Psychosocial Functioning of Parents of Youth Receiving Intensive Interdisciplinary Pain Treatment
Open accessAbstract
Objective: Parents of youth with chronic pain report psychosocial difficulties, yet treatment often focuses on improving their child's functioning and pain. This study evaluated changes in parents' social and emotional functioning and explored predictors of change, as they completed a parent-focused intervention while their child was enrolled in an intensive interdisciplinary pain treatment (IIPT) program. Methods: Parents (n = 69) completed questionnaires at baseline and weekly (average duration of 4 weeks) during their child's participation in IIPT. Parents engaged in 3 groups per week providing education, therapeutic art, and psychotherapy (3 hr/week total). Results: At baseline, 38% of parents reported scores in the clinically elevated range for at least 1 psychosocial variable. Linear mixed modeling for the full sample indicated reduced parent anxiety (t = -2.72, p <.01) and depression (t = -3.59, p <.001), but not increased emotional support (t = 1.86, p >. 05) or reduced social isolation (t = -1.20, p >.05). For parents with at least moderately elevated psychosocial concerns, statistically significant improvements were observed for all 4 outcomes (all p's<.01). Psychological flexibility, cognitive reappraisal, and emotional suppression were found to be related to changes in parent outcomes (anxiety, depression, isolation, and support). Conclusions: Findings support the benefit of parent-focused interventions in addition to child-focused interventions. Many parents of youth participating in IIPT had elevated scores for at least 1 psychosocial concern at baseline. Brief, parent-focused intervention including psychoeducation, therapeutic art, and psychotherapy targeting mindfulness, acceptance, and values had a significant impact on these parents, particularly those with greater struggles at baseline. © 2023 The Author(s). Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved.
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Claims the paper makes
16 of 38 cited sources checked · 7 supported · 0 flagged · accuracy not yet measured
- Premisecitation
Parents of youth with chronic pain may experience psychosocial difficulties that impact their parenting.
“parents of youth with chronic pain may experience psychosocial difficulties that impact their parenting (Fussner et al., 2018).”
Quote in the paperSubstantial claim1 of 1 sources checked- cites Fussner et al., 2018 source
- Premisecitation
Relatively few studies examine the specific psychosocial needs of parents of youth with chronic pain, especially in comparison to other disease populations.
“Despite recognition of their distress, relatively few studies examine the specific psychosocial needs of parents of youth with chronic pain, especially in comparison to other disease populations (Palermo & Eccleston, 2009).”
Quote in the paperSubstantial claim1 of 1 sources checked- cites Palermo & Eccleston, 2009 source
- Premisecitation
Intervention studies for parents of youth with chronic pain typically focus on modifying parenting practices to improve child outcomes rather than focusing on improving the parents' own psychosocial functioning.
“Intervention studies for parents of youth with chronic pain typically focus on modifying parenting practices to improve child outcomes (Palermo & Eccleston, 2009) rather than focusing on improving the parents' own psychosocial functioning.”
Quote in the paperSubstantial claim1 of 1 sources checked- cites Palermo & Eccleston, 2009 source
- Premisecitation
Parents play an essential role in their children's experience of pain, their treatment, and potential treatment outcomes.
“Parents play an essential role in their children's experience of pain, their treatment, and potential treatment outcomes (Donnelly et al., 2020;Harbeck-Weber et al., 2022;Palermo et al., 2014;Simons et al., 2016).”
Quote in the paperSubstantial claim1 of 3 sources checked - Findingown data
Parent gender was a statistically significant predictor of the overall level of anxiety (p<.001).
“Parent gender was a statistically significant predictor of the overall level of anxiety (p < .001)”
Quote in the paperNot a substantial claim
- Findingown data
For parents with decreased social support, emotional support improved significantly by 3 points per week (t=2.92, p<.01).
“parents with decreased social support improved by 3 points per week (t ¼ 2.92, p <.01).”
Quote in the paperSubstantial claim - Findingown data
At baseline, 9% of parents reported low emotional support.
“6 reported low emotional support (9%)”
Quote in the paperNot a substantial claim - Findingown data
The effect of parent baseline social isolation on treatment duration was weaker when excluding the 3 parents whose children dropped out (3.8 vs. 4.1 weeks, t(56)=-1.06, p=.148).
“This was affected by parents of kids who dropped out, as the effect of parent baseline social isolation on treatment duration was weaker when excluding those 3 parents (3.8 vs. 4.1 weeks, t(56)¼ -1.06, p ¼ .148).”
Quote in the paperNot a substantial claim - Findingown data
Using the relaxed criteria, 32% of parents had elevated social isolation.
“22 (32%) with elevated social isolation”
Quote in the paperNot a substantial claim - Findingown data
For parents with clinically elevated anxiety, anxiety improved by about 2.4 points per week (t=-3.93, p<.001).
“in the clinical group, anxiety was modeled to improve by about 2.4 points per week (t ¼ -3.93, p < .001)”
Quote in the paperSubstantial claim - Findingown data
For parents with at least moderately elevated depression, depression improved significantly by 2.7 points per week (t=-4.97, p<.001).
“Parents with elevated depression improved by 2.7 points per week (t ¼ -4.97, p <.001).”
Quote in the paperSubstantial claim - Findingown data
In the full sample, social isolation did not decrease significantly (t=-1.20, p>.05).
“or reduced social isolation (t ¼ -1.20, p >.05)”
- Also stated in: § Results · plain
“or social isolation (p>.05)”
Quote in the paperNot a substantial claim - Also stated in: § Results · plain
- Findingown data
Being female increased the average anxiety score by about 6 points.
“being female increased the average anxiety score by about 6 and depression by about 4.”
Quote in the paperNot a substantial claim - Findingown data
At baseline, 25% of parents reported clinically elevated anxiety.
“17 parents reported clinically elevated levels of anxiety (25%)”
Quote in the paperNot a substantial claim - Findingown data
Changes in parent social isolation were associated with changes in parent cognitive reappraisal and emotional suppression.
“Changes in parent social isolation and emotional support were each associated with changes in parent cognitive reappraisal and emotional suppression.”
Quote in the paperNot a substantial claim - Findingown data
Parent gender was a statistically significant predictor of the overall level of depression (p<.05).
“and depression (p<.05)”
Quote in the paperNot a substantial claim - Findingown data
Male parents reported significantly less anxiety than female parents at baseline (T-score 49.2 vs. 58.3, t(59)=4.13, p<.001).
“Male parents reported significantly less anxiety than female parents at baseline (T-score of 49.2 vs. 58.3,t(59) ¼ 4.13, p < .001).”
Quote in the paperNot a substantial claim - Findingown data
At baseline, 7% of parents reported high social isolation.
“5 reported high levels of social isolation (7%)”
Quote in the paperNot a substantial claim - Findingown data
For parents with clinically elevated depression, depression improved by 2.3 points per week (t=-3.07, p<.01).
“depression improved by 2.3 points per week (t ¼ -3.07, p < .01)”
Quote in the paperSubstantial claim - Findingown data
For parents with clinically elevated social isolation, social isolation improved by 2.0 points per week (t=-2.52, p<.05).
“social isolation improved by 2.0 points per week (t ¼ -2.52, p < .05)”
Quote in the paperSubstantial claim - Findingown data
In the full sample, emotional support did not increase significantly (t=1.86, p>.05).
“but not increased emotional support (t ¼ 1.86, p >. 05)”
- Also stated in: § Results · plain
“Significant differences were not observed for emotional support (p > .05)”
Quote in the paperNot a substantial claim - Also stated in: § Results · plain
- Findingown data
For parents with at least moderately elevated social isolation, social isolation improved significantly by 1.5 points per week (t=-3.04, p<.01).
“Parents with elevated social isolation improved by 1.5 points per week (t ¼ -3.04, p <.01)”
Quote in the paperSubstantial claim - Findingown data
Using a relaxed definition of at least moderately elevated symptoms (approximately 0.75 SD from the mean), 62% of parents (n=43) had a moderately or clinically elevated score on at least one measure.
“Based on this relaxed criteria, 43 parents (62%) had a moderately or clinically elevated score on at least one measure”
Quote in the paperNot a substantial claim - Findingown data
Using the relaxed criteria, 19% of parents reported low emotional support.
“13 (19%) reporting low emotional support”
Quote in the paperNot a substantial claim - Findingown data
Using the relaxed criteria, 48% of parents had elevated anxiety.
“33 parents (48%) with elevated anxiety”
Quote in the paperNot a substantial claim - Findingown data
There was a trend for parents with greater social isolation at baseline to have children who were in the program for fewer weeks (3.6 vs. 4.1 weeks; t(59)=-1.55, p=.063).
“However, there was a trend for parents with greater social isolation at baseline to have kids who were in the program for fewer weeks (3.6 weeks vs. 4.1 weeks; t(59)¼ -1.55, p¼.063).”
Quote in the paperNot a substantial claim - Findingown data
At baseline, 16% of parents reported clinically elevated depression.
“11 reported clinically elevated levels of depression (16%)”
Quote in the paperNot a substantial claim - Findingown data
Changes in parent depression were associated with parent gender, parent emotional suppression, and parent psychological flexibility.
“Changes in parent depression were associated with parent gender, parent emotional suppression, and parent psychological flexibility.”
Quote in the paperSubstantial claim - Findingown data
In the full sample, parent anxiety decreased significantly over time (t=-2.72, p<.01).
“Linear mixed modeling for the full sample indicated reduced parent anxiety (t ¼ -2.72, p <.01)”
- Also stated in: § Results · plain
“Across all parents, statistically significant improvements (change over time, represented by “week”) were observed in anxiety (t ¼ -2.72, p < .01)”
Quote in the paperSubstantial claim - Also stated in: § Results · plain
- Findingown data
Being female increased the average depression score by about 4 points.
“being female increased the average anxiety score by about 6 and depression by about 4.”
Quote in the paperNot a substantial claim - Findingown data
For parents with at least moderately elevated anxiety, anxiety improved significantly by nearly 2 points per week (t=-4.50, p<.001).
“parents with elevated anxiety were on average nearly 1 SD above the mean of that scale and improved by nearly 2 points per week (t ¼ -4.50, p <.001).”
Quote in the paperSubstantial claim - Findingown data
In the full sample, parent depression decreased significantly over time (t=-3.59, p<.001).
“and depression (t ¼ -3.59, p <.001)”
- Also stated in: § Results · plain
“and depression (t ¼ 3.59, p < .001)”
Quote in the paperSubstantial claim - Also stated in: § Results · plain
- Findingown data
At baseline, 38% of parents (n=26) reported clinically elevated scores (≥1 SD from the mean) on at least one measure of emotional or social functioning.
“At baseline, 38% of parents reported scores in the clinically elevated range for at least 1 psychosocial variable.”
- Also stated in: § Results · plain
“At their first data point, a subset of parents (n ¼ 26, 38%) reported clinically elevated scores (1 SD away from mean) on at least one measure of emotional or social functioning.”
Quote in the paperSubstantial claim - Also stated in: § Results · plain
- Findingown data
Changes in parent anxiety were associated with parent gender and changes in parent psychological flexibility.
“Specifically, changes in parent anxiety were associated with parent gender and changes in parent psychological flexibility.”
Quote in the paperNot a substantial claim - Findingown data
Changes in parent emotional support were associated with changes in parent cognitive reappraisal and emotional suppression.
“Changes in parent social isolation and emotional support were each associated with changes in parent cognitive reappraisal and emotional suppression.”
Quote in the paperNot a substantial claim - Findingown data
Using the relaxed criteria, 32% of parents had elevated depression.
“22 (32%) with elevated depression”
Quote in the paperNot a substantial claim - Findingown data
Psychological flexibility, cognitive reappraisal, and emotional suppression were found to be related to changes in parent outcomes (anxiety, depression, isolation, and support).
“Psychological flexibility, cognitive reappraisal, and emotional suppression were found to be related to changes in parent outcomes (anxiety, depression, isolation, and support).”
Quote in the paperSubstantial claim - Findingnone given
Changes in psychological flexibility were longitudinally associated with changes in both anxiety and depression.
“Psychological flexibility, defined as the ability to connect to the present moment, including distressing or difficult thoughts and emotions, and select behaviors that are in service of one's values (Hayes et al., 2011), is a key target of these interventions, and it is notable that changes in this process were longitudinally associated with changes in both anxiety and depression.”
Quote in the paperSubstantial claim - Findingown data
In the whole dataset, changes were statistically significant only for anxiety and depression.
“When examining the whole dataset of parents, small changes were observed in outcomes and were all in the expected direction; however, changes were statistically significant only for anxiety and depression.”
Quote in the paperSubstantial claim - Findingown data
For parents with at least moderately elevated psychosocial concerns, statistically significant improvements were observed for all four outcomes (all p's<.01).
“For parents with at least moderately elevated psychosocial concerns, statistically significant improvements were observed for all 4 outcomes (all p's<.01).”
Quote in the paperSubstantial claim - Findingown data
Male parents reported less emotional support than female parents.
“Also of interest was the pattern observed by parent gender, as male parents tended to report better baseline functioning on many of these measures; however, male parents reported less emotional support than female parents.”
Quote in the paperNot a substantial claim - Findingown data
Male parents tended to report better baseline functioning on many of these measures.
“Also of interest was the pattern observed by parent gender, as male parents tended to report better baseline functioning on many of these measures; however, male parents reported less emotional support than female parents.”
Quote in the paperNot a substantial claim - Findingown data
When analyses were repeated only with parents whose scores were elevated at baseline, results indicated significant changes over time on all outcome variables.
“To better understand changes in those parents with greater need, analyses were repeated only with parents whose scores were elevated at baseline, and results indicated that there were significant changes over time on all outcome variables.”
Quote in the paperSubstantial claim - Findingreasoning
On average these parents reported improvements in social relationships.
“On average these parents reported improvements in social relationships, which may be helped by the general setting of IIPT, where multiple families concurrently participate in intensive treatment and frequently develop relationships with each other.”
Quote in the paperSubstantial claim - Findingown data
At baseline, nearly 40% of these parents reported concerning levels of anxiety, depression, social isolation, and/or emotional support.
“At baseline, nearly 40% of these parents reported concerning levels of anxiety, depression, social isolation, and/or emotional support.”
- Also stated in: § Discussion · hedged
“Many parents endorsed at least one emotional or social concern at baseline potentially supporting action such as universal screening of parent psychosocial health in outpatient pain clinics.”
Quote in the paperSubstantial claim - Also stated in: § Discussion · hedged
- Findingown data
Psychological flexibility did not predict changes in social isolation and emotional support.
“Although psychological flexibility did not predict changes in social isolation and emotional support, these outcomes were found to be associated with changes in emotional suppression and cognitive reappraisal.”
Quote in the paperSubstantial claim - Findingown data
Intervention of only three hours per week was associated with improvements in parent emotional and social functioning, particularly for parents who initially reported clinically or moderately elevated emotional or social concerns.
“Additionally, intervention of only three hours per week was associated with improvements in parent emotional and social functioning, particularly for parents who initially reported clinically or moderately elevated emotional or social concerns.”
Quote in the paperSubstantial claim - Interpretationreasoning
Parents of children who drop out may have higher social isolation at baseline.
“Reciprocally, this suggests that parents of kids who drop out may have higher social isolation at baseline.”
Quote in the paperNot a substantial claim - Interpretationown data
Findings support the benefit of parent-focused interventions in addition to child-focused interventions.
“Findings support the benefit of parent-focused interventions in addition to child-focused interventions.”
Quote in the paperSubstantial claim- Rests on an assumption: Changes in parent psychosocial functioning over the course of IIPT are attributable to the parent-focused intervention rather than to time, child treatment, or other factors.
- Premisecitation
Psychological flexibility uniquely predicted parental mental health and quality of life 3 months after completion of the program.
“In a later investigation of parents attending this same program, Benjamin et al. (2020) further showed that psychological flexibility uniquely predicted parental mental health and quality of life 3 months after completion of the program.”
Quote in the paperNot a substantial claim0 of 1 sources checked- cites Benjamin et al., 2020 source
- Interpretationown data
Brief, parent-focused intervention including psychoeducation, therapeutic art, and psychotherapy targeting mindfulness, acceptance, and values had a significant impact on these parents, particularly those with greater struggles at baseline.
“Brief, parent-focused intervention including psychoeducation, therapeutic art, and psychotherapy targeting mindfulness, acceptance, and values had a significant impact on these parents, particularly those with greater struggles at baseline.”
Quote in the paperSubstantial claim- Rests on an assumption: Changes in parent psychosocial functioning over the course of IIPT are attributable to the parent-focused intervention rather than to time, child treatment, or other factors.
- Study design and conductown data
The PROMIS measures of anxiety and depression had excellent internal consistency in the current sample (anxiety α=.95, depression α=.96).
“The PROMIS measures of anxiety and depression both had excellent internal consistency in the current sample (anxiety a ¼ .95,depression a ¼ .96).”
Quote in the paperNot a substantial claim - Premisecitation
Children's chronic pain impacts parents across multiple domains.
“As their child's chronic pain impacts parents across multiple domains (Campo et al., 2007;Donnelly et al., 2020;Hunfeld et al., 2002;Jastrowski Mano et al., 2011;Palermo & Eccleston, 2009;Poppert Cordts et al., 2019), intervention should also target multiple domains.”
Quote in the paperSubstantial claim0 of 3 sources checked - Study design and conductown data
The Emotion Regulation Questionnaire subscales yielded adequate Cronbach's alphas (cognitive reappraisal: α=.89-.90; emotional suppression: α=.76-.80).
“Parent cognitive reappraisal and emotional suppression (subscales of the Emotion Regulation Questionnaire; Gross & John, 2003) were measured and yielded adequate Cronbach's alphas (cognitive reappraisal: a ¼ .89-.90; emotional suppression a ¼ .76-.80; Preece et al., 2020).”
Quote in the paperNot a substantial claim0 of 2 sources checked - Interpretationreasoning
The small and sometimes nonsignificant changes are likely because many parent scores at baseline fell at average or below average on the outcome variables.
“These small (and sometimes nonsignificant) changes are likely because many parent scores at baseline fell at average or below average on the outcome variables.”
Quote in the paperSubstantial claim - Premisecitation
Most investigations of parent interventions for children with chronic pain have focused on modifying parenting behaviors that may negatively impact children's coping and engagement in functional activities.
“To date, most investigations of parent interventions for children with chronic pain have focused on modifying parenting behaviors that may negatively impact children's coping and engagement in functional activities (Jordan et al., 2007), which can be an important support for these children.”
Quote in the paperSubstantial claim0 of 1 sources checked- cites Jordan et al., 2007 source
- Study design and conductown data
The social isolation measure had good internal consistency in the current sample (α=.88).
“The social isolation measure examined perceptions of being avoided, excluded, detached, disconnected from, or unknown by others; it had good internal consistency in the current sample (a ¼ .88).”
Quote in the paperNot a substantial claim - Interpretationown data
Average changes of approximately an SD supported the clinical significance of these improvements.
“with average changes of approximately an SD supporting the clinical significance of these improvements.”
Quote in the paperSubstantial claim - Interpretationown data
Simply screening for anxiety or depression would have missed parents reporting significant feelings of social isolation or lack of emotional support.
“The variables included in this study are important to note, as simply screening for anxiety or depression would have missed parents reporting significant feelings of social isolation or lack of emotional support.”
Quote in the paperSubstantial claim - Interpretationown data
The improving scores suggest that parents who were elevated at baseline were reporting improvement while participating in parenting interventions throughout their child's treatment.
“Nevertheless, it should not be ignored that these improving scores suggest that those parents who were elevated at baseline were reporting improvement while participating in parenting interventions throughout their child's treatment, with average changes of approximately an SD supporting the clinical significance of these improvements.”
Quote in the paperSubstantial claim - Study design and conductnone given
Many demographic and other clinical variables were not collected, such as parents' own health and impairment, educational history, socioeconomic status, employment, and family support, which could be important in terms of identifying more potential predictors of outcomes.
“Third, many demographic and other clinical variables were not collected, such as parents' own health and impairment, educational history, socioeconomic status, employment, and family support, which could be important in terms of identifying more potential predictors of outcomes.”
Quote in the paperNot a substantial claim - Interpretationreasoning
Data from parents who were not needing change potentially obscured the ability to see change in those who did benefit.
“Thus, data from parents who were not “needing” change potentially obscured the ability to see change in those who did benefit.”
Quote in the paperSubstantial claim - Study design and conductown data
Many parents had at least some missing data which may obscure trajectories of change.
“First, while 52 of 69 parents completed at least three time points, many parents had at least some missing data which may obscure trajectories of change.”
Quote in the paperNot a substantial claim - Interpretationcitation
The observed gender differences are less likely attributable to differences in self-reporting bias.
“It is less likely that these observed gender differences can be attributed to differences in self-reporting bias (Hunt et al., 2003;McLean & Hope, 2010).”
Quote in the paperNot a substantial claim0 of 2 sources checked - Study design and conductown data
52 of 69 parents completed at least three time points.
“First, while 52 of 69 parents completed at least three time points, many parents had at least some missing data which may obscure trajectories of change.”
Quote in the paperNot a substantial claim
- May combine two claims. 24
- Classified as probably not a substantial claim. 21
- The quote only partly states this claim. 1
May combine two claims.
PremisecitationParents' past trauma as well as their own physical and emotional health struggles can impact their children's pain and functioning.
“Additionally, parents' past trauma as well as their own physical and emotional health struggles can impact their children's pain and functioning (Dennis et al., 2019).”
Quote in the paperNot a substantial claim1 of 1 sources checked- cites Dennis et al., 2019 source
The Discussion reports an association between maternal adverse childhood experiences and children’s depressive symptoms, and discusses possible intergenerational effects of maternal chronic pain. But it found no significant association between maternal adverse childhood experiences and children’s pain frequency or functional impairment; the study examined mothers, not parents generally. The claim therefore extends beyond the study’s findings on children’s pain and functioning. (LLM, conf=0.87)
Experimental — accuracy not yet measured
Probably not a substantial claim: may not pass S3 (load-bearing).
PremisecitationIIPT programs are often considered the treatment of choice for children who are experiencing significant functional disability due to chronic pain.
“IIPT programs are often considered the treatment of choice for children who are experiencing significant functional disability due to chronic pain (Claus et al., 2022;Hechler et al., 2014).”
Quote in the paperNot a substantial claim1 of 2 sources checkedMay combine two claims.
PremisecitationStudies that have targeted parents' psychosocial functioning report positive outcomes, including reductions in anxiety, depression, pain catastrophizing, perceived caregiver burden, and increased psychological flexibility.
“Studies that have targeted parents' psychosocial functioning report positive outcomes, including reductions in anxiety, depression, pain catastrophizing, perceived caregiver burden, and increased psychological flexibility (Guite et al., 2018;Palermo et al., 2016;Wallace et al., 2015).”
Quote in the paperSubstantial claim1 of 3 sources checked- cites Guite et al., 2018 source
- cites Palermo et al., 2016 source
The Results (Parent Mental Health Outcomes; page not provided) report reduced pain catastrophizing and some reductions in depression and anxiety, although the latter effects were limited or approached significance. This paper does not report a reduction in perceived caregiver burden. The Discussion describes increased psychological flexibility only as a possible effect for future study, not an observed outcome; the other citations in the sentence are not assessed here. (LLM, conf=0.88)
Experimental — accuracy not yet measured - cites Wallace et al., 2015 source
May combine two claims.
PremisecitationParents of children with chronic pain experience emotional difficulties (anxiety, depression, adjustment challenges, parenting stress) and social difficulties (poorer family functioning, restrictions in social life), as well as physical symptoms, financial difficulties, and poor overall quality of life.
“Studies indicate that parents of children with chronic pain experience emotional difficulties, including anxiety, depression, adjustment challenges, and parenting stress, and social difficulties, including poorer family functioning and restrictions in social life, as well as physical symptoms, financial difficulties, and poor overall quality of life (Campo et al., 2007;Eccleston et al., 2004;Hunf”
Quote in the paperSubstantial claim1 of 3 sources checkedProbably not a substantial claim: may not pass S3 (load-bearing).
PremisecitationA pilot study of a group art therapy program was perceived as helpful, supportive, and validating by parents.
“In other IIPT programs, a pilot study of a group art therapy program was perceived as helpful, supportive, and validating by parents (Peng et al., 2007)”
Quote in the paperNot a substantial claim1 of 1 sources checked- cites Peng et al., 2007 source
The Study procedures section describes a survey of pediatric pain-treatment centres, and the Discussion addresses multidisciplinary treatment generally. Neither reports a pilot group art therapy study or parents’ views of one; searches for “art therapy” and “parents validating supportive helpful” found no passage addressing the claim. Page numbers were unavailable in our copy. (LLM, conf=0.76)
Experimental — accuracy not yet measured
Probably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.
PremisecitationIn caregivers of children with rare diseases, fathers experienced more stress due to economic impacts and worried more about their child's future, whereas mothers reported worries about the current impact of their child's disease, changing interpersonal relationships within the family, and feeling unable to provide sufficient support.
“Further, in caregivers of children with rare diseases, fathers experienced more stress due to economic impacts and worried more about their child's future, whereas mothers reported worries about the current impact of their child's disease, as well as changing interpersonal relationships within the family and feeling unable to provide sufficient support (Cardinali et al., 2019).”
Quote in the paperNot a substantial claim1 of 1 sources checked- cites Cardinali et al., 2019 source
Split into 2 atoms — 0 confirmed, 2 partially supported, 0 disputed, 0 misattributed, 0 unverifiable. Expand the claim to see per-atom verdicts.
Experimental — accuracy not yet measured
Probably not a substantial claim: may not pass S3 (load-bearing).
Study design and conductcitationThis study used the TREND checklist to improve complete and transparent reporting.
“To improve complete and transparent reporting, this manuscript used the Transparent Reporting of Evaluations with Nonrandomized Designs (TREND) checklist (Des Jarlais et al., 2004).”
Quote in the paperNot a substantial claim1 of 1 sources checked- cites Des Jarlais et al., 2004 source
Probably not a substantial claim: may not pass S3 (load-bearing).
PremisecitationAnxiety and depression are more common in females than males.
“In general, anxiety and depression are more common in females than males, which is likely due to a variety of biopsychosocial factors that contribute to more internalizing symptoms in females and more externalizing symptoms in males (Bandelow & Michaelis, 2015;Boyd et al., 2015;Eaton et al., 2012;Steel et al., 2014).”
Quote in the paperNot a substantial claim2 of 3 sources checked- cites Bandelow & Michaelis, 2015 source
The Conclusions and future perspectives section (page not specified) states that anxiety disorders are more common in women. The paper does not establish that depression is more common in women or explain the sex difference through internalizing and externalizing symptoms. (LLM, conf=0.86)
Experimental — accuracy not yet measured - cites Boyd et al., 2015 source
- cites Eaton et al., 2012 source
Probably not a substantial claim: may not pass S3 (load-bearing).
PremisecitationPsychological flexibility may represent an important mechanism or mediator of psychological wellbeing for parents of youth with chronic pain.
“and statements that psychological flexibility may represent an important mechanism or mediator of psychological wellbeing for parents of youth with chronic pain (Hechler et al., 2014).”
Quote in the paperNot a substantial claim1 of 1 sources checked- cites Hechler et al., 2014 source
The Results describe parental interventions such as education and reinforcing children’s functional behavior, while the Method lists outcomes focused on children’s pain and functioning. Searches for parental psychological flexibility, wellbeing, and mediation found no passage addressing the claimed mechanism for parents. (LLM, conf=0.76)
Experimental — accuracy not yet measured
May combine two claims.
PremisecitationCurrent parent interventions do not address the unique needs and challenges of parents of youth with pain, including their own emotional distress, changes in day-to-day schedule and roles, limitations in personal lives, poorer overall quality of life, and potentially their own history of chronic pain.
“Unfortunately, this does not address the unique needs and challenges of parents of youth with pain, including their own emotional distress, changes in their day-to-day schedule and roles, limitations in personal lives, poorer overall quality of life (Hunfeld et al., 2001), and potentially their own history of chronic pain.”
Quote in the paperSubstantial claim1 of 1 sources checked- cites Hunfeld et al., 2001 source
Split into 2 atoms — 0 confirmed, 2 partially supported, 0 disputed, 0 misattributed, 0 unverifiable. Expand the claim to see per-atom verdicts.
Experimental — accuracy not yet measured
Probably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.
PremisecitationIn caregivers for children with Type 1 diabetes, fathers experienced lower levels of parenting stress than mothers, and fathers' stress tended to relate more to their child's anxiety and difficult behavior than disease status.
“In a study of caregivers for children with Type 1 diabetes, fathers experienced lower levels of parenting stress than mothers, and fathers' stress tended to relate more to their child's anxiety and difficult behavior than disease status (Mitchell et al., 2009).”
Quote in the paperNot a substantial claim1 of 1 sources checked- cites Mitchell et al., 2009 source
The Discussion reports that fathers’ parenting stress was lower than levels previously reported among mothers, and the Results link fathers’ stress to difficult child behavior but not to child metabolic control or regimen type. The anxiety associated with stress was the fathers’ own state anxiety, not their children’s anxiety; the mother comparison also came from previous studies, not a direct comparison in this sample. (LLM, conf=0.90)
Experimental — accuracy not yet measured
May combine two claims.
Findingown dataNeither change in youth-reported pain intensity nor change in parent-report of youth functioning were significantly associated with change in any of the four parent outcomes.
“Results indicated that neither change in youth-reported pain intensity nor change in parent-report of youth functioning were significantly associated with change in any of the four outcomes.”
Quote in the paperSubstantial claimThe quote only partly states this claim.
Findingown dataThere were no statistically significant correlations nor trends toward statistical significance between number of weeks in the program and any parent measures.
“There were no statistically significant correlations nor trends toward statistical significance.”
Quote in the paperNot a substantial claimMay combine two claims.
Findingown dataFor parents with clinically elevated low emotional support, emotional support improved by 1.9 points per week but was not statistically significant (t=1.27, p>.10).
“Emotional support was modeled to improve by 1.9 points per week, but this was not statistically significant (t ¼ 1.27, p > .10).”
Quote in the paperNot a substantial claimMay combine two claims.
Findingown dataWhen examining the whole dataset of parents, small changes were observed in outcomes and were all in the expected direction.
“When examining the whole dataset of parents, small changes were observed in outcomes and were all in the expected direction; however, changes were statistically significant only for anxiety and depression.”
Quote in the paperNot a substantial claimMay combine two claims.
Findingown dataSocial isolation and emotional support were associated with changes in emotional suppression and cognitive reappraisal.
“Although psychological flexibility did not predict changes in social isolation and emotional support, these outcomes were found to be associated with changes in emotional suppression and cognitive reappraisal.”
Quote in the paperSubstantial claimProbably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.
Findingown dataTwelve parents were male, and 57 were female.
“Twelve parents were male, and 57 were female; no other demographic information was collected from parents.”
Quote in the paperNot a substantial claimClassified as probably not a substantial claim.
PremisereasoningAlthough these studies provide support for parent-focused intervention during IIPT, they have a limited focus (primarily evaluating feasibility, parenting behaviors, depressive symptoms, pain catastrophizing, and psychological flexibility).
“Although these studies provide support for parent-focused intervention during IIPT, they have a limited focus (primarily evaluating feasibility, parenting behaviors, depressive symptoms, pain catastrophizing, and psychological flexibility).”
Quote in the paperSubstantial claimProbably not a substantial claim: may not pass S2 (checkable). May combine two claims.
InterpretationreasoningA better understanding of the psychological and social needs of parents of youth with chronic pain, as well as how their psychosocial functioning changes occur throughout the course of IIPT and in response to current treatments, can inform future parent-based interventions and may ultimately improve family outcomes.
“A better understanding of the psychological (depression and anxiety) and social (emotional support and social isolation) needs of parents of youth with chronic pain, as well as how their psychosocial functioning changes occur throughout the course of IIPT and in response to current treatments, can inform future parent-based interventions and may ultimately improve family outcomes.”
Quote in the paperNot a substantial claimMay combine two claims.
PremisecitationAt the end of a 3-week IIPT program, parents reported significant improvements in depression, pain catastrophizing, and psychological flexibility.
“At the end of treatment, parents reported significant improvements in depression, pain catastrophizing, and psychological flexibility.”
Quote in the paperSubstantial claim0 of 1 sources checked- cites Weiss et al., 2019 source
Probably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.
PremisecitationA feasibility trial of problem-solving skills training was associated with improvements in mental health, pain catastrophizing, and problem-solving skills.
“and a feasibility trial of problem-solving skills training was associated with improvements in mental health, pain catastrophizing, and problem-solving skills (Law et al., 2017).”
Quote in the paperNot a substantial claim0 of 1 sources checked- cites Law et al., 2017
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
May combine two claims.
PremisereasoningThe psychosocial needs of these parents, as well as how best to meet these needs, are a significant gap in the literature.
“The psychosocial needs of these parents, as well as how best to meet these needs, are a significant gap in the literature.”
Quote in the paperNot a substantial claimClassified as probably not a substantial claim.
PremisecitationIIPT programs may be particularly well-suited for parent-based intervention.
“Of the extant treatment modalities for pediatric chronic pain, intensive interdisciplinary pain treatment (IIPT) programs may be particularly well-suited for parent-based intervention (Harbeck-Weber et al., 2022), given the significant time commitment and caregiver presence typically required in these programs and high impact of pain on these youths and their families.”
Quote in the paperSubstantial claim0 of 1 sources checked- cites Harbeck-Weber et al., 2022 source
Probably not a substantial claim: may not pass S3 (load-bearing), S4 (based).
Study design and conductnone givenThis study did not have options for parents to complete forms on-site, which may have improved compliance with measure completion.
“This study did not have options for parents to complete forms on-site, which may have improved compliance with measure completion.”
Quote in the paperNot a substantial claimMay combine two claims.
Interpretationown dataThe current results are consistent with research showing that male and female parents do not experience the same challenges and support a broad assessment approach to detect parent needs.
“In general, the current results are consistent with research showing that male and female parents do not experience the same challenges and support a broad assessment approach to detect parent needs.”
Quote in the paperSubstantial claimMay combine two claims.
Study design and conductreasoningThis study included participants receiving IIPT and parent groups were part of clinical care; there was no comparison or control group, which limits evaluation of potential improvement over time without specific intervention.
“Finally, this study included participants receiving IIPT and parent groups were part of clinical care; there was no comparison or control group, which limits evaluation of potential improvement over time without specific intervention.”
Quote in the paperSubstantial claimProbably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.
Study design and conductown dataFor eight of the children, two parents participated; for 10 children, no parent participated (5 declined or did not attend any groups, 5 agreed to participate but did not complete any measures).
“For eight of the children, two parents participated; for 10 children, no parent participated (5 declined or did not attend any groups, 5 agreed to participate but did not complete any measures).”
Quote in the paperNot a substantial claimMay combine two claims.
Study design and conductown dataParent race and ethnicity were not collected, which along with other missing demographics prohibits exploration of systemic bias in who is currently being reached and the experience of diverse populations in current interventions.
“Of particular note, parent race and ethnicity were not collected, which along with other missing demographics prohibits exploration of systemic bias in who is currently being reached and the experience of diverse populations in current interventions.”
Quote in the paperNot a substantial claimProbably not a substantial claim: may not pass S3 (load-bearing).
Study design and conductnone givenAll models were built with an unconstrained model followed by a model with greater complexity to ensure proper model functioning.
“all models were built with an unconstrained model followed by a model with greater complexity to ensure proper model functioning”
Quote in the paperNot a substantial claimProbably not a substantial claim: may not pass S3 (load-bearing).
Study design and conductown dataThe emotional support measure had excellent internal consistency in the current sample (α=.92).
“The emotional support measure examined perceived feelings of being cared for and valued as a person and having confident relationships, and it had excellent internal consistency in the current sample (a ¼ .92).”
Quote in the paperNot a substantial claimProbably not a substantial claim: may not pass S3 (load-bearing).
Study design and conductown dataThe PPFQ-17 had a Cronbach's alpha of 0.87.
“Cronbach's alpha for the PPFQ-17 was 0.87.”
Quote in the paperNot a substantial claimProbably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.
Study design and conductown dataMeasure completion rates varied across parents: 25 completed all four time points, 27 completed three, 13 completed two, and 4 completed one.
“Measure completion rates varied across parents: 25 parents completed all four time points, 27 parents completed three, 13 completed two, and 4 completed one.”
Quote in the paperNot a substantial claimProbably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.
Study design and conductcitationThe FDI has demonstrated high test-retest validity (parent report α=.64) and internal consistency with alphas ranging from 0.86 to 0.91.
“The FDI has demonstrated high test-retest validity (parent report a ¼ .64)and internal consistency with alphas ranging from 0.86 to 0.91.”
Quote in the paperNot a substantial claim0 of 1 sources checked- cites Walker & Greene, 1991 source
May combine two claims.
Study design and conductcitationUsing only parents who were initially elevated has the potential to capitalize on regression to the mean and may overestimate effects.
“This strategy should be viewed carefully, as using only those who were initially elevated has the potential to capitalize on regression to the mean (Kazdin, 2002), a statistical phenomenon showing that scores further from a mean tend to move toward the mean over time.”
- Also stated in: § Discussion · hedged
“Second, analyses that used only those with elevated baseline scores may capitalize on regression to the mean (Kazdin, 2002) and may overestimate effects.”
Quote in the paperSubstantial claim0 of 1 sources checked- cites Kazdin, 2002
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
- Also stated in: § Discussion · hedged
Probably not a substantial claim: may not pass S3 (load-bearing).
PremisecitationGender differences have also been observed in parenting stress.
“Gender differences have also been observed in parenting stress.”
Quote in the paperNot a substantial claimMay combine two claims.
Interpretationown dataFindings identify increasing psychological flexibility and cognitive reappraisal, and decreasing emotional suppression as potential mediators of change and targets for parenting interventions.
“Additionally, findings identify increasing psychological flexibility and cognitive reappraisal, and decreasing emotional suppression as potential mediators of change and targets for parenting interventions.”
Quote in the paperSubstantial claimProbably not a substantial claim: may not pass S3 (load-bearing). May combine two claims.
Study design and conductown dataThis study was approved by the hospital's Institutional Review Board, and parents provided appropriate informed consent.
“This study was approved by the hospital's Institutional Review Board, and parents were invited to participate and provided appropriate informed consent.”
Quote in the paperNot a substantial claim
The paper relies on this without support.
Changes in parent psychosocial functioning over the course of IIPT are attributable to the parent-focused intervention rather than to time, child treatment, or other factors.
“Findings support the benefit of parent-focused interventions in addition to child-focused interventions.”
“Brief, parent-focused intervention including psychoeducation, therapeutic art, and psychotherapy targeting mindfulness, acceptance, and values had a significant impact on these parents, particularly those with greater struggles at baseline.”
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
Each contradiction between two passages listed here was confirmed by an independent check.
Emotional-support interval conflicts with nonsignificant result
MinorThe full-sample table gives the weekly emotional-support change a 95% confidence interval entirely above zero, but the text says the change was not statistically significant at the .05 level.
“Emotional support 69 48.62 a 0.647 d [0.04 to 1.33]”
“Significant differences were not observed for emotional support (p > .05)or social isolation (p>.05).”
Emotional-support gender significance conflicts with its interval
MinorTable II marks the parent-gender estimate for emotional support as significant at p < .05, although its reported 95% confidence interval includes zero. The text also says gender was not significant in any of these models.
“Emotional Support 13 31.55 a 3.064 b [0.91 to 5.22] 5.492 c [ -0.87 to 11.86]”
“Parent gender was not a statistically significant variable in any of these equations.”
Depression test statistic has opposite signs
MinorThe Results section reports a positive t statistic for the change in depression, while the abstract reports a negative one for the same result. The reported weekly change is also negative.
“depression (t ¼ 3.59, p < .001)”
“depression (t ¼ -3.59, p <.001)”
Depression gender estimate falls outside its stated interval
MinorIn Table II, the parent-gender estimate of −1.528 falls outside its reported 95% confidence interval of −9.95 to −1.59. That interval also excludes zero, conflicting with the statement that gender was not significant in these models.
“Depression 22 65.25 a -2.655 a [ -3.72 to -1.59] -1.528 [ -9.95 to -1.59]”
“Parent gender was not a statistically significant variable in any of these equations.”
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Flagged first, then by citations
Cited by
Sorted by citations
Black, W. R., Hart, H., Christofferson, J. L., Connelly, M. A., Goubert, L., Wallace, D. P., Ellingson, L. D., & Davis, A. M. (2025) · Journal of Clinical Medicine · doi:10.3390/jcm14217621 · Cited by 5 · see citing works
“This is consistent with prior findings identifying acceptance-based coping as critical in facilitating sustained engagement in meaningful activities even with ongoing pain [36,52].”
Self-citationRicart, B., & Carter, J. S. (2024) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsae019 · Cited by 1 · see citing works
Black, W. R., Black, L. L., Christofferson, J. L., Goubert, L., Hoffart, C. M., & Wallace, D. P. (2026) · PAIN Reports · doi:10.1097/pr9.0000000000001400
Self-citation
- Authors
- Christofferson, J., Scheurich, J. A., Black, W. R., Hoffart, C. M., & Wallace, D. P.
- Affiliations
- Children's Mercy Hospital (US)
- Corresponding author
- Wallace, Dustin P
- Venue
- Journal of Pediatric Psychology
- Publisher
- Oxford University Press (OUP)
- Published
- 2023-12-13
- Volume
- 49
- Issue
- 5
- Pages
- 309-317
- ISSN
- 0146-8693 (ISSN-L)
- 1465-735X
- OpenAlex
- W4389704366
- Cited by
- 3
- References
- 45
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 1
- FWCI
- 1.10
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Pediatric Psychology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- parent-focused intervention, parental anxiety, parental depression, social isolation, emotional support, psychological flexibility, cognitive reappraisal, emotional suppression, mindfulness, acceptance and commitment therapy, art therapy, psychoeducation
- MeSH terms
- Psychosocial Functioning, Adolescent, Adult, Anxiety, Child, Depression, Female, Humans, Male, Parents, Psychotherapy, Surveys and Questionnaires, Chronic Pain, Pain Management
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Claims read by deepseek-v4.1-flash under definition version 3 (extract-v3) on 2026-10-11.
Classified by jev-1.13-20260917 (gold-guideline-v0.2) on 2026-10-11.
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