CoChat
Sign Up
Cited by 438Epilepsy research and treatmentPharmacological Effects and Toxicity StudiesMental Health Treatment and Access

The DOI matches its Crossref record; 52 of the 52 references it cites were found in a registry or an index.

The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions

Fisher, Robert S, Vickrey, Barbara G, Gibson, Patricia, Hermann, Bruce, Penovich, Patricia, Scherer, Ann, Walker, Steven·2000·Epilepsy Research
DOI 10.1016/s0920-1211(00)00126-1
Open this paper in CoChat — free account

Abstract

This study surveyed the perceptions about and subjective experience of 1023 people with epilepsy in two community-based samples: one from a national postal survey; the other callers to the Epilepsy Foundation. Response to a mail survey was 49%. In comparison with US Census Bureau norms, respondents had received less education, were less likely to be employed or married, and came from lower income households. Complex partial seizures were the most prevalent seizure type, but a convulsion had occurred in 61%. Fifty percent of respondents reported incomplete control of their seizure disorder, although 25% of these had a seizure in the prior year. Thirteen percent had a longest inter-seizure interval of a year or greater, 37% of 3 months, 22% of 1 month, 10% of 1 week and 4% of 1 day. Respondents listed uncertainty and fear of having a seizure as the worst thing about having epilepsy. Lifestyle, school, driving, and employment limits were also listed as major problems. When asked to rank a list of potential problems, cognitive impairment was ranked highest. These data indicate that ongoing medical and psychosocial problems continue for those with epilepsy in the view of those questioned and their families, even in a sample where the majority report good control of their epilepsy.

Overview

Integrity signals

Registry

Crossref · 10.1016/s0920-1211(00)00126-1

Cites

52 of 52 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Verification

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Citations

Cites

Research works printed but not linked: 1

  1. Hermann, 1990, Psychosocial outcome following focal resections in childhood, J. Epilepsy, 3, 243

Cited by

Sorted by citations

See all 438

Related

See all

Metadata

Authors
Fisher, R. S., Vickrey, B. G., Gibson, P., Hermann, B., Penovich, P., Scherer, A., & Walker, S.
Affiliations
  • Barrow Neurological Institute (US)
  • University of California, Los Angeles (US)
  • University of Wisconsin–Madison (US)
  • Minnesota Epilepsy Group (US)
  • Epilepsy Foundation (US)
  • Hoechst Marion Roussel (United States) (US)
Corresponding author
Fisher, Robert S
ORCID
Venue
Epilepsy Research
Publisher
Elsevier BV
Published
2000-08
Volume
41
Issue
1
Pages
39-51
ISSN
0920-1211 (ISSN-L)
DOI
10.1016/s0920-1211(00)00126-1
OpenAlex
W2171266607
Cited by
438
References
52
Citations by year
2026: 10 · 2025: 9 · 2024: 15 · 2023: 21 · 2022: 17 · 2021: 25 · 2020: 23 · 2019: 19 · 2018: 13 · 2017: 15 · 2016: 19 · 2015: 27 · 2014: 23 · 2013: 23 · 2012: 17
FWCI
6.51
Type
journal article
Language
en
Open access
closed
Licence
www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations
  • Epilepsy Research (publishedVersion)
  • PubMed (publishedVersion)
Funders
Epilepsy Foundation
Topics
  • Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pharmacological Effects and Toxicity Studies
  • Health Sciences › Medicine › Psychiatry and Mental health › Mental Health Treatment and Access
Keywords
epilepsy, patient perspectives, subjective experience, seizure control, complex partial seizures, seizure frequency, fear of seizures, cognitive impairment, psychosocial problems
MeSH terms
Adolescent, Adult, Age Factors, Aged, Attitude to Health, Educational Status, Employment, Epilepsy, Female, Humans, Income, Male, Marriage, Middle Aged, Surveys and Questionnaires, Socioeconomic Factors, United States, Case-Control Studies, Epilepsy, Complex Partial, Databases as Topic

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review