapeutic and Supportive Services among School‐Age Children with Functional Limitations: A Comparison across Settings
Benedict, R. E. (2005) · Health Services Research · doi:10.1111/j.1475-6773.2005.00468.x · Cited by 48
The Influence of Health Insurance on Parent’s Reports of Children’s Unmet Mental Health Needs
DeRigne, L., Porterfield, S. L., & Metz, S. M. (2008) · Maternal and Child Health Journal · doi:10.1007/s10995-008-0346-0 · Cited by 46
Medicaid Managed Care and the Unmet Need for Mental Health Care among Children with Special Health Care Needs
Tang, M. H., Hill, K. S., Boudreau, A. A., Yucel, R. M., Perrin, J. M., & Kuhlthau, K. A. (2007) · Health Services Research · doi:10.1111/j.1475-6773.2007.00811.x · Cited by 37
Children and Managed Care: What Research Can, Can’t, and Should Tell Us about Impact
Simpson, L., & Fraser, I. (1999) · Medical Care Research and Review · doi:10.1177/1077558799056002s02 · Cited by 33
Progress in Ensuring Adequate Health Insurance for Children With Special Health Care Needs
Honberg, L. E., Kogan, M. D., Allen, D., Strickland, B. B., & Newacheck, P. W. (2009) · PEDIATRICS · doi:10.1542/peds.2009-0372 · Cited by 30
Benefit limits in managed behavioral health care: Do they matter?
Peele, P. B., Lave, J. R., & Xu, Y. (1999) · The Journal of Behavioral Health Services & Research · doi:10.1007/bf02287303 · Cited by 25
Managed Care and Children With Special Health Care Needs
Kastner, T. A. (2004) · PEDIATRICS · doi:10.1542/peds.2004-2148 · Cited by 21
Health Care Costs and Utilization Rates for Children with Pervasive Developmental Disorders in North Dakota From 1998 to 2004: Impact on Medicaid
Peng, C.-Z., Hatlestad, P., Klug, M. G., Kerbeshian, J., & Burd, L. (2009) · Journal of Child Neurology · doi:10.1177/0883073808321059 · Cited by 18
Race and ethnicity and the identification of special needs children.
Shenkman, E. A., Vogel, B., Brooks, R., Wegener, D. H., & Naff, R. (2001) · PubMed Central · Cited by 18
Measuring Success in the Treatment of Children in the Emergency Department Setting: Process Versus Outcomes?
Weiss, K. B. (2002) · Ambulatory Pediatrics · doi:10.1367/1539-4409(2002)002 · Cited by 4
Untitled work
Wiecha, J. (2001) · doi:10.1367/1539-4409(2001)001

Research works printed but not linked: 2

Osterling, J. A., Brooks, C. A., Unis, A. S., et al. (2000). A child with an autism spectrum disorder. In M. J. Guralnick (Ed.), Interdisciplinary clinical assessment of young children with developmental disabilities. Baltimore: Paul H. Brookes Pub. Co.
StataCorp. (2007). Stata statistical software: Release 10. College Station, TX: StataCorp LP.

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Kaufmann, W. E., Kidd, S. A., Andrews, H. F., Budimirovic, D. B., Esler, A., Haas-Givler, B., Stackhouse, T., Riley, C., Peacock, G., Sherman, S. L., et al. (2017) · PEDIATRICS · doi:10.1542/peds.2016-1159f · Cited by 268
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Authors: Chiri, G., & Warfield, M. E.
Affiliations: Brandeis University (US)
Corresponding author: Chiri, Giuseppina
ORCID: Chiri, Giuseppina
Warfield, Marji Erickson
Venue: Maternal and Child Health Journal
Publisher: Springer Science and Business Media LLC
Published: 2011-06-11
Volume: 16
Issue: 5
Pages: 1081-1091
ISSN: 1092-7875 (ISSN-L)
1573-6628
DOI: 10.1007/s10995-011-0833-6
OpenAlex: W1964724464
Cited by: 283
References: 54
Citations by year: 2026: 7 · 2025: 3 · 2024: 16 · 2023: 25 · 2022: 16 · 2021: 24 · 2020: 41 · 2019: 28 · 2018: 30 · 2017: 25 · 2016: 23 · 2015: 18 · 2014: 14 · 2013: 8 · 2012: 5
FWCI: 20.37
Type: journal article
Language: en
Open access: closed
Licence: www.springer.com/tdm (tdm)
Locations: Maternal and Child Health Journal (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords: autism spectrum disorder, unmet health needs, health care access, children with special health care needs, mental health services, preventive medicine, specialist care, therapeutic services, managed care, health disparities, National Survey of Children with Special Health Care Needs
MeSH terms: Adolescent, Child, Child Development Disorders, Pervasive, Child Health Services, Child, Preschool, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Insurance, Health, Male, Parents, Socioeconomic Factors, United States, Logistic Models, Insurance Coverage, Health Care Surveys, Children with Disabilities, Disabled Children, Needs Assessment, Healthcare Disparities

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Unmet Need and Problems Accessing Core Health Care Services for Children with Autism Spectrum Disorder

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