High treatment burden in adults with cystic fibrosis: challenges to disease self-management

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Items 201–300 of 497

1. Experiences of adults with cystic fibrosis in adhering to medication regimens
   Marilyn Macdonald, Ruth Martin‐Misener, Melissa Helwig, Lisa Janette Smith, Christina M. Godfrey, Janet Curran, Andrea Lynn Murphy · 2016 · The JBI Database of Systematic Reviews and Implementation Reports
2. Mental Health Screening of Medically-Admitted Patients With Cystic Fibrosis
   Georgina García, Carolyn Snell, Gregory S. Sawicki, Laura E. Simons · 2017 · Psychosomatics
3. Trajectories of caregiver burden in families of adult cystic fibrosis patients
   Ann Wojtaszczyk, Myra Glajchen, Russell K. Portenoy, Maria N. Berdella, Patricia Walker, Malcolm Barrett, Jack Chen, Amy Plachta, Julie E. Balzano, Ashley Fresenius et al. · 2017 · Palliative & Supportive Care
4. Tobramycin inhalation powder (TOBI Podhaler®) for the treatment of lung infection in patients with cystic fibrosis
   Emma Vázquez-Espinosa, Celeste Marcos, T. Alonso, Rosa María Girón, Rosa Mar Gómez-Punter, Elena García Castillo, Enrique Zamora, Carolina Cisneros, J. Garcia, Claudia Valenzuela et al. · 2015 · Expert Review of Anti-infective Therapy
5. Treatment compliance in cystic fibrosis patients with chronic Pseudomonas aeruginosa infection treated with tobramycin inhalation powder: The FREE study
   Francesco Blasi, Vincenzo Carnovale, Giuseppe G. Cimino, V. Lucidi, Donatello Salvatore, Barbara Messore, Marta Bartezaghi, Elisa Muscianisi, Pasquale Alberto Porpiglia · 2018 · Respiratory Medicine
6. Disease caused by non-tuberculous mycobacteria in children with cystic fibrosis
   Mimi Lu, Vishal Saddi, Philip N Britton, Hiran C. Selvadurai, Paul D. Robinson, Chetan Pandit, Ben J. Marais, Dominic A. Fitzgerald · 2018 · Paediatric Respiratory Reviews
7. Telemedicine in cystic fibrosis
   Marisa E. Desimone, Jordan S. Sherwood, Sarah Soltman, Antoinette Moran · 2021 · Journal of Clinical & Translational Endocrinology
8. Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis
   Dawson, Sophie, Girling, Carla-Jane, Cowap, Lisa, Clark-Carter, David · 2023 · Cochrane Database of Systematic Reviews
9. Medical traumatic stress in cystic fibrosis: A qualitative analysis
   Addison A. Cuneo, Simon Michael Outram, Meghan L. Marsac, Siena S. Vendlinski, Melvin B. Heyman, Ngoc P. Ly, Emily von Scheven, Emily Rothbaum Perito · 2023 · Journal of Cystic Fibrosis
10. Living with cystic fibrosis – a qualitative study of a life coaching intervention
    Karin Bæk Knudsen, Kirsten Arntz Boisen, Terese Lea Katzenstein, Laust Hvas Mortensen, Tacjana Pressler, Marianne Skov, Mary Jarden · 2018 · Patient Preference and Adherence
11. Population Pharmacokinetics of Inhaled Tobramycin Powder in Cystic Fibrosis Patients
    Lillian S. L. Ting, Sergey Aksenov, SG Bhansali, R. Ramakrishna, P Tang, DE Geller · 2014 · CPT Pharmacometrics & Systems Pharmacology
12. Bronchodilators in cystic fibrosis: a critical analysis
    Peter James Barry, Patrick A. Flume · 2016 · Expert Review of Respiratory Medicine
13. Estimating Direct Cost of Cystic Fibrosis Care Using Irish Registry Healthcare Resource Utilisation Data, 2008–2012
    Abaigeal D. Jackson, Andrew L. Jackson, G. Fletcher, Gerardine Doyle, Mary Harrington, Shijun Zhou, Fiona Cullinane, Charles G. Gallagher, Edward F. McKone · 2017 · PharmacoEconomics
14. Pharmacological management of cystic fibrosis related diabetes
    Amir A. Moheet, Antoinette Moran · 2017 · Expert Review of Clinical Pharmacology
15. Hospitalization rates among patients with cystic fibrosis using pancreatic enzyme replacement therapy
    Bruce C. Trapnell, Chen Su, Rupal Khurmi, Amit R. Bodhani, Mudra Kapoor, Mark E. Haupt · 2020 · Chronic Respiratory Disease
16. Cystic fibrosis – Ten promising therapeutic approaches in the current era of care
    Ranjani Somayaji, Dave P Nichols, Scott Cameron Bell · 2020 · Expert Opinion on Investigational Drugs
17. Feasibility study for supporting medication adherence for adults with cystic fibrosis: mixed-methods process evaluation
    Daniel Hind, Sarah J Drabble, Madelynne A Arden, Laura Mandefield, Simon Waterhouse, Chin Maguire, Hannah Cantrill, Louisa Robinson, Daniel Beever, Alexander J. Scott et al. · 2020 · BMJ Open
18. Treatment satisfaction in cystic fibrosis: early patient experience with tobramycin inhalation powder
    Jonathan Greenberg, Jacqueline Palmer, Wing W. Chan, Catherine E. Correia, D Whalley, Paul Shannon, Gregory S. Sawicki · 2016 · Patient Preference and Adherence
19. Development and validation of CF-Medication Beliefs Questionnaire: A mixed-methods approach
    Michelle N. Eakin, Shang-en Chung, Jessica Hoehn, Belinda Borrelli, Devin Rand-Giovannetti, Kristin A. Riekert · 2017 · Journal of Cystic Fibrosis
20. What is the role of noninvasive ventilation in cystic fibrosis?
    Rowland J. Bright-Thomas, Susan C. Johnson · 2014 · Current Opinion in Pulmonary Medicine
21. Drug interactions and treatment burden as survival improves
    David P. Nichols, Kelly N. Kuk, Jerry A. Nick · 2015 · Current Opinion in Pulmonary Medicine
22. “Thrust out of normality”—How adults living with cystic fibrosis experience pulmonary exacerbations: A qualitative study
    Gabriela Schmid‐Mohler, Ann‐Louise Caress, Rebecca Spirig, Christian Benden, Janelle Yorke · 2018 · Journal of Clinical Nursing
23. Colistin dry powder inhalation with the Twincer™: An effective and more patient friendly alternative to nebulization
    Anne M. Akkerman‐Nijland, Floris Grasmeijer, Huib A.M. Kerstjens, Henderik Willem Frijlink, H. van der Vaart, Judith M. Vonk, Paul Hagedoorn, Bart L. Rottier, Gerard H. Koppelman, Onno W. Akkerman · 2020 · PLoS ONE
24. Management of Cystic Fibrosis during COVID-19: Patient Reported Outcomes based remote follow-up among CF patients in Denmark – A feasibility study
    Lotte Ørneborg Rodkjær, Majbritt Jeppesen, Liv Marit Valen Schougaard · 2021 · Journal of Cystic Fibrosis
25. ACT with CF: A randomized trial of acceptance and commitment therapy vs supportive psychotherapy for adults with cystic fibrosis.
    O'Hayer, C. Virginia, Smith, Patrick J., Drescher, Christopher F., Bruschwein, Heather, Nurse, Chelsi N., Kushner, Hallie M., Ingle, Krista, Stephen, Michael J., Hoag, Jeffrey B. · 2024 · General Hospital Psychiatry
26. Exercise versus airway clearance techniques for people with cystic fibrosis
    Katie Patterson, Adam Walsh, Pamela McCormack, Kevin W Southern · 2019 · Cochrane Database of Systematic Reviews
27. Exploring the nature of perceived treatment burden: a study to compare treatment burden measures in adults with cystic fibrosis
    Rana Altabee, S.B. Carr, Janice Abbott, Rory A. Cameron, Daniel Office, Jessie Matthews, Nicholas J. Simmonds, Rebecca Cosgriff, David Turner, Jennifer A. Whitty · 2022 · NIHR Open Research
28. Longitudinal Study of Therapeutic Adherence in a Cystic Fibrosis Unit: Identifying Potential Factors Associated with Medication Possession Ratio
    Rosa María Girón, Adrián Peláez, Amparo Ibáñez, Elisa Martínez-Besteiro, Rosa Mar Gómez-Punter, Adrián Martínez-Vergara, Julio Ancochea, Alberto Morell · 2022 · Antibiotics
29. Aiming to Improve Equity in Pulmonary Health: Cystic Fibrosis
    Gabriela R. Oates, Michael S. Schechter · 2023 · Clinics in Chest Medicine
30. Impact of elexacaftor/tezacaftor/ivacaftor on utilization of routine therapies in cystic fibrosis: Danish nationwide register study
    Hans Kristian Råket, Camilla Bjørn Jensen, Joanna Nan Wang, Tacjana Pressler, Hanne Vebert Olesen, Marianne Skov, Søren Jensen‐Fangel, Janne Petersen, Espen Jimenez‐Solem · 2024 · Journal of Cystic Fibrosis
31. Strengthening care teams to improve adherence in cystic fibrosis: a qualitative practice assessment and quality improvement initiative
    Allison J. Gardner, Alice Gray, Staci T. Self, Jeffrey S. Wagener · 2017 · Patient Preference and Adherence
32. The Cystic Fibrosis Impact Questionnaire: qualitative development and cognitive evaluation of a new patient-reported outcome instrument to assess the life impacts of cystic fibrosis
    Kelly P. McCarrier, Mariam Hassan, Paul Hodgkins, Ellison Dial Suthoff, Lisa J. McGarry, Mona L. Martin · 2020 · Journal of Patient-Reported Outcomes
33. Drug induced complications; can we do more?
    Daniel Gavin Peckham, Paul Whitaker · 2013 · Journal of Cystic Fibrosis
34. Gaining the Upper Hand on Pulmonary Drug Delivery
    Robert Tarran Jean Tyrrell · 2014 · Journal of Pharmacovigilance
35. Daily Observations of Nebuliser Use and Technique (DONUT) in children with cystic fibrosis
    Aukje C. Bos, Harm A.W.M. Tiddens, Kirby Tong Minh, Inge Heeres, Joke L. Overweel-Uijterlinde, Annelies E. Kok, Eleni‐Rosalina Andrinopoulou, Hettie M. Janssens · 2016 · Journal of Cystic Fibrosis
36. Elexacaftor/tezacaftor/ivacaftor is associated with long-term reduction in use of chronic respiratory therapies in cystic fibrosis
    Scott D. Sagel, Phuong T. Vu, Sonya L. Heltshe, George Marty Solomon, Andrea True Kelly, Jessica E. Pittman, Margaret Rosenfeld, Felix A. Ratjen · 2025 · Journal of Cystic Fibrosis
37. Clinician perspectives on assessing for disordered eating and body image disturbance in adolescents and young adults with cystic fibrosis
    Alexandra P. Kass, Traci M. Kazmerski, Elana M. Bern, Sabina Sabharwal, Jessica Leonard, Moira Harrison, Katherine Barnico, Tracy K. Richmond, Gregory S. Sawicki · 2022 · Journal of Cystic Fibrosis
38. Experiences and perceptions of receiving and prescribing rehabilitation in adults with cystic fibrosis undergoing lung transplantation
    Lisa M. Wickerson, Rajan Singh Grewal, Lianne Gail Singer, Cecilia Chaparro · 2023 · Chronic Respiratory Disease
39. Impact of Discontinuing Both Hypertonic Saline and Dornase Alfa after Elexacaftor-Tezacaftor-Ivacaftor in Cystic Fibrosis
    Nicole Mayer-Hamblett, Alex H. Gifford, Margaret Kloster, Renee Russell, Andrew T. Braun, Ronald L. Gibson, Jordana E. Hoppe, Raksha Jain, Rachel W. Linnemann, Theodore G. Liou et al. · 2024 · Annals of the American Thoracic Society
40. Potential, Pitfalls, and Future Directions for Remote Monitoring of Chronic Respiratory Diseases: Multicenter Mixed Methods Study in Routine Cystic Fibrosis Care
    Martinus C Oppelaar, Yvette Emond, Michiel A. G. E. Bannier, Monique H E Reijers, Hester van der Vaart, Renske van der Meer, Josje Altenburg, Lennart H. Conemans, Bart L. Rottier, Marianne Nuijsink et al. · 2024 · Journal of Medical Internet Research
41. An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT
    Martin James Wildman, Alicia O’Cathain, Daniel Hind, Chin Maguire, Madelynne A Arden, Marlene Hutchings, Judy Martina Bradley, Stephen J. Walters, Pauline Whelan, John D. Ainsworth et al. · 2021 · Programme Grants for Applied Research
42. Short-term structural and functional changes after airway clearance therapy in cystic fibrosis
    Michael E. West, David R. Spielberg, David J. Roach, Matthew M. Willmering, Abdullah S. Bdaiwi, Zackary I. Cleveland, Jason C. Woods · 2023 · Journal of Cystic Fibrosis
43. Pharmacogenetic actionability and medication prescribing in people with cystic fibrosis
    Justin D. Anderson, Brittney H. Davis, Gracie Giang, April Jones, Cameron R. Lee, Kennedy L. Parker, Heather Searcy, Kim W. Benner, Nita A. Limdi, Jennifer Susan Guimbellot · 2023 · Clinical and Translational Science
44. Mobile health platform for self-management of pediatric cystic fibrosis: Impact on patient-centered care outcomes
    Gabriela R. Oates, Cathy Mims, Robin Geurs, Rikard Palmer Bergquist, Andreas Hager, Jennifer Susan Guimbellot, Anastasia M. Hartzes, Hector H. Gutierrez · 2023 · Journal of Cystic Fibrosis
45. Inhaled antibiotics
    Julie A. Biller · 2015 · Current Opinion in Pulmonary Medicine
46. Adherence to tobramycin inhaled powder vs inhaled solution in patients with cystic fibrosis: analysis of US insurance claims data
    Kamal A. Hamed, Valentino Conti, Huichuan Tian, Emil Loefroth · 2017 · Patient Preference and Adherence
47. Exploring the Potential for Technology to Improve Cystic Fibrosis Care Provision
    Sunil Rodger, Kenton P. O'Hara · 2019 · Proceedings of the ACM on Human-Computer Interaction
48. Lung transplant referral practice patterns: a survey of cystic fibrosis physicians and general pulmonologists
    Bethany L. Bartley, Carolyn Emily Schwartz, Roland B. Stark, Anna M. Georgiopoulos, Deborah Friedman, Christopher J. Richards, Henry L. Dorkin, Thomas Bernard Kinane, Isabel P. Neuringer, Lael M. Yonker · 2020 · BMC Pulmonary Medicine
49. Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
    Elizabeth T. Trandel, Dio Kavalieratos, Melissa J. Basile, Mara R. Hobler, Anna M. Georgiopoulos, Elaine Y. Chen, Jessica L. Goggin, Christopher Hooper Goss, Sarah E. Hempstead, Albert Faro et al. · 2020 · Pediatric Pulmonology
50. Exploring the complexity of cystic fibrosis (CF) and psychosocial wellbeing in the 2020s: Current and future challenges
    Rebecca Dobra, Sarah Carroll, Jane Carolyn Davies, F. Dowdall, Alistair J A Duff, A. Elderton, Anna M. Georgiopoulos, R.A. Massey-Chase, Paul McNally, Michèle Puckey et al. · 2024 · Paediatric Respiratory Reviews
51. Pharmacists’ perspectives on monitoring adherence to treatment in Cystic Fibrosis
    Karen M. Mooney, Cristín A. Ryan, Damian G. Downey · 2015 · International Journal of Clinical Pharmacy
52. Enhancing intrinsic motivation for physical activity among adolescents with cystic fibrosis: a qualitative study of the views of healthcare professionals
    Sarah Denford, Kelly Alexandra Mackintosh, Melitta Anne McNarry, ALAN ROBERT BARKER, Craig Anthony Williams · 2019 · BMJ Open
53. Use of inhaled antibiotics among Danish patients with cystic fibrosis
    Rikke Møller, Bibi Uhre Nielsen, Daniel Faurholt‐Jepsen, Terese Lea Katzenstein, Marianne Skov, Lue Katrine Drasbæk Philipsen, Tacjana Pressler, Helle Krogh Johansen, Tavs Qvist · 2022 · Pediatric Pulmonology
54. Incorporating exercise into the routine care of individuals with cystic fibrosis: is the time right?
    Fidelma M. Moran, Judy Martina Bradley · 2010 · Expert Review of Respiratory Medicine
55. Seeing is Engaging: Vlogs as a Tool for Patient Engagement
    Joy Li-Yueh Lee, Mary Frey, Peter Frey, Ilene L. Hollin, Albert W. Wu · 2017 · Patient
56. Airways Clearance Techniques in Cystic Fibrosis: Physiology, Devices and the Future
    H. Adrian · 2012 · InTech eBooks
57. The impact of elexacaftor/tezacaftor/ivacaftor on cystic fibrosis health-related quality of life and decision-making about daily treatment regimens: a mixed methods exploratory study
    Melissa J. Basile, Jennifer Polo, Katherine Henthorne, J. DeCelie-Germana, Susan Galvin, Janice Wang · 2024 · Therapeutic Advances in Chronic Disease
58. Preferences and Stated Adherence for Antibiotic Treatment of Cystic Fibrosis Pseudomonas Infections
    Ateesha Farah Mohamed, F. Reed Johnson, Maria‐Magdalena Balp, F Calado · 2015 · Patient
59. Near Elimination of In Vitro Predicted Extrathoracic Aerosol Deposition in Children Using a Spray-Dried Antibiotic Formulation and Pediatric Air-Jet DPI
    Dale R. Farkas, Morgan L. Thomas, Amr Hassan, Serena Bonasera, Michael Hindle, P. Worth Longest · 2022 · Pharmaceutical Research
60. Exercise as an Airway Clearance Technique in people with Cystic Fibrosis (ExACT-CF): rationale and study protocol for a randomised pilot trial
    Don S. Urquhart, Steve Cunningham, Emily Taylor, Ioannis Vogiatzis, Lorna J Allen, Steff C. Lewis, Aileen Rae Neilson, Dia Soilemezi, Naseerah Akooji, ZOE LOUISE SAYNOR · 2022 · NIHR Open Research
61. Online activity – A beaming good initiative! Delivering alternative exercise opportunities for people with cystic fibrosis
    Lisa Morrison, G. McCrea, S Palmer · 2023 · Physiotherapy Theory and Practice
62. Perspectives and Theories of Social Innovation for Ageing Population
    Andrzej Klimczuk, Łukasz Tomczyk · 2020 · Frontiers research topics
63. Emerging Nonpulmonary Complications for Adults With Cystic Fibrosis
    Melanie Chin, Amanda L. Brennan, Scott Cameron Bell · 2021 · CHEST Journal
64. La kinésithérapie respiratoire en pédiatrie
    Nicolas Audag, J.‐C. Dubus, Yann Combret · 2022 · Revue des Maladies Respiratoires
65. Analyzing the use and impact of elexacaftor/tezacaftor/ivacaftor on total cost of care and other health care resource utilization in a commercially insured population
    Spenser S. Smith, Molly Borchardt · 2022 · Journal of Managed Care & Specialty Pharmacy
66. Differential Performance and Lung Deposition of Levofloxacin with Different Nebulisers Used in Cystic Fibrosis
    C. Schwarz, Claudio Procaccianti, Laura Costa, Riccardo Brini, Richard Friend, Grazia Caivano, Hosein Sadafi, Charles Mussche, Nicolas Schwenck, Michael Hahn et al. · 2022 · International Journal of Molecular Sciences
67. Burden of treatment in the light of the international classification of functioning, disability and health: a “best fit” framework synthesis
    Ana‐Carolina Gonçalves, Cristina Isabel Oliveira Jácome, Sara Holtum Demain, Katherine J. Hunt, Alda Sofia Pires De Dias Marques · 2016 · Disability and Rehabilitation
68. Associations between genetics, medical status, physical exercise and psychological well-being in adults with cystic fibrosis
    Lena Backström-Eriksson, Agneta Bergsten Brucefors, Lena Hjelte, Bo Melin, Kimmo Sorjonen · 2016 · BMJ Open Respiratory Research
69. Evaluation of Medication-related Self-care Skills in Patients With Cystic Fibrosis
    Kelsey Lackey Lewis, Barnabas M. John, Michelle E. Condren, Sandra M. Carter · 2016 · The Journal of Pediatric Pharmacology and Therapeutics
70. A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis
    Smita Sakha Pakhale, Justine Baron, Michael B. Armstrong, Giorgio Angelo Tasca, Ena Gaudet, Shawn David Aaron, D. William Cameron, Louise Balfour · 2015 · PLoS ONE
71. An exploration of partnership through interactions between young ‘expert’ patients with cystic fibrosis and healthcare professionals
    Kath MacDonald, Lindesay Irvine, Margaret Coulter Smith · 2015 · Journal of Clinical Nursing
72. Physical Activity and Sedentary Behavior in Adults With Cystic Fibrosis: Association With Aerobic Capacity, Lung Function, Sleep, Well-Being, and Quality of Life
    Máire Curran, Audrey C. Tierney, Brenda Button, Louise Collins, Lauren Kennedy, Ciara McDonnell, Ali Sheikhi, Andrew J. Jurascheck, Brian P. Casserly, Róisín Cahalan · 2021 · Respiratory Care
73. Interventions for improving adherence to airway clearance treatment and exercise in people with cystic fibrosis
    Mandy Jones, Fiona Moffatt, Alex Harvey, Jennifer Mary Ryan · 2023 · Cochrane Database of Systematic Reviews
74. Health Trajectories in People with Cystic Fibrosis in the UK: Exploring the Effect of Social Deprivation
    David Carlton Taylor-Robinson, Peter John Diggle, Rosalind Louise Smyth, Margaret M. Whitehead · 2015 · Life course research and social policies
75. Sildenafil improves exercise capacity in patients with cystic fibrosis: a proof-of-concept clinical trial
    Paula Rodriguez‐Miguelez, Haruki Ishii, Nichole Seigler, Reva H. Crandall, Jeffrey Thomas, Caralee J. Forseen, Kathleen T. McKie, Ryan Alan Harris · 2019 · Therapeutic Advances in Chronic Disease
76. Development and Validation of the AdT-Physio Scale: A Tool to Assess Adherence and Perception of Physical Therapist Intervention in Patients With Cystic Fibrosis
    Tamara del Corral, Roy La Touche, Maria Àngels Cebrià i Iranzo, Ricardo Olmos, Fernando Blanco-Royano, Ibai López‐de‐Uralde‐Villanueva · 2020 · Physical Therapy
77. Living with cystic fibrosis during the COVID-19 pandemic: a social connectedness perspective
    Maggie Harrigan, Kellie Bennett, Siobhain A. Mulrennan, Melanie Jessup · 2022 · International Journal of Qualitative Studies on Health and Well-Being
78. Partners in research: The success with therapies research consortium and the CF community unite to improve self-management
    Gregory S. Sawicki, Andrea S. Goodman, Callie Bacon, Lauren Collins, Jonathan Greenberg, Christina L. Duncan, Carla Frederick, Shelby Luebbert, Sylvia Mazuera, Deepika Polineni et al. · 2023 · Journal of Cystic Fibrosis
79. Nebuliser systems for drug delivery in cystic fibrosis
    Gemma E. Stanford, Lisa Morrison, Catherine Brown · 2023 · Cochrane Database of Systematic Reviews
80. Striving for perfection, accepting the reality: A reflection on adherence to airway clearance and inhalation therapy for paediatric patients with chronic suppurative lung disease
    Emma Dixon, Michèle Puckey, Nicola Collins, Gemma Sarah Marsh, Rishi Pabary · 2019 · Paediatric Respiratory Reviews
81. Inspiration for the Future: The Role of Inspiratory Muscle Training in Cystic Fibrosis
    Ren‐Jay Shei, Robert L. Dekerlegand, Kelly Alexandra Mackintosh, John D. Lowman, Melitta Anne McNarry · 2019 · Sports Medicine - Open
82. Assessing and responding to stress related to pulmonary function testing in cystic fibrosis through quality improvement
    Kelsey B. Nusbaum, Stephanie Spear Filigno, Julie Feldstein, Elizabeth A. Hente, Elizabeth Koch, Lisa Mullen, Jeanne Weiland, Thomas F. Boat, Christopher M. Siracusa · 2020 · Pediatric Pulmonology
83. Treatment burden is important to patients but often overlooked by clinicians
    Claudia Caroline Dobler · 2021 · Breathe
84. Socioeconomic burden of cystic fibrosis in Canada
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85. Self-reported chronic therapy use after 24-weeks of follow-up by participants who completed the simplify randomized, controlled trial
    Alex H. Gifford, Katherine Odem‐Davis, Margaret Kloster, Brian P. O'Sullivan, Gregory J. Omlor, Susan L Millard, John Paul Clancy, Gregory S. Sawicki, Kristin A. Riekert, Nicole Mayer-Hamblett et al. · 2024 · Journal of Cystic Fibrosis
86. Measurement of treatment burden in cystic fibrosis: A systematic review
    Rana Altabee, Martin Jack Mwamba, David Turner, Gwyneth Davies, Janice Abbott, Nicholas J. Simmonds, Jennifer A. Whitty, S.B. Carr, Garry Barton, Rory A. Cameron · 2024 · Journal of Cystic Fibrosis
87. Discontinuation of supportive therapies in people with cystic fibrosis treated with elexacaftor/tezacaftor/ivacaftor – A patient-reported outcomes’ study
    Simone Ahting, Mandy Vogel, B Wollschläger, Constance Henn, C. Ludwig, Ulrike Issa, A.-L. Strehlow, Maike vom Hove, Julia Hentschel, Freerk Prenzel · 2025 · Respiratory Medicine
88. Adult patients’ experiences of symptom management during pulmonary exacerbations in cystic fibrosis: A thematic synthesis of qualitative research
    Gabriela Schmid‐Mohler, Janelle Yorke, Rebecca Spirig, Christian Benden, Ann‐Louise Caress · 2018 · Chronic Illness
89. High‐dose Cholecalciferol Supplementation in Adults with Cystic Fibrosis
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90. Steps Ahead: optimising physical activity and health in people with cystic fibrosis: Study Protocol for a pilot randomised trial
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91. Objective Nebuliser Adherence Data as “Proof” of Adherence in the Management of Cystic Fibrosis: A Qualitative Interview Study
    Elizabeth Lumley, Sarah J Drabble, Anne Scott, Martin James Wildman, Alicia O'Cathain · 2022 · Patient Preference and Adherence
92. Transitions of Care in Cystic Fibrosis
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93. The cost of simplifying treatments for cystic fibrosis: Implications of the SIMPLIFY trial
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94. Self-care and cystic fibrosis: a review of research with adults
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95. Lack of evidence of increased risk of bacterial transmission during cystic fibrosis educational programmes
    Winnie Ridderberg, Camilla Andersen, Michael Væth, Vibeke Bregnballe, Niels Nørskov‐Lauritsen, Peter Oluf Schiøtz · 2015 · Journal of Cystic Fibrosis
96. Adherence to infection prevention and control guidelines: A vignette-based study of decision-making and risk-taking in young adults with cystic fibrosis
    Grace Bowmer, Gary J. Latchford, Alistair J A Duff, Miles Denton, Louise Dye, Clare Louise Lawton, Tim Lee · 2016 · Journal of Cystic Fibrosis
97. Defining research priorities in cystic fibrosis. Can existing knowledge and training in biomedical research affect the choice?
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98. Adherence to Aerosol Therapy in Young People With Cystic Fibrosis: Patient and Parent Perspectives Following Electronic Data Capture
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99. Qualitative Assessment of Perceived Organizational Support for Employed Breast Cancer Survivors
    Alicia G. Dugan, Ragan E. Decker, Hannah L. Austin, Sara Namazi, Keith M. Bellizzi, Thomas Blank, William S. Shaw, Helen Swede, Martin G. Cherniack, Susan H. Tannenbaum et al. · 2023 · Journal of Occupational and Environmental Medicine
100. Transition and transfer of young people with cystic fibrosis to adult care
     Grace Bowmer, C. Sowerby, Alistair J A Duff · 2018 · Nursing Children and Young People