Parental experiences after prenatal diagnosis of fetal abnormality

Hodgson, Jan; McClaren, Belinda J.

doi:10.1016/j.siny.2017.11.009

Cited by 75Prenatal Screening and DiagnosticsMaternal Mental Health During Pregnancy and PostpartumFamily and Disability Support Research

Parental experiences after prenatal diagnosis of fetal abnormality

Hodgson, Jan, McClaren, Belinda J.·2018·Seminars in Fetal and Neonatal Medicine

DOI 10.1016/j.siny.2017.11.009

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Abstract

For many pregnant women, prenatal testing is a routine component of contemporary pregnancy care. Receiving a prenatal diagnosis is frequently associated with intense feelings of shock and grief; the extent of which may be unrelated to the pregnancy gestation or the condition diagnosed. During this time of crisis, parents are often faced with important choices about their pregnancy. Levels of understanding and experiences of professional support throughout this time likely impact decisions that are made and how they are subsequently perceived. Despite considerable advances in prenatal testing technologies over the last 20 years there is a paucity of research examining parental experiences in-depth. Future advances such as prenatal exome sequencing will further increase the scope of prenatal testing and numbers of parents who receive a prenatal diagnosis. It is imperative that large-scale studies are performed to ensure that protocols are in place to adequately support couples at this time.

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Hodgson states that parents receiving a prenatal diagnosis of chromosomal anomaly frequently experience acute grief responses and strong emotions of guilt, anger, and loss.
“Hodgson states that “parents [receiving a prenatal diagnosis of chromosomal anomaly] frequently experience acute grief responses and strong emotions of guilt, anger, and loss” [8].”
From Psychological and social consequences of non-invasive prenatal testing (NIPT): a scoping review (2019) · cites this paper as [8]

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Additional file 2 of A qualitative study exploring the needs related to the health system in women with experience of pregnancy termination due to fetal anomalies in Iran
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Experiences of prenatal diagnosis and decision‐making about termination of pregnancy: A qualitative study
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Authors: Hodgson, J., & McClaren, B. J.
Affiliations: The University of Melbourne (AU)
Corresponding author: Hodgson, Jan
ORCID: Hodgson, Jan
McClaren, Belinda J.
Venue: Seminars in Fetal and Neonatal Medicine
Publisher: Elsevier BV
Published: 2018-04
Volume: 23
Issue: 2
Pages: 150-154
ISSN: 1744-165X (ISSN-L)
DOI: 10.1016/j.siny.2017.11.009
OpenAlex: W2771813415
Cited by: 75
References: 54
Citations by year: 2026: 5 · 2025: 9 · 2024: 8 · 2023: 12 · 2022: 13 · 2021: 9 · 2020: 14 · 2019: 4 · 2018: 1
FWCI: 5.67
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Seminars in Fetal and Neonatal Medicine (publishedVersion)
PubMed (publishedVersion)
Funders: Victorian Government's Operational Infrastructure Support program
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Prenatal Screening and Diagnostics
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Maternal Mental Health During Pregnancy and Postpartum
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords: prenatal diagnosis, fetal malformations, parental experiences, prenatal testing, pregnancy decision-making, professional support, prenatal exome sequencing, partner support
MeSH terms: Congenital Abnormalities, Psychosocial Support Systems, Decision Making, Female, Humans, Health Knowledge, Attitudes, Practice, Male, Parents, Patient Education as Topic, Pregnancy, Prenatal Diagnosis, Stress, Psychological

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Parental experiences after prenatal diagnosis of fetal abnormality

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