The DOI matches its Crossref record; 99 of the 102 references it cites were found in a registry or an index.
Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes
Open accessAbstract
Purpose Our primary objective was to identify cognitive and behavioural profiles that affect adjustment, in order to make relevant recommendations about support and assistance for parents of autistic children.Method One hundred and sixty French parents completed a battery of questionnaires and self-report measures developed or adapted to assess (1) the child and family situations; (2) perceived stress; (3) perceived social support; (4) perceived control; (5) coping strategies; and (6) quality of life.Results The psychometric properties of the instruments we used proved to be adequate. Our results support the pre-existing data and our findings may prove to be of interest to clinicians. Our primary finding was that emotion-focused coping strategies seem to be less effective. Parents who employed emotion-focused strategies were more stressed and more disturbed in most parts of their life. They also experienced more guilt and reported more false beliefs about PDD.Conclusions Our data underscore the need for psychoeducation programmes for parents, focused on handling stress and emotions, modifying false beliefs and solving the daily problems that arise from PDD. We propose a 5-axis intervention model for parents of children with PDD, based on cognitive-behavioural therapies and on a stress management programme.
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“As reported by Cappe et al. (2011), problem-focused coping strategy exhibited positive relations with quality of life of parents of children with ASD, while emotion-oriented coping strategy demonstrated negative correlations.”
From Self-compassion, ego-resiliency, coping with stress and the quality of life of parents of children with autism spectrum disorder (2021) · cites this paper as Cappe et al. (2011)
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Deficit, difference, or both? Autism and neurodiversity.
Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2013) · Developmental Psychology · doi:10.1037/a0028353 · Cited by 1,263
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Clinical impact of early diagnosis of autism on the prognosis and parent-child relationships
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Coping strategies of parents of children with autism spectrum disorder: a systematic review
Vernhet, C., Dellapiazza, F., Blanc, N., Cousson-Gélie, F., Miot, S., Roeyers, H., & Baghdadli, A. (2019) · European Child & Adolescent Psychiatry · doi:10.1007/s00787-018-1183-3 · Cited by 175
Coping in parents and caregivers of children with autism spectrum disorders (ASD): a review
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Metadata
- Authors
- Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L.
- Affiliations
- Laboratoire Adaptations Travail-Individu (FR)
- Université Paris Descartes (FR)
- Venue
- Quality of Life Research
- Published
- 2011-02-12
- Volume
- 20
- Issue
- 8
- Pages
- 1279-1294
- ISSN
- 0962-9343 (ISSN-L)
- 1573-2649
- OpenAlex
- W2034287427
- Cited by
- 176
- References
- 102
- Citations by year
- 2026: 9 · 2025: 9 · 2024: 13 · 2023: 16 · 2022: 10 · 2021: 14 · 2020: 15 · 2019: 23 · 2018: 8 · 2017: 12 · 2016: 7 · 2015: 11 · 2014: 14 · 2013: 7 · 2012: 8
- FWCI
- 9.99
- Type
- journal article
- Language
- en
- Open access
- green
- hal.science
- Licence
- cc-by-nc
- www.springer.com/tdm (tdm)
- Locations
- Quality of Life Research (publishedVersion)
- PubMed (publishedVersion)
- HAL (submittedVersion, cc-by-nc)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- autism spectrum disorder, parents of autistic children, parental adjustment, quality of life, perceived stress, perceived social support, perceived control, coping strategies, emotion-focused coping, guilt, stress management, cognitive behavioral therapy, intervention model
- MeSH terms
- Adaptation, Psychological, Adolescent, Adult, Aged, Child, Child Development Disorders, Pervasive, Child, Preschool, Cognition, Female, France, Guilt, Humans, Internal-External Control, Male, Middle Aged, Parent-Child Relations, Parents, Quality of Life, Surveys and Questionnaires, Regression Analysis, Social Support, Stress, Psychological, Young Adult
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