The DOI matches its Crossref record; 52 of the 54 references it cites were found in a registry or an index.
Unmet Need and Problems Accessing Core Health Care Services for Children with Autism Spectrum Disorder
Abstract
To investigate the health care experiences of children with autism spectrum disorder, whether they have unmet needs, and if so, what types, and problems they encounter accessing needed care. We address these issues by identifying four core health care services and access problems related to provider and system characteristics. Using data from the 2005-2006 National Survey of Children with Special Health Care Needs (NS-CSHCN) we compared children with autism spectrum disorder with children with special health care needs with other emotional, developmental or behavioral problems (excluding autism spectrum disorder) and with other children with special health care needs. We used weighted logistic regression to examine differences in parent reports of unmet needs for the three different health condition groups. Overall unmet need for each service type among CSHCN ranged from 2.5% for routine preventive care to 15% for mental health services. After controlling for predisposing, enabling and need factors, some differences across health condition groups remained. Families of children with autism spectrum disorder were in fact significantly more at risk for having unmet specialty and therapy care needs. Additionally, families of children with autism spectrum disorder were more likely to report provider lack of skills to treat the child as a barrier in obtaining therapy and mental health services. Disparities in unmet needs for children with autism suggest that organizational features…
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“However, a significant proportion of children with autism also experience co- occurring medical concerns requiring access to healthcare services unrelated to their diagnosis (Chiri & Warfield, 2012; Karpur et al., 2019; Kohane et al., 2012).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Chiri & Warfield, 2012
In the citing paper
“suggests that HCPs may not recognise the need to increase their knowledge and skills for working with children with autism.”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Chiri & Warfield, 2012
Citations
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“Understanding the nature and extent of health disparities is the first step toward the creation of policies aimed at narrowing those disparities [ 25 ].”
Background
Research works printed but not linked: 2
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Vohra, R., Madhavan, S., Sambamoorthi, U., & Peter, C. C. S. (2013) · Autism · doi:10.1177/1362361313512902 · Cited by 378
Autism spectrum disorder in fragile X syndrome: cooccurring conditions and current treatment
Kaufmann, W. E., Kidd, S. A., Andrews, H. F., Budimirovic, D. B., Esler, A., Haas-Givler, B., Stackhouse, T., Riley, C., Peacock, G., Sherman, S. L., et al. (2017) · PEDIATRICS · doi:10.1542/peds.2016-1159f · Cited by 268
Adams, D., & Young, K. (2021) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-020-00226-7 · Cited by 179
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Service Needs Across the Lifespan for Individuals with Autism
Turcotte, P., Mathew, M., Shea, L. L., Brusilovskiy, E., & Nonnemacher, S. L. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2787-4 · Cited by 167
Metadata
- Authors
- Chiri, G., & Warfield, M. E.
- Affiliations
- Brandeis University (US)
- Corresponding author
- Chiri, Giuseppina
- Venue
- Maternal and Child Health Journal
- Published
- 2011-06-11
- Volume
- 16
- Issue
- 5
- Pages
- 1081-1091
- ISSN
- 1092-7875 (ISSN-L)
- 1573-6628
- OpenAlex
- W1964724464
- Cited by
- 283
- References
- 54
- Citations by year
- 2026: 7 · 2025: 3 · 2024: 16 · 2023: 25 · 2022: 16 · 2021: 24 · 2020: 41 · 2019: 28 · 2018: 30 · 2017: 25 · 2016: 23 · 2015: 18 · 2014: 14 · 2013: 8 · 2012: 5
- FWCI
- 20.37
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Maternal and Child Health Journal (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- autism spectrum disorder, unmet health needs, health care access, children with special health care needs, mental health services, preventive medicine, specialist care, therapeutic services, managed care, health disparities, National Survey of Children with Special Health Care Needs
- MeSH terms
- Adolescent, Child, Child Development Disorders, Pervasive, Child Health Services, Child, Preschool, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Insurance, Health, Male, Parents, Socioeconomic Factors, United States, Logistic Models, Insurance Coverage, Health Care Surveys, Children with Disabilities, Disabled Children, Needs Assessment, Healthcare Disparities
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