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The Impact of Technology Dependence on Children and Their Families
Abstract
Advances in medical care and technologies have prolonged life for many children with medical complexity. These advances and their effects reinforce the need for further research to determine how children and their families are being affected by technology dependence and their quality of life. A review of the literature suggests that children, as well as their family members, are negatively affected by technology dependence in a variety of psychosocial domains. Implications for clinical care and future research of this population are discussed.
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Most families in paediatric palliative care settings are weakened in their socioeconomic situation because only one caregiver assumes the responsibility of financially supporting the family.
“However, most families in paediatric palliative care settings are weakened in their socioeconomic situation, because only one caregiver assumes the responsibility of financially supporting the family [14].”
From “The Key Is to Value Every Little Achievement”: A Qualitative Study of the Psychological Experience of Parent Caregivers in Paediatric Palliative Care (2023) · cites this paper as [14]
Citations
Cites
Varni, J. W., Seid, M., & Kurtin, P. S. (2001) · Medical Care · doi:10.1097/00005650-200108000-00006 · Cited by 5,131
Improving Primary Care for Patients With Chronic Illness: The Chronic Care Model, Part 2
Bodenheimer, T., Wagner, E. H., & Grumbach, K. (2002) · JAMA · doi:10.1001/jama.288.15.1909 · Cited by 2,413
Children With Medical Complexity: An Emerging Population for Clinical and Research Initiatives
Cohen, E., Kuo, D. Z., Agrawal, R., Berry, J. G., Bhagat, S. K. M., Simon, T. D., & Srivastava, R. (2011) · PEDIATRICS · doi:10.1542/peds.2010-0910 · Cited by 1,356
Health and social care in the community
Elliott, M. (1989) · Elderly Care · doi:10.7748/eldc.9.2.22.s18 · Cited by 961
Carnevale, F. A., Alexander, E., Davis, M., Rennick, J. E., & Troini, R. (2006) · PEDIATRICS · doi:10.1542/peds.2005-0789 · Cited by 410
Das, D. A., Grimmer, K. A., Sparnon, A. L., McRae, S., & Thomas, B. H. (2005) · BMC Pediatrics · doi:10.1186/1471-2431-5-1 · Cited by 391
Pediatric Respiratory Medicine
(2000) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.154.6.639 · Cited by 274
Health-related quality of life in pediatric patients with ESRD
Goldstein, S. L., Graham, N., Burwinkle, T. M., Warady, B. A., Farrah, R., & Varni, J. W. (2006) · Pediatric Nephrology · doi:10.1007/s00467-006-0081-y · Cited by 248
Berry, J. G., Agrawal, R., Kuo, D. Z., Cohen, E., Risko, W., Hall, M., Casey, P. H., Gordon, J. B., & Srivastava, R. (2011) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2011.02.002 · Cited by 221
Gordon, J. B., Colby, H., Bartelt, T., Jablonski, D., Krauthoefer, M. L., & Havens, P. L. (2007) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.161.10.937 · Cited by 215
Parent or nurse? The experience of being the parent of a technology‐dependent child
Kirk, S. A., Glendinning, C., & Callery, P. (2005) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2005.03522.x · Cited by 214
Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsm008 · Cited by 188
Families' experiences of caring for technology-dependent children: a temporal perspective
Heaton, J., Noyes, J., Sloper, P., & Shah, R. (2005) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2005.00571.x · Cited by 181
Parenting and Childhood Chronicity: Making visible the invisible work
Ray, L. D. (2002) · Journal of Pediatric Nursing · doi:10.1053/jpdn.2002.127172 · Cited by 174
Developing services to support parents caring for a technology‐dependent child at home
Kirk, S. A., & Glendinning, C. (2004) · Child Care Health and Development · doi:10.1111/j.1365-2214.2004.00393.x · Cited by 163
Families' experiences of caring at home for a technology‐dependent child: a review of the literature
Kirk, S. A. (1998) · Child Care Health and Development · doi:10.1046/j.1365-2214.1998.00043.x · Cited by 161
Feudtner, C., Villareale, N. L., Morray, B., Sharp, V. L., Hays, R. M., & Neff, J. M. (2005) · BMC Pediatrics · doi:10.1186/1471-2431-5-8 · Cited by 129
Casey, P. H., Lyle, R. E., Bird, T. M., Robbins, J. M., Kuo, D. Z., Brown, C., Lal, A., Tanios, A., & Burns, K. H. (2011) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpediatrics.2011.5 · Cited by 123
Psychosocial effects on caregivers for children on chronic peritoneal dialysis
Tsai, T.-C., Liu, S.-I., Tsai, J.-D., & Chou, L.-H. (2006) · Kidney International · doi:10.1038/sj.ki.5001811 · Cited by 114
Klitzner, T. S., Rabbitt, L. A., & Chang, R. R. (2010) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2009.12.012 · Cited by 111
Goldstein, S. L., Rosburg, N. M., Warady, B. A., Seikaly, M. G., McDonald, R. A., Limbers, C. A., & Varni, J. W. (2009) · Pediatric Nephrology · doi:10.1007/s00467-009-1174-1 · Cited by 105
Diehl, S. F., Moffitt, K., & Wade, S. M. (1991) · Children s Health Care · doi:10.1207/s15326888chc2003_6 · Cited by 103
Tube feeding and quality of life in children with severe neurological impairment
Mahant, S., Friedman, J., Connolly, B. L., Goia, C., & Macarthur, C. (2009) · Archives of Disease in Childhood · doi:10.1136/adc.2008.149542 · Cited by 84
Health and quality of life of ventilator‐dependent children
Noyes, J. (2006) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2006.04014.x · Cited by 79
The Lived Experiences of Children and Adolescents With End-Stage Renal Disease
Nicholas, D. B., Picone, G., & Selkirk, E. K. (2010) · Qualitative Health Research · doi:10.1177/1049732310382789 · Cited by 75
Parent-Provider-Community Partnerships: Optimizing Outcomes for Children With Disabilities
Murphy, N., & Carbone, P. S. (2011) · PEDIATRICS · doi:10.1542/peds.2011-1467 · Cited by 74
Caregivers' Experiences at Home With a Ventilator-Dependent Child
Wang, K. K., & Barnard, A. (2008) · Qualitative Health Research · doi:10.1177/1049732307306185 · Cited by 73
Assessing Health Status and Health Care Utilization in Adolescents with Chronic Kidney Disease
Gerson, A. C., Riley, A. W., Fivush, B. A., Pham, N. M., Fiorenza, J., Robertson, J., Chandra, M., Trachtman, H., Weiss, R. A., & Furth, S. L. (2005) · Journal of the American Society of Nephrology · doi:10.1681/asn.2004040258 · Cited by 72
Survey of children supported by long term mechanical ventilation in Switzerland
Kamm, M., Burger, R., Rimensberger, P. C., & Knoblauch, A. (2001) · Swiss Medical Weekly · doi:10.4414/smw.2001.09733 · Cited by 66
The impact of percutaneous endoscopic gastrostomy feeding in children; the parental perspective
Brotherton, A. M., Abbott, J., & Aggett, P. J. (2007) · Child Care Health and Development · doi:10.1111/j.1365-2214.2007.00748.x · Cited by 60
Noyes, J. (2007) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2006.04191.x · Cited by 60
Noyes, J. (2002) · Journal of Clinical Nursing · doi:10.1046/j.1365-2702.2002.00565.x · Cited by 57
MENTAL HEALTH OF MOTHERS CARING FOR VENTILATOR-ASSISTED CHILDREN AT HOME
Kuster, P. A., & Badr, L. K. (2006) · Issues in Mental Health Nursing · doi:10.1080/01612840600840588 · Cited by 56
Margolan, H., Fraser, J. I., & Lenton, S. (2004) · Child Care Health and Development · doi:10.1111/j.1365-2214.2004.00414.x · Cited by 56
A comparative study of the attitudes of users and non‐users towards computerized care planning
GETTY, M., Ryan, A. A., & BA, M. L. C. E. (1999) · Journal of Clinical Nursing · doi:10.1046/j.1365-2702.1999.00273.x · Cited by 54
Buescher, P. A., Whitmire, J. T., Brunssen, S., & Kluttz-Hile, C. E. (2006) · Maternal and Child Health Journal · doi:10.1007/s10995-006-0081-3 · Cited by 54
The Technology-Dependent Child and the Socially Marginalized Family: A Provisional Framework
Cohen, M. H. (1999) · Qualitative Health Research · doi:10.1177/104973299129122144 · Cited by 45
The experiences and views of parents who care for ventilator‐dependent children
Noyes, J., Hartmann, H., Samuels, M. P., & Southall, D. P. (1999) · Journal of Clinical Nursing · doi:10.1046/j.1365-2702.1999.00258.x · Cited by 43
Prevalence of medical technology assistance among children in Massachusetts in 1987 and 1990.
Palfrey, J. S., Haynie, M., Porter, S. M., Fenton, T. R., Cooperman-Vincent, P., Shaw, D., Johnson, B., Bierle, T., & Walker, D. K. (1994) · PubMed Central · Cited by 38
Chronic mechanical ventilation-dependent children in Canada
Dhillon, J. S., Frewen, T. C., Singh, N. C., & Speechley, K. N. (1996) · Paediatrics & Child Health · doi:10.1093/pch/1.2.111 · Cited by 33
The British Dietetic Association
Scott, E. (1960) · International Journal of Food Sciences and Nutrition · doi:10.3109/09637486009142590 · Cited by 32
Living with a Machine: The Experience of the Child Who is Ventilator Dependent
Sarvey, S. I. (2008) · Issues in Mental Health Nursing · doi:10.1080/01612840701792456 · Cited by 32
Noyes, J. (2000) · Journal of Clinical Nursing · doi:10.1046/j.1365-2702.2000.00410.x · Cited by 31
Home enteral feeding audit 1 year post‐initiation
Evans, S., Holden, C. C., & MacDonald, A. (2006) · Journal of Human Nutrition and Dietetics · doi:10.1111/j.1365-277x.2006.00662.x · Cited by 28
Home enteral tube feeding in patients with inherited metabolic disorders: safety issues
Evans, S., MacDonald, A., Daly, A., Hopkins, V., & Holden, C. C. (2007) · Journal of Human Nutrition and Dietetics · doi:10.1111/j.1365-277x.2007.00816.x · Cited by 20
Paditz, E. (2000) · Somnologie - Schlafforschung und Schlafmedizin · doi:10.1046/j.1439-054x.2000.00118.x · Cited by 14
Kuo, D. Z., Robbins, J. M., Burns, K. H., & Casey, P. H. (2011) · Clinical Pediatrics · doi:10.1177/0009922811398961 · Cited by 13
The needs and experiences of long term ventilated children and their families
Cejer, B. (2007) · Nursing Children and Young People · doi:10.7748/paed.19.5.42.s35 · Cited by 7
Obladen, M. (1981) · Springer eBooks · doi:10.1007/978-3-642-67903-2_8 · Cited by 5
Flagged first, then by citations
1 of the 50 references couldn’t be matched to a known paper.
Research works printed but not linked: 2
- Bullinger, 1994, KINDL—ein Fragebogen zur gesundheitsbebezogenen Lebensqualitat von Kindern, Zeitschrift fur Gesundheitspsychologie, 2, 64
- Pierce, P. M., Lester, D. G., & Fraze, D. E. (1991). Prescribed pediatric extended care: The family centered health care alternative for medically and technology dependent children. In N. J. Hochstadt & D. M. Yost (Eds.), The medically complex child: The transition to home care (pp. 177–190). Philadelphia, PA: Harwood Academic Publishers.
Cited by
Sorted by citations
Families With Special Needs Children
Caicedo, C. (2014) · Journal of the American Psychiatric Nurses Association · doi:10.1177/1078390314561326 · Cited by 258
Children with medical complexity: a scoping review of interventions to support caregiver stress
Edelstein, H., Schippke, J., Sheffe, S., & Kingsnorth, S. (2016) · Child Care Health and Development · doi:10.1111/cch.12430 · Cited by 177
“Such circumstances can negatively impact physical and mental health (Cousino & Hazen 2013; Kuo et al. 2011; Mesman et al. 2013).”
BackgroundImpact of Children’s Feeding/Swallowing Problems: Validation of a New Caregiver Instrument
Lefton‐Greif, M. A., Okelo, S. O., Wright, J. M., Collaco, J. M., McGrath‐Morrow, S. A., & Eakin, M. N. (2014) · Dysphagia · doi:10.1007/s00455-014-9560-7 · Cited by 114
“isolation associated with feeding/swallowing disorders [23, 24].”
BackgroundTransition to Adulthood for Young People with Medical Complexity: An Integrative Literature Review
Straus, E. J. (2015) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2015.05.016 · Cited by 68
Bogetz, J. F., Trowbridge, A. C., Lewis, H., Shipman, K. J., Jonas, D. F., Hauer, J., & Rosenberg, A. R. (2021) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2021.06.011 · Cited by 66
The Relationship between Technology Use and Physical Activity among Typically-Developing Children
Alotaibi, T., Almuhanna, R., Alhassan, J., Alqadhib, E. M., Mortada, E. M., & Alwhaibi, R. M. (2020) · Healthcare · doi:10.3390/healthcare8040488 · Cited by 68
“• Children who spend 5 h each week on their devices tend to have higher levels of physical activity compared to those who spend >6 h. • Parental involvement is needed to reduce the time children spend on screens, which can have a high impact on a child’s physical activity level.”
BackgroundMethodInfluentialUnmet Respite Needs of Children With Medical Technology Dependence
Sobotka, S. A., Lynch, E., Quinn, M. T., Awadalla, S., Agrawal, R., & Peek, M. E. (2019) · Clinical Pediatrics · doi:10.1177/0009922819870251 · Cited by 59
“Did not know where to go for treatment 8 (9) Dissatisfaction with provider 3 (3) Treatment ongoing 3 (3) Referral barriers 2 (2) Other 42 (45)”
Boettcher, J., Denecke, J., Barkmann, C., & Wiegand‐Grefe, S. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17238975 · Cited by 58
“As previous studies on caregivers with technology-dependent children put the emphasis on female rather than male caregivers, the specific psychosocial needs of fathers have not been explored sufficiently in this study population [17,20,21].”
BackgroundReadmission drivers for children with medical complexity: Home nursing shortages cause health crises
Sobotka, S. A., Lynch, E., Peek, M. E., & Graham, R. J. (2020) · Pediatric Pulmonology · doi:10.1002/ppul.24744 · Cited by 53
Caicedo, C. (2015) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000167 · Cited by 50
“,High school 8 (9) 3 (11) 3 (11) 2 (7) x(2) 5 1.”
Parent Experience of Neonatal Encephalopathy
Lemmon, M. E., Donohue, P., Parkinson, C. M., Northington, F. J., & Boss, R. D. (2016) · Journal of Child Neurology · doi:10.1177/0883073816680747 · Cited by 50
Survey of financial burden of families in the U.S. with children using home mechanical ventilation
Edwards, J. D., Panitch, H. B., Constantinescu, A., Miller, R. L., & Stone, P. W. (2017) · Pediatric Pulmonology · doi:10.1002/ppul.23917 · Cited by 38
Israelsson‐Skogsberg, Å., Hedén, L., Lindahl, B., & Laakso, K. (2018) · Journal of Child Health Care · doi:10.1177/1367493517749328 · Cited by 34
“On the other hand, there is research indicating that technology-assisted children are negatively affected emotionally, socially, and academically (Mesman et al., 2013).”
BackgroundFuerboeter, M., Boettcher, J., Barkmann, C., Zapf, H., Nazarian, R., Wiegand‐Grefe, S., Reinshagen, K., & Boettcher, M. (2021) · Orphanet Journal of Rare Diseases · doi:10.1186/s13023-021-02129-0 · Cited by 32
“Challenges faced by patients with rare diseases and their parents are manifold and include cognitive, emotional, and physical impairments [12], leading to a decreased quality of life (QoL) and mental health [13, 14].”
BackgroundTransition of respiratory technology dependent patients from pediatric to adult pulmonology care
Agarwal, A., Willis, D., Tang, X., Bauer, M. L., Berlinski, A., Com, G., Ward, W. L., & Carroll, J. L. (2015) · Pediatric Pulmonology · doi:10.1002/ppul.23155 · Cited by 31
“The transition frompediatric toadult health care is stressful for all adolescents, but it is potentially more stressful and complicated for the 17% of adolescents with special health care needs.(3,4) Approximately 10.”
BackgroundSocial Isolation Among Families Caring for Children With Disabilities
Baumgardner, D. J. (2019) · Journal of patient-centered research and reviews · doi:10.17294/2330-0698.1726 · Cited by 27
A narrative review of the experience and decision‐making for children on home mechanical ventilation
Rahman, M., Jeffreys, J., & Massie, J. (2021) · Journal of Paediatrics and Child Health · doi:10.1111/jpc.15506 · Cited by 24
Pediatric Post–Acute Hospital Care: Striving for Identity and Value
O’Brien, J. E., Berry, J. G., & Dumas, H. M. (2015) · Hospital Pediatrics · doi:10.1542/hpeds.2015-0133 · Cited by 24
Criança dependente de tecnologia e a demanda de cuidado medicamentoso
Okido, A. C. C., da Cunha, S. T., Neves, E. T., Dupas, G., & de Lima, R. A. G. (2016) · Revista Brasileira de Enfermagem · doi:10.1590/0034-7167.2016690415i · Cited by 22
Parent perspectives on facilitating decision‐making around pediatric home ventilation
Jabre, N. A., Raisanen, J. C., Shipman, K. J., Henderson, C. M., Boss, R. D., & Wilfond, B. S. (2021) · Pediatric Pulmonology · doi:10.1002/ppul.25749 · Cited by 19
Almaqhawi, A., & Albarqi, M. (2022) · Journal of Medicine and Life · doi:10.25122/jml-2022-0148 · Cited by 20
“The questionnaire consisted of 44 close-ended questions divided into three sections [23, 24].”
BackgroundBringing Social Context Into the Conversation About Pediatric Long-term Ventilation
Henderson, C. M., Wilfond, B. S., & Boss, R. D. (2018) · Hospital Pediatrics · doi:10.1542/hpeds.2016-0168 · Cited by 19
Lacerda, A., Oliveira, G., Cancelinha, C., & Lopes, S. (2019) · Acta Médica Portuguesa · doi:10.20344/amp.10437 · Cited by 18
Wiegand-Grefe, S., Liedtke, A., Morgenstern, L., Hoff, A., Csengoe-Norris, A., Johannsen, J., Denecke, J., Barkmann, C., Grolle, B., Daubmann, A., et al. (2022) · BMC Pediatrics · doi:10.1186/s12887-022-03663-x · Cited by 15
“Although the psychosocial needs of siblings of technology-dependent children have been studied qualitatively, to our knowledge, there are no quantitative results on HRQoL and the mental health of affected siblings [14].”
BackgroundFactors associated with involuntary hospital admissions in technology-dependent children
Okido, A. C. C., Pina, J. C., & de Lima, R. A. G. (2016) · Revista da Escola de Enfermagem da USP · doi:10.1590/s0080-623420160000100004 · Cited by 15
“br/reeusp Rev Esc Enferm USP · 2016;50(1):29-35 supuestos de la técnica de Modelos Lineales Generalizados.”
BackgroundInfluentialA National Survey of Pediatric Post-Acute Care Facilities*
Straka, N., França, U. L., Franks, J. D., & McManus, M. L. (2024) · Pediatric Critical Care Medicine · doi:10.1097/pcc.0000000000003459 · Cited by 14
“Meanwhile, the population of hospitalized children with complex medical conditions is growing (7, 8) but admissions for children discharged to pediatric PAC are twice as long as for those with other dispositions (11).”
BackgroundSafety in Children With Medical Complexity: Our Canaries in the Coal Mine?
Schindler, C. A., Pordes, E., Finkenbinder, S. D., & Lee, K. J. (2019) · Current Treatment Options in Pediatrics · doi:10.1007/s40746-019-00159-2 · Cited by 14
Azizoğlu, F., Terzi̇, B., & Düzkaya, D. S. (2024) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2024.10.024 · Cited by 13
Moretti, A., Cianci, P., Paoli, A. D., Meroni, F., Tajè, S., Mariani, M., & Selicorni, A. (2021) · European Journal of Medical Genetics · doi:10.1016/j.ejmg.2021.104230 · Cited by 11
Alrø, A. B., Klitnæs, C., Rossau, C. D., & Dreyer, P. (2021) · Nursing Open · doi:10.1002/nop2.879 · Cited by 11
“Socially, parents struggle with isolation and experience a range of having an impact of relationships with family and friends, and limited activities for the family (Flynn et al., 2013; Lindahl et al., 2011a; Mesman et al., 2013).”
BackgroundInfluentialHealthcare for children depend on medical technology and parental quality of life in Japan
Matsuzawa, A., Arai, J., Shiroki, Y., & Hirasawa, A. (2021) · Pediatrics International · doi:10.1111/ped.15006 · Cited by 11
Giambra, B. K., & Spratling, R. G. (2022) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2022.11.004 · Cited by 11
Lawrence, P. R., Faulkner, M. S., & Spratling, R. G. (2025) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2025.01.010 · Cited by 10
Alrø, A. B., Høyer, L., & Dreyer, P. (2021) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2020.12.013 · Cited by 10
Gao, X., Huang, K., Cui, X., & Zhou, C. (2021) · Journal of Paediatrics and Child Health · doi:10.1111/jpc.15399 · Cited by 10
“What Would Give Her the Best Life?”: Understanding Why Families Decline Pediatric Home Ventilation
Shipman, K. J., Mercer, A. H., Raisanen, J. C., Jabre, N. A., Vo, H. H., Miles, A. H., Shepard, J. A., Henderson, C. M., Boss, R. D., & Wilfond, B. S. (2023) · Journal of Palliative Medicine · doi:10.1089/jpm.2022.0426 · Cited by 9
Care of children and young people who are dependent on technology
Camara, C., & Callum, J. (2020) · British Journal of Nursing · doi:10.12968/bjon.2020.29.7.403 · Cited by 9
Transition to Adult Care for Obstructive Sleep Apnea
Heffernan, A., Malik, U., Cheng, R., Yo, S. W., Narang, I., & Ryan, C. M. (2019) · Journal of Clinical Medicine · doi:10.3390/jcm8122120 · Cited by 9
“Lack of adherence to PAP is multifactorial, including difficulty adapting to medical technology, lack of support from health care team [25,26] and/or caregivers, discomfort of mask, and lack of perceived benefits of PAP [27].”
BackgroundSuzuki, S., & Kamibeppu, K. (2022) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2022.07.009 · Cited by 8
Asan, O., Elkefi, S., Clouser, K. N., & Percy, S. (2022) · Frontiers in Digital Health · doi:10.3389/fdgth.2022.992838 · Cited by 8
“Moreover, because children with significant medical complexities experience the interaction between primary and comorbid diagnoses, they have extreme functional limitations and have continuous access to health services with high rates of acute, rehabilitation, and community care (5).”
BackgroundChénard, J., & Trevisan, M. (2022) · Frontières · doi:10.7202/1089338ar · Cited by 7
Laily, I. N., & Chandra, R. D. A. (2021) · Jurnal Warna Pendidikan dan Pembelajaran Anak Usia Dini · doi:10.24903/jw.v6i1.679 · Cited by 6
YİĞİT, N., & Alat, K. (2022) · e-Kafkas Eğitim Araştırmaları Dergisi · doi:10.30900/kafkasegt.1140899 · Cited by 6
da Silva, J. H., Neves, E. T., Wilhelm, L. A., de Oliveira, D. C., Serapião, L. D. S., & Feisther, L. C. (2022) · Research Society and Development · doi:10.33448/rsd-v11i10.32802 · Cited by 5
Nogueira, A. J., & Ribeiro, M. T. (2023) · Clinics and Practice · doi:10.3390/clinpract13030062 · Cited by 4
“However, most families in paediatric palliative care settings are weakened in their socioeconomic situation, because only one caregiver assumes the responsibility of financially supporting the family [14].”
BackgroundLedin, E. R., Fasterius, L., Björling, G., Eriksson, A., & Mattsson, J. Y. (2024) · Disability and Rehabilitation · doi:10.1080/09638288.2024.2428372 · Cited by 4
Soto, C., Tarrant, C., & Dixon‐Woods, M. (2016) · Journal of Hospital Infection · doi:10.1016/j.jhin.2015.12.023 · Cited by 4
Chiba, A., Moller, M. G., Cannada, L. K., Shao, J. M., Ratnasekera, A. M., Reyna, C. R., Tan, S., Alimi, Y., Johnson, H. M., McMullen, C. P., et al. (2025) · JAMA Surgery · doi:10.1001/jamasurg.2025.2473 · Cited by 3
Going home: Clinician perspectives on decision‐making in paediatric home mechanical ventilation
Jeffreys, J., Rahman, M., Vears, D. F., & Massie, J. (2023) · Journal of Paediatrics and Child Health · doi:10.1111/jpc.16333 · Cited by 3
A psychological experience assessment protocol of parent caregivers in paediatric palliative care
Nogueira, A. J., & Ribeiro, M. T. (2023) · Annals of Medicine · doi:10.1080/07853890.2023.2268093 · Cited by 3
“…professionals have tended to invest more in the family over the hospital setting, and therefore most children with palliative needs live at home [8]. this means that the child/youth’s household lives with their illness and is involved in their care on a daily basis, making it essential to…”
BackgroundErken çocuklukta dijital oyun bağımlılığı: Ebeveyn farkındalığı
Ateş, K., & Çoban, A. E. (2025) · Kocaeli Üniversitesi Eğitim Dergisi · doi:10.33400/kuje.1615290 · Cited by 2
Nogueira, A. J., & Ribeiro, M. T. (2024) · Contemporary Family Therapy · doi:10.1007/s10591-024-09704-0 · Cited by 2
“The family context takes priority over the institutional/ hospital context, thus most children/youths with complex chronic illnesses live at home with their family (Mesman et al., 2013).”
Model of Family Education in Modern Era: Hamka's Perspective on Al-Azhar's Tafsir
Mukti, A., Nahar, S., & Fakrizal, F. (2022) · AL-ISHLAH Jurnal Pendidikan · doi:10.35445/alishlah.v14i2.2090 · Cited by 2
“So this could result in children or family members being negatively affected by technology dependence in various psychosocial domains (Mesman, Kuo, Carroll, & Ward, 2013).”
BackgroundSiqueira, C. S. D. S., Reis, A. T., & Pacheco, S. T. D. A. (2017) · Revista Enfermagem UERJ · doi:10.12957/reuerj.2017.27529 · Cited by 2
Herranz-Rubia, N., Violant, V., Balaguer, A., & Noreña‐Peña, A. (2020) · International Journal of Qualitative Methods · doi:10.1177/1609406920923426 · Cited by 2
“The situation negatively impacts family dynamics, the psychological health of caregivers, and the anguish of families (Al Maghaireh et al., 2016; Cleveland, 2008; Mesman et al., 2013).”
BackgroundE-Commerce 2025 – Delphi-based Scenario & Trend Analysis for the Future of Digital Commerce
Terbeck, H. (2014) · Cited by 2
Alwhaibi, R. M., Omer, A. B., Khan, R., Albashir, F., Alkuait, N., & Alhazmi, R. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph191710958 · Cited by 1
“This questionnaire is suitable to be used with children aged between four and twelve [22,23].”
MethodLipsitz, J., Beveridge, M. S., & Maddox, K. (2024) · Kidney360 · doi:10.34067/kid.0000000000000558 · Cited by 1
Crianças dependentes de tecnologia, um desafio na educação em saúde: estudo descritivo
de Lima, M. F., Coimbra, J. Â. H., Rodrigues, B. C., Neto, B. M., Uema, R. T. B., & Higarashi, I. H. (2018) · Online Brazilian Journal of Nursing · doi:10.17665/1676-4285.20175862 · Cited by 1
“Dentre os dispositivos tecnológicos mais utilizados para compensação da perda de uma função vital em pediatria, estão os ventiladores mecânicos, nutrição parenteral, traqueostomia, gastrostomia e diálise peritoneal(2).”
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Nogueira, A. J., & Ribeiro, T. (2020) · Revista Iberoamericana de Diagnóstico y Evaluación - e Avaliação Psicológica · doi:10.21865/ridep54.1.02 · Cited by 1
“Foi também feita referência à prestação de cuidados pela família (Mesman et al., 2013).”
BackgroundInfluentialZengin, D., Yıldırım, Y., Fadıloğlu, Ç., & Aykar, F. Ş. (2020) · Turkish Journal of Pediatric Emergency and Intensive Care Medicine · doi:10.4274/cayd.galenos.2019.52724 · Cited by 1
Mechanical Insufflation-Exsufflation: The Good, the Bad, and the Ugly
Willis, L. D., & Berlinski, A. (2015) · Respiratory Care · doi:10.4187/respcare.04272 · Cited by 1
da Silva, R. M. M. (2019) · Digital Library of Theses and Dissertations (Universidade de São Paulo) · doi:10.11606/t.22.2019.tde-23072019-111305 · Cited by 1
Alwhabi, R. M., Omer, A. B., Khan, R., Albashir, F., Alkuait, N., & Alhazmi, R. (2022) · Research Square · doi:10.21203/rs.3.rs-1595277/v1 · Cited by 1
McDonald, J. R. (2015) · Otago University Research Archive (University of Otago)
Hidayati, L., & Diana, D. (2018) · International Conference on Early Childhood Education: Semarang Early Childhood Research and Education Talks (SECRET) · doi:10.2991/secret-18.2018.45
Evaluation of Emergency Service Applications of Home Mechanical Ventilator Dependent Children
Kurt, F., Kendirli, T., Tekin, D., Suskan, E., & Mısırlıoğlu, E. D. (2020) · Turkish Journal of Pediatric Emergency and Intensive Care Medicine · doi:10.4274/cayd.galenos.2019.59251j
“Çalışmamızda yalnızca invaziv ev tipi mekanik ventilatör kullanan hastalar değerlendirildi ve kullanım süre ortancasının 15 (3-22) ay olduğu tespit edildi.”
BackgroundInfluentialEvaluation of Emergency Service Applications of Home Mechanical Ventilator Dependent Children
Kurt, F., Kendirli, T., Tekin, D., Suskan, E., & Mısırlıoğlu, E. D. (2020) · Turkish Journal of Pediatric Emergency and Intensive Care Medicine · doi:10.4274/cayd.galenos.2019.59251
Mattiello, R. M. A. (2021) · Digital Library of Theses and Dissertations (Universidade de São Paulo) · doi:10.11606/t.17.2021.tde-07022022-174645
How Are Children With Developmental Diseases and Delays Best Managed in Palliative Care?
Treat, L., Flemig, D., & Ragsdale, L. (2023) · Elsevier eBooks · doi:10.1016/b978-0-323-84702-5.00057-9
L'expérience de pères d'un enfant présentant une condition médicale complexe : une réalité méconnue
Chénard, J., Olivier-d’Avignon, M., & Devault, A. (2023) · Travail social. · doi:10.7202/1113794ar
The Mental Health of Parents Caring for Technology-Dependent Children at Home: A Scoping Review
Sato, F., Yago, S., Katsumoto, S., Asami, Y., Suzuki, K., Matsuzaki, A., & Okamitsu, M. (2024) · Journal of Japan Academy of Nursing Science · doi:10.5630/jans.44.1005
La paternité dans le contexte de la condition médicale complexe d’un enfant
Chénard, J., Devault, A., & Olivier-d’Avignon, M. (2025) · Médecine Palliative · doi:10.1016/j.medpal.2025.05.003
Adissem, Z., McNutt, M. E., Quinn, N., Boutros, M., Liu, K., Kistler, I. S., Miller, A. R., & Chiang, T. (2025) · International Journal of Pediatric Otorhinolaryngology · doi:10.1016/j.ijporl.2025.112592
Elkourdi, F., & Asan, O. (2025) · doi:10.2196/preprints.82317
Nogueira, A. J., & Ribeiro, M. T. (2026) · Gezinstherapie Wereldwijd · doi:10.1007/s12440-026-00270-5
“De familiecontext heeft voorrang boven de context van de instelling/het ziekenhuis, zodat de meeste kinderen met een complexe chronische ziekte thuis bij hun familie wonen (Mesman et al. 2013).”
Elkourdi, F., & Asan, O. (2026) · JMIR Pediatrics and Parenting · doi:10.2196/82317
Metadata
- Authors
- Mesman, G. R., Kuo, D. Z., Carroll, J. L., & Ward, W. L.
- Corresponding author
- Mesman, Glenn R.
- Venue
- Journal of Pediatric Health Care
- Publisher
- Elsevier BV
- Published
- 2013-11
- Volume
- 27
- Issue
- 6
- Pages
- 451-459
- ISSN
- 0891-5245 (ISSN-L)
- OpenAlex
- W2162053478
- Cited by
- 78
- References
- 50
- Citations by year
- 2026: 2 · 2025: 6 · 2024: 6 · 2023: 6 · 2022: 11 · 2021: 11 · 2020: 10 · 2019: 6 · 2018: 4 · 2017: 2 · 2016: 5 · 2015: 6 · 2014: 3
- FWCI
- 6.90
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Health Care (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Ethics and Legal Issues in Pediatric Healthcare
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- technology dependence, children with medical complexity, family caregivers, quality of life, psychosocial impact, children with chronic illness
- MeSH terms
- Adolescent, Child, Child, Preschool, Colostomy, Emotions, Female, Home Care Services, Humans, Male, Parents, Patient Advocacy, Pediatric Nursing, Professional-Family Relations, Respiration, Artificial, Schools, Social Isolation, Social Support, Stress, Psychological, Children with Disabilities, Administration, Intravenous
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