The DOI matches its Crossref record; 8 of the 8 references it cites were found in a registry or an index.
Development and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer: Finding My Way-Advanced
Open accessAbstract
Purpose Women living with metastatic breast cancer (MBC) face significant distress and unmet needs, yet few resources have been developed for this population. The current study aimed to develop and evaluate the usability of Finding My Way-Advanced (FMW-A), a web-based self-guided psychosocial program for women with MBC.Methods FMW-A was co-designed through (a) adapting an efficacious online program for people with curatively treated cancer and (b) receiving iterative rounds of input and feedback from a multidisciplinary co-design team including consumers, clinicians, and academics. A think-aloud protocol was then implemented to test the usability of the resulting 6-module prototype, with women living with MBC accessing up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data were analysed thematically.Results Participants (n=8) were, on average, 65.3 years old, mostly partnered (n=5), retired (n=6), post-secondary school educated (n=6), and with non-dependent children (n=7). Feedback fell into 6 themes. Positive feedback about FMW-A summarised the supportive and informative nature of the program, supplemented by comments about broadly relatable content. However, one size clearly did not fit all: within themes, diverging experiences emerged regarding navigability, worksheets, and layout. Participants noted that having/making time for the intervention would be important to program engagement.Conclusions Usability testing indicated participants found content helpful and relatable, and identified significant pragmatic improvements to be made prior to further testing.Implications for cancer survivors The development of FMW-A represents an important step in providing acceptable resources to support women living with MBC.
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This finding aligns with previous research and emphasizes the importance of building flexibility into digital programs targeting cancer survivors, in terms of tailoring and frequency/timing of use, to ensure uptake.
“This finding aligns with previous research [66,72,76,77] and emphasizes the importance of building flexibility into digital programs targeting cancer survivors, not only in terms of tailoring but also in terms of frequency and timing of use, to ensure its uptake by target users.”
From Development and Evaluation of the Usefulness, Usability, and Feasibility of iNNOV Breast Cancer: Mixed Methods Study (2022) · cites this paper as [77]
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Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414 · cited 1×
“Transcripts were thematically analysed following established guidelines [10], using the software program NVivo 12.”
MethodYardley, L., Morrison, L., Bradbury, K., & Muller, I. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4055 · Cited by 1,442 · cited 5×
“FMW-A was iteratively developed using a person-based codesign approach [7], with content initially sourced and adapted from our FMWweb-program, an evidence-based program applying Cognitive Behavioural principles, designed for people with curatively treated cancers [8].”
BackgroundMethodResultInfluentialA Behavior Change Model for Internet Interventions
Ritterband, L. M., Thorndike, F. P., Cox, D. J., Kovatchev, B. P., & Gonder-Frederick, L. A. (2009) · Annals of Behavioral Medicine · doi:10.1007/s12160-009-9133-4 · Cited by 591 · cited 2×
“Website development was guided by Ritterband’s internet interventions behaviour change model [9].”
BackgroundMethodBeatty, L., Kemp, E., Butow, P., Girgis, A., Schofield, P., Turner, J., Hulbert‐Williams, N. J., Levesque, J. V., & Koczwara, B. (2018) · Psycho-Oncology · doi:10.1002/pon.4445 · Cited by 65
Self-citationOnline information and support needs of women with advanced breast cancer: a qualitative analysis
Kemp, E., Koczwara, B., Butow, P. N., Turner, J., Girgis, A., Schofield, P. E., Hulbert-Williams, N., Levesque, J. V., Spence, D., Vatandoust, S., et al. (2018) · Supportive Care in Cancer · doi:10.1007/s00520-018-4206-1 · Cited by 43 · cited 15×
“A diagnosis of metastatic breast cancer (MBC) brings significant adjustment challenges, as women face a future of progressing illness, physical symptoms, functional limitations, and existential concerns about mortality [1].”
BackgroundMethodResultInfluentialSelf-citationBeatty, L., Kemp, E., Coll, J. R., Turner, J., Butow, P. N., Milne, D., Yates, P. M., Lambert, S., Wootten, A. C., Yip, D., et al. (2018) · Supportive Care in Cancer · doi:10.1007/s00520-018-4526-1 · Cited by 41
Self-citationIs it time to address survivorship in advanced breast cancer? A review article
Lascio, S. D., & Pagani, O. (2016) · The Breast · doi:10.1016/j.breast.2016.10.022 · Cited by 35
Internet use and preferences among women living with advanced breast cancer
Kemp, E., Koczwara, B., Turner, J., Girgis, A., Schofield, P. E., Hulbert-Williams, N., Levesque, J. V., Spence, D., Vatandoust, S., Kichenadasse, G., et al. (2019) · The Breast Journal · doi:10.1111/tbj.13203 · Cited by 10
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Kiss, N. K., Jongebloed, H., Baguley, B. J., Marshall, S., WHITE, V. M., Livingston, P. M., Bell, K., Young, L., Sabesan, S. S., Swiatek, D., et al. (2024) · JNCI Cancer Spectrum · doi:10.1093/jncics/pkae048 · Cited by 46
Mendes-Santos, C., Nunes, F., Weiderpass, E., Santana, R., & Andersson, G. (2022) · JMIR Cancer · doi:10.2196/33550 · Cited by 19
“This finding aligns with previous research [66,72,76,77] and emphasizes the importance of building flexibility into digital programs targeting cancer survivors, not only in terms of tailoring but also in terms of frequency and timing of use, to ensure its uptake by target users.”
ResultAdler, R. F., Baez, K., Morales, P., Sotelo, J., Victorson, D. E., & Magasi, S. R. (2024) · JMIR Human Factors · doi:10.2196/51522 · Cited by 25
Lustberg, M. B., Carlson, M., & Nekhlyudov, L. (2021) · Journal of Cancer Survivorship · doi:10.1007/s11764-021-01047-1 · Cited by 14
Beatty, L., Kemp, E., Butow, P. N., Girgis, A., Hulbert-Williams, N., Kaambwa, B., Schofield, P. E., Turner, J., Woodman, R. J., Boyle, F. M., et al. (2022) · BMC Cancer · doi:10.1186/s12885-022-10410-z · Cited by 9
Self-citationRigg, A., Kemp, E., Koczwara, B., Butow, P. N., Girgis, A., Hulbert-Williams, N., Kaambwa, B., Long, R., Schofield, P. E., Turner, J., et al. (2024) · Supportive Care in Cancer · doi:10.1007/s00520-024-08924-2 · Cited by 8
“FMW-A is a 6-week, 6-module CBT-based online self-directed psychosocial program for women with MBC [25].”
BackgroundMethodInfluentialSelf-citationUsability Testing on Tracer Study System Using The Heuristic Evaluation Method
Afriansyah, A., Walhidayat, W., Novendra, R., Harefa, L., & Sutejo, S. (2022) · Journal of Applied Engineering and Technological Science (JAETS) · doi:10.37385/jaets.v3i2.807 · Cited by 8
Laidsaar‐Powell, R., Giunta, S., Butow, P. N., Keast, R., Koczwara, B., Kay, J., Jefford, M., Turner, S., Saunders, C. M., Schofield, P. E., et al. (2024) · JMIR Medical Education · doi:10.2196/50118 · Cited by 6
“This approach has been effectively used in the development of web-based health care interventions [27,28].”
MethodSelf-citationIdrees, A. R., Kraft, R., Winter, M. R., Küchler, A., Baumeister, H., Reilly, R., Reichert, M., & Pryss, R. C. (2023) · Journal of Ambient Intelligence and Humanized Computing · doi:10.1007/s12652-023-04635-4 · Cited by 7
Bourboulis, S., Kemp, E., the Finding My Way-Advanced Authorship Group, & Beatty, L. (2025) · Supportive Care in Cancer · doi:10.1007/s00520-025-09379-9 · Cited by 3
“Our group recently co-designed Finding My Way-Advanced ( FMW-A ) (5, 17), an online program for MBC adapted from an evidence-based 6-week/6-module DMHI for individuals with early-stage cancer (8), and published the first pilot randomised controlled trial (RCT) where results confirmed feasibility…”
Self-citationRahman, R., Mamat, P., Wang, H., Nurtai, M., Mahsut, M., Ahmat, Z., Siyit, M., Shang, H., & Zhang, X. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1149558 · Cited by 4
Hulbert-Williams, N., Leslie, M. R., Hulbert‐Williams, L., Koczwara, B., Watson, E. K., Hall, P. S., Ashley, L., Coulson, N., Jackson, R., Millington, S., et al. (2021) · JMIR Research Protocols · doi:10.2196/31976 · Cited by 5
Self-citationMendes-Santos, C. (2021) · Linköping studies in arts and science · doi:10.3384/9789179291143 · Cited by 3
Women with metastatic breast cancer supportive care needs
Çınar, D., Öztürk, A., & Onay, Ö. (2025) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2024.0042 · Cited by 2
Treatment withdrawal experiences of women with breast cancer: A phenomenological study
Chi, S., Liu, Y., Mudiyanselage, S. P. K., Fetzer, S. J., & Lin, M. (2024) · Journal of Clinical Nursing · doi:10.1111/jocn.17142 · Cited by 2
Iterative Development of the Caregiver Wellness After Traumatic Brain Injury Program (CG-Well)
Kreitzer, N. P., Adeoye, O. M., Wade, S. L., Kurowki, B. G., Thomas, S., Gillespie, L. E., & Bakas, T. (2023) · Journal of Head Trauma Rehabilitation · doi:10.1097/htr.0000000000000869 · Cited by 2
“31,43 Specifi-cally, collaboration with experts has been recommended to validate the content and layout of materials intended for interventions targeted and tailored to specific populations.”
BackgroundLyhne, J. D., Smith, A. B., Carstensen, T. B. W., Beatty, L., Bamgboje‐Ayodele, A., Klein, B., Jensen, L. H., & Frostholm, L. (2025) · JMIR Cancer · doi:10.2196/63486 · Cited by 1
“FindingMyWay has undergone 2 adaptations: first, into a UK-version needing a contextual adaptation [22] to reflect the UK health care system and terminology, and second, to a metastatic-breast cancer specific version (Finding My Way-Advanced [23]).”
Self-citationBeatty, L., Kemp, E., Butow, P. N., Girgis, A., Hulbert-Williams, N., Kaambwa, B., Schofield, P. E., Turner, J., Woodman, R. J., Boyle, F. M., et al. (2023) · Figshare · doi:10.6084/m9.figshare.22606379
Self-citation
Metadata
- Authors
- Beatty, L., Koczwara, B., Butow, P., Turner, J., Girgis, A., Schofield, P., Hulbert-Williams, N. J., Kaambwa, B., & Kemp, E.
- Affiliations
- Flinders University (AU)
- The University of Sydney (AU)
- The University of Queensland (AU)
- UNSW Sydney (AU)
- Swinburne University of Technology (AU)
- Corresponding author
- Beatty, Lisa
- ORCID
- Venue
- Journal of Cancer Survivorship
- Published
- 2021-03-15
- Volume
- 15
- Issue
- 3
- Pages
- 403-409
- ISSN
- 1932-2259 (ISSN-L)
- 1932-2267
- OpenAlex
- W3136594253
- Cited by
- 18
- References
- 8
- Citations by year
- 2025: 3 · 2024: 5 · 2023: 4 · 2022: 3 · 2021: 3
- FWCI
- 1.36
- Type
- journal article
- Language
- en
- Open access
- green
- hdl.handle.net
- Licence
- Locations
- Journal of Cancer Survivorship (publishedVersion)
- PubMed (publishedVersion)
- ChesterRep (University of Chester) (submittedVersion, cc-by-nc-nd)
- Edge Hill University Research Information Repository (Edge Hill University) (submittedVersion)
- Funders
- Beat Cancer Project (1140482)
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Keywords
- metastatic breast cancer, usability testing, co-design, cancer survivorship, women with cancer, program engagement, think-aloud
- MeSH terms
- Internet-Based Intervention, Psychosocial Intervention, User-Centered Design, Aged, Breast Neoplasms, Child, Female, Humans, User-Computer Interface
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