High treatment burden in adults with cystic fibrosis: challenges to disease self-management

Cited by (497)

Items 101–200 of 497

1. Development and evaluation of a palliative care curriculum for cystic fibrosis healthcare providers
   Rachel W. Linnemann, Patricia J. O’Malley, Deborah Friedman, Anna M. Georgiopoulos, David Buxton, Lily L. Altstein, Leonard Sicilian, Allen Lapey, Gregory S. Sawicki, Samuel M. Moskowitz · 2015 · Journal of Cystic Fibrosis
2. Patient experiences of the burden of using medicines for long-term conditions and factors affecting burden: A cross-sectional survey
   Janet Krska, Barbra Katusiime, Sarah A. Corlett · 2018 · Health & Social Care in the Community
3. Technological and behavioral strategies to reduce treatment burden and improve adherence to inhaled antibiotics in cystic fibrosis
   David E. Geller, Susan L. Madge · 2011 · Respiratory Medicine
4. Physiotherapy in cystic fibrosis: optimising techniques to improve outcomes
   S. Rand, LJ Hill, S. Ammani Prasad · 2012 · Paediatric Respiratory Reviews
5. Palliative and end-of-life care in cystic fibrosis: what we know and what we need to know
   Walter M. Robinson · 2009 · Current Opinion in Pulmonary Medicine
6. Inhalation of tobramycin using simulated cystic fibrosis patient profiles
   Alfred Haynes, David E. Geller, Jeffry G. Weers, Brian Ament, Richard Pavkov, Richard Malcolmson, Laurie DeBonnett, Paul Mastoridis, Anthony M. Yadao, Silvia Heuerding · 2016 · Pediatric Pulmonology
7. Longitudinal impact of demographic and clinical variables on health-related quality of life in cystic fibrosis
   Janice Abbott, Alison M Morton, M. A. Hurley, S.P. Conway · 2015 · BMJ Open
8. Randomized trial of efficacy and safety of dornase alfa delivered by eRapid nebulizer in cystic fibrosis patients
   Gregory S. Sawicki, Will Chou, Karina Raimundo, Ben Trzaskoma, Michael W. Konstan · 2015 · Journal of Cystic Fibrosis
9. Cystic fibrosis patient registries: A valuable source for clinical research
   Elliott C. Dasenbrook, Gregory S. Sawicki · 2018 · Journal of Cystic Fibrosis
10. Tobramycin Inhalation Powder (TIP): An Efficient Treatment Strategy for the Management of Chronic Pseudomonas Aeruginosa Infection in Cystic Fibrosis
    John C. Lam, Steven Vaughan, Michael D. Parkins · 2013 · Clinical Medicine Insights Circulatory Respiratory and Pulmonary Medicine
11. Airway clearance techniques used by people with cystic fibrosis in the UK
    Zhe Hui Hoo, Tracey E. Daniels, Martin James Wildman, M. Dawn Teare, Judy Martina Bradley · 2015 · Physiotherapy
12. Inhaled mannitol for cystic fibrosis
    Sarah J Nevitt, Judith Thornton, Clare S Murray, Tiffany Dwyer · 2020 · Cochrane Database of Systematic Reviews
13. Daily pain in adolescents with CF: Effects on adherence, psychological symptoms, and health‐related quality of life
    Laura S. Blackwell, Alexandra L. Quittner · 2014 · Pediatric Pulmonology
14. Overcoming psychosocial challenges in cystic fibrosis: Promoting resilience
    Emily Muther, Deepika Polineni, Gregory S. Sawicki · 2018 · Pediatric Pulmonology
15. Associations between Flavonoid Intakes and Gut Microbiota in a Group of Adults with Cystic Fibrosis
    Li Li, Shawn Mark Somerset · 2018 · Nutrients
16. Tobramycin Inhalation Powder™: a novel drug delivery system for treating chronicPseudomonas aeruginosainfection in cystic fibrosis
    Michael D. Parkins, J.S. Elborn · 2011 · Expert Review of Respiratory Medicine
17. The impact of cystic fibrosis-related diabetes on health-related quality of life
    Eugenie Kwong, Sameer Desai, Louise Chong, Kathleen Lee, Jie Zheng, Pearce Wilcox, Bradley S. Quon · 2019 · Journal of Cystic Fibrosis
18. Tobramycin Inhalation Powder: A Review of Its Use in the Treatment of Chronic Pseudomonas aeruginosa Infection in Patients with Cystic Fibrosis
    Kate McKeage · 2013 · Drugs
19. The CF-CARES primary palliative care model: A CF-specific structured assessment of symptoms, distress, and coping
    Deborah Friedman, Rachel W. Linnemann, Lily L. Altstein, Suhayla Islam, Kieu‐Tram Bach, Chelsea Lamb, John Volpe, Caitlin Doolittle, Anita St. John, Patricia J. O’Malley et al. · 2017 · Journal of Cystic Fibrosis
20. Exercise versus airway clearance techniques for people with cystic fibrosis
    Katie D Heinz, Adam Walsh, Kevin W Southern, Zoe Johnstone, Kate Regan · 2022 · Cochrane Database of Systematic Reviews
21. Prevalence of unmet palliative care needs in adults with cystic fibrosis
    Elizabeth T. Trandel, Joseph M. Pilewski, Elisabeth Potts Dellon, Kwonho Jeong, Jonathan Guerrero Yabes, Laura Tycon Moreines, Robert M. Arnold, Zachariah Hoydich, Dio Kavalieratos · 2019 · Journal of Cystic Fibrosis
22. What effective ways of motivation, support and technologies help people with cystic fibrosis improve and sustain adherence to treatment?
    Rebecca J Calthorpe, Sherie J. Smith, Nicola Jane Rowbotham, Paul A. Leighton, Gwyneth Davies, Tracey E. Daniels, Katie Gathercole, Lorna J Allen, Zoe C Elliott, Alan Robert Smyth · 2020 · BMJ Open Respiratory Research
23. Patient-perceived treatment burden of tuberculosis treatment
    Natasha C. H. Ting, Nicole El-Turk, Michael S. H. Chou, Claudia Caroline Dobler · 2020 · PLoS ONE
24. Open randomised prospective comparative multi-centre intervention study of patients with cystic fibrosis and early diagnosed diabetes mellitus
    CFRD Study group, Manfred Ballmann, D. Hubert, Barouk M. Assael, Kai Kronfeld, Marguerite Honer, Reinhard Walter Holl · 2014 · BMC Pediatrics
25. An update on new and emerging therapies for cystic fibrosis
    Kristin M. Hudock, John Paul Clancy · 2017 · Expert Opinion on Emerging Drugs
26. Inhaled mannitol for cystic fibrosis
    Sarah J Nevitt, Judith Thornton, Clare S Murray, Tiffany Dwyer · 2018 · Cochrane Database of Systematic Reviews
27. A Longitudinal Study of the Impact of Social Deprivation and Disease Severity on Employment Status in the UK Cystic Fibrosis Population
    David Carlton Taylor-Robinson, Rosalind Louise Smyth, Peter John Diggle, Margaret M. Whitehead · 2013 · PLoS ONE
28. Adherence to the medical regimen: clinical implications of new findings
    Janice Abbott, Trudy Havermans, Anna Hart · 2009 · Current Opinion in Pulmonary Medicine
29. Pharmacokinetics and pharmacodynamics of high doses of inhaled dry powder drugs
    Manolya Kukut Hatipoglu, Anthony James Hickey, Lucila Garcia‐Contreras · 2018 · International Journal of Pharmaceutics
30. Clustered randomized controlled trial of a clinic-based problem-solving intervention to improve adherence in adolescents with cystic fibrosis
    Quittner, Alexandra L., Eakin, Michelle N., Alpern, Adrianne N., Ridge, Alana K., McLean, Katherine A., Bilderback, Andrew, Criado, Kristen K., Chung, Shang-En, Riekert, Kristin A. · 2019 · Journal of Cystic Fibrosis
31. Accurate reporting of adherence to inhaled therapies in adults with cystic fibrosis: methods to calculate “normative adherence”
    Hoo, Zhe H, Curley, Rachael, Campbell, Michael J, Walters, Stephen J, Hind, Daniel, Wildman, Martin J · 2016 · Patient Preference and Adherence
32. Entering the era of highly effective modulator therapies
    Kavita Dave, Rebecca Dobra, Sandra F. Scott, Clare J. Saunders, Jess Matthews, Nicholas J. Simmonds, Jane Carolyn Davies · 2021 · Pediatric Pulmonology
33. Socioeconomic determinants of respiratory health in patients with cystic fibrosis: implications for treatment strategies
    Gabriela R. Oates, Michael S. Schechter · 2022 · Expert Review of Respiratory Medicine
34. Factors affecting nebulised medicine adherence in adult patients with cystic fibrosis: a qualitative study
    Alice Hogan, Mary‐Ann Bonney, Jo-anne Elizabeth Brien, Rita Karamy, Parisa Aslani · 2014 · International Journal of Clinical Pharmacy
35. Adherence to long-term therapies in cystic fibrosis: a French cross-sectional study linking prescribing, dispensing, and hospitalization data
    Héloïse Rouzé, Marie Viprey, Samuel Sebastian Allemann, Alexandra Lelia Dima, Pascal Caillet, Angélique Denis, Stéphanie Bourdy, Boubou Camara, C. Llerena, Philippe Reix et al. · 2019 · Patient Preference and Adherence
36. Autogenic drainage for airway clearance in cystic fibrosis
    Paul Burnham, Gemma E. Stanford, Ruth Stewart · 2021 · Cochrane Database of Systematic Reviews
37. Perception of first respiratory infection with Pseudomonas aeruginosa by people with cystic fibrosis and those close to them: an online qualitative study
    Sally C Palser, Oliver Rayner, Paul A. Leighton, Alan Robert Smyth · 2016 · BMJ Open
38. Resilience in adolescents and young adults with cystic fibrosis: A pilot feasibility study of the promoting resilience in stress management intervention
    Demet Toprak, Laura Nay, Sharon McNamara, Abby R. Rosenberg, Margaret Rosenfeld, Joyce P. Yi‐Frazier · 2019 · Pediatric Pulmonology
39. Lost in translation? How adults living with Cystic Fibrosis understand treatment recommendations from their healthcare providers, and the impact on adherence to therapy
    Smita Sakha Pakhale, Justine Baron, Michael B. Armstrong, Giorgio Angelo Tasca, Ena Gaudet, Shawn David Aaron, D. William Cameron, Louise Balfour · 2016 · Patient Education and Counseling
40. Cystic fibrosis: addressing the transition from pediatric to adult-oriented health care
    James L. Kreindler, Victoria A. Miller · 2013 · Patient Preference and Adherence
41. Cystic Fibrosis: The Dawn of a New Therapeutic Era
    Sonya L. Heltshe, Jonathan D. Cogen, Kathleen J. Ramos, Christopher Hooper Goss · 2016 · American Journal of Respiratory and Critical Care Medicine
42. Variation in lung function as a marker of adherence to oral and inhaled medication in cystic fibrosis
    H. White, Nicola Shaw, Sarah Denman, Kim Pollard, Sarah Wynne, Daniel Gavin Peckham · 2017 · European Respiratory Journal
43. Positive mental health and wellbeing in adults with cystic fibrosis: a cross sectional study
    Cronly, Jennifer, Duff, Alistair, Riekert, Kristin, Horgan, Aine, Lehane, Elaine, Perry, Ivan, Fitzgerald, Anthony, Howe, Barbara, Chroinin, Muireann Ni, Savage, Eileen · 2019 · Journal of Psychosomatic Research
44. New drugs, new challenges in cystic fibrosis care
    Isabelle Fajac, Pierre‐Régis Burgel, Clémence Martin · 2024 · European Respiratory Review
45. Antecedents of self-care in adults with congenital heart defects
    Nancy M. McCabe, Sandra Barker Dunbar, Javed Butler, Melinda Kay Higgins, Wendy Book, Carolyn Miller Reilly · 2015 · International Journal of Cardiology
46. Impact of progressive familial intrahepatic cholestasis on caregivers: caregiver-reported outcomes from the multinational PICTURE study
    Claudia Mighiu, Sonia O’Hara, Enrico Ferri Grazzi, Karen F. Murray, Jörn Markus Schattenberg, Emily E. Ventura, Melanie Karakaidos, Alison H. M. Taylor, Harpreet Brrang, Anil Kumar Dhawan et al. · 2022 · Orphanet Journal of Rare Diseases
47. Research letter: The impact of elexacaftor/tezacaftor/ivacaftor on adherence to nebulized maintenance therapies in people with cystic fibrosis
    Jia Tong Song, Sameer Desai, Alessandro N. Franciosi, Renée Dagenais, Bradley S. Quon · 2022 · Journal of Cystic Fibrosis
48. Airway clearance techniques compared to no airway clearance techniques for cystic fibrosis
    Louise Warnock, Alison Gates · 2023 · Cochrane Database of Systematic Reviews
49. An Early Health Economic Analysis of the Potential Cost Effectiveness of an Adherence Intervention to Improve Outcomes for Patients with Cystic Fibrosis
    Paul Tappenden, Susannah Sadler, Martin James Wildman · 2017 · PharmacoEconomics
50. Patients and families experience with pharmacist care at cystic fibrosis foundation accredited clinics
    David C. Young, Elizabeth B. Autry, Jeffery T. Zobell, Lauren N. Kormelink, Karen A. Homa, Kathryn A. Sabadosa, Jamshed F. Kanga, Michael Anstead, Robert J. Kuhn · 2019 · Pediatric Pulmonology
51. Mechanisms of Action of a Web-Based Intervention With Health Professional Support to Increase Adherence to Nebulizer Treatments in Adults With Cystic Fibrosis: Qualitative Interview Study
    Sarah J Drabble, Alicia O’Cathain, Alexander J. Scott, Madelynne A Arden, Samuel Keating, Marlene Hutchings, Chin Maguire, Martin James Wildman · 2020 · Journal of Medical Internet Research
52. Coping styles in adults with cystic fibrosis: implications for emotional and social quality of life
    Rachel Mc Hugh, Danielle McFeeters, David Boyda, Siobhan M. O’Neill · 2015 · Psychology Health & Medicine
53. How Much Time Do Adults Spend on Health-related Self-care? Results from the American Time Use Survey
    Daniel E Jonas, Yoko Ibuka, Louise B. Russell · 2011 · The Journal of the American Board of Family Medicine
54. Development and Validation of a Cystic Fibrosis Patient and Family Member Experience of Care Survey
    Karen A. Homa, Kathryn A. Sabadosa, Eugene C. Nelson, William H. Rogers, Bruce C. Marshall · 2013 · Quality Management in Health Care
55. Flying the nest: a challenge for young adults with cystic fibrosis and their parents
    Vibeke Bregnballe, Kirsten Arntz Boisen, Peter Oluf Schiøtz, Tacjana Pressler, Kirsten Elisabeth Lomborg · 2017 · Patient Preference and Adherence
56. Symptom Burden and Unmet Existential Needs in Adults With Cystic Fibrosis
    Elizabeth T. Trandel, Joseph M. Pilewski, Elisabeth Potts Dellon, Laura Tycon Moreines, Jonathan Guerrero Yabes, Kwonho Jeong, Robert M. Arnold, Dio Kavalieratos · 2019 · Western Journal of Nursing Research
57. Pulmonary Pharmacokinetics of Colistin following Administration of Dry Powder Aerosols in Rats
    Yu-Wei Lin, Qi Tony Zhou, Yang Hu, Nikolas J. Onufrak, Siping Sun, Jiping Wang, Alan Forrest, Hak‐Kim Chan, Jian Li · 2017 · Antimicrobial Agents and Chemotherapy
58. Evaluation of Food Insecurity in Adults and Children With Cystic Fibrosis: Community Case Study
    Perry S. Brown, Dixie Durham, Rick D. Tivis, Shannon Stamper, Cleary Waldren, Sarah E. Toevs, Bárbara Gordon, Tiffany A. Robb · 2018 · Frontiers in Public Health
59. Nebuliser systems for drug delivery in cystic fibrosis
    Tracey E. Daniels, Nicola Mills, Paul Whitaker · 2013 · Paediatric Respiratory Reviews
60. Objective Measurement of Adherence to Out-Patient Airway Clearance Therapy by High-Frequency Chest Wall Compression in Cystic Fibrosis
    Christina L. Mikesell, Robert R. Kempainen, Theresa Annette Laguna, Jeremiah S. Menk, Andrew R. Wey, Philippe R. Gaillard, Warren E. Regelmann · 2017 · Respiratory Care
61. Factors associated with changes in health-related quality of life in children with cystic fibrosis during 1-year follow-up
    Marieke W. P. van Horck, Björn Winkens, Geertjan Wesseling, Karin M. de Winter‐de Groot, Ilja de Vreede, Quirijn Jöbsis, Edward Dompeling · 2017 · European Journal of Pediatrics
62. Determinants of objective adherence to nebulised medications among adults with cystic fibrosis: an exploratory mixed methods study comparing low and high adherers
    Hoo, Z. H., Boote, J., Wildman, M. J., Campbell, M. J., Gardner, B. · 2017 · Health Psychology and Behavioral Medicine
63. The use of tobramycin for Pseudomonas aeruginosa: a review
    Stanley B. Fiel, Erica A. Roesch · 2022 · Expert Review of Respiratory Medicine
64. Inhaled Interventions in Cystic Fibrosis: Mucoactive and Antibiotic Therapies
    Katharine Hurt, Diana Bilton · 2014 · Respiration
65. Feasibility of using pedometers to measure daily step counts in cystic fibrosis and an assessment of its responsiveness to changes in health state
    Bradley S. Quon, Donald L. Patrick, Todd C. Edwards, Moira L. Aitken, Ronald L. Gibson, Alan Genatossio, Sharon McNamara, Christopher Hooper Goss · 2012 · Journal of Cystic Fibrosis
66. Pulmonary function, functional capacity and quality of life in adults with cystic fibrosis
    V.J.R. Moço, Agnaldo José Lopes, Patrícia dos Santos Vigário, Vívian Pinto de Almeida, Sara Lúcia Silveira de Menezes, Fernando Silva Guimarães · 2015 · Revista Portuguesa de Pneumologia
67. Food insecurity and mental health during the COVID‐19 pandemic in cystic fibrosis households
    J.T. Lim, Ngoc P. Ly, Shaina M. Willen, Kensho Iwanaga, Elizabeth R. Gibb, Marilynn Chan, Gwynne D. Church, Fatima Neemuchwala, Meghan E. McGarry · 2022 · Pediatric Pulmonology
68. Aztreonam lysine: a novel inhalational antibiotic for cystic fibrosis
    Michael D. Parkins, J.S. Elborn · 2010 · Expert Review of Respiratory Medicine
69. Antimicrobial Molecules in the Lung: Formulation Challenges and Future Directions for Innovation
    Arcadia Woods, Khondaker Miraz Rahman · 2018 · Future Medicinal Chemistry
70. Treatment patterns in people with cystic fibrosis: have they changed since the introduction of ivacaftor?
    Granger, Emily, Davies, Gwyneth, Keogh, Ruth H. · 2022 · Journal of Cystic Fibrosis
71. Employment experiences among adolescents and young adults with cystic fibrosis
    Nathan Demars, Ahmet Uluer, Gregory S. Sawicki · 2010 · Disability and Rehabilitation
72. Acceptance and Commitment Therapy (ACT) to Foster Resilience in Pediatric Chronic Illness
    Michelle M. Ernst, Michael W. Mellon · 2016 · Springer eBooks
73. Ease of use of tobramycin inhalation powder compared with nebulized tobramycin and colistimethate sodium: a crossover study in cystic fibrosis patients with pulmonary Pseudomonas aeruginosa infection
    James Greenwood, C. Schwarz, Urte Sommerwerck, Edward Fairbairn Nash, M. Tamm, Weihua Cao, Paul Mastoridis, Laurie DeBonnett, Kamal A. Hamed · 2017 · Therapeutic Advances in Respiratory Disease
74. Retinal screening of patients with cystic fibrosis-related diabetes in Wales — A real eye opener
    Robin A. Roberts, L. Speight, J. Lee, Lindsay George, Robert Ian Ketchell, D. Lau, Jamie M Duckers · 2014 · Journal of Cystic Fibrosis
75. OUP accepted manuscript
    Abaigeal D Jackson, L. Kirwan, Sarah Gibney, Paulina Jeleniewska, G. Fletcher, Gerardine Doyle · 2019 · European Journal of Public Health
76. A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings
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77. Efficacy and safety of inhaled dry-powder mannitol in adults with cystic fibrosis: An international, randomized controlled study
    Patrick A. Flume, E. Amelina, Cori L. Daines, Brett Charlton, Joanna Leadbetter, Alessandro Guasconi, Moira L. Aitken · 2021 · Journal of Cystic Fibrosis
78. Temporal trends in healthcare resource use and associated costs of patients with cystic fibrosis
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79. Impact of chronic medication de-escalation in patients with cystic fibrosis taking elexacaftor, tezacaftor, ivacaftor: A retrospective review
    Emma L. Guenther, Karen McCoy, Mariah Eisner, Shasha Bai, Christopher J. Nemastil, Kimberly J. Novak, Terri Johnson, Emily M. Stephan · 2023 · Journal of Cystic Fibrosis
80. Cross-Cutting mHealth Behavior Change Techniques to Support Treatment Adherence and Self-Management of Complex Medical Conditions: Systematic Review
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81. Behaviour change techniques to optimise participation in physical activity or exercise in adolescents and young adults with chronic cardiorespiratory conditions: a systematic review
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82. Exercise as airway clearance therapy (ExACT) in cystic fibrosis: a UK-based e-Delphi survey of patients, caregivers and health professionals
    ZOE LOUISE SAYNOR, Steve Cunningham, Lisa Morrison, Eleanor Main, Ioannis Vogiatzis, Simon Reid, Don S. Urquhart · 2022 · Thorax
83. Healthcare resource utilization associated with ivacaftor use in patients with cystic fibrosis
    Ellison Dial Suthoff, Mac Bonafede, Brendan L. Limone, Lasair O’Callaghan, Gregory S. Sawicki, Jeffrey S. Wagener · 2016 · Journal of Medical Economics
84. Depression in cystic fibrosis; Implications of The International Depression/Anxiety Epidemiological Study (TIDES) in cystic fibrosis
    Duff, Alistair J.A. · 2015 · Paediatric Respiratory Reviews
85. Assessment of treatment burden and complexity in cystic fibrosis: A quality improvement project
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86. Drug-drug interactions involving CFTR modulators: a review of the evidence and clinical implications
    Eunjin Hong, Alan Shi, Paul M. Beringer · 2023 · Expert Opinion on Drug Metabolism & Toxicology
87. The HDAC inhibitor SAHA does not rescue CFTR membrane expression in Cystic Fibrosis
    Anne Bergougnoux, A. Petit, Lucie Knabe, Estelle Bribes, R. Chiron, Albertina De Sario, Mireille Claustres, Nicolas Molinari, Isabelle Vachier, Magali Taulan‐Cadars et al. · 2017 · The International Journal of Biochemistry & Cell Biology
88. The treatment of the pulmonary and extrapulmonary manifestations of cystic fibrosis
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89. Nebuliser cleaning and disinfection practice in the home among patients with cystic fibrosis
    Mary MacFarlane, Lesley S. Carson, Amanda Crossan, Jane Bell, John Edmund Moore, Beverley Cherie Millar · 2019 · Journal of Infection Prevention
90. Current perspectives of physical activity in cystic fibrosis
    Narelle S. Cox, Anne Elizabeth Holland · 2018 · Expert Review of Respiratory Medicine
91. New and Emerging Treatments for Cystic Fibrosis
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92. Resting respiratory variables and exercise capacity in adult patients with cystic fibrosis
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93. Airway clearance and exercise for people with cystic fibrosis: balancing longevity with life
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94. Cystic fibrosis
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95. Anxiety and depression in adults with cystic fibrosis: a comparison between patients and the general population in Sweden and three other European countries
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96. Misunderstandings, misperceptions, and missed opportunities: Perspectives on adherence barriers from people with CF, caregivers, and CF team members
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97. Tobramycin Inhalation powder: an Efficient and Efficacious Therapy for the Treatment of Pseudomonas Aeruginosa Infection in Cystic Fibrosis
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98. Physical activity and its correlates in people with cystic fibrosis: a systematic review
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99. Treatment burden in survivors of prostate and colorectal cancers: a qualitative interview study
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100. Challenges with current inhaled treatments for chronic Pseudomonas aeruginosa infection in patients with cystic fibrosis
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