The DOI matches its Crossref record; 1 of the 1 references it cites were found in a registry or an index.
Transitioning From Hospital to Palliative Care at Home: Patient and Caregiver Perceptions of Continuity of Care
Open accessAbstract
Context Continuity of care is important at improving the patient experience and reducing unnecessary hospitalizations when transitioning across care settings, especially at the end of life. Objective To explore patient and caregiver understanding and valuation of "continuity of care" while transitioning from an in-hospital to a home-based palliative care team. Methods Longitudinal qualitative design using semistructured interviews conducted with patients and their caregivers before and after transitioning from hospital to palliative care at home. Interviews were audio-recorded and transcribed verbatim. Data were analyzed using thematic analysis within a postpositivist framework. Thirty-nine participants (18 patients, seven caregivers, and seven patient-caregiver dyads) were recruited from two acute care hospitals, wherein they received care from an inpatient palliative care consultation team and transitioned to home-based palliative care. Results Patients had a mean age of 68 years, 60% were female and 60% had a diagnosis of cancer. Caregivers had a mean age of 62 years and 50% were female. Participants perceived continuity of care to occur in three ways, depending on which stage they were at in their hospital-to-home transition. In hospital, continuity of care was experienced, as consistency of information exchanged between providers. During the transition from hospital to home, continuity of care was experienced as consistency of treatments. When receiving home-based pallia…
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Family caregivers experience significant psychological stress during the transition period, including anxiety, depression, helplessness, and grief.
“Research by Morey et al. [18] indicates that family caregivers experience significant psychological stress during this period, including anxiety, depression, helplessness, and grief.”
From Experiences of family caregivers of patients with end-of-life cancer during the transition from hospital to home palliative care: a qualitative study (2024) · cites this paper as [18]
Continuity of care helps caregivers better understand the pace and focus of care, minimising unnecessary interventions and conflicts, improving care efficiency, and enhancing caregiver capabilities.
“but also helps caregivers better understand the pace and focus of care, minimising unnecessary interventions and conflicts, improving care efficiency, and enhancing caregiver capabilities [18].”
From Experiences of family caregivers of patients with end-of-life cancer during the transition from hospital to home palliative care: a qualitative study (2024) · cites this paper as [18]
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Cited by
Sorted by citations
Xu, Y., Liu, Y., Kang, Y., Wang, D., Zhou, Y., Wu, L., & Yuan, L. (2024) · BMC Palliative Care · doi:10.1186/s12904-024-01559-4 · Cited by 41
“…palliative care, as it not only enhances patient satisfaction and reduces hospitalisation rates [33] but also helps care-givers better understand the pace and focus of care, minimising unnecessary interventions and conflicts, improving care efficiency, and enhancing caregiver capabilities [18].”
BackgroundPatients’ experiences of transfers between care settings in palliative care: an interview study
Mertens, F., Sercu, M., Derycke, A., Naert, L., Deliens, L., Deveugele, M., & Pype, P. (2022) · Annals of Palliative Medicine · doi:10.21037/apm-22-146 · Cited by 18
McCoy, M., Shorting, T., Mysore, V. K., Fitzgibbon, E., Rice, J., Savigny, M., Weiss, M., Vincent, D., Hagarty, M., MacLeod, K. K., et al. (2024) · Health Expectations · doi:10.1111/hex.14002 · Cited by 12
Self-citationMarston, C., Morgan, D. D., Philip, J., & Agar, M. (2023) · Journal of Palliative Medicine · doi:10.1089/jpm.2022.0221 · Cited by 8
Metadata
- Authors
- Morey, T., Scott, M., Saunders, S., Varenbut, J., Howard, M., Tanuseputro, P., Webber, C., Killackey, T., Wentlandt, K., Zimmermann, C., Bernstein, M., Ernecoff, N., Hsu, A., & Isenberg, S.
- Affiliations
- University of Toronto (CA)
- University of Ottawa (CA)
- Sinai Health System (CA)
- McMaster University (CA)
- Bruyère (CA)
- University Health Network (CA)
- University of Pittsburgh (US)
- Corresponding author
- Morey, Trevor
- ORCID
- Venue
- Journal of Pain and Symptom Management
- Publisher
- Elsevier BV
- Published
- 2021-08
- Volume
- 62
- Issue
- 2
- Pages
- 233-241
- ISSN
- 0885-3924 (ISSN-L)
- OpenAlex
- W3117442888
- Cited by
- 63
- References
- 1
- Citations by year
- 2026: 12 · 2025: 18 · 2024: 12 · 2023: 7 · 2022: 11 · 2021: 3
- FWCI
- 3.94
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Journal of Pain and Symptom Management (publishedVersion)
- PubMed (publishedVersion)
- The HKU Scholars Hub (University of Hong Kong) (submittedVersion)
- Funders
- Department of Family and Community Medicine, University of Toronto
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Nursing › Leadership and Management › Hospital Admissions and Outcomes
- Keywords
- continuity of care, hospital-to-home transition, home-based palliative care, end-of-life care, patient perspectives, caregiver perceptions, care coordination, cancer patients
- MeSH terms
- Aged, Continuity of Patient Care, Female, Hospitals, Humans, Middle Aged, Palliative Care, Perception, Caregivers, Qualitative Research
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