Health care service provision for country people with developmental disability: an Australian perspective
Abstract
Priorities in the delivery of health care to Australian country people with developmental disability were explored through focus groups and interviews of key stakeholder groups from four rural/regional towns. Data were analysed for themes, which converged on lack of access to primary health care providers who lacked knowledge about and had poor attitudes towards developmental disability, discriminatory practices, the burden on support people, and communication difficulties between GPs and people with developmental disability. Potential strategies to address the apparent dissatisfaction with primary health care and GP concerns about working with this group were also evident in the data. In particular, open communication between stakeholders as a mechanism for collaborative problem solving and a strategy to avoid burn out for both support people and GPs is recommended. Facilitation of such communication can best occur through undergraduate training and participation of disability workers in activities of organisations that support GPs.
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Communication is a significant barrier for people with autism and/or intellectual disabilities.
“Communication is a significant barrier for people with autism and/or intellectual disabilities.29,38–42”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [29]
Some healthcare providers may lack understanding, knowledge, and awareness about how to support people with autism and intellectual disabilities, including how to make appropriate reasonable adjustments.
“Some healthcare providers may lack understanding, knowledge, and awareness about to how to support people with autism and intellectual disabilities,28–30 including how to make appropriate reasonable adjustments.29”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [29]
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Doherty, A. J., Atherton, H., Boland, P., Hastings, R., Hives, L., Hood, K., James-Jenkinson, L., Leavey, R., Randell, E., Reed, J., et al. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101030 · Cited by 244 · see citing works
- Authors
- Iacono, T., Humphreys, J., Davis, R., & Chandler, N.
- Affiliations
- Monash University (AU)
- Corresponding author
- Iacono, Teresa
- Venue
- Research in Developmental Disabilities
- Publisher
- Elsevier BV
- Published
- 2004-05
- Volume
- 25
- Issue
- 3
- Pages
- 265-284
- ISSN
- 0891-4222 (ISSN-L)
- OpenAlex
- W2050473063
- Cited by
- 47
- References
- 19
- Citations by year
- 2026: 1 · 2025: 2 · 2024: 2 · 2023: 2 · 2022: 3 · 2021: 1 · 2020: 1 · 2019: 2 · 2017: 2 · 2016: 4 · 2015: 2 · 2014: 5 · 2013: 2 · 2012: 2
- FWCI
- 1.02
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Research in Developmental Disabilities (publishedVersion)
- PubMed (publishedVersion)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Psychology › Social Psychology › Mental Health Treatment and Access
- Keywords
- developmental disabilities, rural health care, primary care access, general practitioners, health care discrimination, stakeholder perspectives, burnout
- MeSH terms
- Adult, Child, Developmental Disabilities, Communication, Female, Disabled Persons, Persons with Disabilities, Health Services Needs and Demand, Humans, Male, Physicians, Family, Prejudice, Primary Health Care, Rural Population, Rural Health Services, Health Care Surveys
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