Home discharge following critical illness: A qualitative analysis of family caregiver experience
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Background Few studies have longitudinally explored the experience and needs of family caregivers of ICU survivors after patients' home discharge.Methods Qualitative content analysis of interviews drawn from a parent study that followed family caregivers of adults ICU survivors for 4 months post-ICU discharge.Results Family caregivers (n = 20, all white, 80% woman) viewed home discharge as positive progress, but reported having insufficient time to transition from family visitor to the active caregiver role. Caregivers expressed feelings of relief during the steady recovery of family members' physical and cognitive function. However, the slow pace of improvement conflicted with their expectations. Even after patients achieved independent physical function, emotional needs persisted and these issues contributed to caregivers' anxiety, worry, and view that recovery was incomplete.Conclusion Family caregivers of ICU survivors need information and skills to help managing patients' care needs, pacing expectations with actual patients' progress, and caregivers' health needs.
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The updated literature search identified no new RCTs but two meta-analyses comparing continuous and intermittent renal replacement therapies.
“Our updated literature search identified no new RCTs but two meta-analysis comparing continuous and intermittent renal replacement therapies (503, 504).”
From Surviving Sepsis Campaign: International Guidelines for Management of Sepsis and Septic Shock 2021. (2021) · cites this paper as [503]
The Methods (Data Analysis; page unavailable) describe qualitative analysis of caregiver interviews, not an updated literature search. Searches of our copy for renal replacement therapies, RCTs, and the claimed meta-analyses found no passage addressing the claim. (LLM, conf=0.78)
Experimental — accuracy not yet measuredFamily caregivers of critically ill patients discharged home felt overwhelmed, unprepared, and had difficulty managing expectations.
“Family caregivers of critically ill patients discharged home felt overwhelmed and unprepared and had difficulty managing expectations [593].”
From Surviving sepsis campaign: international guidelines for management of sepsis and septic shock 2021 (2021) · cites this paper as [593]
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- Authors
- Choi, J., Lingler, J. H., Donahoe, M. P., Happ, M. B., Hoffman, L. A., & Tate, J. A.
- Affiliations
- University of Pittsburgh (US)
- The Ohio State University (US)
- Corresponding author
- Choi, JiYeon
- ORCID
- Venue
- Heart & Lung
- Publisher
- Elsevier BV
- Published
- 2018-07
- Volume
- 47
- Issue
- 4
- Pages
- 401-407
- ISSN
- 0147-9563 (ISSN-L)
- PMC
- PMC6026552
- OpenAlex
- W2799482615
- Cited by
- 77
- References
- 42
- Citations by year
- 2026: 8 · 2025: 19 · 2024: 12 · 2023: 10 · 2022: 10 · 2021: 10 · 2020: 5 · 2019: 3
- FWCI
- 5.93
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Heart & Lung (acceptedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- YUHSpace (Yonsei University Medical Library) (submittedVersion, cc-by-nc-nd)
- Funders
- National Institute of Nursing Research (F32 NR 011271, T32 NR 008857)
- Fellow Research Award from Rehabilitation Nursing Foundation (FEL-0905)
- Topics
- Health Sciences › Health Professions › Radiological and Ultrasound Technology › Family and Patient Care in Intensive Care Units
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Critical Care and Intensive Care Medicine › Intensive Care Unit Cognitive Disorders
- Keywords
- family caregivers, intensive care unit survivors, home discharge, critical illness, caregiver experiences, caregiver anxiety, caregiver needs, caregiver education, post-ICU recovery
- MeSH terms
- Adult, Aged, Aged, 80 and over, Family, Female, Patient Care, Health Services Needs and Demand, Humans, Intensive Care Units, Longitudinal Studies, Male, Middle Aged, Patient Discharge, Critical Illness, Caregivers, Survivors, Qualitative Research, Young Adult
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