Cited by 667Health Systems, Economic Evaluations, Quality of LifeEconomic and Environmental ValuationHealth Education and Validation

The DOI matches its Crossref record; 41 of the 43 references it cites were found in a registry or an index.

Development of a self-report measure of capability wellbeing for adults: the ICECAP-A

Open access

Al-Janabi, Hareth, N Flynn, Terry, Coast, Joanna·2012·Quality of Life Research

DOI 10.1007/s11136-011-9927-2PMC PMC3254872

Open this paper in CoChat — free account Open PDF

Abstract

PURPOSE: The benefits of health and social care are not confined to patient health alone and therefore broader measures of wellbeing may be useful for economic evaluation. This paper reports the development of a simple measure of capability wellbeing for adults (ICECAP-A). METHODS: In-depth, informant-led, interviews to identify the attributes of capability wellbeing were conducted with 36 adults in the UK. Eighteen semi-structured, repeat interviews were carried out to develop a capability-based descriptive system for the measure. Informants were purposively selected to ensure variation in socio-economic status, age, sex, ethnicity and health. Data analysis was carried out inductively and iteratively alongside interviews, and findings were used to shape the questions in later interviews. RESULTS: Five over-arching attributes of capability wellbeing were identified for the measure: "stability", "attachment", "achievement", "autonomy" and "enjoyment". One item, with four response categories, was developed for each attribute for the ICECAP-A descriptive system. CONCLUSIONS: The ICECAP-A capability measure represents a departure from traditional health economics outcome measures, by treating health status as an influence over broader attributes of capability wellbeing. Further work is required to value and validate the attributes and test the sensitivity of the ICECAP-A to healthcare interventions.

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

Integrity signals

Registry

Crossref · 10.1007/s11136-011-9927-2

Cites

41 of 41 references verified0 citation errors · 0 not checkable

Statistics

Fig. 1 Iterative interview processCC BY-NC · PubMed Central

Fig. 2 Establishing a lay term for ‘stability’ for the measureCC BY-NC · PubMed Central

Fig. 3 Descriptive system for the ICECAP-A measure of capability wellbeing for adultsCC BY-NC · PubMed Central

Claims the paper makes

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Self-check

Percentages, sums and reported differences re-computed from the paper’s own numbers.

The self-check needs the paper’s full text.

Happiness is everything, or is it? Explorations on the meaning of psychological well-being.
Ryff, C. D. (1989) · Journal of Personality and Social Psychology · doi:10.1037/0022-3514.57.6.1069 · Cited by 14,847
Subjective well-being: Three decades of progress.
Diener, E., Suh, E. M., Lucas, R. E., & Smith, H. L. (1999) · Psychological Bulletin · doi:10.1037/0033-2909.125.2.276 · Cited by 12,910
Women and Human Development: The Capabilities Approach
Nussbaum, M. C. (2000) · Cambridge University Press · doi:10.1017/cbo9780511841286 · Cited by 6,103
The Constant Comparative Method of Qualitative Analysis
Glaser, B. G. (1965) · Social Problems · doi:10.2307/798843 · Cited by 4,937
Untitled work
(1997) · doi:10.1097/00005650-199711000-00002 · Cited by 4,544
The Quality of Life
Seabright, P. (1993) · Oxford University Press eBooks · doi:10.1093/0198287976.001.0001 · Cited by 4,253
Commodities and Capabilities.
Sugden, R., & Sen, A. (1986) · The Economic Journal · doi:10.2307/2232999 · Cited by 4,081
Capability and Well‐Being
Sen, A. (1993) · Oxford University Press eBooks · doi:10.1093/0198287976.003.0003 · Cited by 3,887
Women and human development: the capabilities approach
(2000) · Choice Reviews Online · doi:10.5860/choice.38-0369 · Cited by 3,718
Commodities and Capabilities
Usher, D., & Sen, A. (1987) · Canadian Journal of Economics/Revue canadienne d économique · doi:10.2307/135247 · Cited by 3,280

Show all 43 references

Sorted by citations

Items 201–300 of 667

Positive Memory Training for the Treatment of Depression in Schizophrenia: A Randomised Controlled Trial
Steel, C., Korrelboom, K., Baksh, M. F., Kingdon, D., Simon, J., Wykes, T., Phiri, P., & van der Gaag, M. (2018) · Behaviour Research and Therapy · doi:10.1016/j.brat.2020.103734 · Cited by 17
A prospective randomised controlled mixed-methods pilot study of home monitoring in adults with cystic fibrosis
Nash, E. F., Choyce, J., Carrolan, V., Justice, E., Shaw, K. L., Sitch, A. J., Mistry, H., & Whitehouse, J. L. (2022) · Therapeutic Advances in Respiratory Disease · doi:10.1177/17534666211070133 · Cited by 19
Web-based computer-tailoring for practice nurses aimed to improve smoking cessation guideline adherence: A study protocol for a randomized controlled effectiveness trial
de Ruijter, D., Smit, E. S., de Vries, H., & Hoving, C. (2016) · Contemporary Clinical Trials · doi:10.1016/j.cct.2016.04.007 · Cited by 18
We Propose a Novel Measure for Social Welfare and Public Health: Capability-Adjusted Life-Years, CALYs
Månsdotter, A., Ekman, B., Feldman, I., Hagberg, L., Hurtig, A., & Lindholm, L. H. (2017) · Applied Health Economics and Health Policy · doi:10.1007/s40258-017-0323-0 · Cited by 18
A study protocol of the effectiveness of PEGASUS: a multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual
Harcourt, D. M., Paraskeva, N., White, P., Powell, J. E., & Clarke, A. M. (2017) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-017-0543-0 · Cited by 18
Specialist nursing support for unpaid carers of people with dementia: a mixed-methods feasibility study
Gridley, K., Aspinal, F., Parker, G. M., Weatherly, H. L. A., Faria, R., Longo, F., & van den Berg, B. (2019) · Health Services and Delivery Research · doi:10.3310/hsdr07120 · Cited by 18
Conceptualising ‘Benefits Beyond Health’ in the Context of the Quality-Adjusted Life-Year: A Critical Interpretive Synthesis
Engel, L., Bryan, S., & Whitehurst, D. G. T. (2021) · PharmacoEconomics · doi:10.1007/s40273-021-01074-x · Cited by 18
Effectiveness of laparoscopic removal of isolated superficial peritoneal endometriosis for the management of chronic pelvic pain in women (ESPriT2): protocol for a multi-centre randomised controlled trial
Mackenzie, S. C., Stephen, J., Williams, L. J., DANIELS, J. P., Norrie, J. D., Becker, C. M., Byrne, D. L., Cheong, Y. C., Clark, T. J., Cooper, K. G., et al. (2023) · Trials · doi:10.1186/s13063-023-07386-x · Cited by 17
How Well Do the Generic Multi-attribute Utility Instruments Incorporate Patient and Public Views Into Their Descriptive Systems?
Stevens, K. J. (2015) · Patient · doi:10.1007/s40271-015-0119-y · Cited by 17
Supporting physical activity engagement in people with Huntington’s disease (ENGAGE-HD): study protocol for a randomized controlled feasibility trial
Busse, M. E., Quinn, L., Dawes, H., Jones, C., Kelson, M. J., Poile, V., Trubey, R., Townson, J. K., Edwards, R. T., Rosser, A., et al. (2014) · Trials · doi:10.1186/1745-6215-15-487 · Cited by 19
Do capability and functioning differ? A study of U.K. survey responses
Al‐Janabi, H. (2017) · Health Economics · doi:10.1002/hec.3586 · Cited by 17
Self-citation
A validation study of the ICECAP-O in informal carers of people with dementia from eight European Countries
Perry‐Duxbury, M., van Exel, J. N. A., Brouwer, W. B. F., Sköldunger, A., Gonçalves‐Pereira, M., Irving, K., Meyer, G., Selbæk, G., Woods, B. T., Zanetti, O. O., et al. (2019) · Quality of Life Research · doi:10.1007/s11136-019-02317-3 · Cited by 17
Response process validity of three patient reported outcome measures for people requiring kidney care: a think-aloud study using the EQ-5D-5L, ICECAP-A and ICECAP-O
Mitchell, P. M., Caskey, F. J., Scott, J., Sanghera, S., & Coast, J. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-034569 · Cited by 17
Self-citation
Self-management toolkit and delivery strategy for end-of-life pain: the mixed-methods feasibility study
Bennett, M., Mulvey, M. R., Campling, N. C., Latter, S. M., Richardson, A., Bekker, H., Blenkinsopp, A., Carder, P., Closs, J., Farrin, A. J., et al. (2017) · Health Technology Assessment · doi:10.3310/hta21760 · Cited by 17
Validation of an automated scoring program for a digital complex figure copy task within healthy aging and stroke.
Webb, S. S., Moore, M. J., Yamshchikova, A., Kozik, V., Duta, M. D., Voiculescu, I. D., & Demeyere, N. (2021) · Neuropsychology · doi:10.1037/neu0000748 · Cited by 16
A multi-centred sequential trial comparing PEGASUS, an intervention to promote shared decision making about breast reconstruction with usual care
Paraskeva, N., Tollow, P., Clarke, A. M., White, P., Powell, J. E., Cox, D., & Harcourt, D. M. (2021) · Journal of Plastic Reconstructive & Aesthetic Surgery · doi:10.1016/j.bjps.2021.11.033 · Cited by 16
Simplifying the Understanding and Measurement of Mental Disorders Thru a Comprehensive Framework of Psychosocial Health
Husain, W., Ijaz, F., Husain, M. A., Zulfiqar, M., & Khalique, J. (2024) · OBM Integrative and Complementary Medicine · doi:10.21926/obm.icm.2401011 · Cited by 17
An exploratory randomised trial investigating feasibility, potential impact and cost effectiveness of link workers for people living with multimorbidity attending general practices in deprived urban communities
Kiely, B. T., Hobbins, A. P., Boland, F., Clyne, B., Galvin, E., Byers, V., Loomba, S., O’Donnell, P., Connolly, D., Shea, E., et al. (2024) · BMC Family Practice · doi:10.1186/s12875-024-02482-6 · Cited by 16
De Nederlandse vertaling en indruksvalidatie van de ICECAP-A: meten van kwaliteit van leven volgens de capability-benadering
van Hoof, M., Jeuring, S. F. G., Jonkers, D. M. A. E., Masclee, A., Pierik, M. J., Stokroos, R. J., & Joore, M. A. (2016) · TSG - Tijdschrift voor gezondheidswetenschappen · doi:10.1007/s12508-016-0109-z · Cited by 16
Cost-Effectiveness of Pain Management Strategies in Advanced Cancer
Meads, D. M., O'Dwyer, J. L., Hulme, C. T., López, R. R., & Bennett, M. (2019) · International Journal of Technology Assessment in Health Care · doi:10.1017/s0266462319000114 · Cited by 16
Study protocol for ‘The Project About Loneliness and Social networks (PALS)’: a pragmatic, randomised trial comparing a facilitated social network intervention (Genie) with a wait-list control for lonely and socially isolated people
Band, R. J., Ewings, S. M., Cheetham‐Blake, T. J., Ellis, J., Breheny, K., Vassilev, I., Portillo, M. C., Yardley, L., Blickem, C., Kandiyali, R., et al. (2019) · BMJ Open · doi:10.1136/bmjopen-2018-028718 · Cited by 19
A randomized controlled trial of an Internet-based intervention for eating disorders and the added value of expert-patient support: study protocol
Rohrbach, P. J., Dingemans, A. E., Spinhoven, P., Marle, M. E. V. D. A., van Ginkel, J. R., Fokkema, M., Moessner, M., Bauer, S., & van Furth, E. F. (2019) · Trials · doi:10.1186/s13063-019-3574-2 · Cited by 17
Predicting health-related quality of life (EQ-5D-5 L) and capability wellbeing (ICECAP-A) in the context of opiate dependence using routine clinical outcome measures: CORE-OM, LDQ and TOP
Peak, J., Goranitis, I., Day, E., Copello, A. G., Freemantle, N., & Frew, E. J. (2018) · Health and Quality of Life Outcomes · doi:10.1186/s12955-018-0926-7 · Cited by 16
Text messaging to help women with overweight or obesity lose weight after childbirth: the intervention adaptation and SMS feasibility RCT
McGirr, C., Rooney, C., Gallagher, D., Dombrowski, S. U., Anderson, A. S., Cardwell, C. R., Free, C., Hoddinott, P., Holmes, V. A., McIntosh, E., et al. (2020) · Public Health Research · doi:10.3310/phr08040 · Cited by 15
Adaptation, Acceptance and Adaptive Preferences in Health and Capability Well-Being Measurement Amongst Those Approaching End of Life
Coast, J., Bailey, C., Orlando, R., Armour, K., Perry, R., Jones, L., & Kinghorn, P. (2018) · Patient · doi:10.1007/s40271-018-0310-z · Cited by 15
Self-citation
Reshaping the path of vascular cognitive impairment with resistance training: a study protocol for a randomized controlled trial
Liu-Ambrose, T. Y. L., Dao, E. A., Crockett, R. A., Barha, C. K., Falck, R. S., Best, J. R., Hsiung, G. R., Field, T. S., Madden, K. M., Alkeridy, W. A., et al. (2021) · Trials · doi:10.1186/s13063-021-05156-1 · Cited by 17
Measurement properties of the ICECAP-A capability well-being instrument among dermatological patients
Rencz, F., Mitev, A. Z., Jenei, B., & Brodszky, V. (2021) · Quality of Life Research · doi:10.1007/s11136-021-02967-2 · Cited by 15
Development and Content Validation of the 10-item Well-being Instrument (WiX) for use in Economic Evaluation Studies
Voormolen, D. C., Bom, J. A. M., de Bekker-Grob, E. W., Brouwer, W. B. F., & van Exel, J. N. A. (2024) · Applied Research in Quality of Life · doi:10.1007/s11482-023-10241-5 · Cited by 15
A framework for understanding quality of life in individuals without capacity
Round, J. A., Sampson, E. L., & Jones, L. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0500-z · Cited by 15
Can a mindfulness-informed intervention reduce aggressive behaviour in people with intellectual disabilities? Protocol for a feasibility study
Griffith, G. M., Jones, R. S. P., Hastings, R. P., Crane, R. S., Roberts, J. L., Williams, J. P., Bryning, L., Hoare, Z., & Edwards, R. T. (2016) · Pilot and Feasibility Studies · doi:10.1186/s40814-016-0098-3 · Cited by 16
Assessing the capability to experience a 'good death': A qualitative study to directly elicit expert views on a new supportive care measure grounded in Sen's capability approach
Kinghorn, P., & Coast, J. (2018) · PLoS ONE · doi:10.1371/journal.pone.0193181 · Cited by 15
Self-citation
Out-of-pocket payments, vertical equity and unmet medical needs in France: A national multicenter prospective study on lymphedema
Mercier, G., Pastor, J., Clément, V., Rodts, U., Moffatt, C. J., & Quéré, I. (2019) · PLoS ONE · doi:10.1371/journal.pone.0216386 · Cited by 15
How Work Integration Social Enterprises Help to Realize Capability: A Comparison of Three Australian Settings
Farmer, J., Cotta, T. D., Kilpatrick, S., Barraket, J., Roy, M. J., & Muñoz, S. (2019) · Journal of Social Entrepreneurship · doi:10.1080/19420676.2019.1671481 · Cited by 20
A randomised controlled feasibility study of interpersonal art psychotherapy for the treatment of aggression in people with intellectual disabilities in secure care
Hackett, S., Zubala, A., Doorn, K. A., Chadwick, T. J., Harrison, T. L., Bourne, J., Freeston, M. H., Jahoda, A. J., Taylor, J. L., Ariti, C. A., et al. (2020) · Pilot and Feasibility Studies · doi:10.1186/s40814-020-00703-0 · Cited by 15
Cost‐effectiveness of three internet‐based interventions for eating disorders: A randomized controlled trial
Rohrbach, P. J., Dingemans, A. E., van Furth, E. F., Spinhoven, P., van Ginkel, J. R., Bauer, S., & Marle, M. E. V. D. A. (2022) · International Journal of Eating Disorders · doi:10.1002/eat.23763 · Cited by 14
Alternative approaches for assessing the socioeconomic benefits of medical devices: a systematic review
Wilkinson, G., & Drummond, M. (2015) · Expert Review of Medical Devices · doi:10.1586/17434440.2015.1080118 · Cited by 15
The p‐ EVES study design and methodology: a randomised controlled trial to compare portable electronic vision enhancement systems (p‐ EVES ) to optical magnifiers for near vision activities in visual impairment
Taylor, J. J., Bambrick, R., Dutton, M., Harper, R. A., Ryan, B., Edwards, R. T., Waterman, H. A., Whitaker, C. J., & Dickinson, C. M. (2014) · Ophthalmic and Physiological Optics · doi:10.1111/opo.12149 · Cited by 15
Supporting Weight Management during COVID-19 (SWiM-C): twelve-month follow-up of a randomised controlled trial of a web-based, ACT-based, guided self-help intervention
Mueller, J., Richards, R., Jones, R. A., Whittle, F., Woolston, J., Stubbings, M., Sharp, S. J., Griffin, S. J., Bostock, J., Hughes, C. A., et al. (2023) · International Journal of Obesity · doi:10.1038/s41366-022-01232-x · Cited by 13
Feasibility randomised controlled trial of online group Acceptance and Commitment Therapy for Functional Cognitive Disorder (ACT4FCD)
Poole, N., Cope, S., Vanzan, S., Duffus, A., Mantovani, N., Smith, J., Barrett, B. M., Tokley, M., Scicluna, M., Beardmore, S., et al. (2023) · BMJ Open · doi:10.1136/bmjopen-2023-072366 · Cited by 14
Unleashing creativity in people with Parkinson’s disease: a pilot study of a co-designed creative arts therapy
Spee, B. T. M., de Vries, N. M., Zeggio, S., Plijnaer, M., Koksma, J., Duits, A., Stap, T. B., Pasman, G., Haeyen, S., Darweesh, S. K. L., et al. (2025) · Journal of Neurology · doi:10.1007/s00415-024-12878-0 · Cited by 16
Psychometric evaluation of the Mental Health Quality of Life (MHQoL) instrument in seven European countries
Enzing, J. J., van Krugten, F. C. W., Sabat, I., Neumann‐Böhme, S., Boer, B., Knies, S., Brouwer, W. B. F., Barros, P. P., van Exel, J. N. A., Schreyögg, J., et al. (2022) · Health and Quality of Life Outcomes · doi:10.1186/s12955-022-02041-6 · Cited by 14
Assessing the construct validity and responsiveness of Preference-Based Measures (PBMs) in cataract surgery patients
Breheny, K., Hollingworth, W., Kandiyali, R., Dixon, P., Loose, A., Craggs, P., Grzeda, M. T., & Sparrow, J. M. (2020) · Quality of Life Research · doi:10.1007/s11136-020-02443-3 · Cited by 14
Effectiveness and cost-effectiveness of the Assessment of Burden of Chronic Conditions (ABCC) tool in patients with COPD, asthma, diabetes mellitus type 2 and heart failure: protocol for a pragmatic clustered quasi-experimental study
Boudewijns, E. A., Claessens, D., Joore, M. A., Keijsers, L. C. E. M., van Schayck, O. C. P., Winkens, B., & Slok, A. H. M. (2020) · BMJ Open · doi:10.1136/bmjopen-2020-037693 · Cited by 14
Reshaping the path of mild cognitive impairment by refining exercise prescription: a study protocol of a randomized controlled trial to understand the “what,” “for whom,” and “how” of exercise to promote cognitive function
Barha, C. K., Falck, R. S., Best, J. R., Nagamatsu, L. S., Hsiung, G. R., Sheel, A. W., Hsu, C. L., Kramer, A. F., Voss, M. W., Erickson, K. I., et al. (2022) · Trials · doi:10.1186/s13063-022-06699-7 · Cited by 16
Pilot study of a social network intervention for heroin users in opiate substitution treatment: study protocol for a randomized controlled trial
Day, E., Copello, A. G., Seddon, J. L., Christie, M. M., Bamber, D., Powell, C., George, S., Ball, A., Frew, E. J., & Freemantle, N. (2013) · Trials · doi:10.1186/1745-6215-14-264 · Cited by 14
Health, Disability and the Capability Approach: An Introduction
Ruger, J. P., & Mitra, S. (2015) · Journal of Human Development and Capabilities · doi:10.1080/19452829.2015.1118190 · Cited by 14
Development and validation of a new quality of life scale for patients receiving home‐based medical care: The Observational Study of Nagoya Elderly with Home Medical Care
Kamitani, H., Umegaki, H., Okamoto, K., Kanda, S., Asai, A., Maeda, K., Nomura, H., Shimojima, T., Suzuki, Y., Ohshima, H., et al. (2016) · Geriatrics and gerontology international/Geriatrics & gerontology international · doi:10.1111/ggi.12735 · Cited by 14
The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study
Cejalvo, E., Vilar, M. M., Gisbert-Pérez, J., & Badenes‐Ribera, L. (2025) · Journal of Clinical Medicine · doi:10.3390/jcm14061916 · Cited by 16
Move Together Buckinghamshire: protocol for a pragmatic mixed-methods evaluation of a community physical activity programme for older adults with long-term conditions
Simpson, S. A., Evans, R. A., Gilbert, H. R., Branson, A., Barber, S. R., McIntosh, E., Ahmed, Z., Dean, S. G., Doherty, P., Gardiner, N., et al. (2024) · BMJ Open · doi:10.1136/bmjopen-2023-083255 · Cited by 13
The IBER study: study protocol for a feasibility randomised controlled trial of Imagery Based Emotion Regulation for the treatment of anxiety in bipolar disorder
Steel, C., Wright, K. A., Goodwin, G. M., Simon, J., Morant, N. J., Taylor, R. S., Brown, M. C., Jennings, S., Hales, S. A., & Holmes, E. A. (2020) · Pilot and Feasibility Studies · doi:10.1186/s40814-020-00628-8 · Cited by 13
Screening to Identify Postoperative Pain and Cross‐Sectional Associations Between Factors Identified in This Process With Pain and Function, Three Months After Total Knee Replacement
Wylde, V., Sanderson, E., Peters, T. J., Bertram, W., Howells, N., Bruce, J., Eccleston, C., & Gooberman‐Hill, R. (2020) · Arthritis Care & Research · doi:10.1002/acr.24516 · Cited by 13
Cost-effectiveness of a model consultation to support self-management in patients with osteoarthritis
Oppong, R., Jowett, S. M., Lewis, M., Clarkson, K., Paskins, Z., Croft, P. R., Edwards, J., Healey, E. L., Jordan, K. P., Morden, A., et al. (2018) · Lara D. Veeken · doi:10.1093/rheumatology/key037 · Cited by 13
An intervention to support stroke survivors and their carers in the longer term (LoTS2Care): study protocol for a cluster randomised controlled feasibility trial
on behalf of the LoTS2Care Programme Management Group, Förster, A., Hartley, S., Barnard, L., Ozer, S., Hardicre, N., Crocker, T. F., Fletcher, M., Moreau, L. A., Atkinson, R., et al. (2018) · Trials · doi:10.1186/s13063-018-2669-5 · Cited by 13
Improving Primary Care After Stroke (IPCAS) trial: protocol of a randomised controlled trial to evaluate a novel model of care for stroke survivors living in the community
Mullis, R., Aquino, M. R. J., Dawson, S. N., Johnson, V., Jowett, S. M., Kreit, E., & Mant, J. (2019) · BMJ Open · doi:10.1136/bmjopen-2019-030285 · Cited by 13
Distant delivery of a mindfulness-based intervention for people with Parkinson's disease: The study protocol of a randomised pilot trial
Bogosian, A., Hurt, C. S., Vasconcelos e Sa, D., Hindle, J. V., McCracken, L., & Cubi-Molla, P. (2017) · Pilot and Feasibility Studies · doi:10.1186/s40814-016-0117-4 · Cited by 12
Examining how well economic evaluations capture the value of mental health
Lathe, J., Silverwood, R. J., Hughes, A. D., & Patalay, P. (2024) · The Lancet Psychiatry · doi:10.1016/s2215-0366(23)00436-4 · Cited by 12
Variation in the apparent importance of health-related problems with the instrument used to measure patient welfare
Khan, M. A., & Richardson, J. R. J. (2018) · Quality of Life Research · doi:10.1007/s11136-018-1956-7 · Cited by 11
TULIP: a randomised controlled trial of surgical versus non-surgical treatment of lateral compression injuries of the pelvis with complete sacral fractures (LC1) in the non-fragility fracture patient—a feasibility study protocol
Barnfield, S., Ingram, J. C., Halliday, R., Griffin, X. L., Greenwood, R., Kandiyali, R., Thompson, J., Glynn, J., Beasant, L., McArthur, J., et al. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-036588 · Cited by 12
Happy with Your Capabilities? Valuing ICECAP-O and ICECAP-A States Based on Experienced Utility Using Subjective Well-Being Data
Himmler, S., van Exel, J. N. A., & Brouwer, W. B. F. (2020) · Medical Decision Making · doi:10.1177/0272989x20923015 · Cited by 12
Protocol for a national cohort study to explore the long-term clinical and patient-reported outcomes and cost-effectiveness of implant-based and autologous breast reconstruction after mastectomy for breast cancer: the brighter study
Johnson, L., Holcombe, C., O’Donoghue, J. M., Jeevan, R., Browne, J. P., Fairbrother, P., MacKenzie, M., Gulliver‐Clarke, C., White, P., Mohiuddin, S., et al. (2021) · BMJ Open · doi:10.1136/bmjopen-2021-054055 · Cited by 12
Patient-reported outcome measures suitable for quality of life/well-being assessment in multisectoral, multinational and multiperson mental health economic evaluations
Łaszewska, A., Helter, T. M., Nagel, A. C., Perić, N., & Simon, J. (2021) · Evidence-Based Mental Health · doi:10.1136/ebmental-2021-300334 · Cited by 13
A new sexual wellbeing paradigm grounded in capability approach concepts of human flourishing and social justice
Lorimer, K., Greco, G., & Lorgelly, P. K. (2022) · Culture Health & Sexuality · doi:10.1080/13691058.2022.2158236 · Cited by 13
The Broader Opportunity Costs in the Broader Cost-Effectiveness Analysis Framework
Vallejo‐Torres, L. (2023) · Applied Health Economics and Health Policy · doi:10.1007/s40258-023-00801-z · Cited by 12
‘HeART of Stroke (HoS)’, a community-based Arts for Health group intervention to support self-confidence and psychological well-being following a stroke: protocol for a randomised controlled feasibility study
Ellis‐Hill, C., Gracey, F., Thomas, S., Lamont‐Robinson, C., Thomas, P., Marques, E. M. R., Grant, M., Nunn, S., Cant, R., Galvin, K., et al. (2015) · BMJ Open · doi:10.1136/bmjopen-2015-008888 · Cited by 12
A conceptual comparison of well-being measures used in the UK
Peasgood, T., Brazier, J. E., Mukuria, C., & Rowen, D. (2024) · White Rose Research Online (University of Leeds, The University of Sheffield, University of York) · doi:10.15131/shef.data.25118510 · Cited by 13
Delivery of Peer Support Through a Self-Management mHealth Intervention (Healing Circles) in Patients With Cardiovascular Disease: Protocol for a Randomized Controlled Trial
Sakakibara, B. M., Chakrabarti, S., Krahn, A. D., Mackay, M., Sedlak, T., Singer, J., Whitehurst, D. G. T., & Lear, S. A. (2018) · JMIR Research Protocols · doi:10.2196/12322 · Cited by 12
Overcoming Digital Exclusion during the COVID-19 Pandemic: Impact of Mobile Technology for Survivors of Modern Slavery and Human Trafficking – A Mixed Method Study of Survivors and Support Service Provider Views
Malpass, A., Garbers, K., Saunders, L., Horwood, J. P., McLeod, H., Anderson, E., & Farr, M. (2022) · Journal of Human Trafficking · doi:10.1080/23322705.2022.2050991 · Cited by 12
Does the EQ-5D capture the effects of physical and mental health status on life satisfaction among older people? A path analysis approach
Sexton, E., Bennett, K., Fahey, T. P., & Cahir, C. (2016) · Quality of Life Research · doi:10.1007/s11136-016-1459-3 · Cited by 12
EuroQol data for assessment of population health needs and instrument evaluation (EQ-DAPHNIE): a study for enhancing population health assessment
Johnson, J. A., Janssen, M. F., Sayah, F. A., Bailey, H. H., Gandhi, M., Golicki, D., Gutacker, N., Lubetkin, E. I., Mulhern, B. J., Purba, F. D., et al. (2025) · Quality of Life Research · doi:10.1007/s11136-025-03983-2 · Cited by 11
Development and validation of a Context-sensitive Positive Health Questionnaire (CPHQ): A factor analysis and multivariate regression study
Doornenbal, B. M., van Zutphen, T., Beumeler, L. F. E., Vos, R. C., Derks, M., Haisma, H. H., Marle, M. E. V. D. A., & Jong, J. C. K. (2024) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-024-00718-8 · Cited by 11
How to avoid unfair discrimination against disabled patients in healthcare resource allocation
Sinclair, S. (2011) · Journal of Medical Ethics · doi:10.1136/medethics-2011-100093 · Cited by 11
A Multinational Cost-Consequence Analysis of a Bone Conduction Hearing Implant System—A Randomized Trial of a Conventional vs. a Less Invasive Treatment With New Abutment Technology
van Hoof, M., Wigren, S., Blechert, J. I., Molin, M., Andersson, H., Mateijsen, D. J. M., Bom, S. J. H., Calmels, M., van der Rijt, A. J. M., Flynn, M. C., et al. (2020) · Frontiers in Neurology · doi:10.3389/fneur.2020.00106 · Cited by 11
Test–retest reliability of ICECAP-A in the adult Danish population
Holst‐Kristensen, A. W., Fonager, K., & Pedersen, K. M. (2019) · Quality of Life Research · doi:10.1007/s11136-019-02331-5 · Cited by 11
Methodological issues in economic evaluations of disease prevention and health promotion: an overview of systematic and scoping reviews
Seleznova, Y., Alayli, A., Stock, S., & Müller, D. (2021) · BMC Public Health · doi:10.1186/s12889-021-12174-w · Cited by 13
The Children and Young People Quality of Life Study: A protocol for the qualitative development of attributes for capability wellbeing measures for use in health economic evaluation with children and young people
Husbands, S., Mitchell, P. M., Floredin, I., Peters, T. J., Kinghorn, P., Byford, S., Anand, P., Bailey, C., & Coast, J. (2022) · Wellcome Open Research · doi:10.12688/wellcomeopenres.17801.1 · Cited by 11
Self-citation
Protocol for a multicentre randomised controlled parallel-group trial to compare the effectiveness of remotely delivered cognitive-behavioural and graded exercise interventions with usual care alone to lessen the impact of fatigue in inflammatory rheumatic diseases (LIFT)
Martin, K. R., Bachmair, E., Aucott, L. S., Dures, E. K., Emsley, R., Gray, S. R., HEWLETT, S. E., Кумар, В., Lovell, K., Macfarlane, G. J., et al. (2019) · BMJ Open · doi:10.1136/bmjopen-2018-026793 · Cited by 11
Psychometric Evaluation of the Chinese Recovering Quality of Life (ReQoL) Outcome Measure and Assessment of Health-Related Quality of Life During the COVID-19 Pandemic
Xu, R. H., Keetharuth, A. D., Wang, L., Cheung, A. W.-L., & Wong, E. L. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.663035 · Cited by 11
E-HEalth treatment in Long-term Dialysis (E-HELD): study protocol for a multicenter randomized controlled trial evaluating personalized Internet-based cognitive-behavioral therapy in dialysis patients
Tommel, J., Evers, A. W. M., van Hamersvelt, H. W., van Dijk, S., Chavannes, N. H., Wirken, L., Hilbrands, L. B., & van Middendorp, H. (2022) · Trials · doi:10.1186/s13063-022-06392-9 · Cited by 11
Exploring Different Interpretations of the Capability Approach in a Health Care Context: Where Next?
Kinghorn, P. (2015) · Journal of Human Development and Capabilities · doi:10.1080/19452829.2015.1110567 · Cited by 11
Comparing the measurement properties of the ICECAP-A and ICECAP-O instruments in ages 50–70: a cross-sectional study on a representative sample of the Hungarian general population
Baji, P., Farkas, M., Dobos, Á., Zrubka, Z., Kovács, L., Gulàcsi, L., & Péntek, M. (2021) · The European Journal of Health Economics · doi:10.1007/s10198-021-01325-w · Cited by 10
An online intervention for carers to manage behavioral symptoms in motor neuron disease (MiNDToolkit): a randomized parallel multi-center feasibility trial
Mioshi, E., Grant, K., Flanagan, E. C., Heal, S., Copsey, H., Gould, R. L., Hammond, M., Shepstone, L., & Ashford, P. (2024) · Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration · doi:10.1080/21678421.2024.2350658 · Cited by 10
Once Bitten Twice Shy: Thinking Carefully Before Adopting the EQ-5D-5L
Round, J. A. (2018) · PharmacoEconomics · doi:10.1007/s40273-018-0636-3 · Cited by 10
Healthy Parent Carers peer-led group-based health promotion intervention for parent carers of disabled children: protocol for a feasibility study using a parallel group randomised controlled trial design
Bjornstad, G. J., Wilkinson, K., Cuffe-Fuller, B., Fitzpatrick, K., Borek, A., Ukoumunne, O. C., Hawton, A., Tarrant, M., Berry, V., Lloyd, J., et al. (2019) · Pilot and Feasibility Studies · doi:10.1186/s40814-019-0517-3 · Cited by 10
Clinical and cost-effectiveness of a diabetes education and behavioural weight management programme versus a diabetes education programme in adults with a recent diagnosis of type 2 diabetes: study protocol for the Glucose Lowering through Weight management (GLoW) randomised controlled trial
Ahern, A. L., Woolston, J., Wells, E. K., Sharp, S. J., Islam, N., Lawlor, E. R., Duschinsky, R., Hill, A. J., Doble, B., Wilson, E., et al. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-035020 · Cited by 10
Study protocol for the Multiple Symptoms Study 3: a pragmatic, randomised controlled trial of a clinic for patients with persistent (medically unexplained) physical symptoms
Mooney, C., White, D. A., Dawson, J., Deary, V., Fryer, K., Greco, M., Horspool, M. J., Neilson, A. R., Rowlands, G., Sanders, T., et al. (2022) · BMJ Open · doi:10.1136/bmjopen-2022-066511 · Cited by 10
The IBER study: a feasibility randomised controlled trial of imagery based emotion regulation for the treatment of anxiety in bipolar disorder
Steel, C., Wright, K. A., Goodwin, G. M., Simon, J., Morant, N. J., Taylor, R. S., Brown, M. C., Jennings, S., Hales, S. A., Regan, J. L., et al. (2023) · International Journal of Bipolar Disorders · doi:10.1186/s40345-023-00305-8 · Cited by 11
Measuring and Valuing Outcomes for Care at the End of Life: The Capability Approach
Coast, J., Bailey, C., Canaway, A., & Kinghorn, P. (2016) · Springer eBooks · doi:10.1007/978-3-319-28267-1_7 · Cited by 10
Self-citation
Sacral neuromodulation versus personalized conservative treatment in patients with idiopathic slow-transit constipation: study protocol of the No.2-trial, a multicenter open-label randomized controlled trial and cost-effectiveness analysis
Heemskerk, S. C. M., Rotteveel, A. H., Benninga, M. A., Baeten, C. I. M., Masclee, A., Melenhorst, J., van Kuijk, S. M. J., Dirksen, C. D., & Breukink, S. O. (2018) · International Journal of Colorectal Disease · doi:10.1007/s00384-018-2978-x · Cited by 10
The relevance of public health research for practice: A 30-year perspective
Diderichsen, F. (2018) · Scandinavian Journal of Public Health · doi:10.1177/1403494818765706 · Cited by 9
Rethinking Strategies for Positive Newborn Screening Result (NBS+) Delivery (ReSPoND): a process evaluation of co-designing interventions to minimise impact on parental emotional well-being and stress
Chudleigh, J. H., Bonham, J. R., Bryon, M., Francis, J., Moody, L., Stephen Morris, A., Simpson, A., Ulph, F., & Southern, K. W. (2019) · Pilot and Feasibility Studies · doi:10.1186/s40814-019-0487-5 · Cited by 13
Evaluating hearing performance with cochlear implants within the same patient using daily randomization and imaging-based fitting - The ELEPHANT study
Lambriks, L., van Hoof, M., Debruyne, J. A., Janssen, A. M. L., Chalupper, J., van der Heijden, K., Hof, J. R., Hellingman, C. A., George, E. L. J., & Devocht, E. M. J. (2020) · Trials · doi:10.1186/s13063-020-04469-x · Cited by 10
Estimating an exchange-rate between care-related and health-related quality of life outcomes for economic evaluation: An application of the wellbeing valuation method.
Dhanji, N., Brouwer, W., Donaldson, C., Wittenberg, E., & Al-Janabi, H. (2021) · Health Economics · doi:10.1002/hec.4411 · Cited by 9
Self-citation
Comparison of capability and health-related quality of life instruments in capturing aspects of mental well-being in people with schizophrenia and depression
Helter, T. M., Coast, J., Łaszewska, A., Stamm, T., & Simon, J. (2022) · BJPsych Open · doi:10.1192/bjo.2022.514 · Cited by 10
Self-citation
Aerobic exercise for vasomotor menopausal symptoms: A cost-utility analysis based on the Active Women trial
Goranitis, I., Bellanca, L., Daley, A., Thomas, A., Stokes-Lampard, H. J., Roalfe, A. K., & Jowett, S. M. (2017) · PLoS ONE · doi:10.1371/journal.pone.0184328 · Cited by 10
Acceptability and feasibility of an acceptance and commitment therapy-based guided self-help intervention for weight loss maintenance in adults who have previously completed a behavioural weight loss programme: the SWiM feasibility study protocol
Ahern, A. L., Richards, R., Jones, R. A. P., Whittle, F., Mueller, J., Woolston, J., Sharp, S. J., Hughes, C. A., Hill, A. J., Duschinsky, R., et al. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-058103 · Cited by 9
The Feasibility and Validity of Preference-Based Quality of Life Measures With Informal Carers: A Think-Aloud Study
McLoughlin, C., Goranitis, I., & Al‐Janabi, H. (2023) · Value in Health · doi:10.1016/j.jval.2023.07.002 · Cited by 9
Self-citation
A Comparative Study of Health and Well-Being Measures in Ireland Using EQ Health and Wellbeing (EQ-HWB) and its Short Version, EQ-5D-5L, and ICEpop Capability Measure for Adults (ICECAP-A)
Kinchin, I., Engel, L., & Rencz, F. (2025) · Value in Health · doi:10.1016/j.jval.2025.04.2160 · Cited by 9
Best-BRA (Is subpectoral or prepectoral implant placement best in immediate breast reconstruction?): a protocol for a pilot randomised controlled trial of subpectoral versus prepectoral immediate implant-based breast reconstruction in women following mastectomy
Roberts, K., Mills, N., Metcalfe, C. D., Lane, J. A., Clement, C., Hollingworth, W., Taylor, J., Holcombe, C., Skillman, J., Fairhurst, K., et al. (2021) · BMJ Open · doi:10.1136/bmjopen-2021-050886 · Cited by 9
Validation of the Musculoskeletal Health Questionnaire in a general population sample: a cross-sectional online survey in Hungary
Hölgyesi, Á., Poór, G., Baji, P., Zrubka, Z., Farkas, M., Dobos, Á., Gulàcsi, L., Kovács, L., & Péntek, M. (2022) · BMC Musculoskeletal Disorders · doi:10.1186/s12891-022-05716-9 · Cited by 9
Can welfare be measured with a preference-satisfaction index?
van der Deijl, W. (2017) · Journal of Economic Methodology · doi:10.1080/1350178x.2017.1413586 · Cited by 9

Authors: Al-Janabi, H., N Flynn, T., & Coast, J.
Affiliations: University of Birmingham (GB)
ORCID: Coast, Joanna
Venue: Quality of Life Research
Publisher: Springer Science and Business Media LLC
Published: 2011-05-20
Volume: 21
Issue: 1
Pages: 167-176
ISSN: 0962-9343 (ISSN-L)
1573-2649
DOI: 10.1007/s11136-011-9927-2
PMC: PMC3254872
OpenAlex: W2011644590
Cited by: 666
References: 43
Citations by year: 2026: 34 · 2025: 75 · 2024: 70 · 2023: 54 · 2022: 76 · 2021: 83 · 2020: 58 · 2019: 46 · 2018: 33 · 2017: 35 · 2016: 32 · 2015: 27 · 2014: 18 · 2013: 13 · 2012: 7
FWCI: 34.76
Type: journal article
Language: en
Open access: hybrid
doi.org
Licence: cc-by-nc
creativecommons.org/licenses/by-nc/2.0 (tdm)
Locations: Quality of Life Research (publishedVersion, cc-by-nc)
PubMed Central (publishedVersion, cc-by-nc)
PubMed (publishedVersion)
University of Birmingham Institutional Research Archive (University of Birmingham) (acceptedVersion)
UniSA Research Outputs Repository (University of South Australia) (acceptedVersion)
Adelaide Research & Scholarship (AR&S) (University of Adelaide) (submittedVersion)
UTS ePRESS (University of Technology Sydney) (submittedVersion)
University of Birmingham Research Portal (University of Birmingham) (submittedVersion)
Funders: London School of Economics and Political Science
Medical Research Council (G0701027)
Topics: Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Economic and Environmental Valuation
Health Sciences › Nursing › Research and Theory › Health Education and Validation
Keywords: ICECAP-A, self-report measure development, capability approach, economic evaluation, stability, attachment, achievement, autonomy, enjoyment, health status
MeSH terms: Adolescent, Adult, Aged, Female, Humans, Interviews as Topic, Male, Middle Aged, Personal Satisfaction, Quality of Life, Young Adult, Self Report

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

Development of a self-report measure of capability wellbeing for adults: the ICECAP-A

Abstract

Overview

Integrity signals

Figures

Verification

Claims the paper makes

Claims other papers make about this one

Self-check

Citations

Cites

Cited by

Related

Metadata

Record

About these checks