The DOI matches its Crossref record; 53 of the 53 references it cites were found in a registry or an index.
Age at autism spectrum disorder (ASD) diagnosis by race, ethnicity, and primary household language among children with special health care needs, United States, 2009–2010.
Open accessAbstract
We examined prevalence of diagnosed autism spectrum disorder (ASD) and age at diagnosis according to child's race/ethnicity and primary household language. From the 2009-2010 National Survey of Children with Special Health Care Needs, we identified 2729 3-17-year-old US children whose parent reported a current ASD diagnosis. We compared ASD prevalence, mean diagnosis age, and percentage with later diagnoses (≥5 years) across racial/ethnic/primary household language groups: non-Hispanic-white, any language (NHW); non-Hispanic-black, any language (NHB); Hispanic-any-race, English (Hispanic-English); and Hispanic-any-race, other language (Hispanic-Other). We assessed findings by parent-reported ASD severity level and adjusted for family sociodemographics. ASD prevalence estimates were 15.3 (NHW), 10.4 (NHB), 14.1 (Hispanic-English), and 5.2 (Hispanic-Other) per 1000 children. Mean diagnosis age was comparable across racial/ethnic/language groups for 3-4-year-olds. For 5-17-year-olds, diagnosis age varied by race/ethnicity/language and also by ASD severity. In this group, NHW children with mild/moderate ASD had a significantly higher proportion (50.8 %) of later diagnoses than NHB (33.5 %) or Hispanic-Other children (18.0 %). However, NHW children with severe ASD had a comparable or lower (albeit non-significant) proportion (16.4 %) of later diagnoses than NHB (37.8 %), Hispanic-English (30.8 %), and Hispanic-Other children (12.0 %). While NHW children have comparable ASD prevalence and diagnosis age distributions as Hispanic-English children, they have both higher prevalence and proportion of later diagnoses than NHB and Hispanic-Other children. The diagnosis age findings were limited to mild/moderate cases only. Thus, the prevalence disparity might be primarily driven by under-representation (potentially under-identification) of older children with mild/moderate ASD in the two minority groups.
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“For the Hispanic population, studies have identified lack of awareness of ASD, stigma associated with disability, lack of access to health care services due to noncitizenship or low income, and language barriers as factors that might reduce the identification of ASD among Hispanic children (31–35).”
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“In contrast, estimated ASD prevalence was similar for non-Hispanic white children compared with Hispanic children living in households where the primary language was English (14.3 per 1,000) (32).”
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Boyle, C. A., Boulet, S., Schieve, L. A., Cohen, R. A., Blumberg, S. J., Yeargin-Allsopp, M., Visser, S., & Kogan, M. D. (2011) · Pediatrics · doi:10.1542/peds.2010-2989 · Cited by 1,732
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Christensen, D. L., Baio, J., Braun, K. V. N., Bilder, D., Charles, J., Constantino, J. N., Daniels, J., Durkin, M. S., Fitzgerald, R. T., Kurzius-Spencer, M., et al. (2016) · MMWR. Surveillance Summaries · doi:10.15585/mmwr.ss6503a1 · Cited by 1,964
Christensen, D. L., Braun, K. V. N., Baio, J., Bilder, D., Charles, J., Constantino, J. N., Daniels, J., Durkin, M. S., Fitzgerald, R. T., Kurzius-Spencer, M., et al. (2018) · MMWR. Surveillance Summaries · doi:10.15585/mmwr.ss6513a1 · Cited by 587
RetractedAge at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019
Hof, M. V. ’., Tisseur, C., van Berckelear-Onnes, I., van Nieuwenhuyzen, A. D. Y., Daniels, A. M., Deen, M. L., Hoek, H. W., & Ester, W. A. (2020) · Autism · doi:10.1177/1362361320971107 · Cited by 592
Stress and Parents of Children with Autism: A Review of Literature
Bonis, S. (2016) · Issues in Mental Health Nursing · doi:10.3109/01612840.2015.1116030 · Cited by 404
Genetic Etiologies, Diagnosis, and Treatment of Tuberous Sclerosis Complex
Salussolia, C. L., Klonowska, K., Kwiatkowski, D. J., & Sahin, M. (2019) · Annual Review of Genomics and Human Genetics · doi:10.1146/annurev-genom-083118-015354 · Cited by 163
Metadata
- Authors
- Jo, H., Schieve, L. A., Rice, C. E., Yeargin-Allsopp, M., Tian, L. H., Blumberg, S. J., Kogan, M. D., & Boyle, C. A.
- Affiliations
- Centers for Disease Control and Prevention (US)
- Health Resources and Services Administration (US)
- Corresponding author
- Jo, Heejoo
- Venue
- Maternal and Child Health Journal
- Published
- 2015-02-21
- Volume
- 19
- Issue
- 8
- Pages
- 1687-1697
- ISSN
- 1092-7875 (ISSN-L)
- 1573-6628
- PMC
- PMC4500845
- OpenAlex
- W2118526446
- Cited by
- 116
- References
- 53
- Citations by year
- 2026: 1 · 2025: 8 · 2024: 7 · 2023: 11 · 2022: 15 · 2021: 19 · 2020: 18 · 2019: 10 · 2018: 6 · 2017: 10 · 2016: 8 · 2015: 2
- FWCI
- 5.22
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Maternal and Child Health Journal (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health (CC999999)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- autism spectrum disorder, age at diagnosis, racial and ethnic disparities, Hispanic children, non-Hispanic Black children, autism prevalence, ASD severity, underidentification, children with special health care needs
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Black or African American, Child, Child, Preschool, Ethnicity, Family Characteristics, Female, Health Surveys, Hispanic or Latino, Humans, Language, Male, Population Surveillance, Severity of Illness Index, Socioeconomic Factors, United States, Prevalence, Black People, White People, Racial Groups
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