A systematic review of women’s satisfaction and regret following risk-reducing mastectomy
Abstract
Objective A systematic review of quantitative and qualitative studies, to describe patient satisfaction and regret associated with risk-reducing mastectomies (RRM), and the patient-reported factors associated with these among women at high risk of developing breast cancer.Methods Studies were identified using Medline, CINAHL, Embase and PsycInfo databases (1995-2016). Data were extracted and crosschecked for accuracy. Article quality was assessed using standardised criteria.Results Of the 1657 unique articles identified, 30 studies met the inclusion criteria (n=23 quantitative studies, n=3 qualitative studies, n=4 mixed-method studies). Studies included were cross-sectional (n=23) or retrospective (n=7). General satisfaction with RRM, decision satisfaction and aesthetic satisfaction were generally high, although some women expressed regret around their decision and dissatisfaction with their appearance. Factors associated with both patient satisfaction and regret included: post-operative complications, body image changes, psychological distress and perceived inadequacy of information.Conclusion While satisfaction with RRM was generally high, some women had regrets and expressed dissatisfaction. Future research is needed to further explore RRM, and to investigate current satisfaction trends given the ongoing improvements to surgical and clinical practice.Practice implications Offering pre-operative preparation, decisional support and continuous psychological input may help to facilitate satisfaction with this complex procedure.
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Overall, satisfaction with the decision to have undergone preventive surgery is high, although some women express regret about their decision and dissatisfaction with their appearance.
“Overall, satisfaction with the decision to have undergone preventive surgery is high, although some women express regret about their decision and dissatisfaction with their appearance [31, 32].”
From Fear of cancer recurrence in breast cancer survivors carrying a BRCA1 or 2 genetic mutation : a cross-sectional study (2024) · cites this paper as [31]
Regrets are related to a greater number of complications and a higher level of emotional distress.
“Regrets are related to a greater number of complications and a higher level of emotional distress [31].”
From Fear of cancer recurrence in breast cancer survivors carrying a BRCA1 or 2 genetic mutation : a cross-sectional study (2024) · cites this paper as [31]
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Lean, I. M. (2020) · International Journal of Transplantation & Plastic Surgery · doi:10.23880/ijtps-16000149 · Cited by 1 · see citing works
Special Section: Review articles on decision making and patient education interventions
Finset, A. (2017) · Patient Education and Counseling · doi:10.1016/j.pec.2017.10.004 · Cited by 1 · see citing works
Wang, Y., Zhang, Q., Pang, J., Shi, L., Wang, X., Yan, D., Yin, J., & Qiang, W. (2021) · Research Square · doi:10.21203/rs.3.rs-442596/v1 · Cited by 1 · see citing works
Mastectomía de reducción de riesgo. Experiencia del Centro Mamario del Hospital Universitario Austra
Lean, I. M., Montoya, D., Varela, E. B., Morris, B. J., Barber, J., Constantino, F., D’Angelo, L., Masllorens, F., Berdinelli, D., Schejtman, D., et al. (2020) · Revista Argentina de Cirugía · doi:10.25132/raac.v112.n1.1391.es
Wang, Y., Zhang, Q., Pang, J., Shi, L., Wang, X., Yan, D., Yin, J., & Qiang, W. (2021) · Research Square · doi:10.21203/rs.3.rs-442596/v2
Anthropometric estimates can predict satisfaction with breast in a population of asymptomatic women
Catanuto, G., Salvatore, V. D., Fichera, C., Dorangricchia, P., Sebri, V., Rocco, N., Pravettoni, G., Caruso, F., & Pappalardo, F. (2024) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-024-00814-9
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“Extant research demonstrates that as many as 15%–20% of women report dissatisfaction or regret following CPM because of (a) complications, (b) poor cosmetic results, and (c) diminished sexuality (Ager et al., 2016; Braude et al., 2017).”
Barbee, H., Hassan, B., & Liang, F. (2024) · doi:10.64628/aai.jph6w66t3
Transgender regret? Research challenges narratives about gender-affirming surgeries
Barbee, H., Hassan, B., & Liang, F. (2024) · doi:10.64628/aai.arjavvsxc
Estudo contesta narrativas sobre arrependimento em cirurgias de afirmação de gênero
Barbee, H., Hassan, B., & Liang, F. (2024) · doi:10.64628/ade.erecurf6m
Surgical Outcomes After Risk-Reducing Mastectomy Among BRCA1 and BRCA2 Carriers
Wiberg, R., Hägglund, S., Hellquist, B. N., Rosén, A., Idahl, A., Mani, M. R., Bajalica‐Lagercrantz, S., Ehrencrona, H., Karlsson, P., Loman, N., et al. (2026) · JAMA Network Open · doi:10.1001/jamanetworkopen.2026.2574
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Norton, A. L., Liddil, E. L., & Tan, T. X. (2026) · Journal of LGBTQ Issues in Counseling · doi:10.1080/26924951.2026.2729973
- Authors
- Braude, L., Kirsten, L., Gilchrist, J., & Juraskova, I.
- Affiliations
- The University of Sydney (AU)
- Hobart Private Hospital (AU)
- Corresponding author
- Braude, Lucy
- Venue
- Patient Education and Counseling
- Publisher
- Elsevier BV
- Published
- 2017-12
- Volume
- 100
- Issue
- 12
- Pages
- 2182-2189
- ISSN
- 0738-3991 (ISSN-L)
- OpenAlex
- W2730953568
- Cited by
- 39
- References
- 62
- Citations by year
- 2026: 5 · 2025: 3 · 2024: 8 · 2023: 3 · 2022: 3 · 2021: 8 · 2020: 5 · 2018: 3 · 2017: 1
- FWCI
- 0.40
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Patient Education and Counseling (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Women's cancer prevention and management
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › BRCA gene mutations in cancer
- Health Sciences › Medicine › Surgery › Breast Implant and Reconstruction
- Keywords
- prophylactic mastectomy, patient satisfaction, regret, breast cancer prevention, high-risk women, body image, postoperative complications, psychological distress, decision support, preoperative preparation, patient-reported outcomes
- MeSH terms
- Patient Reported Outcome Measures, Body Image, Breast Neoplasms, Decision Making, Emotions, Female, Humans, Mastectomy, Personal Satisfaction, Patient Satisfaction
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