The DOI matches its Crossref record; 52 of the 52 references it cites were found in a registry or an index.
The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions
Abstract
This study surveyed the perceptions about and subjective experience of 1023 people with epilepsy in two community-based samples: one from a national postal survey; the other callers to the Epilepsy Foundation. Response to a mail survey was 49%. In comparison with US Census Bureau norms, respondents had received less education, were less likely to be employed or married, and came from lower income households. Complex partial seizures were the most prevalent seizure type, but a convulsion had occurred in 61%. Fifty percent of respondents reported incomplete control of their seizure disorder, although 25% of these had a seizure in the prior year. Thirteen percent had a longest inter-seizure interval of a year or greater, 37% of 3 months, 22% of 1 month, 10% of 1 week and 4% of 1 day. Respondents listed uncertainty and fear of having a seizure as the worst thing about having epilepsy. Lifestyle, school, driving, and employment limits were also listed as major problems. When asked to rank a list of potential problems, cognitive impairment was ranked highest. These data indicate that ongoing medical and psychosocial problems continue for those with epilepsy in the view of those questioned and their families, even in a sample where the majority report good control of their epilepsy.
Overview
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“The initial diagnosis of epilepsy can cause adjustment disorders, refractory epilepsy can challenge coping resources, and epilepsy can give rise to specific anxieties about seizures, which may cause significant restrictions of patients' independence and social functioning [2-4].”
From A prospective service evaluation of acceptance and commitment therapy for patients with refractory epilepsy (2015) · cites this paper as [2]
Citations
Cites
Early Identification of Refractory Epilepsy
Kwan, P., & Brodie, M. J. (2000) · New England Journal of Medicine · doi:10.1056/nejm200002033420503 · Cited by 5,204
Proposal for Revised Clinical and Electroencephalographic Classification of Epileptic Seizures
(1981) · Epilepsia · doi:10.1111/j.1528-1157.1981.tb06159.x · Cited by 3,433
Incidence of Epilepsy and Unprovoked Seizures in Rochester, Minnesota: 1935–1984
Hauser, W. A., Annegers, J. F., & Kurland, L. T. (1993) · Epilepsia · doi:10.1111/j.1528-1157.1993.tb02586.x · Cited by 2,084
Quality of life of people with epilepsy: a European study
Baker, G. A., Jacoby, A., Buck, D., Stalgis, C., & Monnet, D. (1997) · Epilepsia · doi:10.1111/j.1528-1157.1997.tb01128.x · Cited by 847
Introduction to Survey Sampling
Kalton, G. (1983) · Sage eBooks · doi:10.4135/9781412984683 · Cited by 840
Long-Term Prognosis of Seizures with Onset in Childhood
Sillanpää, M. L., Jalava, M., Kaleva, O., & Shinnar, S. (1998) · New England Journal of Medicine · doi:10.1056/nejm199806113382402 · Cited by 725
Hauser, W. A., Annegers, J. F., & Rocca, W. A. (1996) · Mayo Clinic Proceedings · doi:10.4065/71.6.576 · Cited by 701
Jacoby, A., Baker, G. A., Steen, N., Potts, P., & Chadwick, D. W. (1996) · Epilepsia · doi:10.1111/j.1528-1157.1996.tb00006.x · Cited by 632
Epilepsy: Frequency, causes and consequences
Messenheimer, J. A. (1991) · Journal of Epilepsy · doi:10.1016/0896-6974(91)90095-z · Cited by 567
Epilepsy: Frequency Causes and Consequences
Hauser, W. A., & Hesdorffer, D. C. (1990) · Medical Entomology and Zoology · Cited by 555
Research works printed but not linked: 1
- Hermann, 1990, Psychosocial outcome following focal resections in childhood, J. Epilepsy, 3, 243
Cited by
Sorted by citations
Cook, M. J., O'Brien, T. J., Berkovic, S. F., Murphy, M. A., Morokoff, A. P., Fabinyi, G., D'Souza, W. J., Yerra, R., Archer, J. S., Litewka, L., et al. (2013) · The Lancet Neurology · doi:10.1016/s1474-4422(13)70075-9 · Cited by 881
The neurobiology of cognitive disorders in temporal lobe epilepsy
Bell, B. D., Lin, J. J., Seidenberg, M., & Hermann, B. P. (2011) · Nature Reviews Neurology · doi:10.1038/nrneurol.2011.3 · Cited by 482
Methods for artifact detection and removal from scalp EEG: A review
Islam, M. K., Rastegarnia, A., & Yang, Z. Q. (2016) · Neurophysiologie Clinique · doi:10.1016/j.neucli.2016.07.002 · Cited by 457
Seizure prediction – ready for a new era
Kuhlmann, L., Lehnertz, K., Richardson, M. P., Schelter, B., & Zaveri, H. P. (2018) · Nature Reviews Neurology · doi:10.1038/s41582-018-0055-2 · Cited by 450
Butler, C., & Zeman, A. Z. (2008) · Brain · doi:10.1093/brain/awn127 · Cited by 351
Metadata
- Authors
- Fisher, R. S., Vickrey, B. G., Gibson, P., Hermann, B., Penovich, P., Scherer, A., & Walker, S.
- Affiliations
- Barrow Neurological Institute (US)
- University of California, Los Angeles (US)
- University of Wisconsin–Madison (US)
- Minnesota Epilepsy Group (US)
- Epilepsy Foundation (US)
- Hoechst Marion Roussel (United States) (US)
- Corresponding author
- Fisher, Robert S
- Venue
- Epilepsy Research
- Publisher
- Elsevier BV
- Published
- 2000-08
- Volume
- 41
- Issue
- 1
- Pages
- 39-51
- ISSN
- 0920-1211 (ISSN-L)
- OpenAlex
- W2171266607
- Cited by
- 438
- References
- 52
- Citations by year
- 2026: 10 · 2025: 9 · 2024: 15 · 2023: 21 · 2022: 17 · 2021: 25 · 2020: 23 · 2019: 19 · 2018: 13 · 2017: 15 · 2016: 19 · 2015: 27 · 2014: 23 · 2013: 23 · 2012: 17
- FWCI
- 6.51
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Epilepsy Research (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Epilepsy Foundation
- Topics
- Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pharmacological Effects and Toxicity Studies
- Health Sciences › Medicine › Psychiatry and Mental health › Mental Health Treatment and Access
- Keywords
- epilepsy, patient perspectives, subjective experience, seizure control, complex partial seizures, seizure frequency, fear of seizures, cognitive impairment, psychosocial problems
- MeSH terms
- Adolescent, Adult, Age Factors, Aged, Attitude to Health, Educational Status, Employment, Epilepsy, Female, Humans, Income, Male, Marriage, Middle Aged, Surveys and Questionnaires, Socioeconomic Factors, United States, Case-Control Studies, Epilepsy, Complex Partial, Databases as Topic
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
