Cited by 115Patient-Provider Communication in HealthcareEmpathy and Medical EducationRheumatoid Arthritis Research and Therapies

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How do patients with rheumatic disease experience their relationship with their doctors?

Haugli, Liv, Strand, Elin, Finset, Arnstein·2004·Patient Education and Counseling

DOI 10.1016/s0738-3991(03)00023-5

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Abstract

This study is evaluated what patients with rheumatic disease perceive as important in their medical encounters. We interviewed two groups of patients: one with a well-defined inflammatory condition (rheumatoid arthritis (RA) or ankylosing spondylitis) (n = 12) and one with non-inflammatory widespread chronic pain such as fibromyalgia (n = 14). Both groups focused on their relationship to their doctor. Two central themes emerged as of importance: 'to be seen' and 'to be believed'. However, these themes had different connotations for the two groups. For the patients with inflammatory conditions, 'to be seen' implied being seen as an individual and not as a mere diagnosis, and 'to be believed' as far as pain and suffering were concerned. For patients with non-inflammatory chronic pain 'to be seen' and 'to be believed' primarily implied being able to obtain a useful somatic diagnosis. Practical implications of these findings are discussed.

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Authors: Haugli, L., Strand, E., & Finset, A.
Affiliations: Diakonhjemmet Hospital (NO)
Corresponding author: Haugli, Liv
ORCID: Strand, Elin
Finset, Arnstein
Venue: Patient Education and Counseling
Publisher: Elsevier BV
Published: 2004-02
Volume: 52
Issue: 2
Pages: 169-174
ISSN: 0738-3991 (ISSN-L)
DOI: 10.1016/s0738-3991(03)00023-5
OpenAlex: W2040509331
Cited by: 115
References: 21
Citations by year: 2026: 1 · 2025: 3 · 2024: 6 · 2023: 4 · 2022: 2 · 2021: 2 · 2020: 8 · 2019: 2 · 2018: 5 · 2017: 6 · 2016: 3 · 2015: 5 · 2014: 5 · 2013: 7 · 2012: 11
FWCI: 7.11
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Patient Education and Counseling (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
Health Sciences › Medicine › Psychiatry and Mental health › Empathy and Medical Education
Health Sciences › Medicine › Rheumatology › Rheumatoid Arthritis Research and Therapies
Keywords: rheumatic diseases, physician-patient relationship, rheumatoid arthritis, ankylosing spondylitis, fibromyalgia, chronic widespread pain, inflammatory diseases
MeSH terms: Adult, Aged, Aged, 80 and over, Attitude of Health Personnel, Attitude to Health, Chronic Disease, Communication, Female, Fibromyalgia, Humans, Individuality, Male, Middle Aged, Norway, Pain, Physician-Patient Relations, Surveys and Questionnaires, Rheumatic Diseases, Spondylitis, Ankylosing, Stress, Psychological, Focus Groups, Trust, Qualitative Research

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