The DOI matches its Crossref record; 52 of the 52 references it cites were found in a registry or an index.
Barriers and facilitators to engagement and retention in care among transgender women living with human immunodeficiency virus.
Open accessAbstract
BACKGROUND: Transgender women have 49 times the odds of human immunodeficiency virus (HIV) infection compared to other groups, yet they are disproportionately underserved by current treatment efforts. PURPOSE: This study aimed to examine culturally unique barriers and facilitators to engagement and retention in HIV care and strengthen efforts to mitigate health disparities, guided by the Models of Gender Affirmation and Health Care Empowerment. METHODS: Through 20 interviews and five focus groups (n = 38), transgender women living with HIV discussed their experiences and life contexts of engagement in and adherence to HIV care and treatment. RESULTS: Our participants faced substantial challenges to adhering to HIV care and treatment, including avoidance of healthcare due to stigma and past negative experiences, prioritization of hormone therapy, and concerns about adverse interactions between antiretroviral treatment for HIV and hormone therapy. Receiving culturally competent, transgender-sensitive healthcare was a powerful facilitator of healthcare empowerment. CONCLUSIONS: Recommendations are offered to inform intervention research and guide providers, emphasizing gender affirming HIV care that integrates transition-related healthcare needs.
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“Transgender persons often experience high rates of stigma and socioeconomic and structural barriers to care that negatively affect health care usage and increase susceptibility to HIV and STIs (326–332).”
From Sexually Transmitted Infections Treatment Guidelines, 2021 (2021) · cites this paper as [330]
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Citations
Cites
Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color
Crenshaw, K. (1991) · Stanford Law Review · doi:10.2307/1229039 · Cited by 32,792
The American Psychological Association
Langfeld, H. S. (1919) · Science · doi:10.1126/science.49.1254.51 · Cited by 7,453
Coleman, E., Bockting, W. O., Botzer, M., Cohen‐Kettenis, P. T., Cuypere, G. D., Feldman, J., Fraser, L., Green, J., Knudson, G., Meyer, W. J., et al. (2012) · International Journal of Transgenderism · doi:10.1080/15532739.2011.700873 · Cited by 3,273
(2012) · Choice Reviews Online · doi:10.5860/choice.49-2699 · Cited by 2,591
Injustice at Every Turn: A Report of the National Transgender Discrimination Survey
Grant, J. M., Motter, L. A., & Tanis, J. (2011) · Cited by 2,063
Gardner, E. M., McLees, M. P., Steiner, J. F., del Rı́o, C., & Burman, W. J. (2011) · Clinical Infectious Diseases · doi:10.1093/cid/ciq243 · Cited by 1,895
Stigma, Mental Health, and Resilience in an Online Sample of the US Transgender Population
Bockting, W. O., Miner, M. H., Swinburne Romine, R. E., Hamilton, A., & Coleman, E. (2013) · American Journal of Public Health · doi:10.2105/ajph.2013.301241 · Cited by 1,540
Worldwide burden of HIV in transgender women: a systematic review and meta-analysis.
Baral, S. D., Poteat, T., Strömdahl, S., Wirtz, A. L., Guadamuz, T. E., & Beyrer, C. (2013) · The Lancet Infectious Diseases · doi:10.1016/s1473-3099(12)70315-8 · Cited by 1,461
for the HIV/AIDS Prevention Research Synthesis Team, Herbst, J. H., Jacobs, E. D., Finlayson, T. J., McKleroy, V. S., Neumann, M. S., & Crepaz, N. (2008) · AIDS and Behavior · doi:10.1007/s10461-007-9299-3 · Cited by 933
Clements-Nolle, K. D., Marx, R., Guzman, R., & Katz, M. H. (2001) · American Journal of Public Health · doi:10.2105/ajph.91.6.915 · Cited by 776
Research works printed but not linked: 4
- California Department of Health Services. California HIV Counseling and Testing Annual Report: January–December 2003. Sacramento, CA: Office of AIDS; 2006.
- Morin SF, Kahn JG, Richards TA, et al. Eliminating Racial and Ethnic Disparities in HIV Care: The California Report. San Francisco: AIDS Research Institute; 2000. University of California, San Francisco.
- Sevelius J, Carrico A, Johnson M. Antiretroviral therapy adherence among transgender women living with HIV. J Assoc Nurses AIDS Care. 2010; 21(3): 256-264. · DOI
- Tom Waddell Health Center. Protocols for Hormonal Reassignment of Gender. San Francisco: San Francisco Department of Public Health; 2006.
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Touleyrou, L., Newman, G., Heisler, S., & Chopra, T. (2024) · Open Forum Infectious Diseases · doi:10.1093/ofid/ofae435
Bassichetto, K. C., Fonseca, P. A. M., de Queiroz, R. S. B., Kon, R., & Veras, M. A. D. S. M. (2024) · Epidemiologia e Serviços de Saúde · doi:10.1590/s2237-96222024v33e2024388.especial.en
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Caldwell, J. A., Dana, R., Lucas, I. L., Sullivan, P. S., Olansky, E., Sullivan, S. P., Hannah, M., Sanchez, T., Hightow‐Weidman, L., & Sharma, A. (2025) · doi:10.2196/preprints.75345
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Rhodes, S. D., Mann‐Jackson, L., Alonzo, J., Aguilar-Palma, S. K., Neffa-Creech, D., Keatley, J. G., Smart, B. D., & Montoya, J. A. (2025) · Health Education & Behavior · doi:10.1177/10901981251358706
Restar, A., Garrison‐Desany, H. M., Adamson, T., Childress, C., Millett, G. A., Jarrett, B. A., Howell, S., Glick, J. L., Beckham, S. W., & Baral, S. (2021) · Figshare · doi:10.6084/m9.figshare.14583640
Leite, B. O., Magno, L., Soares, F., MacCarthy, S., Brignol, S., Bastos, F. I., & Dourado, I. (2022) · Figshare · doi:10.6084/m9.figshare.21592457
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Restar, A., Garrison‐Desany, H. M., Adamson, T., Childress, C., Millett, G. A., Jarrett, B. A., Howell, S., Glick, J. L., Beckham, S. W., & Baral, S. (2021) · Figshare · doi:10.6084/m9.figshare.14583643
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Manalel, J. A., Kaufman, J. E., Brandenburg, C., Fusaris, E., Corrêa, A. G., Ernst, J. A., & Mark, B.-I. (2025) · AIDS Care · doi:10.1080/09540121.2025.2605493
Chakrapani, V., Kaur, J., Gupta, A., Gulfam, F. R., & Patel, V. V. (2026) · Transgender Health · doi:10.1177/26884887261417654
Loutfy, M. R., Tseng, A. L.-I., Lacombe‐Duncan, A., Fung, R., Armstrong, I., Nguyen, Q. P. H., Hranilovic, S., Chan, L. Y. L., Tan, D. H. S., Underhill, A., et al. (2026) · Transgender Health · doi:10.1177/26884887261439025
Gamarel, K. E., Mayo‐Wilson, L. J., Ubong, I.-A., Jadwin-Cakmak, L. A., Correll-King, W. M., Monro, D., Harris, H., Poindexter, J., Riser, C., Stephenson, J., et al. (2026) · AIDS and Behavior · doi:10.1007/s10461-026-05151-0
Mammadli, T., Mack, L.-J. M., Giovanni, T., Runge, Z., & Whitfield, D. L. (2026) · Culture Health & Sexuality · doi:10.1080/13691058.2026.2656302
Lane, B. L., Meng, Z., Hall, C. D. X., Queiroz, A. A. F. L. N., Haughbrook, R., Ibragimov, U., Wang, L., Millender, E., Wong, F. Y., Gabster, A., et al. (2026) · AIDS and Behavior · doi:10.1007/s10461-026-05200-8
Hemery, J., Tattevin, P., Marshall, E., Annequin, M., Chiarabini, T., Dournon, N., Maresca, A. F., Ghosn, J., Isernia, V., Michard, F., et al. (2026) · The Lancet Regional Health - Europe · doi:10.1016/j.lanepe.2026.101820
Aitcheson, N., Li, Y., Feng, Y., O’Brien, C. S., Kyweluk, M. A., Dowshen, N., & Momplaisir, F. M. (2026) · Open Forum Infectious Diseases · doi:10.1093/ofid/ofag548
Sandor, G., Gastelumendi-Franco, L., Higgins, I. C. A., Gómez, H., Donastorg, Y., Pérez, M., Castillo, N., King, C., Almendares, T., Malik, M., et al. (2026) · International Journal of Transgender Health · doi:10.1080/26895269.2026.2722327
Caballero, R., Radusky, P. D., Zalazar, V., Cardozo, N. F., Zeggagh, J., César, C., Figueroa, M. I., & Arístegui, I. (2026) · AIDS Care · doi:10.1080/09540121.2026.2732605
Metadata
- Authors
- Sevelius, J. M., Patouhas, E., Keatley, J. G., & Johnson, M. O.
- Affiliations
- University of California, San Francisco (US)
- Corresponding author
- Sevelius, Jae M.
- Venue
- Annals of Behavioral Medicine
- Publisher
- Oxford University Press (OUP)
- Published
- 2013-12-07
- Volume
- 47
- Issue
- 1
- Pages
- 5-16
- ISSN
- 0742-5554 (ISSN-L)
- 0883-6612
- 1532-4796
- PMC
- PMC3925767
- OpenAlex
- W2009747821
- Cited by
- 345
- References
- 51
- Citations by year
- 2026: 10 · 2025: 21 · 2024: 25 · 2023: 33 · 2022: 31 · 2021: 44 · 2020: 31 · 2019: 50 · 2018: 26 · 2017: 23 · 2016: 24 · 2015: 14 · 2014: 6 · 2013: 1
- FWCI
- 10.90
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Annals of Behavioral Medicine (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- eScholarship (California Digital Library) (submittedVersion)
- Funders
- California HIV/AIDS Research Program
- National Institute of Mental Health (K24MH087220, K08MH085566)
- National Institute of Allergy and Infectious Diseases (P30AI027763)
- Topics
- Health Sciences › Medicine › Infectious Diseases › HIV/AIDS Research and Interventions
- Social Sciences › Psychology › Social Psychology › LGBTQ Health, Identity, and Policy
- Health Sciences › Medicine › Epidemiology › HIV, Drug Use, Sexual Risk
- Keywords
- transgender women, HIV, HIV care engagement, retention in care, barriers and facilitators, gender-affirming care, health disparities, HIV stigma, hormone therapy, antiretroviral therapy adherence
- MeSH terms
- Adult, Aged, Female, Health Services Accessibility, Humans, Male, Middle Aged, Patient Compliance, Women, HIV Infections, Focus Groups, Healthcare Disparities, Social Stigma, Transgender Persons
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