The Health Care Experiences of the Preschool Child With Autism
Abstract
It is known that children with autism spectrum disorder (ASD) visit health care providers (HCPs) more frequently than typically developing peers, and mothers experience barriers in this process. The purpose of this interpretive phenomenological study was to gain a better understanding of a mother's experiences of taking her child with ASD to the HCP. Two themes related to the health care experience of the child surfaced from the study. These themes included feelings that HCPs do not "get" the complexity of caring for the child and marginalization of mothers by the HCP. The need for creation of child-specific profiles emerged from this study.
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Parents articulated that HCPs did not understand that their approach and delivery of healthcare services need to be adjusted to accommodate the child with autism.
“Parents articulated that HCPs did not understand that their approach and delivery of healthcare services need to be adjusted to accommodate the child with autism (Bultas, 2012).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Bultas, 2012
Parents in the Bultas (2012) study articulated the need not only to recognise the current medical issue under investigation at the time of the healthcare visit but also to understand the emotional and physical impact of autism on the entire family.
“Similarly, the parents in the Bultas (2012) study articulated the need not only to recognise the current medical issue under investigation at the time of the healthcare visit but also to understand the emotional and physical impact of autism on the entire family.”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Bultas, 2012
Parents articulated challenges in their descriptions of their direct experiences of health services or as suggestions for changes, based on their experiences.
“Parents articulated challenges in their descriptions of their direct experiences of health services or as suggestions for changes, based on their experiences (Breik et al., 2018; Brown & Brown, 2014; Bultas, 2012; Davignon et al., 2014; Russell & McCloskey, 2016; Strunk et al., 2014; Thomas et al., 2018).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Bultas, 2012
Past negative experiences impact on current and future use of services.
“It was described that past negative experiences impact on current and future use of services, illustrated by a parents' quote: '… but, ever since that time, if he sees a person with a white coat, I mean if we go to the paediatrician for just a well visit or if he's sick or something, I have to ask them before they go in the room 'can you please remove your coat?'. If they don't and they're like 'n”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Bultas, 2012
Parents described the need for a tailored, flexible and individualised approach during health visits.
“Parents described the need for a tailored, flexible (Muskat et al., 2015) and individualised approach during health visits (Brown & Brown, 2014; Bultas, 2012).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Bultas, 2012
Boredom resulted in a child displaying challenging behaviours in front of others in the waiting room.
“Boredom resulted in a child displaying challenging behaviours in front of others in the waiting room (Bultas, 2012).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Bultas, 2012
The waiting room especially was mentioned and the resources in the waiting room to occupy the child.
“The waiting room especially was mentioned and the resources in the waiting room to occupy the child.”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Bultas, 2012
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References 45 · Cited by 56
- Authors
- Bultas, M. W.
- Affiliations
- Saint Louis University (US)
- Corresponding author
- Bultas, Margaret W.
- ORCID
- Bultas, Margaret W.
- Venue
- Journal of Pediatric Nursing
- Publisher
- Elsevier BV
- Published
- 2012-10
- Volume
- 27
- Issue
- 5
- Pages
- 460-470
- ISSN
- 0882-5963 (ISSN-L)
- OpenAlex
- W2122797859
- Cited by
- 56
- References
- 45
- Citations by year
- 2026: 4 · 2025: 3 · 2024: 4 · 2023: 4 · 2022: 3 · 2021: 2 · 2020: 4 · 2019: 3 · 2018: 5 · 2017: 5 · 2016: 6 · 2015: 8 · 2014: 1 · 2013: 3 · 2012: 1
- FWCI
- 0.81
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Nursing (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Keywords
- autism spectrum disorder, preschool children, maternal experience, medical visits, barriers to care, mother-child relationship
- MeSH terms
- Adult, Child Development Disorders, Pervasive, Child, Preschool, Female, Health Services Needs and Demand, Humans, Interviews as Topic, Male, Mothers, Prevalence
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