CoChat
Sign Up
Cited by 201Pediatric Pain Management TechniquesFamily Support in IllnessFamily and Disability Support Research

The DOI matches its Crossref record; 27 of the 28 references it cites were found in a registry or an index.

Being a parent of the adolescent with complex chronic pain: An interpretative phenomenological analysis

Jordan, Abbie L., Eccleston, Christopher, Osborn, Mike·2007·European Journal of Pain
DOI 10.1016/j.ejpain.2005.12.012
Open this paper in CoChat — free account

Abstract

BACKGROUND: Previous quantitative research has shown that parents of adolescents with chronic pain report elevated levels of emotional distress in addition to limitations in social and family functioning. AIM: This study aimed to further explore this parental impact by employing qualitative methodology to investigate parental experiences of caring for an adolescent with chronic pain. METHODS: A sample of 17 parents/carers of adolescents with chronic pain was selected from two UK tertiary clinic sites. Participants were 11 mothers, five fathers, and one grandmother (primary caregiver). Four focus groups with parents/carers were conducted to discuss the impact of caring for an adolescent with chronic pain on the parent/carer. Transcripts were analysed using interpretative phenomenological analysis (IPA). FINDINGS: Data analysis revealed two superordinate themes that captured the extensive, and largely negative, impact of being a parent of an adolescent with chronic pain. These themes were labelled 'struggle for control and coherence' and 'a very different life'. Both themes represent a fundamental parental struggle to adapt to a life very different than expected, a life fraught with uncertainty, fear, distress and loss. CONCLUSIONS: Parents who are unable to achieve the relief of their adolescent's chronic pain and suffering report significant personal distress that is exemplified by the repetitive search for legitimacy of their child's pain in 'diagnosis'. In the absence of diagnosis parents reported an unwelcome suspension in an unusual pattern of parenting, resembling the infant phase of parenting.

Overview

Integrity signals

Registry

Crossref · 10.1016/j.ejpain.2005.12.012

Cites

27 of 27 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Verification

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Citations

Cites

Flagged first, then by citations

Show all 28 references

1 of the 28 references couldn’t be matched to a known paper.

Research works printed but not linked: 1

  1. Merriam‐Webster Dictionary, 2004, Merriam‐Webster Dictionary

Cited by

Sorted by citations

Items 201–201 of 201

Related

See all

Metadata

Authors
Jordan, A. L., Eccleston, C., & Osborn, M.
Affiliations
  • Royal National Hospital for Rheumatic Diseases (GB)
  • Royal United Hospital (GB)
Corresponding author
Eccleston, Christopher
ORCID
Venue
European Journal of Pain
Publisher
Wiley
Published
2007-01
Volume
11
Issue
1
Pages
49-49
ISSN
  • 1090-3801 (ISSN-L)
  • 1532-2149
DOI
10.1016/j.ejpain.2005.12.012
OpenAlex
W1985168505
Cited by
201
References
28
Citations by year
2026: 6 · 2025: 7 · 2024: 10 · 2023: 10 · 2022: 8 · 2021: 17 · 2020: 10 · 2019: 18 · 2018: 14 · 2017: 9 · 2016: 11 · 2015: 8 · 2014: 8 · 2013: 12 · 2012: 10
FWCI
5.57
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor, 1836 d)
Locations
  • European Journal of Pain (publishedVersion)
  • PubMed (publishedVersion)
  • Research Space (submittedVersion)
Topics
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
  • Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords
parental experiences, parental emotional distress, family functioning, loss of control, uncertainty, caregiver burden
MeSH terms
Activities of Daily Living, Adolescent, Adult, Age Factors, Aged, Anxiety, Chronic Disease, Fear, Female, Humans, Male, Middle Aged, Models, Psychological, Intractable Pain, Parent-Child Relations, Quality of Life, Stress, Psychological, Caregivers, Early Diagnosis

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review